Support Groups: Online

CurePSP-sponsored online support groups allow participants the opportunity to interact with other patients, caregivers, and family members affected by PSP, CBD, MSA or related brain diseases by using their computer, telephone (toll charges incurred), or both. Below is a list of online support group meetings in which you may wish to participate.

PSP Patients

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm - 8:30pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/327286400
Meeting Tel: 312-878-0218; Access Code: 379-111-884
Facilitator: Kelley Pistacchio, 401-724-3673, kel925@verizon.net

 

Caregivers of People with PSP

Meeting Time(s): 4th Tuesday of each month at 8:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/714412985
Meeting Tel: 914-339-0024; Access Code: 753-354-191
Facilitator: Janet Edmunson, 207-799-4963, janet@janetedmunson.com

Meeting Time(s): 3rd Monday of each month at 6:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/629065833
Meeting Tel: +1 646-307-1721; Access Code: 888-602-095
Facilitator: Mike Flanagan (Canada), 519-995-4073, mikeflanagan1003@hotmail.com

PSP Patients and their Caregivers

Meeting Time(s): 2nd Tuesday of each month at 11:00am Eastern
Meeting Link: https://www1.gotowebinar.com/register/829480089
Meeting Tel: +1 470-200-0305; Access Code: 666-221-337
Facilitator: Bob O'Neal, 508-252-3849, roneal6486@gmail.com

Adult Children of Persons with PSP

Meeting Time(s): 2nd Wednesday of each month at 8:00pm Eastern
Meeting Link: https://www2.gotowebinar.com/register/394843042
Meeting Tel: 415-655-0061; Access Code: 204-257-741
Facilitator: Laurie Huffman, LaurieSHuffman@gmail.com
 

CBD Patients and their Caregivers

Meeting Time(s): 3rd Tuesday of each month at 4:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/893287256
Meeting Tel: 312-878-0222; Access Code: 602-587-662
Facilitator: Janet Edmunson, 207-799-4963, janet@janetedmunson.com
 

MSA Patients

Meeting Time(s): 3rd Monday of each month at 8:00pm Eastern
Meeting Link: https://www2.gotomeeting.com/register/759482131
Meeting Tel: 312-878-0211; Access Code: 349-078-984
Facilitator: Gary Rose, 360-200-5230, gary.rose.wa@gmail.com
 

Caregivers of People with MSA

Meeting Time(s): 1st Monday of each month from 8:00pm - 9:00pm Eastern
Meeting Link: https://www2.gotomeeting.com/register/977578139
Meeting Tel: 773-945-1011; Access Code: 605-218-650
Facilitator: Carol Langer, 781-271-9941, carollanger@comcast.net
 

Caregivers Who Are Grieving

Meeting Time(s): 2nd Wednesday of each month from 8:00pm - 9:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/389312320
Meeting Tel: 470-200-0302; Access Code: 213-853-650
Facilitator: Richard Cheu, 732-245-3173, ac614@verizon.net

Caregivers Dealing with Advanced PSP

Meeting Time(s): 4th Wednesday of each month from 7:00pm - 8:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/609461433
Meeting Tel: 951-266-6124; Access Code: 289-328-424
Facilitator: Steve Garcias, 201-677-2542, steve801luv@gmail.com