PSP Research Roundtable

Overview

Progressive Supranuclear Palsy (PSP) is an aggressive, deadly neurodegenerative disorder for which there is currently no effective treatment. As a pure tauopathy and orphan disease, it has attracted industry attention as a promising market opportunity and important steppingstone to new therapies for Alzheimer’s, chronic traumatic encephalopathy, and frontotemporal dementia.

The PSP Research Roundtable is a pre-competitive collaboration involving patient advocacy organizations, academia, and selected industry leaders. Its mission is to represent the field in addressing bottlenecks and accelerating the development of new treatments for PSP and other primary tauopathies. 

Operating Details

The PSP Roundtable is convened by CurePSP and the Tau Consortium. Specific priorities for the Roundtable will be defined on an annual basis by a consensus-driven steering committee. The steering committee will include one voting representative from each patient advocacy group listed above. Each company that signs on as a member may add one additional voting representative to the steering committee.

Meeting details will vary based on emerging needs within the field. But generally, Roundtable meetings will convene 1-2 times per year, for 1-2 days at a time, in the Washington, DC area. Topics will be selected by the steering committee and may initially include PSP diagnostic criteria, biomarkers, pivotal endpoints, and clinical trial design.

Attendance by non-members is by invitation only. We expect to frequently invite guest panelists from academia to address the specific issues prioritized by the steering committee. We also expect researchers and decision makers from key government agencies such as the NIH, FDA, EMA, and Health Canada to be regular participants.

A medical writer will be on hand at each meeting, with the expectation that each meeting will result in a publication. The medical writer will create the manuscript, with relevant speakers expected to help in editing the final product.

Current Members

 

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Becoming a Member

Membership in the PSP Research Roundtable is open to leaders in the pharmaceutical, imaging, and diagnostics industry who are interested in advancing the science of PSP and related tauopathies.

The annual membership fee is $50,000 per company. Each member company may appoint one representative to the steering committee and send up to four representatives to each Roundtable meeting. Membership fees cover meeting registration but do not cover out of pocket travel expenses.

To become a member, please contact:

Dr. Alex Klein
CurePSP; VP of Scientific Affairs
klein@curepsp.org
+1-347-294-2872

 

Other organizing committee members:

Patrick Brannelly
Tau Consortium; Program Director
pbrannelly@rwtrinc.com
+1-650-743-7141

Dr. Adam Boxer
Professor of Neurology, University of California, San Francisco
adam.boxer@ucsf.edu
+1-415-476-0668

Please click on image below to download PSP Research Roundtable flyer.

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