CurePSP

Jason has a chance to participate in the Ironman World Championship and raise awareness about PSP, but he needs our help to get there. Please support him by following the link, watching the video, and pressing the VOTE FOR THIS button!

Congress continued for another year a little-known process that allows exceptions to what Medicare pays for physical, occupational and speech therapy.

Friday, April 19, 2013, 8am - 12:30pm, featuring CurePSP’s Director of Research and Clinical Affairs, Lawrence Golbe, MD, as well as CurePSP research scientists. The address is 1149 Newell Drive, Bldg 59, Rm LG-101D, Gainsville, FL 32611.

Presented by Lawrence Golbe, MD.

Read our latest newsletter - March is MSA Awareness Month.

Presented by John Dean, MA, CCC-SLP.

The "Mother of Gymnastics" vows to do all she can to help find a cure for MSA.

CurePSP and other MSA organizations need public support in spreading the word about this rare and fatal neurological disease and the desperate need for research.

Browse our list of clinical trials and studies to find research projects in your area.

Read our latest newsletter.

Enter our giveaway drawing for a chance to win a night's stay in Boston, two conference registrations, breakfast, and other great items!

Adam Murphy, an investigative reporter with CBS Atlanta News, is holding the fundraiser in honor of his mom, Janice, who was diagnosed with PSP two years ago.

Presented by Valerie Sanchez, LCSW, CT.

February 28 is Rare Disease Day. Learn how you can participate and help raise awareness.

Dr. Richard Gordon Zyne will join members of the Parkinson’s disease community from across America in Washington, D.C. for the Parkinson’s Action Network (PAN) Forum.

A recording of our latest webinar, presented by Shawn Smyth, MD.

April 27, 2013, 9:00am - 4:30pm, Boston Marriott Peabody, Peabody, Massachusetts.

Our latest webinar, presented by Becky Dunlop, RN, BSN.

Allon Therapeutics has announced that their recent study of davunetide has shown the drug to be ineffective in treating PSP.

Read the latest issue of our newsletter.

Amy Wood, PsyD, presents our latest webinar.

Our 2012 International Research Symposium will be held on November 17 at Baltimore's Inner Harbor.

For patients & caregivers affected by PSP, CBD, MSA and other atypical Parkinsonian disorders.

Professor Gregor Wenning, MD, PhD, MSC has agreed to answer publicly submitted questions about MSA on a weekly basis. The "Ask Dr. Wenning" feature is provided by MSAawareness.org.

A Guide for People Living With PSP, CBD and Other Atypical Parkinsonian Disorders has been updated - download it today!

News anchor Adam Murphy's Miracle for Mom event raised more than $1,000 for CurePSP programs!

Adam Murphy, an investigative reporter with CBS Atlanta News, is holding the fundraiser in honor of his mom, Janice, who was diagnosed with PSP two years ago.

Three years ago, at age 57, Jim Shea was diagnosed with progressive supranuclear palsy.

Read our latest newsletter.

Frederick Schneider, LCSW-C, MDiv, MA, of Professional Healthcare Hospice, discusses ways one can help a grieving friend through understanding the dynamics of grief and loss.

"Dudley Down Under--unabridged" is the entire May 2, 1978
concert played by the Dudley Moore Trio in Sydney Town Hall. Dudley Moore was diagnosed with PSP in 1999.

Dr. Bruce Miller discusses the significance of the Center's work.

This video was created for a person that has just been diagnosed with PSP.

All day, July 14, 2012, at the Crowne Plaza Foster City in Foster City, California.

Presented by Theresa Moore, RN, MScN, of the Centre for Movement Disorders in Markham, Ontario.

NBC 5 Dallas-Fort Worth interviewed Richard Zyne and Lawrence Golbe, MD ahead of CurePSP's family conference. Board member John Burhoe was also interviewed: http://www.nbcdfw.com/video/#!/on-air/as-seen-on/The-Tragic-Effects-of-PSP/156068195

The goal of this study is to identify the best methods of analysis for tracking PSP and CBD over time.

Saturday, June 16, 2012 from 8:30am - 12:30pm at Johns Hopkins Outpatient Center in Baltimore, Maryland.

Presented by Molly Meeks, LPC, NCC, of Summit Counseling.

CNBC's morning program, Squawk Box, featured a tribute to Richard Rainwater and discussed his battle with PSP.

Presented by David Lee of HumanNature@Work.com.

Read our latest newsletter - March is MSA Awareness month.

Presented by Camille Vaughan, MD, MS, Assistant Professor in the Department of Medicine’s Division of Geriatric Medicine and Gerontology at Emory University.

We're blitzing Capitol Hill to advocate for rare diseases, but we also want you to share your family's journey with us - please consider telling your story as part of Rare Disease Day.

A recording of our latest webinar in Flash Video format.

Allon Therapeutic's Data Safety Monitoring Board recommends continuation of trial.

Presented by Amie L. Peterson, MD, a neurologist with the Parkinson Center of Oregon at Oregon Health and Science University.

A recording of our latest webinar in Flash Video format.