Board of Directors

Members of the Board of Directors of CurePSP accept the major responsibility of implementing the mission of the Foundation for PSP | CBD and Related Brain Diseases. Board members are actively involved in continually defining and redefining the mission and participating in strategic planning to review purposes, programs, priorities, funding needs, and levels of achievement.

Board members assure that the Board of Directors fulfills the governing responsibilities of the organization. It is responsible for its own operations including education, training and development of Board members and an annual evaluation of its own performance.

Board Officers

Chair
William R. McFarland
Dallas, Texas

Bill McFarland graduated with a Bachelor of Business Administration Degree in Finance from the University of Texas at Austin before attending the Stonier Graduate School of Banking. Currently, he heads up Cornerstone Advisors’ Conversion Services practice area as Managing Director. In his more than 35 years in the financial services industry, Bill has directed over 150 conversions and consolidations, managed numerous system selection engagements and negotiated core and ancillary system contracts with most major vendors. Bill also has extensive experience in operations management, information technology, project management, process improvement, profitability enhancement, organizational development, and mergers and acquisitions.

Bill is among the authors of The Cornerstone Report: Benchmarks & Best Practices for Mid-Size Banks, Cornerstone’s benchmarking and best practices publication, and he writes for GonzoBanker, Cornerstone's blog. He has been quoted and published in numerous industry periodicals, including Bank Director and CU Management, a publication of the Credit Union Executives Society. He is an experienced professional speaker.

Treasurer
George S. Jankiewicz, CPA, CFP, MBA
Towson, Maryland

Vice-Chair
Everett R. Cook
New York, New York

Everett R. Cook graduated from Dartmouth College and from the Tuck School of Business at Dartmouth. Mr. Cook is a Managing Director and Co-Founder of Pouschine Cook Capital Management, a private equity fund with more than $250 million of capital under management.  Prior to co-founding Pouschine Cook in 1998, Mr. Cook was a Managing Director of Ampton Investments, Inc., focusing on middle market private equity recapitalizations and acquisitions, and served as chairman and CEO of Bake Rite Foods, Inc., a portfolio company. Mr. Cook has extensive experience in financial and operations management across a broad spectrum of industries. Mr. Cook currently serves as Chairman of the Board of Drilltec and as a member of the board of SDI. He was previously a member of the board of MasterCraft Boats, Interplan and Latex Foam International.

Mr. Cook is also a board member of CurePSP where he is vice-chairman, a member of the Scientific Advisory Board of the Rainwater Charitable Foundation’s Tau Consortium, and the Cary Institute for Ecosystems Studies, all not-for-profit organizations.  He is a former board member of Eaglebrook School, the Dutchess Land Conservancy, and the Initiative to Educate Afghan Women.

 

 

Secretary
Brendan (Mike) Dixon
Pasadena, California

Mike is an attorney recently retired after a 45-year legal career. Born in 1945, Mike graduated from the University of Illinois in 1967 with a degree in Political Science, and with a law degree from University of California Berkeley School of Law in 1970.

After working briefly for the San Francisco law firm of Morrison & Foerster, Mike was called to active duty with the USAF.  He served as an Assistant Staff Judge Advocate at Edwards Air Force Base, CA, until 1975, when he began to serve in the Air Force Reserve, retiring as a Colonel in 1999. His final assignment was as the senior reserve officer assigned to the USAF Judge Advocate General’s Environmental Law group in Washington DC.

Mike joined Unocal Corporation in Los Angeles 1975, where he became a specialist in environmental law, retiring in 2005 holding the position of Deputy General Counsel. He later joined the law firm of Seebach & Seebach in Los Angeles, retiring in 2015.

Following a marriage of 41 years, Mike lost his first wife Joanne in January 2012 after suffering with PSP for over 10 years.  His first contact with CurePSP was with local support groups in the Los Angeles Area, and later as he and Joanne attended the National Conference in Baltimore in 2002.   Mike joined the CurePSP Board of Directors in 2013, was re-elected in 2016, and serves as Board Secretary, Chair of the Leadership Committee and as a member of the Major Gifts Committee.

Chair Emeritus
John T. Burhoe
Dallas, Texas

A graduate of Yale University with a major in History plus a Masters in Business from Pepperdine, John Burhoe is a former Naval Officer and executive for Continental and American Airlines. Though “retired” John is an active Partner in a small company and, since 2009, sits on the CurePSP National Board having served as Chairman and currently Chairman Emeritus and member of the Executive Committee.

John is a lifelong history buff speaking frequently on the economic and military history of the United States as well his experiences in the real world of caregiving for his late wife Lou who, for seven years, was under the cloud of progressive supranuclear palsy (PSP).

John has subsequently remarried and lives happily with his wife Carolyn in Dallas, TX.

 

 

Board Members

Amy Branch
New York, New York

Amy worked for over 28 years in the Banking, Financial Markets, and Insurance sectors chiefly as Director of Global Accounts with SunGard Data Systems and with Computer Sciences Corporation, as head of Business Development for the Disaster Recovery Division.  She has served on the board of several not-for-profit organizations, including Ronald McDonald House, Kids Helping Kids Art Auction (North Carolina). Amy holds a BS in Business Administration from the University of North Carolina – Chapel Hill.

“The opportunity to serve CurePSP is one I welcome. It is not often that time and circumstance permit giving back and making a contribution with a disease that hits close to home. I've had the opportunity to learn from my mother and stepfather; her with Alzheimer's Disease, him with PSP. Many of us are all too aware of what needs to happen to help others. It is my diligent pursuit to serve in a meaningful way to help fund scientific research aimed at finding effective treatments, and eventually cures, for these diseases. Every family’s journey with PSP, CBD and Neurodegenerative Diseases is similar and yet; so unique and distinct. Research now shows the strong probability of connection with my parents’ separate diseases and to others. The parallels offer hope from a diagnosis and therapeutic treatment perspective."

"For my parents and for the parents and spouses and families of others; I am honored to support the mission of CurePSP.”

 

Lawrence I. Golbe, MD
New Brunswick, New Jersey

Lawrence I. Golbe, MD is Professor of Neurology at Rutgers Robert Wood Johnson Medical School in New Brunswick, NJ.  He graduated from Brown University and NYU School of Medicine and did residency training at NYU/Bellevue before assuming his current position in 1983.  He was Acting Chair of his department from 2000 to 2003 and has been Program Director of its neurology residency since then.  His research is in the clinical genetics, clinimetrics and epidemiology of the parkinsonian disorders.  He led the clinical portion of the project that in 1997 identified the first known Mendelian mutation causing Parkinson’s disease in the gene for alpha-synuclein.  He devised the PSP Rating Scale, which since its publication in 2005 has become the standard clinical measure and treatment outcome marker for PSP world-wide.  He has a busy referral practice in movement disorders at Rutgers, where he runs the Atypical Parkinsonism Clinic and conducts multiple ongoing research studies. He has worked closely with CurePSP since 1992, presently as Director of Clinical Affairs and as chair of its Medical Advisory Board.

 

 

Stephen S. Goldman, PhD
Derwood, Maryland

Dr. Goldman received his B.S. in biology from Northeastern University, Boston, MA in 1964 and his M.S. (1966) and Ph.D. (1970) in physiology from the University of Illinois, Champaign, IL.  He then spent seven years at the NIH as a fellow studying energy and lipid metabolism in brain.

He retired from the National Heart, Lung, and Blood Institute (NHLBI) in 2010, which is one of the Institutes of the National Institutes of Health (NIH) located in Bethesda, MD, where he served as a program director for 25 years in NHLBI’s extramural vascular biology program. 

Prior to joining the NHLBI, he was a research professor at New York University School of Medicine for 13 years in the Departments of Ophthalmology and Physiology where his research focused on the development of cerebral blood flow tracers, spinal cord injury and retinal energy metabolism.

Dr. Goldman’s wife lost her courageous battle to PSP February, 2014 and he served as his wife’s caregiver up to the time of her passing. Dr. Stephen S. Goldman joined the Board of Directors of CURE PSP in 2013.  

 

Justin Shea
River Hills, Wisconsin

Justin is a Vice President at Hammes Partners, a private equity platform focused on the U.S. healthcare market and is primarily involved in the investment activities of the firm. Prior to joining Hammes, Justin worked with the Acquisition and Asset Management groups at Greenfield Partners, a global real estate investment firm. His responsibilities included acquisition and management activities in various types of real estate, including healthcare, hospitality, distressed debt, and land, with responsibility for over $500 million in equity invested.  Previously, he worked with Robert W. Baird & Co. in its Investment Banking Group. He earned a B.S. in Accountancy and a B.S. in Real Estate Finance from the University of Illinois, Urbana-Champaign. 

Justin has been involved with CurePSP since his father was diagnosed with the disease in 2009. He is currently a Member of the Board as well as the Finance Committee. 

 

Jeffrey S. Friedman, MD, PhD
San Diego, California

After receiving a Bachelor of Science in biology from MIT, Dr. Friedman earned an M.D. and Ph.D. in Cancer Biology with Irv Weissman at Stanford University. His thesis elucidated the mechanism of action of the immunosuppressive drugs cyclosporine A and FK506. 

Dr. Friedman went on to train in Pediatrics at Boston Children’s Hospital and was a fellow in Pediatric Hematology/Oncology at the Dana Farber Cancer Institute. From 2003-2012 Dr. Friedman was a Principal Investigator and Assistant Professor at the Scripps Research Institute (La Jolla, CA) studying red cell and bone marrow disorders.

Currently, Dr. Friedman oversees a mixed portfolio of private and public companies in the biotechnology and pharmaceutical space, with an emphasis on platform technologies, oncology, neurodegenerative disease, and genomics. In addition to serving as a Series A Director of Pediatric Bioscience on behalf of Tech Coast Angels, Dr. Friedman also serves on the board of Cypher Genomics, a startup that provides analysis of nextgen sequencing data. Dr. Friedman is on the board and is Chair of the Life Science committee for Tech Coast Angels in San Diego, one of the largest and most active angel Investment groups in the US.  He also is Chair of the Research Committee and a board member of CurePSP, a nationwide foundation funding research and providing education and support to patients with progressive supranuclear palsy (PSP) and to their families and caregivers.  Dr. Jeff Friedman is married to Dr. Jennifer Friedman, who is a neurologist with specialty training in movement disorders, practicing at Rady Children’s Hospital and UCSD.

 

Ileen McFarland

Dallas, Texas

Ileen Watson McFarland has been a PSP Support Group participant and support group leader for the past 7 years.  Through her husband’s five year journey with PSP she experienced the challenges presented as a carepartner and found respite through her involvement with the CurePSP Organization.

Over the past year Ileen has served as the Chair for the CurePSP Patient & Carepartner Advocacy Committee which has been instrumental in providing support to both carepartners and patients. This committee oversees patient and caregiver resources, volunteer recruitment, development and training, peer-organization collaborations, national conferences and international leadership and program development.   A major focus is on education for medical and healthcare professionals as well as raising public awareness and communications.

She has been active in the on-going fundraising campaign and sponsored events and created a memorial fund for friends and family to contribute donations to the CurePSP Organization. 

Compassion, understanding and the willingness to share experiences with people who are dealing with these diseases has provided them with hope when needed and support when all is lost.  This is Ileen’s primary focus.    

James G. McClellan, CPA/PFS
Sugar Land, Texas

Jim graduated from the University of Houston Bauer College of Business, class of 1979.  Jim began his CPA practice in 1983, James G. McClellan CPA, in Sugar Land, Texas. His 36 years of business includes the practice of public accounting, financial and estate planning, business consulting and as a state registered investment advisor in Texas, and is a Certified Financial Planner™ practitioner and Personal Financial Specialist (CPA/PFS).

Currently as President and Trustee of the Fred and Mabel R. Parks Foundation, the Foundation is active in making grants primarily in the area of higher education, medical research and services, and in support of social services for the disadvantaged.

Mr. McClellan currently serves on various other non-profit boards including Child Advocates of Fort Bend, Director and Past-President  and Blue Cure Foundation, Director and Treasurer.

 

 

Adam M. Murphy

Peachtree Corners, Georgia

Adam Murphy is veteran journalist with more than 18 years of television news experience. He earned his BA degree in Broadcast Journalism at the University of Georgia and began his news career as a reporter at WMAZ-TV in Macon, GA. Prior to coming to the Atlanta news market, he worked as a consumer reporter and anchor at WLTX-TV in Columbia, SC and as a reporter for an ESPN2 TV series. Adam has been the Consumer Investigative reporter at WGCL-TV in Atlanta since 2003. 

In 2016, Adam won his fourth career Emmy award for an investigative report into police profiling.  Adam also won two GABBY awards from the Georgia Association of Broadcasters for his investigative reporting into a home improvement scam targeting senior citizens and the mystery of a missing nuke off the coast of Tybee Island.

In 2011, Marist High School honored Adam with the Outstanding Young Alumnus Award for his excellent service to the community.   In his acceptance remarks, Adam made it clear that service to the community is so important to him… “I’ve always enjoyed helping people and I am thankful that my job gives me the opportunity to make a difference.”

In addition to his career in investigative reporting, in 2013, Adam founded Miracle for Mom, a 501(c)(3) non-profit foundation focused on raising awareness and funds to find a cure for all neurodegenerative diseases including Progressive Supranuclear Palsy (PSP). Adam’s mom, Janice, was diagnosed with this neurodegenerative brain disease that has no known cause, treatment or cure. The devastating effects of PSP impact the nerves that control motor skills, vision, speech and swallowing. Adam also serves on the national board of directors for CurePSP.

Yvette M. Bordelon, MD, PhD Los Angeles, California

National Spokesperson

Patricia C. Richardson
Los Angeles, California

Honorary & Emeritus Members

Honorary Chair
John C. Steele, MD, FRCP
Corvina, California

Chair Emeritus
Stephen G. Reich, MD
Baltimore, Maryland

Joanne E. Armstrong
Middletown, Delaware

Janet Edmunson, MEd
South Portland, Maine

Murray Goldstein, DO, MPH
Bethesda, Maryland

James E. Koehnlein
Timonium, Maryland

Transformational Benefactors

Charles D. Peebler, Jr. (1936-2009)
Indian Wells, California

Abe Pollin (1923-2009)
Bethesda, Maryland

Irene Pollin
Bethesda, Maryland

Jay C. Troxel (1917-2012)
Lakeland, Florida