October 16, 2013
FOR IMMEDIATE RELEASE
Contact: Bruce Janele, 800-457-4777
TIMONIUM, Maryland, October 16, 2013 - CurePSP is holding its 2013 Rocky Mountain Family Conference in Westminster, Colorado - a suburb of Denver - on this Saturday, October 19. The six hour educational conference is intended for patients and families who are currently coping with the challenges of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) - rare brain diseases with no known cause or cure.
The conference is being jointly held by CurePSP and the Colorado Neurological Institute (CNI), a local organization that works with a broad spectrum of of individuals with neurological disorders to provide patient care including rehab and care management, education and research.
Family conferences are an important asset to patients, caregivers, and families because they serve as a great source of information and help alleviate the feelings of isolation and loneliness that a rare disease can cause. The Rocky Mountain Family Conference will feature speakers with in-the-field expertise - neurologists, movement disorder specialists, physical therapists, speech-language pathologists, and others who have seen and treated patients with these rare disorders.
"The Rocky Mountain Family Conference will be a wonderful opportunity to connect and network with others who are coping with PSP, CBD and MSA," said Trish Caruana, MSW, Vice President of Programs and Education at CurePSP. "One of the most valuable components of our family conferences is the support and encouragement of other patients and families and the reduced sense of isolation that comes from understanding the emotional impact of these diseases. Attendees will leave the conference with excellent information, a sense of camaraderie with others and motivation to take steps each day to live life to the fullest."
CurePSP is the foremost non-profit organization dedicated to increasing awareness of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and other atypical Parkinsonian disorders; funding research toward treatment, cure and prevention; educating healthcare professionals; and providing support, information and hope for affected persons and their families.
CNI is the largest and most comprehensive neuroscience center in the Rocky Mountain region. Its mission is to enhance the delivery of personalized, comprehensive and state-of-the-art care to individuals with neurological conditions through coordinated research, patient services and education.