Family Conferences
Among its various educational activities, CurePSP sponsors and organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD and MSA and to develop a sense of community. We recognize that these diseases present daily challenges for patients and families.
The conferences include various speakers with in-the-field expertise - neurologists and movement disorder specialists who work directly with patients and their families. These experts address issues related to day-to-day life including the best ways to manage symptoms, the impact of the diseases on the family, and how to cultivate perspective of meaning and joy despite the struggles of the disease.
In addition to the educational facts learned during the session, patients, caregivers, and families learn that they are not alone. Attendees leave the meeting having forged new friendships in the PSP, CBD and MSA communities.
CurePSP strives to meet the needs of those who attend our conferences and actively seeks feedback to improve future programs. We place great value in identifying the topics or speakers that are of the greatest interest to attendees.
We are in the midst of planning our next family conference. More information coming soon!
Upcoming Family Conference - Midwest
Saturday, June 2, 2012
Dallas, Texas
Past Family Conference - 2011 West Coast
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CurePSP Research Program Overview
Richard Gordon Zyne, DMin
President-CEO, CurePSP
Download Slides | Watch on YouTube -
Treatment and Trials: Update on Atypical Parkinsonian Disorders
Yvette Bordelon, MD, PhD
UCLA, Department of Neurology
Download Slides | Watch on YouTube -
The Davunetide Studies
Adam Boxer, MD, PhD
UCSF, Memory and Aging Center
Download Slides | Watch on YouTube -
Morning Speaker Panel Q&A
Richard Gordon Zyne, DMin
Yvette Bordelon, MD, PhD
Adam Boxer, PhD
Watch on YouTube -
Remembering Roberta
Larry Schenker
Watch on YouTube -
Building Resilience
Linda O'Connor, LCSW
American Parkinson Disease Association
Download Slides | Watch on YouTube -
Afternoon Speaker Panel Q&A
Linda O'Connor, LCSW
Loretta Mazorra, NP, CNS
Kathy Schwaiger
Kristine Dziak
Watch on YouTube
Past Family Conference - 2011 East Coast
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CurePSP Research Program Overview
Richard Gordon Zyne, DMin
President-CEO, CurePSP
Download Slides | Watch on YouTube -
PSP Causes and Treatments
Lawrence Golbe, MD
Robert Wood Johnson University Medical School
Download Slides | Watch on YouTube -
Maximizing Functional Independence
Heather Cianci, PT, MS, GCS
Christine Robertson-Roxberry, OTR/L
Dan Aaron Parkinson's Rehabilitation Center
Download Slides | Watch on YouTube -
Morning Speaker Panel Q&A
Christine Robertson Roxberry, OTRL
Heather Cianci, PT, MS, GCS
Lawrence I. Golbe, MD
Richard Gordon Zyne, DMin
Watch on YouTube -
Keeping Your Family Strong
Trish Caruana, MSW
VP, Programs & Education, CurePSP
Download Slides | Watch on YouTube -
The Caregiver Journey
Barry J. Jacobs, PsyD
Crozer-Keystone Health System
Download Slides | Watch on YouTube -
Personal Experiences of Caregivers
Dee Gozonsky
Sandy Foo-Ying
Watch on YouTube -
Afternoon Speaker Panel Q&A
Trish Caruana, MSW
Barry J. Jacobs, PsyD
Dee Gozonsky
Sandy Foo-Ying
Watch on YouTube
