Support Groups: In Person
CurePSP encourages and organizes activities that foster face-to-face communication, exchange, and interaction of comfort and mutual benefit to group members who are caregivers, family members, friends, and persons with PSP, CBD, MSA and related diseases.
We are continually seeking motivated individuals to start and facilitate support groups in their local area. Please consider sharing some of your time with others by being a support group leader. If you are interested, please send an email Trish Caruana, VP of Programs and Education, at caruana@curepsp.org.
To find a face-to-face support group in your area, please select the appropriate state/country below.
AL | AZ | CA | CO | FL | GA | IL | KY | LA | MA | MD | ME | NJ | NY | OH | OR | PA | SC | TX | UT | VA | WA | WY | Canada | Australia | Other
Montgomery
Information: PSP support group for caregivers only
Location: Frazer United Methodist Church (Rm. 3104), 6000 Atlanta Hwy., Montgomery, AL 36117
Meeting Time(s): Contact facilitator for more info
Facilitator: Ginger Darby, 334-201-1122, ginger_pridgen@yahoo.com
Glendale
Information: For anyone affected directly or indirectly by PSP
Location: Banner Thunderbird Medical Center, 5555 West Thunderbird Road, Glendale, AZ, Conference Room 1
Meeting Time(s): Dates vary - contact facilitator for info
Facilitator: Tito Sebastiani, 602-920-4632, tsebastiani@cox.net
Tempe
Information: For anyone affected directly or indirectly by PSP
Location: Pyle Adult Recreation Center, 655 East Southern Avenue, Tempe, AZ 85282, Yuma Room
Meeting Time(s): October 2, 2010 from 1:30pm - 3:30pm, future dates TBD - contact facilitator for info
Directions: The Center is directly across from Walmart, Yuma is the first room on the left down the hall. Attendees should park in back of the building (Southwest side) to be closest to room
Facilitator: Ann Ludwig, 602-318-0895, aludwig@asu.edu
Northern/San Mateo
Information: Neurodegenerative movement disorder group (PSP, CBD, MSA, etc.) - caregivers only. Contact facilitator for more info.
Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404
Meeting Time(s): Every six weeks (call or e-mail for schedule) from 5:00pm - 7:00pm
Facilitator: Robin Riddle, 650-814-0848, rriddle@stanfordalumni.org
Los Angeles - Thousand Oaks (North of LA)
Information: For
patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: 672 Rosario Drive, Thousand Oaks, CA 91362
Meeting Time(s): One Saturday every quarter from 1:00pm - 4:00pm
Facilitator: Kathy Schwaiger, 805-496-7018, ksquig2@yahoo.com
__________Ceri Williams, medianet@earthlink.net
Los Angeles - UCLA
Information: For
patients/caregivers living with PSP, CBD, MSA, OPCA, SND, SDS
Location: UCLA Campus, 757 Westwood Plaza, Los Angeles, CA 90095, (room may vary)
Meeting Time(s): 1st Friday of every month from 1:00pm
- 3:00pm
Facilitator: Loretta Mazorra, RN, MN, MA, 310-772-0064, anlom@sbcglobal.net
San Diego
Information: For
patients and their caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: UCSD Thornton Hospital, 9300
Campus Point Drive, La Jolla, CA 92037, SDG&E Room (3rd floor)
Meeting Time(s): 3rd Thursday of every month
from 1:00pm - 2:30pm
Facilitators: John Jenkins, 619-787-2760, jenkins356@sbcglobal.net
San Diego
Information: For
ONLY caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: Holy Angels Byzantine Catholic Church, 2235 Galahad Road, San Diego, CA 92123
Meeting Time(s): Every 6 weeks from 11:00am - 1:00pm - contact facilitator for more info
Facilitators: Patricia Hagan, 619-223-1645, pkhagan@cox.net
Denver/Englewood
Information:
Neurodegenerative movement disorder group (MSA, PSP,
CBD)
Location: InnovAge Johnson Adult Day Program, 3444 S. Emerson Street, Englewood, CO 80113
Meeting Time(s): 2nd Friday of each month from 10:00am - 12:00pm (patients and caregivers together) and 4th Friday of each month from 10:00am - 12:00pm (caregivers only)
Facilitators: Helenn
Franzgrote, 303-789-9900, jhfranzgrote@comcast.net
Johnstown/Loveland
Information:
Neurodegenerative movement disorder group (MSA, PSP,
CBD)
Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528
Meeting Time(s): 1st Friday of each
month from 1:00pm - 3:00pm (no Dec. or Jan. meetings)
Facilitators: Ruth Fletcher-Carter, 970-532-2681, chantillylace3@usa.net
Southwest/Naples
Information: For
patients/caregivers/families affected by PSP, CBD, MSA and related
diseases
Location: Manor Care at Lely Palms, 6135
Rattlesnake Hammock Road, Naples, FL 34113
Meeting Time(s):
2nd Saturday of each month from 2:00pm -
3:30pm
Facilitator: Cindy MacDonald, 239-353-3960 or
239-404-4429, hotrdh@hotmail.com
Southeast/Deerfield
Beach
Information: For
patients/caregivers/families affected by PSP, CBD, MSA and related
diseases
Location: North Broward Medical Center, 201 E.
Sample Road, Deerfield Beach, FL 33064, 1st Floor, Classrooms 7&8 (for
directions only: 954-941-8300)
Meeting Time(s): Contact facilitator for more info
Facilitator: Paul
Freeman, 305-970-0805, freemanph@aol.com
Cape Coral
Information: For
patients/caregivers/families affected by PSP or Parkinson’s
Plus
Location: Hope Facility, 2430 Diplomat Parkway, Cape
Coral, FL
Meeting Time(s): 3rd Thursday of each month
from 1:30pm - 2:30pm
Facilitator: Sylvia Massey,
239-772-7049, scmassey@comcast.net
Atlanta
Information: For
patients/caregivers living with atypical parkinsonism’s, PSP and
CBD
Location: Wesley Woods Health Center, 1841 Clifton Rd,
Atlanta, GA 30329, 3rd Floor Conference Room
Meeting
Time(s): 2nd Saturday of each month (except May) from 10:00am –
11:30am
Facilitator: Lynn Ross, 404-728-6300, slross@emory.edu
Chicagoland
Information: For
PSP/CBD patients
Location: The Abington of Glenview Library,
3901 Glenview Road, Glenview, IL 60025
Meeting Time(s):
First Saturday of every other month from 1:30pm -
3:30pm
Facilitator: Darren Loveless, 847-729-0000, darrenloveless@yahoo.com
Louisville
Information: Atypical parkinsonian disorders support group for patients/caregivers
Location: PSCKY Office, Middletown, 315 Townepark Circle, Suite 100
Meeting Time(s): 2nd Tuesday of every month, 12:00pm - 2:00pm
Facilitator: Dan Heins, 502-216-4563, danheins@gmail.com
__________Jason Starnes, 502-254-3388, support@pscky.org
New Orleans
Information: Patients/families/caregivers with PSP/CBD/MSA & related diseases
Location: Little Farms United Church of Christ, 135 Sauve Road, River Ridge, LA 70123
Meeting Time(s): 3rd Thursday of each
month from 7:00pm - 8:00pm
Facilitators: Shiela Grose, 504-737-2614, groseshiela@bellsouth.net
Falmouth
Information: For
patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: Maine Parkinson’s I&R
Center, 5 Bucknam Road, Falmouth, ME
Meeting
Time(s): One Sunday per quarter from 1:00pm - 3:00pm.
Contact Facilitator for info.
Facilitators: Janet Edmunson,
207-799-4963, janet@janetedmunson.com
___________Barbi Johnson, 207-633-0881, rockyledges@yahoo.com
Anne Arundel
County
Information: For patients/caregivers
affected by PSP, CBD and other neurodegenerative
diseases
Location: Kris Leigh Assisted Living Facility, 831
Ritchie Highway, Severna Park, MD
Meeting
Time(s): Every 3rd Saturday of the month from 1:00pm –
3:00pm (contact facilitators for more info)
Facilitators: Ileen Watson, 410-271-1818, ileenw@verizon.net
Baltimore City and County
Information: For caregivers affected by Parkinson's disease, PSP, CBD, MSA and other neurodegenerative
diseases
Location: Johns Hopkins at Greenspring Station, 10753 Falls Road, Foxleigh Building, Room 101, Lutherville, MD 21093
Meeting
Time(s): 1st Thursday of every month from 10am - 12pm
Facilitator: Becky Dunlop, RN, 410-955-8795, rdunlop@jhmi.edu
Bel Air
Information: For caregivers affected by PSP, CBD, MSA and other neurodegenerative
diseases
Location: William McFaul Activities Center, 525 West McPhail Road, Bel Air, MD 21014
Meeting
Time(s): 4th Thursday of every month from 2pm - 4pm
Facilitator: Becky Dunlop, RN, 410-955-8795, rdunlop@jhmi.edu
Boston
Information: For
patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: Boston University Medical Center, 88 East Newton Street, 2nd Floor, Conference Room C
Meeting Time(s): Quarterly. Contact facilitator for
info.
Facilitator: Melissa Diggin, 339-927-5468, m_diggin@hotmail.com
Braintree
Information: For
patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: Braintree Rehabilitation Hospital, 250 Pond Street, Braintree, MA, 2nd Floor Conference Room
Meeting Time(s): One Wednesday per quarter from 2:30pm - 4:00pm. Contact Facilitator for info.
Facilitator: Allyson Gormley, 617-638-7747, allyson.gormley@bmc.org
Cape May Court House
Information: For caregivers dealing with Parkinson's disease and other atypical Parkinsonian disorders
Location:
Cape Regional Medical Center, 2 Stone Harbor Blvd, Cape May Court House, New Jersey (exit 10 off the Garden State Parkway), Maruchi Room (first floor of medical center)
Meeting Time(s): 1st Tuesday of every month, 1:00pm - 3:00pm
Facilitator: Bonnie Kratzer, 609-463-4043, jkratzer@caperegional.com
NYC Metro Area
Information: For
patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: North Shore University
Hospital, Tower Conference Rooms, First Floor, 300 Community Drive, Manhasset,
NY 11030
Meeting Time(s): Quarterly on the 3rd Saturday of the month (March, June, Sept., Dec.) from
1:30pm - 3:30pm
Facilitators: Kara Holisher, 516-932-1696,
kbhx2@optonline.net
___________Harriet Feiner, 718-224-4654, hfeiner@nyc.rr.com
Manhattan
Information: For all those affected by MSA
Location: 545 First Avenue and 30th Streets, Greenberg Hall, Room 5N (directly across from the main entrance to the NYU Medical Center)
Meeting Time(s): Every 3rd Saturday of the month from 2:00pm – 4:30pm
Facilitators: Michael DeMarsico, 347-268-9817, mickpub@hotmail.com
Berea
Information: For
patients/families/friends/caregivers affected by PSP, CBD, MSA,
Shy-Drager+Lewy Bodies
Location: Southwest General Hospital,
18697 Bagley Road, Middleburg Heights, OH, Room 15C (basement
level)
Meeting Time(s): 2nd Sunday of each month from
1:00pm - 3:00pm, contact facilitator for more info
Directions/Parking: Hospital is easy
accessed from I-480, I-71 and the Ohio Turnpike - free parking rear
garage of hospital.
Facilitator: Pat Beekman,
440-234-0007, mombeekman@yahoo.com
Portland
Information: For patients of PSP, CBD, and MSA, as well as their families and caregivers
Location: OHSU River Side Bldg, Room 12181, 3303 SW Bond St., Portland, OR 97239
Meeting Time(s): 1st Thursday of each month at 5:30pm
Facilitator:
Tod Lundy, 503-442-2446, todlundy@gmail.com
North Portland
Information: For patients of PSP, CBD, and MSA, as well as their families and caregivers
Location: Marquis Care Center, 319 NE Russet Street, Portland, OR
Meeting Time(s): 3rd Saturday of each month from 10:00am - 12:00pm
Facilitator:
Vicki Blacken, 503-651-3633, vblacken@web-ster.com
Philadelphia
Information: For persons
with movement disorders
Location: Pennsylvania Hospital, 259 South 8th Street, Philadelphia, PA 19107, Hall Mercer Conference Room
Meeting
Time(s): 4th Friday of every month
Contact facilitator for info.
Facilitator: Christin Salemno, 215-829-2347, christin.salemno@uphs.upenn.edu
Cooper
Information: For
patients/caregivers dealing with MSA
Location: New Life Baptist Church (across street from high school) 628 FM 1528, Cooper, TX 75432
Meeting Time(s): 1st Saturday of each month from 10:00am - 12:00pm (beginning Jan. 5, 2013)
Facilitator: Janice Cattanach,
903-395-4934, cattanach@peoplepc.com
Houston
Information: For
patients/families with PSP, CBD, MSA, LBD
Location: Memorial
Hermann SW Hospital, Houston, TX, Learning Center B, Professional Building
II
Meeting Time(s): 3rd Saturday of each month (except July
and December) at 1:00pm
Facilitator: Karen Kennemer,
281-358-2282, kmk1224@aol.com
Dallas
Information: For
PSP/CBD patients and caregivers
Location: Texas Health Presbyterian Hospital Dallas, 8200 Walnut Lane, Dallas, TX 75231, Beasley Conference Room, Main Building, 1st Floor
Meeting
Time(s): 3rd Saturday of the month (except August) from 1:00pm -
3:00pm
Facilitator: Rachelle DuBose Caruthers, 214-345-4224, dallasmovementdisorders@texashealth.org
Seymour
Information: For patients & caregivers affected by PSP, CBD, MSA and other Atypical Parkinsonian Disorders
Location: Baylor County Extension Building, 500 N. Main Street Seymour, TX 76380
Meeting
Time(s): 3rd Monday of each month from 4:00pm-5:30pm
Facilitator: Sis Hammack, 940-889-6638, Bradnsis@swbell.net
Salt Lake City
Information: For PSP Patients and Caregivers
Location: Neurosciences Technology and Imaging Center, 729 Arapeen Drive, University Research Park, University of Utah
Meeting Time(s): Second Monday of every month at 6:00pm
Facilitator(s): Rebecca Jorgensen, rebecca.jorgensen@hsc.utah.edu
Charlottesville
Information: For anyone affected directly or indirectly by PSP
Location: Citizens Commonwealth Building, 300 Preston Ave, Charlottesville, VA 22902
Meeting Time(s): 2nd Saturday of each month from 1:00pm - 2:30pm Eastern, beginning Nov. 13, 2010
Facilitator: Sophie Payne, 434-327-9573, sophiecllin@gmail.com
Seattle
Information: For
patients/caregivers/families dealing
with PSP/CBD
Location: Virginia Mason Hospital, Lindeman Pavilion
Meeting Time(s): 4th Monday of every month at 11:00am
Facilitator:
Carin Mack, MSW, 206-230-0166, socialwkr@earthlink.net
Seattle
Information: For
patients/caregivers/families dealing
with PSP/CBD
Location: Virginia Mason Medical
Center
Meeting Time(s): One Monday
per month from 6:30pm - 8:00pm (no Dec. meeting)
Facilitator:
Mary Beth Simiele, 206-290-5391, mary.simiele@vmmc.org
Johnstown/Loveland (Colorado)
Information: Neurodegenerative movement disorder group (MSA, PSP,
CBD)
Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528
Meeting Time(s): 1st Friday of each month from 1:00pm - 3:00pm
Facilitators: Ruth Fletcher-Carter, 970-532-2681, chantillylace3@usa.net
Kitchener,
ON
Information: Primarily
for caregivers, but patients may attend
Location: St.
Mark's Lutheran Church, Kitchener, ON
Meeting Time(s): One
Saturday per quarter from 1:00pm - 3:00pm; Contact Facilitator for
info
Facilitator: Tracy Ellig, 519-214-2144, pspsupportincanada@hotmail.com
Toronto, ON
Information: For care partners of
PSP/CBD/MSA patients; hosted by Parkinson Society of
Canada
Location: 4211 Yonge Street, Suite 321, Toronto,
ON
Meeting Time(s): Once a month from 7:00pm –
8:00pm; dates TBD
Facilitator: Robert TerSteege,
416-227-3372, 1-800-565-3000 x3372
Victoria
Information: For PSP
patients and caregivers
Location: Parkinson’s
Victoria
Meeting Time(s): 1st Thursday of every other
month (beginning Feb '10) at 10:30am
Facilitator:
Anne Mooney, damooney@bigpond.com
SDS/MSA Support Group
8311 Brier Creek Parkway
Suite
105-434
Raleigh, NC
27617
1-866-737-5999
www.shy-drager.org
PD+ Support Group
Information: For those dealing with Parkinson's Plus syndromes
Location: Pennsylvania Hospital, 259 South 8th Street, Philadelphia, PA 19107, Hall Mercer Conference Room
Meeting Time(s): 4th Friday of every month, contact facilitator for times
Facilitator: Christin Salemno, 215-829-2347
