A children’s book, explaining PSP and other disorders.

Categories: Support News
richie-morris-mum
  One of our community, Richie Morris, whose mother has PSP, is writing and publishing a book for children, to help explain the changes they observe taking place in their beloved family member. In Richie’s words;  “Every summer for a couple of weeks my mother, father, brother and I (including our closest friends), vacationed at …

Read More

An article by one of our community

Categories: Support News

One of the CurePSP community has written this beautiful article on the intricacies of finding love again.  Article by Joanna McFarland Owusu. Posted on Bluntmoms.com, Dec. 2016 With Christmas almost upon us, I find myself ruminating on a moment last October at the State Fair of Texas, of all places. Every year we make an …

Read More

New York Opens First Support Group!

Categories: Support News, Volunteer

We are very happy to announce our first support group in New York!   Our New York Support Group Leader Training sessions in August were a great success, and we can happily announce the following support group for PSP patients and carepartners, in Manhattan, NY. The support group meeting will be held; October 11th, at …

Read More

The role of caregiver; Kathryn Leigh Scott

Categories: Support News

Originally printed in The Timberjay. By Jodi Summit. Growing up on a small family farm outside of Minneapolis, Kathryn Leigh Scott loved to write and put on plays, often casting her little brother, Orlyn Kringstad of Tower, in roles that required him to don wedding dresses. The children, Orlyn explained while introducing his sister to …

Read More

CurePSP receives second matching grant from the Light Of Day Foundation

Categories: News, Support News

Leading worldwide music tour benefits neurodegeneration causes   New York, NY (August 17, 2016) — CurePSP, the leading nonprofit advocacy organization focused on prime of life neurodegenerative diseases, has received a matching grant of $80,000 from the Light Of Day Foundation that will help to fund the foundation’s programs in patient and family care, education …

Read More

Jennings Kroemer Putt For PSP

Categories: Support News, Volunteer

On Saturday July 30th the Jennings and Kroemer families hosted the 11th annual Putt For PSP, in Syracuse Indiana. The day was a huge success, and CurePSP’s very own Director of Events Jaclyn Zendrian attended. “I want to go again next year,” said Jaclyn, ‘everyone was really nice and the location was spectacular.” The money …

Read More