September 13, 2013
FOR IMMEDIATE RELEASE
Contact: Bruce Janele, 800-457-4777
TIMONIUM, Maryland, September 13, 2013 - CurePSP and the Colorado Neurological Institute (CNI) are hosting a family conference on Saturday, October 19, 2013 in Westminster, Colorado at the Westin Hotel.
The 2013 Rocky Mountain Family Conference is intended for patients and families dealing with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). These rare neurodegenerative diseases affect older people and have no known cause or cure.
The Colorado Neurological Institute works with a broad spectrum of individuals who have neurological diseases to provide patient care including rehabilitation and care management, education and research. The organization's reach includes those with PSP, CBD and MSA.
"The Rocky Mountain Family Conference is a focused educational program for people with atypical Parkinsonian disorders," said Ellen Belle, Director of CNI's NeuroHealth Center. "This conference will meet the unique needs of those with rare brain diseases."
A wide variety of speakers including neurologists, physical therapists, occupational therapists, speech-language pathologists, and social workers will discuss topics such as medical updates on research progress, improving day-to-day mobility, helping families stay strong, and how to live well with a chronic disease.
"One of the most difficult parts of having a rare, neurodegenerative disorder is the feeling of loneliness," said Trish Caruana, Vice President of Programs & Education at CurePSP. "Year after year, families and their loved ones struggling with these disorders impress upon us the importance of family conferences. It is amazing to watch people who have felt isolated come together, learn together, and support one another."
CurePSP is the foremost non-profit organization dedicated to increasing awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and other atypical Parkinsonian disorders; funding research toward treatment, cure and prevention; educating healthcare professionals; and providing support, information and hope for affected persons and their families.
CNI is the largest and most comprehensive neuroscience center in the Rocky Mountain region. Its mission is to enhance the delivery of personalized, comprehensive and state-of-the-art care to individuals with neurological conditions through coordinated research, patient services and education.