Support Groups: In-Person

CurePSP encourages and organizes activities that foster face-to-face communication, exchange, and interaction of comfort and mutual benefit to group members who are caregivers, family members, friends, and persons with PSP, CBD, MSA and related diseases.

We are continually seeking motivated individuals to start and facilitate support groups in their local area. Please consider sharing some of your time with others by being a support group leader. If you are interested, please send an email Trish Caruana, VP of Programs and Education, at caruana@curepsp.org.

If you are unable to reach the facilitator of a group, please contact Chantel Stokes at 800-457-4777 x5668 or stokes@curepsp.org.

To find a face-to-face support group in your area, please select the appropriate state/country below.

AZ | CA | CO | FL | GA | IL | KY | MA | MD | ME | MI | MN | NE | NJ | NY | OH | OR | PA | TX | UT | VA | WA | WV | WY | Canada | Australia | Other MSA Groups




Arizona

Glendale
Information: For anyone affected directly or indirectly by PSP
Location: Banner Thunderbird Medical Center, 5555 West Thunderbird Road, Glendale, AZ, Conference Room 1
Meeting Time(s): 3rd Saturday of the odd months of the year (Jan, Mar, etc) from 1:30pm - 3:30pm
Facilitator: Tito Sebastiani, 602-920-4632, tsebastiani@cox.net


Tempe
Information: For anyone affected directly or indirectly by PSP
Location: Pyle Adult Recreation Center, 655 East Southern Avenue, Tempe, AZ 85282, Yuma Room
Meeting Time(s): 2nd Saturday of the even months of the year (Feb, Apr, etc) from 1:30pm - 3:30pm
Directions: The Center is directly across from Walmart, Yuma is the first room on the left down the hall. Attendees should park in back of the building (Southwest side) to be closest to room
Facilitator: Ann Ludwig, 602-318-0895, aludwig@asu.edu

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California

Northern/San Mateo
Information:
Neurodegenerative movement disorder group (PSP, CBD, MSA, etc.) - caregivers only. Contact facilitator for more info.
Location: Mimi's Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404
Meeting Time(s): Every 5 to 7 weeks (call or email for schedule) from 5:00pm - 7:00pm (always on Sunday)
Facilitator: Robin Riddle, 650-814-0848, robin.riddle@brainsupportnetwork.org
 

Los Angeles - UCLA
Information:
Parkinsonian Disorders Support Group
Location: Ronald Reagan UCLA Medical Center, Los Angeles, CA (room may vary)
Meeting Time(s): 1st Friday of every month from 2:00pm - 4:00pm
Facilitator: Loretta Mazorra, RN, MN, MA, 310-772-0064, anlom@sbcglobal.net, RSVP to dwest@mednet.ucla.edu

San Diego
Information: For patients and their caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS
Location: UCSD Thornton Hospital, 9300 Campus Point Drive, La Jolla, CA 92037, SDG&E Room (3rd floor)
Meeting Time(s): 3rd Thursday of every month from 1:00pm - 2:30pm
Facilitators: John Jenkins, 619-787-2760, jenkins356@sbcglobal.net

San Diego
Information: For ONLY caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS
Location: Holy Angels Byzantine Catholic Church, 2235 Galahad Road, San Diego, CA 92123
Meeting Time(s): On the following Wednesdays from 11:00am - 1:00pm: Apr. 30, July 2, Sep. 3, Nov. 5
Facilitators: Patricia Hagan, 619-223-1645 or 619-222-5107, pkhagan@cox.net

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Colorado

Denver/Englewood
Information: Neurodegenerative movement disorder group (MSA, PSP, CBD)
Location: InnovAge Johnson Adult Day Program, 3444 S. Emerson Street, Englewood, CO 80113
Meeting Time(s): 2nd Friday of each month from 10:00am - 12:00pm (patients and caregivers together) and 4th Friday of each month from 10:00am - 12:00pm (caregivers only)
Facilitators: Helenn Franzgrote, 303-789-9900, jhfranzgrote@comcast.net


Johnstown/Loveland
Information: Neurodegenerative movement disorder group (MSA, PSP, CBD)
Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528
Meeting Time(s): 2nd Friday of each month from 1:00pm - 3:00pm
Facilitators: Ruth Fletcher-Carter, 970-532-2681, chantillylace3@usa.net

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Florida

Southwest/Naples
Information: For patients/caregivers/families affected by PSP, CBD, MSA and related diseases
Location: Manor Care at Lely Palms, 6135 Rattlesnake Hammock Road, Naples, FL 34113
Meeting Time(s): 2nd Saturday of each month from 2:00pm - 3:30pm
Facilitator: Cindy MacDonald, 239-353-3960 or 239-404-4429, hotrdh@hotmail.com
 

Southeast/Deerfield Beach
Information: For patients/caregivers/families affected by PSP, CBD, MSA and related diseases
Location: North Broward Medical Center, 201 E. Sample Road, Deerfield Beach, FL 33064, 1st Floor, Classrooms 7&8 (for directions only: 954-941-8300)
Meeting Time(s): Contact facilitator for more info
Facilitator: Paul Freeman, 305-970-0805, freemanph@aol.com

Central/Orlando Area
Information: For patients/caregivers/families affected by PSP, CBD, MSA and related diseases
Location: Contact facilitator
Meeting Time(s): Once a month, contact facilitator for more info
Facilitator: Jim Pierce, 407-756-0184 or 407-880-3694, jim.pierce@gmail.com

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Georgia

Atlanta
Information: For caregivers and families (only), who are dealing with atypical parkinsonisms, PSP and CBD
Location: Wesley Woods Health Center, 1841 Clifton Rd, Atlanta, GA 30329, 3rd Floor Conference Room
Meeting Time(s): 2nd Saturday of each month from 10:00am – 11:30am
Facilitator: Lynn Ross, 404-728-6300, slross@emory.edu

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Illinois

Chicagoland
Information: For PSP/CBD patients
Location: The Abington of Glenview Library, 3901 Glenview Road, Glenview, IL 60025
Meeting Time(s): First Saturday of every other month from 1:30pm - 3:30pm
Facilitator: Melissa Trinidad, 847-729-0000, mtrinidad@theabington.com

Northwestern Area
Information: For those with PD and other movement disorders
Location: Northwestern Memorial Hospital, 251 East Huron, Feinberg Pavilion, 3rd Floor, Room A (free parking at Huron/St. Clair)
Meeting Time(s): First Tuesday of every month from 10:30am - 2:00pm
Facilitator: Pamela Palmentera, 312-503-4397, ppalment@nmff.org

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Kentucky

Louisville
Information: Atypical parkinsonian disorders support group for patients/caregivers
Location: PSCKY Office, Middletown, 315 Townepark Circle, Suite 100
Meeting Time(s): 2nd Tuesday of every month, 12:00pm - 2:00pm
Facilitator: Dan Heins, 502-216-4563, danheins@gmail.com

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Maine

Falmouth
Information: For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS
Location: Maine Parkinson’s I&R Center, 5 Bucknam Road, Falmouth, ME
Meeting Time(s): One Sunday per quarter from 1:00pm - 3:00pm.  Contact Facilitator for info.
Facilitators: Janet Edmunson, 207-799-4963, janet@janetedmunson.com
___________Barbi Johnson, 207-633-0881, rockyledges@yahoo.com

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Maryland

Anne Arundel County
Information: For patients/caregivers affected by PSP, CBD and other neurodegenerative diseases
Location: Kris Leigh Assisted Living Facility, 831 Ritchie Highway, Severna Park, MD
Meeting Time(s): Every 3rd Saturday of the month from 1:00pm – 3:00pm (contact facilitators for more info)
Facilitators: Ileen Watson, 410-271-1818, ileenw@verizon.net


Baltimore City and County
Information: For caregivers affected by Parkinson's disease, PSP, CBD, MSA and other neurodegenerative diseases
Location: Johns Hopkins at Greenspring Station, 10753 Falls Road, Pavillion II, Cafe Conference Room, Lutherville, MD 21093
Meeting Time(s): 1st Thursday of every month from 10am - 12pm
Facilitator: Becky Dunlop, RN, 410-955-8795, rdunlop@jhmi.edu


Bel Air
Information: For caregivers affected by PSP, CBD, MSA and other neurodegenerative diseases
Location: William McFaul Activities Center, 525 West McPhail Road, Bel Air, MD 21014
Meeting Time(s): 4th Thursday of every month from 2pm - 4pm
Facilitator: Becky Dunlop, RN, 410-955-8795, rdunlop@jhmi.edu

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Massachusetts

Boston
Information: For patients, caregivers, and families dealing with PSP and MSA only
Location: Boston University Medical Center, 88 East Newton Street, 2nd Floor, Conference Room C
Meeting Time(s): Quarterly - Contact facilitator for info.
Facilitator: Melissa Diggin, 339-927-5468, m_diggin@hotmail.com

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Michigan

Alma
Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders
Location: Masonic Pathways, 1200 Warwick Drive, Alma, Michigan, Diog Conference Center (below chapel)
Meeting Time(s): 4th Wednesday of every month
Facilitators: Robbie and Keith Virgo, 989-681-6321, robbie@daytimesleeper.com

Delton
Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders
Location: 1137 Floria Road, Delton, MI 49046 (park in church parking lot)
Meeting Time(s): 2nd Saturday of each month from 2:00pm - 3:30pm, beginning April 12, 2014
Facilitators: Mary Meagher, 269-267-3117, mmeagher@mei.net">mmeagher@mei.net

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Minnesota

Rochester
Information: For patients, caregivers, and families dealing with PSP and CBD
Location: Assisi Heights Conference Center, Fire Room 1, 1001 14th St. NW, Rochester, Minnesota
Meeting Time(s): 2nd Thursday of every month from 3:30pm - 5:00pm - contact facilitators for more info
Facilitator: Christel Patnaude and Dina Drubach, cbdpsprochester@gmail.com

Minneapolis
Information: For patients and families dealing with PSP, CBD, and MSA
Location: Struther's Parkinson's Center, 6701 Country Club Drive, Golden Valley, MN 55427
Meeting Time(s): 2nd Wednesday of every month from 1:00pm - 2:30pm
Facilitator: Joan Hlas, 952-993-6650

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Nebraska

Lincoln
Information: For caregivers and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders
Location: 5901 N. 27th Street, Lincoln, NE
Meeting Time(s): 4th Tuesday of every month from 6:30pm - 8:30pm (beginning Jan 28, 2014)
Facilitator: Susie Luxford, 402-525-7367, susie.luxford@homerealestate.com

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New Jersey

Cape May Court House
Information:
 For caregivers dealing with Parkinson's disease and other atypical Parkinsonian disorders
Location: Cape Regional Medical Center, 2 Stone Harbor Blvd, Cape May Court House, New Jersey (exit 10 off the Garden State Parkway), Maruchi Room (first floor of medical center)
Meeting Time(s): 1st Tuesday of every month, 1:00pm - 3:00pm
Facilitator: Bonnie Kratzer, 609-463-4043, jkratzer@caperegional.com

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New York

Manhattan
Information: For all those affected by MSA
Location: 545 First Avenue and 30th Streets, Greenberg Hall, Room 5N (directly across from the main entrance to the NYU Medical Center)
Meeting Time(s): Every 3rd Saturday of the month from 2:00pm – 4:30pm
Facilitators: Michael DeMarsico, 347-268-9817, mickpub@hotmail.com

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Ohio

Berea
Information: For patients/families/friends/caregivers affected by PSP, CBD, MSA, Shy-Drager+Lewy Bodies
Location: Southwest General Hospital, 18697 Bagley Road, Middleburg Heights, OH, Room 15C (basement level)
Meeting Time(s): 2nd Sunday of each month from 1:00pm - 3:00pm, contact facilitator for more info
Directions/Parking: Hospital is easy accessed from I-480, I-71 and the Ohio Turnpike - free parking rear garage of hospital.
Facilitator: Pat Beekman, 440-234-0007, mombeekman@yahoo.com

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Oregon

Portland
Information: For patients of PSP, CBD, and MSA, as well as their families and caregivers
Location: OHSU River Side Bldg, Conference Room 5 (3rd Floor), 3303 SW Bond St., Portland, OR 97239
Meeting Time(s): 1st Thursday of each month at 5:30pm
Facilitator: Tod Lundy, 503-442-2446, todlundy@gmail.com


North Portland
Information: For patients of PSP, CBD, and MSA, as well as their families and caregivers
Location: Marquis Care Center, 319 NE Russet Street, Portland, OR
Meeting Time(s): 3rd Saturday of each month from 10:00am - 12:00pm
Facilitator: Vicki Blacken, 503-651-3633, vblacken@web-ster.com

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Pennsylvania

Philadelphia
Information:
For persons with movement disorders
Location: Penn Center, 9th and Pine Street, Philadelphia, PA 19107, 2nd Floor Conference Room
Meeting Time(s): 3rd Thursday of every month at 1:00pm Contact facilitator for info.
Facilitator: Christin Salemno, 215-829-2347, christin.salemno@uphs.upenn.edu

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Texas

Houston
Information: For patients/families with PSP, CBD, MSA, LBD
Location: Memorial Hermann SW Hospital, Houston, TX, Learning Center B, Professional Building II
Meeting Time(s): 3rd Saturday of each month (except July and December) at 1:00pm
Facilitator: Karen Kennemer, 281-358-2282, kmk1224@aol.com
 

Dallas
Information: For PSP/CBD/MSA patients and caregivers
Location: Texas Health Presbyterian Hospital Dallas, Texas Health Resources University (THRU) building, Room 111
Meeting Time(s): 3rd Saturday of the month (except August) from 10:00am - 11:30am
Facilitator: Kathryn MacDonell, 214-908-4793, kathmac@linkrd.com

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Utah

Salt Lake City
Information:
For PSP Patients and Caregivers
Location: Neurosciences Technology and Imaging Center, 729 Arapeen Drive, University Research Park, University of Utah
Meeting Time(s): Second Monday of every month at 6:00pm
Facilitator(s): Rebecca Jorgensen, rebecca.jorgensen@hsc.utah.edu

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Virginia

Annandale
Information:
For patients, caregivers, and families dealing PSP, CBD, MSA and other atypical Parkinsonian disorders
Location: George Mason Regional Library, 7001 Little River Turnpike, Annandale, VA 22003
Meeting Time(s): 2nd Thursday of every month from 7:00pm - 9:00pm
Facilitator: Kristin Washington, 709-256-3800, krwashin@gmail.com

Charlottesville
Information:
For anyone affected directly or indirectly by PSP
Location: Citizens Commonwealth Building, 300 Preston Ave, Charlottesville, VA 22902
Meeting Time(s): 2nd Sunday of each month from 1:00pm - 2:30pm
Facilitator: Sophie Payne, 434-327-9573, sophiecllin@gmail.com

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Washington

Seattle
Information: For patients/caregivers/families dealing with PSP/CBD
Location: Virginia Mason Hospital, Lindeman Pavilion
Meeting Time(s): 4th Monday of every month at 11:00am
Facilitator: Carin Mack, MSW, 206-230-0166, socialwkr@earthlink.net

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West Virginia

Beckley
Information: For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders
Location: Offices of Dr. Rhonda Guy, 424 Stanaford Road, Beckley, West Virginia
Meeting Time(s): 3rd Saturday of every month from 1:00pm - 3:00pm
Facilitator: Jean Johnson, 304-573-3284, grammy44@suddenlink.net

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Wyoming

Johnstown/Loveland (Colorado)
Information: Neurodegenerative movement disorder group (MSA, PSP,
CBD)
Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528
Meeting Time(s): 1st Friday of each month from 1:00pm - 3:00pm
Facilitators: Ruth Fletcher-Carter, 970-532-2681, chantillylace3@usa.net

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Canada

Burlington, ON
Information:
For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical Parkinsonian disorders
Location: Appleby Place Retirement Residence, 500 Appleby Line, Burlington, ON
Meeting Time(s): 1st Thursday of every month from 1:00pm - 3:00pm
Facilitator: Kimberley Adrovez, 905-296-1095, kimberleyadrovez@yahoo.com

Kingston, ON
Information: For patients and families affected by PSP, CBD and MSA
Location: Legion 560 (Fireside Room), 734 Montreal Street, Kingston, ON (free parking and handicap accessible)
Meeting Time(s): 1st Thursday of every month from 6:00pm - 8:00pm
Facilitator: MJ Overby, 613-531-2685, hopematterspspkingston@gmail.com

Toronto, ON
Information:
 For care partners of PSP/CBD/MSA patients; hosted by Parkinson Society of Central & Northern Ontario
Location: 4211 Yonge Street, Suite 321, Toronto, ON
Meeting Time(s): 3rd Wednesday of every month from 6:15pm – 8:00pm
Facilitator: Robert TerSteege, 416-227-3372, 1-800-565-3000 x3372, robert.tersteege@parkinson.ca

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Australia

Victoria
Information: For PSP patients and caregivers
Location: Parkinson’s Victoria
Meeting Time(s): 1st Thursday of every other month at 10:30am
Facilitator: Anne Mooney, damooney@bigpond.com

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Other MSA Groups

Local MSA Support Groups through the MSA Coalition
www.multiple-system-atrophy.org/local-support-groups

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