Support Groups: Online

CurePSP-sponsored online support groups allow participants the opportunity to interact with other patients, caregivers and family members affected by PSP, CBD, MSA or related brain diseases by using their computer, telephone (charges may be incurred) or both. A computer is not required since meeting participation is always available by telephone. Below is a list of support group meetings. For more information about the meetings, please contact the Facilitator. If you have other questions, please email info@curepsp.org.

 

People with PSP

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm - 8:30pm Eastern.
Meeting Link: https://www1.gotomeeting.com/register/837967312
Meeting Tel: 702-489-0008; Access Code: 674-392-185
Facilitator: Kelley Pistacchio, 401-724-3673, kel925@verizon.net

Carepartners of People with PSP

Meeting Time(s): 4th Tuesday of each month at 8:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/714412985
Meeting Tel: 914-339-0024; Access Code: 753-354-191
Facilitator: Janet Edmunson, 207-799-4963, janet@janetedmunson.com
 

Meeting Time(s): 3rd Monday of each month at 6:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/629065833
Meeting Tel: +1 646-307-1721; Access Code: 888-602-095
Facilitator: Mike Flanagan (Canada), 519-995-4073, mikeflanagan1003@hotmail.com

People with PSP and their Carepartners

Meeting Time(s): 2nd Tuesday of each month at 11:00am-12:00pm Eastern
Meeting Link: https://global.gotowebinar.com/join/100000000063927229/310618922
Meeting Tel: 415-655-0055; Access Code: 858-245-213
Facilitator: Norm Horofker, 902-229-9239, nhorofker@aol.com

Adult Children of People with PSP

Meeting Time(s): 2nd Wednesday of each month at 8:00pm Eastern
Meeting Link: https://www2.gotowebinar.com/register/394843042
Meeting Tel: 415-655-0061; Access Code: 204-257-741
Facilitator: Laurie Huffman, LaurieSHuffman@gmail.com

People with CBD and their Carepartners

Meeting Time(s): 1st Sunday of each month at 7:00pm Eastern
Meeting Link: https://attendee.gotowebinar.com/register/7518350934289931522
Meeting Tel: (914) 614-3221; Access Code: 805-645-922
Facilitator: Karry Forsythe, 903-683-0010, forsythe76@gmail.com
 

Meeting Time(s): 3rd Tuesday of each month at 4:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/893287256
Meeting Tel: 312-878-0222; Access Code: 602-587-662
Facilitator: Janet Edmunson, 207-799-4963, janet@janetedmunson.com

People with MSA

Meeting Time(s): 3rd Monday of each month at 8:00pm Eastern
Meeting Link: https://www2.gotomeeting.com/register/759482131
Meeting Tel: 312-878-0211; Access Code: 349-078-984
Facilitator: Gary Rose, 360-200-5230, gary.rose.wa@gmail.com

Carepartners of People with MSA

Meeting Time(s): 1st Monday of each month from 8:00pm - 9:00pm Eastern
Meeting Link: https://www2.gotomeeting.com/register/977578139
Meeting Tel: 773-945-1011; Access Code: 605-218-650
Facilitator: Carol Langer, 781-608-4680, carollanger@comcast.net

Carepartners Who Are Grieving

Meeting Time(s): 2nd Wednesday of each month from 8:00pm - 9:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/389312320
Meeting Tel: 470-200-0302; Access Code: 213-853-650
Facilitator: Richard Cheu, 732-245-3173, ac614@verizon.net

Carepartners Dealing with Advanced PSP

Meeting Time(s): 4th Wednesday of each month from 7:00pm - 8:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/609461433
Meeting Tel: 951-266-6124; Access Code: 289-328-424
Facilitator: Steve Garcias, 201-677-2542, steve801luv@gmail.com