2022 CurePSP Fall Family Conference

November 14, 2022 @ 8:30 am – 4:00 pm
Philadelphia Airport Marriot
Airport Terminal B
Philadelphia, PA 19153

Join CurePSP for the 2022 Fall Family Conference! 

Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and to develop a sense of community. We recognize that these diseases present daily challenges for patients and families.

We will be hosting our 2022 Fall Family Conference at the Philadelphia Airport Marriot in Philadelphia, Pennsylvania on Monday, November 14th, 2022. This will be our first in-person Family Conference since 2019, and we can’t wait to see everyone! We will be partnering with Penn Medicine to provide informative presentations on multidisciplinary care, physical therapy, research updates, social work, palliative care, and more. Limited hotel rooms are available to reserve at the Philadelphia Airport Marriott. You can find out more by clicking on the link below.

Registration is $15 per person and will increase to $30 per person beginning Tuesday, November 1st, 2022. If you would like to attend the event, though unable to afford a ticket, please use promo code BECAUSEHOPEMATTERS and come as a donor-sponsored guest.

For those that can’t join us in person, we will be hosting our 2022 Virtual Fall Family Conference on Friday, December 9th and Friday, December 16th.  This will be split between two half days and include the recorded presentations from our in-person conference in Philadelphia as well as other live sessions.  Click here  to learn more. 

We hope you can join us!  For any questions, please email events@curepsp.org.



 All sessions will be held in Salon A-D at the Philadelphia Airport Marriott. 

 8:30 – 9:30 AM: Breakfast & Mingle 

A light breakfast will be served in the event space.  The menu will include oatmeal with assorted toppings, juices, pastries, bagels, diced fruit, yogurt, water, and coffee/tea. 

 9:30 – 9:45 AM: Welcome & Opening Remarks 

Speakers: Kristophe Diaz, PhD & Jessica Shurer, MSW, LCSW 

 9:45 – 10:15 AM: Overview of Multidisciplinary Care 

Speaker: Andres F. Deik, MD 

10:15 – 10:45 AM: Physical Therapy 

Speaker: Heather Cianci, PT, MS, GCS 

10:45 – 11:15 AM: Coffee Break 

Snacks, coffee, and tea will be served. 

11:15 – 11:45 AM: Research Updates 

Speaker: David Irwin, MD 

11:45 – 12:30 PM: Multidisciplinary Care Panel 

Speakers: Andres F. Deik, MD, Heather Cianci, PT, MS, GCS, and David Irwin, MD 

12:30 – 1:30 PM: Lunch Break 

Lunch will be served in the event space.  The menu will include squash soup, tomato mozzarella salad, arugula salad, chicken marsala, oven roasted cod, penne pasta with vodka sauce, roasted vegetables, brownies & cookies, soft drinks, and coffee/tea. 

1:30 – 2:00 PM: Social Work 

Speaker: Lauren Zelo MSW, LCSW 

 2:00 – 2:30 PM: Palliative Care 

Speaker: Matthew Mendlik, MD, PhD 

 2:30 – 2:50 PM: Stretch Break 

 2:50 – 3:35 PM: Patient Panel Discussion 

Moderated by Jessica Shurer, MSW, LCSW 

 3:35 – 3:50 PM: Closing Remarks 

Speakers: Kristophe Diaz, PhD and Jessica Shurer, MSW, LCSW 

 3:50 – 4:45 PM: Snacks & Mingle 

Philadelphia staples will be served, including TastyKakes, cheesesteak spring rolls, Philly soft pretzels, soft drinks, water, & coffee/tea. 

*Agenda subject to change. 

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