Support Groups: In-Person

CurePSP encourages and organizes activities that foster face-to-face communication, exchange, and interaction of comfort and mutual benefit to group members who are caregivers, family members, friends, and persons with PSP, CBD, MSA and related diseases. We are continually seeking motivated individuals to start and facilitate support groups in their local area. Please consider sharing some of your time with others by being a support group leader. If you are interested, or are unable to reach the facilitator of a group, please send an email to Kimberly Anderson at anderson@curepsp.org. 


To find details on the face-to-face support group nearest you, please select the appropriate state/country below.

AZ | AR | CA | CO | FL | GA | HI | IL | KY | MA | MD | ME | MO | MI | MN | NE | NJ | NM | NC | OH | OR | PA | TX | UT | WA | WY | Canada | Australia | Other MSA Groups

Arizona

Glendale
Information: For anyone affected directly or indirectly by PSP
Location: Banner Thunderbird Medical Center, Conference Room 1, 5555 West Thunderbird Road, Glendale, AZ
Meeting Time(s): 3rd Saturday of the odd months of the year (Jan, Mar, etc) from 1:30pm - 3:30pm
Facilitator: Tito Sebastiani, 602-920-4632, tsebastiani@cox.net

Tempe
Information: For anyone affected directly or indirectly by PSP  Location: Pyle Adult Recreation Center, Yuma Room, 655 East Southern Avenue, Tempe, AZ 85282 Meeting Time(s): 2nd Saturday of the even months of the year (Feb, Apr, etc) from 1:30pm - 3:30pm  Directions: The Center is directly across from Walmart, Yuma is the first room on the left down the hall. Attendees should park in back of the building (Southwest side) to be closest to room  Facilitator: Ann Ludwig, 602-318-0895, aludwig@asu.edu

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Arkansas

Little Rock

Information: For anyone affected by PSP, CBD or MSA
Location: Alzheimer's Arkansas: 201 Markham Center Drive, Little Rock, AR 72205 (ask front desk for room details, 501-224-0021)
Meeting Time(s): 4th Thursday of every month from 1:00pm - 2:30pm (next 2 meetings moved to Monday - Nov. 24, 2014 and Dec. 22, 2014)
Facilitator: Randi Haley, 870-703-6417, randirhaley@yahoo.com

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California

Irvine
Information: For patients, caregivers and families affected by Parkinson's, PSP, CBD, MSA and other atypical Parkinsonian disorders Location: Atria Woodbridge Assisted Living, 1 Witherspoon, Irvine, CA 92604 Meeting Time: Every Tuesday, 10:30am - 12:00pm. Location: Lakeview Senior Center, 20 Lake Road, Irvine, CA 92604 Meeting Time: 3rd Wednesday of every month from 10:30am - 12:00pm Facilitator: Don Perdue, 949-552-0465, djperdue@cox.net

Northern/San Mateo
Information: Neurodegenerative movement disorder group (PSP, CBD, MSA, etc.) - caregivers only. Contact facilitator for more info. Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404 Meeting Time(s): Every 5 to 7 weeks (call or email for schedule) from 5:00pm - 7:00pm (always on Sunday) Facilitator: Robin Riddle, 650-814-0848, robin.riddle@brainsupportnetwork.org

Los Angeles - UCLA
Information: For Patients, Families, & Friends Affected by PSP, CBD, MSA & Parkinson's disorders Location: Ronald Reagan UCLA Medical Center, 757 Westwood Plaza, Los Angeles, CA, Room 3102 (room may vary, please call ahead), to RSVP contact dwest@mednet.ucla.edu or call 310-206-2154 Meeting Time: 1st Friday of every month from 2:00pm - 4:00pm Facilitator: Loretta Mazorra, RN, NP, MN, MA in Spiritual Psychology, anlom@sbcglobal.net

Sacramento
Information:
For Patients and Caregivers dealing with PSP, CBD, MSA and Parkinson's Location: Shriner’sHospital on the UC Davis Medical Center Campus, 7th Floor Board Room, 2425 Stockton Blvd.,Sacramento, CA Meeting Time: 4th Wednesday of every month, 7:00pm-9:00pm Facilitator: Kristen Krueger, 916-205-6456, ftdkristenkrueger@gmail.com

San Diego
Information:
For patients and their caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS Location: UCSD Thornton Hospital, 9300 Campus Point Drive, La Jolla, CA 92037, SDG&E Room (3rd floor) Meeting Time(s): 3rd Thursday of every month from 1:00pm - 2:30pm Facilitator: John Jenkins, 619-787-2760, jenkins356@sbcglobal.net

Information: Only for caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS Location: Holy Angels Byzantine Catholic Church, 2235 Galahad Road, San Diego, CA 92123 Meeting Time(s): On the following Wednesdays from 11:00am - 1:00pm: Apr. 30, July 2, Sep. 3, Nov. 5 Facilitator: Beth Rosselle, 602-717-4994, beth.rosselle@gmail.com

Information: For patients and caregivers dealing with PSP, CBD, MSA, and Parkinson's disease Location: Parkinson's Association, 8555 Aero Drive, Suite 308, San Diego, CA Meeting Time(s): 3rd Thursday of every month from 1:00pm - 3:00pm Facilitator: Laila Suleiman-Khel, lsuleiman@parkinsonsassociation.org

 

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Colorado

Denver/Englewood
Information: Neurodegenerative movement disorder group (MSA, PSP, CBD)
Location: InnovAge Johnson Adult Day Program, 3444 S. Emerson Street, Englewood, CO 80113
Meeting Time(s): 2nd Friday of each month from 10:00am - 12:00pm (patients and caregivers together) and 4th Friday of each month from 10:00am - 12:00pm (caregivers only)
Facilitators: Helenn Franzgrote, 303-789-9900, jhfranzgrote@comcast.net


Johnstown/Loveland
Information: Neurodegenerative movement disorder group (MSA, PSP, CBD)
Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528
Meeting Time(s): 2nd Friday of each month from 1:00pm - 3:00pm
Facilitators: Ruth Fletcher-Carter, 970-532-2681, chantillylace3@usa.net

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Florida

Southwest/Naples
Information: For patients/caregivers/families affected by PSP, CBD, MSA and related diseases
Location: Manor Care at Lely Palms, 6135 Rattlesnake Hammock Road, Naples, FL 34113
Meeting Time(s): 2nd Saturday of each month from 2:00pm - 3:30pm
Facilitator: Cindy MacDonald, 239-353-3960 or 239-404-4429, hotrdh@hotmail.com
 

Southeast/Deerfield Beach
Information: For patients/caregivers/families affected by PSP, CBD, MSA and related diseases
Location: North Broward Medical Center, 201 E. Sample Road, Deerfield Beach, FL 33064, 1st Floor, Classrooms 7&8 (for directions only: 954-941-8300)
Meeting Time(s): Contact facilitator for more info
Facilitator: Paul Freeman, 305-970-0805, freemanph@aol.com">freemanph@aol.com
 

Central/Orlando Area
Information: For patients/caregivers/families affected by PSP, CBD, MSA and related diseases
Location: Contact facilitator
Meeting Time(s): Once a month, contact facilitator for more info
Facilitator: Jim Pierce, 407-756-0184 or 407-880-3694, jim.pierce@gmail.com">jim.pierce@gmail.com
 


Tallahassee
Information: For all affected by PSP
Location: Westminster Gardens - 10th Floor Meeting Room, 301 E. Carolina Street, Tallahassee, FL 32301
Meeting TIme: 1st Monday of every month at 2:00pm, first meeting May 4, 2015
Facilitator: Ann Foster, 850-980-6875, afoster75f@juno.com

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Georgia

Atlanta
Information: For caregivers and families (only), who are dealing with atypical parkinsonisms, PSP and CBD
Location: Emory University Brain Center Initiative, 12 Executive Park Drive, 5th floor, Atlanta, GA
Meeting Time(s): 2nd Saturday of each month from 10:00am – 11:30am
Facilitator: Lynn Ross, LMSW, 404-712-7091, slross@emory.edu

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Hawaii

Honolulu
Information: For anyone dealing with PSP, CBD, MSA or atypical Parkinson's
Location: Waikiki Banyan, 201 Ohua Avenue, Honolulu, HI 96815
Meeting Time(s): 2nd Saturday of each month from 10:00am – 11:30am
Facilitator: Ozzie Boyle, 206-793-8648, ozzieboyle@gmail.com

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Illinois

Chicagoland
Information: For PSP/CBD patients
Location: The Abington of Glenview Library, 3901 Glenview Road, Glenview, IL 60025
Meeting Time(s): First Saturday of every month from 1:30pm - 3:30pm
Facilitator: David Takehara, davidtakehara@gmail.com

Northwestern Area
Information: For those with PD and other movement disorders
Location: Northwestern Memorial Hospital, 251 East Huron, Feinberg Pavilion, 3rd Floor, Room A (free parking at Huron/St. Clair)
Meeting Time(s): First Tuesday of every month from 10:30am - 2:00pm
Facilitator: Pamela Palmentera, 312-503-4397, ppalment@nmff.org

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Kentucky

Louisville
Information: Atypical parkinsonian disorders support group for patients/caregivers
Location: The Parkinson Center, 315 Townepark Circle, Suite 100, Louisville, KY 40243
Meeting Time(s): 1st Tuesday of every month at 6:30pm
Facilitator: Dan Heins, 502-216-4563, danheins@gmail.com

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Maine

Falmouth
Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS
Location: Maine Parkinson’s I&R Center, 5 Bucknam Road, Falmouth, ME
Meeting Time(s): One Sunday per quarter from 1:00pm - 3:00pm.  Contact Facilitators for info.
Facilitators: Janet Edmunson, 207-799-4963, janet@janetedmunson.com and Barbi Johnson, 207-633-0881, rockyledges@yahoo.com

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Maryland

Anne Arundel County
Information: For patients/caregivers affected by PSP, CBD and other neurodegenerative diseases
Location: Kris Leigh Assisted Living Facility, 831 Ritchie Highway, Severna Park, MD
Meeting Time(s): Every 3rd Saturday of the month from 1:00pm - 3:00pm (contact facilitators for more info)
Facilitator: Stephen Goldman, 301-330-6954, goldmanskm@comcast.net

Baltimore City and County

Information: For caregivers affected by Parkinson's disease, PSP, CBD, MSA, DLB and other neurodegenerative diseases
Location: Johns Hopkins at Greenspring Station, 10753 Falls Road, Pavillion II, Cafe Conference Room, Lutherville, MD 21093
Meeting Time: 1st Thursday of every month from 10:00am - 12:00pm
Facilitator: Becky Dunlop, RN, 410-955-8795, rdunlop@jhmi.edu

Bel Air

Information: For caregivers affected by Parkinson's disease, PSP, CBD, MSA and other neurodegenerative diseases
Location: William McFaul Activities Center, 525 West McPhail Road, Bel Air, MD 21014
Meeting Time: 4th Thursday of every month from 2:00pm - 4:00pm
Facilitator: Bailey Vernon, MPH,CHES, 410-616-2811, bvernon1@jhmi.edu

Easton

Information: For caregivers affected by Parkinson's disease, PSP, CBD, MSA and other neurodegenerative diseases
Location: Eastern Shore Smile Solutions, 29267 Erickson Drive, Easton, MD 21601
Meeting Time: 3rd Wednesday of every month from 3:30pm - 5:00pm
Facilitator: Bailey Vernon, MPH,CHES, 410-616-2811, bvernon1@jhmi.edu

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Massachusetts

Boston
Information: For patients, caregivers, and families dealing with PSP and MSA only
Location: Boston University Medical Center, 88 East Newton Street, 2nd Floor, Conference Room C
Meeting Time(s): Quarterly - Contact facilitator for info.
Facilitator: Melissa Diggin, 339-927-5468, m_diggin@hotmail.com

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Michigan

Delton
Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders Location: 11137 Floria Drive, Delton, MI 49046 (park in church parking lot) Meeting Time(s): 2nd Saturday of each month from 2:00pm - 3:30pm Facilitators: Mary Meagher, 269-267-3117, mmeagher@mei.net

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Minnesota

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Minneapolis
Information: For patients and families dealing with PSP, CBD, and MSA Location: Struther's Parkinson's Center, 6701 Country Club Drive, Golden Valley, MN 55427 Meeting Time(s): 2nd Wednesday of every month from 1:00pm - 2:30pm Facilitator: Joan Hlas, 952-993-6650

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Missouri

St. Louis
Information: For patients, caregivers, and anyone affected by PSP
Location: St. Louis Altenheim, 5408 South Broadway, St. Louis, MO 63111
Meeting Time(s): 4th Friday of every month at 11:00am (beginning Jan. 23, 2015)
Facilitator: Beth Evans, 314-732-3433, notelizabethevans@gmail.com

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Nebraska

Lincoln
Information: For caregivers and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders
Location: 5901 N. 27th Street, Lincoln, NE
Meeting Time(s): 4th Tuesday of every month from 6:30pm - 8:30pm
Facilitator: Susie Luxford, 402-525-7367, susie.luxford@homerealestate.com

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New Jersey

Cape May Court House
Information:
 For caregivers dealing with PSP and other atypical Parkinsonian disorders
Location: Cape Regional Medical Center, 2 Stone Harbor Blvd, Cape May Court House, New Jersey (exit 10 off the Garden State Parkway), Maruchi Room (first floor of medical center)
Meeting Time(s): 1st Tuesday of every month, 1:00pm - 3:00pm
Facilitator: Bonnie Kratzer, 609-463-4043, jkratzer@caperegional.com

South Orange
Information:
For anyone affected by PSP
Location: South Orange Library, 65 Scotland Road, South Orange, NJ 07070
Meeting Time(s): Mar. 22, Apr. 19, May 17, 2:00pm - 3:30pm
Facilitator: Robin Chernoff, 646-734-2353, robinchernoff@aol.com

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New Mexico

Albuquerque

Information: For patients, caregivers and families affected by PSP, CBD, MSA and other atypical Parkinsonian disorders
Location: The Flying Star, 10700 Corrales Road, Albuquerque, NM
Meeting Time(s): 1st Tuesday of each month from 6:30pm-8:00pm
Facilitators: Roxi Padrid, 312-485-9342, roxipadrid@gmail.com

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New York

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North Carolina

Raleigh/Durham/Chapel Hill

Information: For patients, caregivers, and anyone affected by PSP
Location: UNC Center for Rehabilitative Care, 1807 Fordham Blvd., Chapel Hill, NC 27514
Meeting Time(s): 1st Wednesday of every month from 1:30pm - 3:00pm
Facilitator: Jocelyne Gervais, 919-260-6812, jrgassociatesllc@gmail.com

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Ohio

Berea
Information: For patients/families/friends/caregivers affected by PSP, CBD, MSA, Shy-Drager+Lewy Bodies Location: Southwest General Hospital, 18697 Bagley Road, Middleburg Heights, OH, Room 15C (basement level) Meeting Time(s): 2nd Sunday of each month from 1:00pm - 3:00pm, contact facilitator for more info Directions/Parking: Hospital is easy accessed from I-480, I-71 and the Ohio Turnpike - free parking rear garage of hospital. Facilitator: Dave Potter, 440-263-5330, davepotter7@gmail.com, Pat Beekman, 440-234-0007

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Oregon

Portland
Information: For patients of PSP, CBD, and MSA, as well as their families and caregivers
Location: OHSU River Side Bldg, Conference Room 5 (3rd Floor), 3303 SW Bond St., Portland, OR 97239
Meeting Time(s): 1st Thursday of each month at 5:30pm
Facilitator: Hallie Bradley, htbradley@netscape.net

North Portland
Information: For patients of PSP, CBD, and MSA, as well as their families and caregivers
Location: Marquis Care Center, 319 NE Russet Street, Portland, OR
Meeting Time(s): 3rd Saturday of each month from 10:00am - 12:00pm
Facilitator: Vicki Blacken, 503-651-3633, vblacken@web-ster.com

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Pennsylvania

Philadelphia
Information:
For persons with movement disorders
Location: Penn Center, 9th and Pine Street, Philadelphia, PA 19107, 4th Floor
Meeting Time(s): 3rd Thursday of every month at 2:00pm, contact facilitator for info
Facilitator: Christin Salemno, 215-829-2347, christin.salemno@uphs.upenn.edu

Youngwood
Information:
For persons with movement disorders
Location: Honeysuckle Haven, 621 South 5th Street, Youngwood, PA 15697
Meeting Time(s): 3rd Thursday of each month from 6-8pm
Facilitator: Rose Buric, 724-691-7363, rjburic@gmail.com

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Texas

Houston
Information: For patients/families with PSP, CBD, MSA, LBD
Location: Memorial Hermann SW Hospital, Houston, TX, Learning Center B, Professional Building II
Meeting Time(s): 3rd Saturday of each month (except July and December) at 1:00pm
Facilitator: Karen Kennemer, 281-358-2282, kmk1224@aol.com
 

Dallas
Information: For PSP/CBD/MSA patients and caregivers
Location: Texas Health Presbyterian Hospital Dallas, Texas Health Resources University (THRU) building, Room 111
Meeting Time(s): 3rd Saturday of the month (except August) from 10:00am - 11:30am
Facilitator: Kathryn MacDonell, 214-908-4793, kathmac@linkrd.com

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Utah

Salt Lake City
Information:
For PSP Patients and Caregivers
Location: Neurosciences Technology and Imaging Center, 729 Arapeen Drive, University Research Park, University of Utah
Meeting Time(s): 2nd Monday of every month at 6:00pm
Facilitator(s): Rebecca Jorgensen, rebecca.jorgensen@hsc.utah.edu

 

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Virginia

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Washington

Seattle
Information: For patients/caregivers/families dealing with PSP/CBD
Location: Virginia Mason Hospital, Lindeman Pavilion
Meeting Time(s): 4th Monday of every month at 11:00am
Facilitator: Carin Mack, MSW, 206-230-0166, socialwkr@comcast.net

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Wyoming

Johnstown/Loveland (Colorado)
Information: Neurodegenerative movement disorder group (MSA, PSP,
CBD)

Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528
Meeting Time(s): 1st Friday of each month from 1:00pm - 3:00pm
Facilitators: Ruth Fletcher-Carter, 970-532-2681, chantillylace3@usa.net

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Canada

Calgary, AB
Information:
For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical Parkinsonian disorders
Location: Servus Credit Union - Creekside Branch, 12662 Symons Valley Road NW, Calgary, AB
Meeting Time(s): 3rd Saturday of every month (first meeting Jan. 17, 2015) from 12:00pm - 2:00pm
Facilitator: Kelly Clapham, 403-803-3307, claphamk@telus.net

Burlington, ON
Information:
For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical Parkinsonian disorders
Location: Appleby Place Retirement Residence, 500 Appleby Line, Burlington, ON
Meeting Time(s): Last Monday of every month from 1:00pm - 3:00pm
Facilitator: Kimberley Adrovez, 905-296-1095, kimberleyadrovez@yahoo.com

Kingston, ON
Information: For patients and families affected by PSP, CBD and MSA
Location: Legion 560 (Fireside Room), 734 Montreal Street, Kingston, ON (free parking and handicap accessible)
Meeting Time(s): 1st Thursday of every month from 6:00pm - 8:00pm
Facilitator: MJ Overby, 613-531-2685, hopematterspspkingston@gmail.com

Toronto, ON
Information:
 For carepartners of PSP/CBD/MSA patients; hosted by Parkinson Society of Central & Northern Ontario
Location: 4211 Yonge Street, Suite 321, Toronto, ON
Meeting Time(s): 3rd Wednesday of every month from 6:15pm – 8:00pm
Facilitator: Robert TerSteege, 416-227-3372, 1-800-565-3000 x3372, robert.tersteege@parkinson.ca

Surrey, BC
Information: For anyone affected by PSP, CBD or MSA
Location: Elim Village, Oasis Building, Family Room, 9008 158th Street, Surrey, BC V4N 2X7
Meeting Time(s): 4th Friday of every month from 10:00am - 11:00am
Facilitator: Bob Brett, 604-930-8150, bandmbrett@gmail.com, Robyn Heppner, 604-584-7587 x2020, rheppner@elimvillage.com

Winnipeg, MB
Information: For patients, caregivers, and family affected by PSP, CBD, MSA and other Parkinsonian disorders
Location: Bronx Park Community Centre - The Meeting Room, 720 Henderson Highway, Winnipeg, MB
Meeting Time(s): Last Tuesday of every month from 6:30pm - 8:00pm, first meeting March 31, 2015
Facilitator: Kristyn Luft, 204-541-0211, krisshew@gmail.com

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Australia

Victoria
Information: For PSP patients and caregivers
Location: Parkinson’s Victoria
Meeting Time(s): 1st Thursday of every other month at 10:30am
Facilitator: Anne Mooney, damooney@bigpond.com

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Other MSA Groups

Local MSA Support Groups through the MSA Coalition
www.multiple-system-atrophy.org/local-support-groups

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