2022 CurePSP Virtual Fall Family Conference Day 1

December 9, 2022 @ 11:30 am – 4:00 pm
Virtual Event

Join CurePSP for the 2022 Virtual Fall Family Conference! 

CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of community. We recognize that these diseases present daily challenges for patients and families. 

This year’s CurePSP Virtual Fall Family Conference will consist of pre-recorded sessions from our Philadelphia Fall Family Conference and live Q&A sessions.  The event will be split into two parts. The first part will be shown on Friday, December 9th, and the second will be shown on Friday, December 16th. 

We partnered with Penn Medicine to provide informative presentations on multidisciplinary care, physical therapy, research updates, social work, palliative care, and more.  

All sessions will be recorded and posted on our YouTube after the event.  

Registration is free of charge. 



Day One: Friday, December 9, 2022 

11:30 AM – 12:00 PM: Optional Mix & Mingle

Mix & mingle with other attendees before the event begins at 12:00 PM ET!

12:00 PM – 12:10 PM: Welcome & Opening Remarks 

Speaker: Kristophe Diaz, PhD

12:10 PM – 12:40 PM: Mobility Tips & Tricks for Individuals Living with PSP, CBD & MSA

Pre-recorded presentation from the Philadelphia Conference. Heather will answer questions during the live Q&A later in the day.

Speaker: Heather Cianci, PT, MS, GCS

During this session Heather Cianci will discuss different ways to stay active, mobile, and safe while living with PSP, CBD, or MSA.

12:40 PM – 1:10 PM: The Role of Social Work in the Management of MSA, PSP & CBD

Pre-recorded presentation from the Philadelphia Conference. Lauren will answer questions during the live Q&A later in the day.

Speaker: Lauren Zelouf, MSW, LCSW

When meeting with patients with MSA, PSP or CBD and their care partner(s), the Social Worker aims to meet them where they are in their journey with their Atypical Parkinsonism. The Social Worker is tasked with assessing a person’s psychological, social, and emotional functioning as it relates to living with their neurodegenerative disease. In this session, Lauren Zelouf will discuss the role of Social Work and how the Social Worker can best support the patient and care partner(s).

1:10 PM – 1:45 PM: Break

1:45 PM – 2:20 PM: The Role of Patients and Care Partners in Multidisciplinary Team Care

Pre-recorded panel discussion from the Philadelphia Conference.

Speakers: Andres F. Deik, MD, Heather Cianci, PT, MS, GCS, David Irwin, MD, and Suzanne Reichwein, MSW

Suzanne Reichwein, MSW, Manager of Research & Clinical Programs at Penn Medicine, will sit down with several health care professionals within the Penn Medicine network to discuss and define person-centered care through a multidisciplinary approach, including how teams create plans of care and how they can help patients and families prioritize the offered recommendations.

2:20 PM – 3:05 PM: Live Q&A

Speakers: Joanna Teters, Heather Cianci, PT, MS, GCS, and Lauren Zelouf, MSW, LCSW

Joanna Teters, Manager of Support Programs at CurePSP, will lead a live Q&A session with Heather Cianci, PT, MS, GCS and Lauren Zelouf, MSW, LCSW. They will be answering questions that were submitted during registration as well as any that are asked in the live chat.

3:05 PM – 3:20 PM: Closing Remarks

Speaker: Jessica Shurer, MSW, LCSW

We hope you can join us!  For any questions, please email events@curepsp.org

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