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CurePSP

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Family Conferences

Among its various educational activities, CurePSP sponsors and organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD and MSA and to develop a sense of community. We recognize that these diseases present daily challenges for patients and families.

The conferences include various speakers with in-the-field expertise - neurologists and movement disorder specialists who work directly with patients and their families. These experts address issues related to day-to-day life including the best ways to manage symptoms, the impact of the diseases on the family, and how to cultivate perspective of meaning and joy despite the struggles of the disease.

In addition to the educational facts learned during the session, patients, caregivers, and families learn that they are not alone. Attendees leave the meeting having forged new friendships in the PSP, CBD and MSA communities.

CurePSP strives to meet the needs of those who attend our conferences and actively seeks feedback to improve future programs. We place great value in identifying the topics or speakers that are of the greatest interest to attendees.

Upcoming Conferences

None at this time.

Past Event - 2013 Boston Family Conference

  • Opening Words and Welcome

    Janet Edmunson, MEd
    JME Insights
    Patricia Richardson
    Actress and CurePSP National Spokesperson
    Download Slides

  • Medical Update on PSP

    Lawrence Golbe, MD
    UMDNJ Robert Wood Johnson Medical School
    Download Slides

  • Medical Updates on CBD and MSA

    Yvette Bordelon, MD, PhD
    University of California, Los Angeles
    Download Slides

  • Speaker Panel Q&A

    Lawrence Golbe, MD
    Yvette Bordelon, MD, PhD

  • Family Workshop: Getting Better Support

    Janet Edmunson, MEd
    JME Insights
    Download Slides

  • Patient-Only Discussion Group

    Kelley Harrison Pistacchio, PhD

  • Physical & Occupational Therapies: Improving Day-to-Day Life

    Terry Ellis, PhD, PT, NCS
    Center for Neurorehabilitation, Boston University
    Download Slides

  • Speech & Language Therapies: Coping with Symptoms

    Heidi Phenix, MS, CCC-SLP
    Braintree Rehabilitation Hospital
    Download Slides

Past Event - 2012 Johns Hopkins Caregiver Conference

  • Your PSP Management Plan

    Becky Dunlop, RN
    Johns Hopkins Parkinson’s Disease and Movement Disorders Center
    Download Slides

  • Quality Time

    Casey Young, LPN
    Professional Healthcare Resources
    Download Slides

  • Keeping Families Strong

    Trish Caruana, MSW
    VP, Programs & Education, CurePSP
    Download Slides

Past Event - 2012 Dallas Family Conference

Past Event - 2011 New Jersey Family Conference

Past Event - 2011 Los Angeles Family Conference