Special Events
Upcoming Events
If you enjoy planning parties, writing letters, or want to help raise awareness of progressive supranuclear palsy (PSP) and corticobasal generation (CBD) – become a volunteer with CurePSP! Many fundraising events and public relations activities are very easy to plan and won’t take up much of your time. We can provide a variety of materials to help make your event a success, as well as press kits to help you spread the word about PSP in your community. If you would like to plan a fundraising event or help with our public awareness efforts, please contact the following personnel and they will be delighted to speak with you and discuss your options.
Kathleen Matarazzo Speca
Vice President of Development & Public Relations
800-457-4777, x19
E-mail: speca@curepsp.org
- Lou Ricci Cycling Fundraising Event
The Ride to Montauk (Cycling event)
Saturday, June 19, 2010
New York
Lou Ricci will ride in this cycling event in memory of his father who lost his life to PSP. The ride will begin in Manhattan and end in Montauk. Lou is collecting donations for his participation in this event to support the vital programs and services of CurePSP. Hats off to Lou for his support. We wish him a safe and successful ride.
Click here to support Lou
- 5th Annual Ken Jennings Putt for PSP
South Shore Golf Course
July 24, 2010
Syracuse, Indiana
The Jennings Family will once again host the Ken Jennings Putt for PSP on July 24th. Unfortunately, Ken lost his battle with PSP in September 2009. However, the family decided to host this event another year to help raise awareness and funds in Ken's name to support the programs and services of CurePSP. Special thanks to the Jennings Family for their generosity.
If you would like more informaion on this golf tournmanent Click here
- Alex Frink - Half Ironman Triathlon
August 15,2010
Lake Stevens, WA
This Half Ironman Triathlon consists of swimming 1.2 miles, cycling for 56 miles, and running a half marathon (13.2 miles), all of which takes dedication and training. For Alex, it goes beyond the competition; he’s participating in memory of his father Stevens Frink. Here's what Alex has to say:
"One of the reasons why I'm participating in this triathlon race is to raise awareness of PSP. When my father was diagnosed with this debilitating disease in 2001, it was heartbreaking and frustrating to recognize that there was no known cause, treatment or cure. I hope that by raising awareness through this event that more people will become educated about PSP and hopefully contribute to the educational and research programs of the CurePSP Foundation. Another reason is that when I was a teenager I was actively doing triathlon races and my father was my biggest supporter. I feel it is fitting to participate in a sport that we both enjoyed."
CurePSP wishes Alex a safe and successful event.
Join Alex in his efforts to raise funds for CurePSP Click here to visit the Donation Page for Alex Frink
- 7th Annual Pittsburgh Wine Tasting
Saturday, September 11, 2010
Pittsburgh, PA
On Saturday, September 11th, at 7:00 p.m., the 7th Annual Pittsburgh Wine Tasting to support CurePSP will be held at the Pittsburgh Center for the Arts. Tickets are only $50 per person and include wine tastings, food, music, prizes and more.
To order tickets on line Click here
If you cannot attend, please consider making a donation and Click here
If you need additional information about the event, please email or call Susan McLaughlin susan.mclaughlin37@yahoo.com; 412-352-9369
Thank you for your support!
- Barney's Hummingbird Note Card Fundraiser
Barney and Fran Myer are conducting a beautiful note card fundraiser to beneift CurePSP. Barney's story is as follows:
Barney was diagnosed with PSP in 2010. For Barney, his double vision and frame by frame or "stuttered" visual experience means everythihg he does and sees requires great concentration and effort. Though not an artist by training, he took photos of hummingbirds that visit his patio in Arizona. With help from his wife Fran, they were transformed into faded black and white, enlarged and printed on art paper. Barney used Prismacolor pencils to enhance the picures. His artwork captures the joyful spirit of these amazing little birds.
The cost is $10.00 for a set of 6 cards and 6 envelopes plus $2.00 shipping and handling. All procceds from the sale of these note cards will be donated to CurePSP. To order, please send an email request to pickleballstuff@comcast.net
We are unable to upload photos of the beautiful note cards at this time. When you email Fran at the above address, please ask her to send you sample photos of the cards.
"May your life be joyful and may you accomplish that which seems impossible."
Thank you
