Support Groups: In Person
CurePSP encourages and organizes activities that foster face-to-face communication, exchange, and interaction of comfort and mutual benefit to group members who are caregivers, family members, friends, and persons with PSP, CBD, MSA and related diseases.
We are continually seeking motivated individuals to start and facilitate support groups in their local area. Please consider sharing some of your time with others by being a support group leader. If you are interested, please send an email Trish Caruana, VP of Programs and Education, at caruana@curepsp.org.
To find a face-to-face support group in your area, please select the appropriate state/country below.
AL | AZ | CA | CO | FL | GA | IL | KY | LA | MA | MD | ME | NY | OH | OR | PA | SC | TX | UT | VA | WA | WY | Canada | Australia | Other
Montgomery
Information: PSP support group for caregivers only
Location: Frazer United Methodist Church (Rm. 3104), 6000 Atlanta Hwy., Montgomery, AL 36117
Meeting Time(s): Contact facilitator for more info
Facilitator: Ginger Darby, 334-201-1122, ginger_pridgen@yahoo.com
Glendale
Information: For anyone affected directly or indirectly by PSP
Location: Banner Thunderbird Medical Center, 5555 West Thunderbird Road, Glendale, AZ, Conference Room 1
Meeting Time(s): Dates vary - contact facilitator for info
Facilitator: Tito Sebastiani, 602-920-4632, tsebastiani@cox.net
Tempe
Information: For anyone affected directly or indirectly by PSP
Location: Pyle Adult Recreation Center, 655 East Southern Avenue, Tempe, AZ 85282, Yuma Room
Meeting Time(s): October 2, 2010 from 1:30pm - 3:30pm, future dates TBD - contact facilitator for info
Directions: The Center is directly across from Walmart, Yuma is the first room on the left down the hall. Attendees should park in back of the building (Southwest side) to be closest to room
Facilitator: Ann Ludwig, 602-318-0895, aludwig@asu.edu
_________Trish Caruana, 800-457-4777, caruana@curepsp.org
Northern/San Mateo
Information: Neurodegenerative movement disorder group (PSP, CBD, MSA, etc.) - caregivers only. Contact facilitator for more info.
Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404
Meeting Time(s): Every six weeks (call or e-mail for schedule) from 5:00pm - 7:00pm
Facilitator: Robin Riddle, 650-814-0848, rriddle@stanfordalumni.org
Los Angeles - Thousand Oaks (North of LA)
Information: For
patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: 672 Rosario Drive, Thousand Oaks, CA 91362
Meeting Time(s): One Saturday every quarter from 1:00pm - 4:00pm
Facilitator: Kathy Schwaiger, 805-496-7018, ksquig2@yahoo.com
__________Ceri Williams, medianet@earthlink.net
Los Angeles - UCLA
Information: For
patients/caregivers living with PSP, CBD, MSA, OPCA, SND, SDS
Location: UCLA Campus, 757 Westwood Plaza, Los Angeles, CA 90095, (room may vary, contact Dolly West at dwest@mednet.ucla.edu)
Meeting Time(s): 1st Friday of every month from 1:00pm
- 3:00pm
Facilitator: Loretta Mazorra, RN, MN, MA, 310-772-0064, anlom@sbcglobal.net
Orange County - Fountain Valley
Information: For
family members and caregivers dealing with Atypical Parkinsonian Disorders
Location: Orange Coast Memorial Medical Center, Classroom A, 9920 Talbert Avenue, Fountain Valley, CA 92708
Meeting Time(s): See attached schedule
Facilitators: Justin Aquines, 714-414-5161, atypicalpdgroup@gmail.com
San Diego
Information: For
patients and their caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: UCSD Thornton Hospital, 9300
Campus Point Drive, La Jolla, CA 92037, SDG&E Room (3rd floor)
Meeting Time(s): 3rd Thursday of every month
from 10:00am - 11:30am
Facilitators: John Jenkins, 619-787-2760, jenkins356@sbcglobal.net
San Diego
Information: For
ONLY caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: Holy Angels Byzantine Catholic Church, 2235 Galahad Road, San Diego, CA 92123
Meeting Time(s): Every 6 weeks from 11:15am - 1:00pm - contact facilitator for more info
Facilitators: Patricia Hagan, 619-223-1645, pkhagan@cox.net
Sacramento
Information: For
patients/caregivers/families affected by PSP, CBD,
MSA
Location: Group meets at home of facilitator; please contact
facilitator for info
Meeting Time(s): 2nd Saturday of each
month from 2:00pm until finished
Facilitators:
Jodie Rubenstein, 916-704-6111, pspsg4s@me.com
Denver/Englewood
Information:
Neurodegenerative movement disorder group (MSA, PSP,
CBD)
Location: Johnson Adult Day Center, 3444 South Emerson
St., Englewood, CO 80113
Meeting Time(s): 2nd Friday of each
month from 10:00am - 12:00pm
Facilitators: Helenn
Franzgrote, 303-789-9900, jhfranzgrote@comcast.net
___________Jeanette Shick, 303-986-8405, shickette@aol.com
Johnstown/Loveland
Information:
Neurodegenerative movement disorder group (MSA, PSP,
CBD)
Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528
Meeting Time(s): 1st Friday of each
month from 1:00pm - 3:00pm (no Dec. or Jan. meetings)
Facilitators: Ruth Fletcher-Carter, 970-532-2681, chantillylace3@usa.net
Southwest/Naples
Information: For
patients/caregivers/families affected by PSP, CBD, MSA and related
diseases
Location: Manor Care at Lely Palms, 6135
Rattlesnake Hammock Road, Naples, FL 34113
Meeting Time(s):
2nd Saturday of each month from 2:00pm -
3:30pm
Facilitator: Cindy MacDonald, 239-353-3960 or
239-404-4429, hotrdh@hotmail.com
Southeast/Deerfield
Beach
Information: For
patients/caregivers/families affected by PSP, CBD, MSA and related
diseases
Location: North Broward Medical Center, 201 E.
Sample Road, Deerfield Beach, FL 33064, 1st Floor, Classrooms 7&8 (for
directions only: 954-941-8300)
Meeting Time(s): Contact facilitator for more info
Facilitator: Paul
Freeman, 305-970-0805, freemanph@aol.com
Cape Coral
Information: For
patients/caregivers/families affected by PSP or Parkinson’s
Plus
Location: Hope Facility, 2430 Diplomat Parkway, Cape
Coral, FL
Meeting Time(s): 3rd Thursday of each month
from 1:30pm - 2:30pm
Facilitator: Sylvia Massey,
239-772-7049, scmassey@comcast.net
Tampa
Information: For
persons affected with PSP, CBD, MSA and related
diseases
Location: Temple Terrace Public Library, 202 Bullard Parkway, Temple Terrace, FL 33617 (for directions only: 813-506-6770)
Meeting Time(s): Last Saturday of every other month at 3:00pm, beginning September 2011
Facilitator: Mary Satterwhite, 813-988-7098, marysatterwhite@gmail.com
Atlanta
Information: For
patients/caregivers living with atypical parkinsonism’s, PSP and
CBD
Location: Wesley Woods Health Center, 1841 Clifton Rd,
Atlanta, GA 30329, 3rd Floor Conference Room
Meeting
Time(s): 2nd Saturday of each month (except May) from 10:00am –
11:30am
Facilitator: Lynn Ross, 404-728-6300, slross@emory.edu
Chicagoland
Information: For
PSP/CBD patients
Location: The Abington of Glenview Library,
3901 Glenview Road, Glenview, IL 60025
Meeting Time(s):
First Saturday of every other month from 1:30pm -
3:30pm
Facilitator: Darren Loveless, 847-729-0000, darrenloveless@yahoo.com
Louisville
Information: For PSP/CBD
patients/caregivers but welcomes others with other neurodegenerative diseases.
Click here for more
info.
Location: University of Louisville, Center of
Excellence in Corticobasal Degeneration
Meeting Time(s): 4th
Wednesday of each month
Facilitator: Whitney Rogers,
502-561-3029, wproge01@louisville.edu
New Orleans
Information: Patients/families/caregivers with PSP/CBD/MSA & related diseases
Location: Little Farms United Church of Christ, 135 Sauve Road, River Ridge, LA 70123
Meeting Time(s): 3rd Thursday of each
month from 7:00pm - 8:00pm
Facilitators: Shiela Grose, 504-737-2614, groseshiela@bellsouth.net
Falmouth
Information: For
patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: Maine Parkinson’s I&R
Center, 5 Bucknam Road, Falmouth, ME
Meeting
Time(s): One Sunday per quarter from 1:00pm - 3:00pm.
Contact Facilitator for info.
Facilitators: Janet Edmunson,
207-799-4963, janet@janetedmunson.com
___________Barbi Johnson, 207-633-0881, rockyledges@yahoo.com
Anne Arundel
County
Information: For patients/caregivers
affected by PSP, CBD and other neurodegenerative
diseases
Location: Kris Leigh Assisted Living Facility, 831
Ritchie Highway, Severna Park, MD
Meeting
Time(s): Every 3rd Saturday of the month from 1:00pm –
3:00pm (contact facilitators for more info or visit http://pspsupportdmv.org)
Facilitators: Tami Martin, 703-587-3101, tmartin@bryanttraining.com
___________Becky Hill, 410-757-8823, hill_becky@yahoo.com
Baltimore
Information: For caregivers affected by PSP, CBD and other neurodegenerative
diseases
Location: Govans Presbyterian Church, 5828 York Road, Baltimore, MD 21212, Peace Center Library
Meeting
Time(s): 4th Thursday of every month
Facilitator: Becky Dunlop, RN, rdunlop@jhmi.edu
Boston
Information: For
patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: Lahey Clinic, Boston,
MA
Meeting Time(s): One Saturday per quarter
from 1:00pm - 3:00pm. Contact facilitator for
info.
Facilitator: M. Ann Aversa, 617-872-8356, bappsg@comcast.net
Braintree
Information: For
patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: Braintree Rehabilitation Hospital, 250 Pond Street, Braintree, MA, 2nd Floor Conference Room
Meeting Time(s): One Wednesday per quarter from 2:30pm - 4:00pm. Contact Facilitator for info.
Facilitator: Allyson Gormley, 617-638-7747, allyson.gormley@bmc.org
NYC Metro Area
Information: For
patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD,
MSA, OPCA, SND, SDS
Location: North Shore University
Hospital, Tower Conference Rooms, First Floor, 300 Community Drive, Manhasset,
NY 11030
Meeting Time(s): Quarterly on the 3rd Saturday of the month (March, June, Sept., Dec.) from
1:30pm - 3:30pm
Facilitators: Kara Holisher, 516-932-1696,
kbhx2@optonline.net
___________Harriet Feiner, 718-224-4654, hfeiner@nyc.rr.com
Berea
Information: For
patients/families/friends/caregivers affected by PSP, CBD, MSA,
Shy-Drager+Lewy Bodies
Location: Southwest General Hospital,
18697 Bagley Road, Middleburg Heights, OH, Room 15C (basement
level)
Meeting Time(s): 2nd Sunday of each month from
1:00pm - 3:00pm, contact facilitator for more info
Directions/Parking: Hospital is easy
accessed from I-480, I-71 and the Ohio Turnpike - free parking rear
garage of hospital.
Facilitator: Pat Beekman,
440-234-0007, mombeekman@yahoo.com
Portland
Information: For patients of PSP, CBD, and MSA, as well as their families and caregivers
Location: OHSU River Front Bldg, Room 5 of the Conference Center, 3303 SW Bond St., Portland, OR 97239
Meeting Time(s): 1st Thursday of each month at 5:00pm, beginning 01/05/2012
Facilitator:
Tod Lundy, 503-281-4123, todlundy@q.com
Western/Pittsburgh
North
Information: For persons affected
by PSP/CBD
Location: Dutilh United Methodist Church,
1270 Dutilh Road, Cranberry Township, PA 16066
Meeting
Time(s): 3rd Thursday of the month from 7:00pm –
9:00pm
Facilitator: Ruth Nulph, 724-287-8600, lnulph35@aol.com
Eastern/Philadelphia
Information: For persons
with movement disorders
Location: Penn Neurological
Institute, 330 S. 9th Street, Philadelphia, PA 19107
Meeting
Time(s): 2nd Saturday of every other month at 10:00am.
Contact facilitator for info.
Facilitator: Joellen
Dembowski, 215-829-5071
Philadelphia
Information: For persons
with movement disorders
Location: Pennsylvania Hospital, 259 South 8th Street, Philadelphia, PA 19107, Hall Mercer Conference Room
Meeting
Time(s): 4th Friday of every month
Contact facilitator for info.
Facilitator: Christin Salemno, 215-829-2347
Houston
Information: For
patients/families with PSP, CBD, MSA, LBD
Location: Memorial
Hermann SW Hospital, Houston, TX, Learning Center B, Professional Building
II
Meeting Time(s): 3rd Saturday of each month (except July
and December) at 1:00pm
Facilitator: Karen Kennemer,
281-358-2282, kmk1224@aol.com
Dallas
Information: For
PSP/CBD patients and caregivers
Location: Texas Health Presbyterian Hospital Dallas, 8200 Walnut Lane, Dallas, TX 75231, Beasley Conference Room, Main Building, 1st Floor
Meeting
Time(s): 3rd Saturday of the month (except August) from 1:00pm -
3:00pm
Facilitator: Rachelle DuBose Caruthers, 214-345-4224, dallasmovementdisorders@texashealth.org
Austin
Information: For
caregivers of PSP, CBD and MSA patients but accepts other neurodegenerative
disease caregivers
Location: Georgetown Library (call for
directions)
Meeting Time(s): 1st Saturday of each month
from 2:00pm - 4:00pm
Facilitator: Kay Kitts,
512-591-7505, kkitts37@gmail.com
Salt Lake City
Information: For PSP Patients and Caregivers
Location: Neurosciences Technology and Imaging Center, 729 Arapeen Drive, University Research Park, University of Utah
Meeting Time(s): First Monday of every month at 6:00pm
Facilitator(s): Jean Falsone, 801-278-2210, jeanfalsone@mac.com
__________Kate Watson, 505-877-3030, kwatson88@msn.com
Charlottesville
Information: For anyone affected directly or indirectly by PSP
Location: Citizens Commonwealth Building, 300 Preston Ave, Charlottesville, VA 22902
Meeting Time(s): 2nd Saturday of each month from 1:00pm - 2:30pm Eastern, beginning Nov. 13, 2010
Facilitator: Sophie Payne, 434-327-9573, sophiecllin@gmail.com
Seattle
Information: For
patients/caregivers/families dealing
with PSP/CBD
Location: Virginia Mason Medical
Center
Meeting Time(s): One Monday
per month from 6:30pm - 8:00pm (no Dec. meeting)
Facilitator:
Mary Beth Simiele, 206-290-5391, mary.simiele@vmmc.org
Johnstown/Loveland (Colorado)
Information: Neurodegenerative movement disorder group (MSA, PSP,
CBD)
Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528
Meeting Time(s): 1st Friday of each month from 1:00pm - 3:00pm
Facilitators: Ruth Fletcher-Carter, 970-532-2681, chantillylace3@usa.net
Kitchener,
ON
Information: Primarily
for caregivers, but patients may attend
Location: St.
Mark's Lutheran Church, Kitchener, ON
Meeting Time(s): One
Saturday per quarter from 1:00pm - 3:00pm; Contact Facilitator for
info
Facilitator: Tracy Ellig, 519-214-2144, pspsupportincanada@hotmail.com
Toronto, ON
Information: For care partners of
PSP/CBD/MSA patients; hosted by Parkinson Society of
Canada
Location: 4211 Yonge Street, Suite 321, Toronto,
ON
Meeting Time(s): Once a month from 7:00pm –
8:00pm; dates TBD
Facilitator: Robert TerSteege,
416-227-3372, 1-800-565-3000 x3372
Victoria
Information: For PSP
patients and caregivers
Location: Parkinson’s
Victoria
Meeting Time(s): 1st Thursday of every other
month (beginning Feb '10) at 10:30am
Facilitator:
Anne Mooney, damooney@bigpond.com
SDS/MSA Support Group
8311 Brier Creek Parkway
Suite
105-434
Raleigh, NC
27617
1-866-737-5999
www.shy-drager.org
PD+ Support Group
Information: For those dealing with Parkinson's Plus syndromes
Location: Pennsylvania Hospital, 259 South 8th Street, Philadelphia, PA 19107, Hall Mercer Conference Room
Meeting Time(s): 4th Friday of every month, contact facilitator for times
Facilitator: Christin Salemno, 215-829-2347
