A children’s book, explaining PSP and other disorders.

Categories: Support News
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  One of our community, Richie Morris, whose mother has PSP, is writing and publishing a book for children, to help explain the changes they observe taking place in their beloved family member. In Richie’s words;  “Every summer for a couple of weeks my mother, father, brother and I (including our closest friends), vacationed at …

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An article by one of our community

Categories: Support News

One of the CurePSP community has written this beautiful article on the intricacies of finding love again.  Article by Joanna McFarland Owusu. Posted on Bluntmoms.com, Dec. 2016 With Christmas almost upon us, I find myself ruminating on a moment last October at the State Fair of Texas, of all places. Every year we make an …

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13-Year-Old Abby Sayre Starts CBD Fundraiser In Memory Of Grandmother Mary Kay

Categories: News

Abby Sayre has started a fundraiser on behalf of her grandmother, Mary Kay Withrow. Mary Kay was diagnosed with Corticobasal Degeneration (CBD). CBD is a neurodegenerative disease that has no known cause, treatment or cure. It affects nerve cells that control walking, balance, mobility, vision, speech and swallowing. She required assistance in every area of her …

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President Obama Signs 21st Century Cures Act

Categories: News

It is official! The 21st Century Cures Act has been signed into law by President Barack Obama.    “We’re tackling cancer, brain disease, substance abuse disorders and more, and none of this work would have been possible without bipartisan cooperation,” Obama said during a signing ceremony at the White House.

NINDS/NIH/NIA Funding Opportunity Announcement

Categories: Research News

NINDS/NIH/NIA Funding Opportunity Announcement to support the genetic discovery in PSP, CBD, and related disorders. There will be a pre-application informational webinar on December 20, 2016 from 11:00-1:00 pm EDT. The webinar will provide a brief introduction to the FOA, and highlight key components and requirements of the different phases of this grant mechanism.    …

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Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients

Categories: Research News

Ask a Doctor: Dr. Brent Bluett on PSP by Sylvia Rupani-Smith Very few patients with a rare brain disease such as Progressive Supranuclear Palsy, or PSP, have the liberty of choosing a doctor. It’s hard to find a doctor who even knows what the condition is, much less find a specialist for it. When you …

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2016 CurePSP International Research Symposium

Categories: Research News

2016 CurePSP International Research Symposium             October 27, Jersey City, NJ — Starting with a networking session on the evening of Thursday, October 27, and following with a full day of speakers on Friday the 28th, the 2016 International Research Symposium has surpassed all expectations. A record 148 registrants, with some coming from countries as …

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PSP on the front page of the New York Times!

Categories: News
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Sylvia Rupani-Smith, long-time friend of CurePSP and strong advocate for the cause, brings PSP awareness to the mainstream media with her article about her mother’s diagnosis and journey with PSP being published in the New York Times, October 20, 2016 See the full article below.    The Falls Were Bad. The Diagnosis Was Worse. “She …

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CurePSP Women’s Luncheon, New York, NY

Categories: News

In honor of Women and Prime of Life Brain Disease Research, CurePSP recently brought together the most eminent investigators and accomplished women to discuss the latest developments in neurodegenerative research. Moderated by Tal Nuriel PhD, the lunch took place in New York and saw presentations from Alison Goate, PhD, Mo Liu, PhD, Sally Temple, PhD, …

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