Support Groups: Online

CurePSP-sponsored online support groups allow participants the opportunity to interact with other patients, caregivers, and family members affected by PSP, CBD, MSA or related brain diseases by using their computer, telephone (toll charges incurred), or both. Below is a list of online support group meetings in which you may wish to participate.

09.17.14 Note: Our meeting software is experiencing sporadic problems with users joining our support group calls.  If you are having trouble accessing a support group meeting, please contact Trish Caruana at 443-578-5667 or caruana@curepsp.org.  Thank you for your patience as we work to resolve this issue.

People with PSP

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm - 8:30pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/837967312
Meeting Tel: 702-489-0008; Access Code: 674-392-185
Facilitator: Kelley Pistacchio, 401-724-3673, kel925@verizon.net

 

Carepartners of People with PSP

Meeting Time(s): 4th Tuesday of each month at 8:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/714412985
Meeting Tel: 914-339-0024; Access Code: 753-354-191
Facilitator: Janet Edmunson, 207-799-4963, janet@janetedmunson.com

Meeting Time(s): 3rd Monday of each month at 6:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/629065833
Meeting Tel: +1 646-307-1721; Access Code: 888-602-095
Facilitator: Mike Flanagan (Canada), 519-995-4073, mikeflanagan1003@hotmail.com

People with PSP and their Carepartners

Meeting Time(s): 2nd Tuesday of each month at 11:00am Eastern
Meeting Link: https://www2.gotomeeting.com/register/695822706
Meeting Tel: 415-655-0055; Access Code: 858-245-213
Facilitator: Bob O'Neal, 508-252-3849, roneal6486@gmail.com

Adult Children of People with PSP

Meeting Time(s): 2nd Wednesday of each month at 8:00pm Eastern
Meeting Link: https://www2.gotowebinar.com/register/394843042
Meeting Tel: 415-655-0061; Access Code: 204-257-741
Facilitator: Laurie Huffman, LaurieSHuffman@gmail.com
 

People with CBD and their Carepartners

Meeting Time(s): 3rd Tuesday of each month at 4:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/893287256
Meeting Tel: 312-878-0222; Access Code: 602-587-662
Facilitator: Janet Edmunson, 207-799-4963, janet@janetedmunson.com
 

Meeting Time(s): 1st Tuesday of each month from 5:00pm - 6:00pm Eastern (next meeting Oct. 14)
Meeting Tel: 805-309-2350; Access Code: 20146
Facilitator: Burt Benjamin, 203-524-0137, b.benjamin@sbcglobal.net
 

People with MSA

Meeting Time(s): 3rd Monday of each month at 8:00pm Eastern
Meeting Link: https://www2.gotomeeting.com/register/759482131
Meeting Tel: 312-878-0211; Access Code: 349-078-984
Facilitator: Gary Rose, 360-200-5230, gary.rose.wa@gmail.com
 

Carepartners of People with MSA

Meeting Time(s): 1st Monday of each month from 8:00pm - 9:00pm Eastern
Meeting Link: https://www2.gotomeeting.com/register/977578139
Meeting Tel: 773-945-1011; Access Code: 605-218-650
Facilitator: Carol Langer, 781-608-4680, carollanger@comcast.net
 

Carepartners Who Are Grieving

Meeting Time(s): 2nd Wednesday of each month from 8:00pm - 9:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/389312320
Meeting Tel: 470-200-0302; Access Code: 213-853-650
Facilitator: Richard Cheu, 732-245-3173, ac614@verizon.net

Carepartners Dealing with Advanced PSP

Meeting Time(s): 4th Wednesday of each month from 7:00pm - 8:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/609461433
Meeting Tel: 951-266-6124; Access Code: 289-328-424
Facilitator: Steve Garcias, 201-677-2542, steve801luv@gmail.com