Support Groups
Support Group Network
The CurePSP Support Network encourages and organizes activities that foster face-to-face communication, exchange, and interaction of comfort and mutual benefit to support group members who are caregivers, family members, friends, and persons with PSP, CBD, MSA and related diseases.
- Support Groups: In Person
Latest Updates:
NEW GROUP: PSP/CBD/MSA Support Group for Long Island, NY
For people and families dealing with PSP, CBD, MSA and related disorders
(progressive supranuclear palsy, corticobasal degeneration, multiple system atrophy)
Third Saturday of each Month 1:30 to 3:30 PM
June 19, July 17, August 21, September 18, October 16, November 6 (Third Sat unavailable), December 18
North Shore University Hospital
Tower Conference Room – First Floor
300 Community Drive
Manhasset, New York 11030
Group Leaders
KARA SCHEININ-HOLISHER, LCSW, a Licensed Clinical Social Worker, has experience facilitating support groups and also provides individual and family psychotherapy. Two years after an initial diagnosis of Parkinson’s Disease, Ms. Holisher's father was diagnosed with PSP in 2004. He recently passed away. During her father's illness, Ms. Holisher was actively involved in helping her parents cope with PSP. She also helped navigate through our complex healthcare system to obtain needed services and support.kbhx2@optonline.net - 516 932-1696.
HARRIET FEINER, LMSW was a professor of social work at the Wurzweiler School of Social Work of Yeshiva University for 18 years. She recently retired from The Jewish Board of Family and Children’s Services where she was Director of two End of Life Care programs: the Shira Ruskay Center (SRC) www.shiraruskay.org and the Doula to Accompany and Comfort Program www.shiraruskay.org/doula.html After a diagnosis of Parkinson’s disease, Ms.Feiner’s husband received a diagnosis of PSP several years later. He died in November of 1995. His brain was donated and the PSP diagnosis was confirmed by autopsy. hfeiner@nyc.rr.com - 718-224-4654
- Support Groups: Online
- Peer Supporters (Communicators)
Peer Supporters (Communicators) are volunteers who are available to offer support by phone or e-mail. There may not be a communicator in your immediate area, but we encourage you to call any one of the contacts on this list. As you may know, your best resource is probably the person who is currently going through or went through what you are experiencing.
- Additional Online Support Resources
WE NEED YOU!!!
CurePSP continually seeks motivated individuals to become Peer Supporters (Communicators) in their local area. Peer Supporters volunteer their time by making themselves available by phone and/or e-mail and sharing their time with others affected by PSP, CBD, MSA and related brain diseases.
If you are interested in becoming a Peer Supporter, send an email to Trish Caruana at caruana@curepsp.org.
DISCLAIMER:
The support groups, communicators and support group networks of the Foundation ("Support Group Network") are provided for educational and informational purposes only. This Support Group Network is not a substitute in any way for medical treatment, advice, diagnosis or treatment. Always seek the advice of your physician or other qualified heath provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have learned from the Support Group Network.
The Foundation does not recommend or endorse any specific tests, treatments, physicians, products, procedures, opinions, or other information that may be mentioned at the Support Group Network. Reliance on any information provided by the Foundation, Foundation employees, others in the Support Group Network at the invitation of the Foundation or other visitors to the Support Group Network is solely at your own risk. You should not rely on information you receive from or through the Support Group Network for any personal, medical or health decision, but should consult with a qualified professional for specific information suited to your case.
