Past Events by Our Amazing Community
In Memory of Gretchen, The Pacific Crest Trail.
On August 20 Susan Muck and companions Penny Palmer and Shelley Johns began a trek of their lifetimes as they walked half of the 460 miles of the Oregon section of the Pacific Crest Trail. Their 220-mile journey took in high desert, Crater Lake National Park, volcanic landscapes and the beautiful forests and lakes of the Sky Lakes Wilderness area. But they didn't do it for themselves.
They walked to remember Susan’s mother Gretchen Daigle, who passed away in 2014 after a brave battle with PSP, and for everyone else affected by PSP. “This is a lifelong dream for each of us,” said Susan, “and we know, having seen the impacts of a disease like PSP, that life and the plans we make can change quickly.”
Putt For PSP
The 11th Annual Jennings Kroemer Putt For PSP took place on Saturday July 30. The day was a huge success, and CurePSP's very own Director of Events Jaclyn Zendrian attended. "I want to go again next year," said Jaclyn, 'everyone was really nice and the location was spectacular."
Village of Clarkston Vendor and Craft Fair
Philip J. Knapp passed away from PSP on February 10, 2016. Join his granddaughter, Carrie Sieck, along with friends, family, business owners, vendors and artists alike in the Clarkston, Waterford and White Lake area of Michigan to help raise money and awareness for Progressive Supranuclear Palsy at the Vendor & Craft Fair on Saturday, June 18, 2016. Enjoy over 60 different crafters and vendors, as well as a 50/50 raffle and a silent raffle (all proceeds donated to CurePSP).
Ride to Cure PSP
In loving memory of Sue Passe, wife, mother, grandmother, sister, friend, who so passionately loved motorcycling through Washington. This ride takes in 112 miles of Washington State hills, plains, mountains, rivers, and long windy roads.
Left, Right and Center Game Night
600 people gathered to show their support for Theresa Twellman at the Left, Right and Center Game Night organized by Laura Young, Chris Luzecky, Kathy Gangloff, and Cory Barry. Everybody had a great time, the stadium was packed, and an incredible $53,000 was raised by the local community for neurodegenerative disease research and awareness.
Nico Howson's father Dickie Howson died in February 2015 after a long struggle with PSP. On June 2-5, 2016, Nico and four of his sturdier friends rode bicycles the length of Michigan's Lower Penninsula from Ann Arbor to Mackinac Island, about 350 miles, to create awareness about PSP and to raise money for the Dickie Howson PSP Research Fund.
The proceeds of the ride were directed to the CurePSP Genetics Consortium, a world's first groundbreaking genetic sequencing project. Dickie's Ride for PSP started with a goal of $25,000, but a month from the start of the ride easily exceeded that, and Nico managed to raise not only awareness of PSP, but an incredible $43,000 for the cause.
Linked Jewelry – with Designs by Debra Feldman to Benefit CurePSP
I created Linked Jewelry after losing my husband, Samuel Feldman, to PSP. It was this experience with love and loss that taught me that relationships are the cornerstone of life. Each Linked piece is as meaningful as it is beautiful. Please visit our website to see the full collection. With every purchase, 10% will be donated to CurePSP in support of their vital programs to help educate families and healthcare providers, as well as research efforts to find the cure.
Past Event - 12th Annual CurePSP Awareness and Memorial Walk
Marco Island, Florida
Thanks to everyone who participated in and supported the 12th Annual CurePSP Awareness & Memorial Walk. The event was a great success, raising over $25,000 for CurePSP programs and services.
Past Event- Rhythm of Dreams presents "A Tribute to R.D. Burman" in memory of Vandan Nayak
“A Tribute to RD Burman” presented by Rhythm of Dreams musical evening is being held in honor and memorandum of the late Shri VandanBhai Nayak, a well-respected singer, musician and teacher of the arts here in Houston, Texas. He fell victim to the terminal disease known as PSP, and left us in January 2014. Since then, his respected daughter and well-known singer, Kashmira Nayak, as well as son and talented musician, Rishabh Nayak have been searching for an opportunity to pay homage to their father whilst raising awareness and funds towards this deadly disease – in hopes for a cure. Their search was fulfilled by Hemang Thakkar of Rhythm of Dreams when he approached the two siblings for this special event. This musical evening will not only pay homage to the legend, RD Burman and honor the late Shri VandanBhai Nayak, it will, most importantly, help to raise awareness and funds towards a cause that can save lives worldwide.
Past Event- Boot, Scoot & Boogie
On April 30, 2016 Team Boot, Scoot and Boogie will ran the Novo Nordisk 5K in Long Branch NJ, to raise awareness for PSP (Progressive Supranuclear Palsy) in honor of Pierre Gervais, who was diagnosed in September 2014, with this rare neurodegenerative disease. A remarkable $40,000 was raised. From left Dan Stevens, Sophie Gervais Stevens, Jocelyne Gervais, Leigh Gervais Genkinger, Kim Gervais with Eric Gervais behind her.
Past Event - Mt. Kilimanjaro Climb for PSP
Tanzania and Kenya
Special thanks to Shabbir Chandabhai for the climb up Mt. Kilimanjaro in honor of Shabbir's father who is battling PSP. We appreciate your efforts and support to make a difference in the fight against PSP.
Past Event - Painting with a Purpose
West Seneca, NY
Special thanks to Karen Layman and Alyssa Perry for hosting "Painting with a Purpose." This event helped create awareness of PSP in support of Alyssa's father, who was diagnosed in 2010. CurePSP greatly appreciates your support.
Past Event - Urbanathalon Sprint
Corona, New York
Congratulations to Team Shak (Randy and Kevin Subramany) for their participation in the Urbanathalon Sprint in memory of their mother, Shakeela Subramany, who passed away on January 5, 2014. Thank you for supporting CurePSP!
Past Event - NYC Marathon
New York City, NY
Congratulations to James Anastas for running in the NYC Marathon to raise funds for CurePSP. James participated in the event in honor of his mother, Judy, a breast cancer survivor who was diagnosed with PSP in 2013. Thank you James for your support!
Past Event - Columbus Half Marathon
Congratulations to Michael Dickson, who ran the Columbus Half Marathon on October 18, 2015, in honor of his mother, Beth Dickson who is currently fighting PSP. Michael, we greatly appreciate your support and raising $310 (with a goal of $500) for CurePSP.
Past Event - Ocotillo Rain and Thunder Bluegrass Band
Tohono Chul Park Concert, Tucson AZ
Special thanks to Jeff Collins and David Polston for donating their band's October proceeds to CurePSP. David’s beautiful wife, Luan, lost her battle with PSP in 2012. We appreciate your support and all your efforts.
Past Event - Coast-to-Coast Charity Bicycle Ride
Congratulations to Robert Wolfe on completing his coast-to-coast bike ride to raise awareness and funds in memory of his mother, who lost her battle with PSP in 1996. Thank you Robert for supporting CurePSP by raising $2,520 to date, while honoring your mother.
Past Event - Miracle for Mom: The Pizza and Beer Benefit
Special thanks to Adam Murphy for organizing the Pizza and Beer Benefit at Eventide Brewing. We appreciate all you do to support CurePSP's research efforts and find a cure for PSP.
Past Event - Continental Divide Trail Hike
April 15, 2015 through October 7, 2015
Congratulations to Patrick Dixon on his six-month adventure, hiking the 3,100 mile Continental Divide of North America. Pat did the hike in memory of his mother, Kathleen, who lost her battle with PSP in 2013. Thanks for all your support!
Past Event - Little Silver 5K
Little Silver, NJ
Special thanks to Team Boot, Scoot & Boogie who planned to run in the Little Silver 5K. Unfortunately, the weather prevented the team from participating. CurePSP greatly appreciates all your past efforts to create awareness about the disease and support our programs by raising $2,865,
Past Event - Walk from Katoomba to Jenolan Caves
New South Wales, Australia
Special thanks to Tish Kerry and her family for undertaking the rugged three-day walk in the Blue Mountains region of New South Wales, Australia. Tish’s father, Thomas O’Reilly, lost his battle with PSP this year, and this walk was done to raise awareness and funds for CurePSP. Thank you Tish for raising $935!
Past Event - Montour Trail Half Marathon
Special thanks to Susan McLaughlin for running in the Montour Trail Half Marathon to honor the memory of her father, who lost his battle with PSP in 2004. Thank you Susan for all your efforts and support!
Past Event - 3rd Annual Robert Peoples 5K Run for Hope
Special thanks to Rebecca Host and family for sponsoring the Annual Robert Peoples 5K Run for Hope and One Mile Fun Run/Walk. They have continue to raise awareness and funds for CurePSP in memory of Robert who lost his fight with PSP in August 2012. Thanks for your support!
Past Event - Music on the River
Special thanks to Wanda, Marty, their family and friends for promoting CurePSP at Music on the River in honor of Marty, a local Amery physician who has been diagnosed with PSP. CurePSP appreciates all your efforts and support!
Past Event - 10th Annual Putt for PSP
Special thanks to the Jennings and Kroemer families for all their work to make the golf outings fun-filled events for the last 10 years. CurePSP greatly appreciates their efforts to promote public awareness and support to families affected by neurodegenerative diseases. Thank you for your support!
Past Event - 1st Annual Southern Illinois CurePSP 5K Run for Hope
Special thanks to JoElla Rea for hosting the 1st Annual Southern Illinois CurePSP 5K Run for Hope in memory of Mr. Charles White. CurePSP appreciates your support!
Past Event – 4th Annual Marilyn’s Spring Stroll
Belmont, New York
Special thanks to Donna Etergineoso, her family and friends for hosting the 4th Annual Marilyn’s Spring Stroll in memory of Donna's mother Marilyn Boccafola. Thank you for all your support!
Past Event - 11th Annual CurePSP Awareness & Memorial Walk
Marco Island, Florida
Special thanks to Cindy MacDonald, Mitch Kanefsky, Christina Dean, Southwest/Naples Florida Support Group, and many other volunteers who contributed to the great success of the 11th Annual CurePSP Awareness & Memorial Walk. We are happy to report that more than $36,000 has been raised and we are expecting additional donations over the next few weeks. The year’s event was the most successful walk to date with attendance of more than 300 people. CurePSP is most grateful to everyone who helped to make this a successful and memorable event.
Past Event - 5th Annual 5K/15K Relay Race
Special thanks to Renee Sterling (formerly Renee Wilder) for hosting the 5th Annual 5K/15K relay race in Enterprise, FL where 175 runners and walkers enjoyed a fun-filled time raising over $1300 towards the mission of CurePSP. Thank you Renee!
Past Event - Frozen Bonsai Half Marathon
New York, NY
Special thanks to Joseph Dinnen for his participation in the Frozen Bonsai Half Marathon in honor of his grandmother, Wallie Simmons, who is currently battling PSP. Joseph raised $1,500 towards the mission of CurePSP. Great job Joseph!
Past Event - New York City Marathon
New York, NY
Special thanks to Kimberly Feinman for her participation in the New York City marathon in honor of her father-in-law, Myron, who is currently battling PSP. Kimberly raised over $2,000 towards the mission of CurePSP. Great job Kimberly!
Past Event - Zumba for Hope
Melanie Garcia along with Titan Fitness of Hewitt, TX had a fantastic turnout for the Zumba for Hope fundraising event in memory of her mother, Judy Stafford. She was embraced with an outpouring of support and encouragement, as they danced through a Zumba class. More than $700 was raised to support the programs and services of CurePSP. Thank you to all who participated, and to those who donated their time and energy for this event.
Past Event - Diehard Run Charity Bike Ride
Green Bay, WI
Special thanks to Linda Lipsky, Debbie Gerondale, and everyone who participated in the Diehard Run Charity Bike Ride. The event was a great success bringing more awareness to PSP and also raising over $1,200.
Past Event - CBGD T-Shirt Fundraiser
Special thanks go out to Julie Price for designing and hosting this t-shirt fundraiser for those affected by CBGD. Julie was able to raise over $1,300 through sales and donations. Thank you Julie!
Past Event - Akron Marathon
Special thank you to Leslie Christensen for her support of CurePSP raising $2,000 to support of our programs and services in memory of her mother Ellen; we sincerely appreciate all of your efforts.
Past Event - Civilian Military Combine
Special thanks go out to Randy and Kevin Subramany along with “Team Shak” for their participation in the Civilian Military Combine raising over $5,600 to support the programs and services of CurePSP. Great job!
Past Event - Augusta Half Ironman Marathon
Special thank you to Todd Fisher for his support of CurePSP in raising over $4,300 to support of our programs and services in memory of his mother MaryJo Fisher-Russell. We sincerely appreciate all of your efforts.