CurePSP and Mayo Clinic Family Conference

When:
June 29, 2018 – June 30, 2018 all-day
2018-06-29T00:00:00-04:00
2018-07-01T00:00:00-04:00
Where:
Mayo Civic Center
30 Civic Center Dr SE
Rochester, MN 55904
USA

Among its various educational activities, CurePSP sponsors and organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD and MSA and to develop a sense of community. We recognize that these diseases present daily challenges for patients and families.

The conferences include various speakers with in-the-field expertise – neurologists and movement disorder specialists who work directly with patients and their families. These experts address issues related to day-to-day life including the best ways to manage symptoms, the impact of the diseases on the family, and how to cultivate perspective of meaning and joy despite the struggles of the disease. 

In addition to the educational facts learned during the session, patients, caregivers, and families learn that they are not alone. Attendees leave the meeting having forged new friendships in the PSP, CBD and MSA communities. 

CurePSP strives to meet the needs of those who attend our conferences and actively seeks feedback to improve future programs. We place great value in identifying the topics or speakers that are of the greatest interest to attendees.

A SLEEPING ROOM BLOCK FOR THE NIGHT OF FRIDAY, JUNE 29TH THROUGH SUNDAY, JULY 1ST AT THE HILTON GARDEN INN, 225 SOUTH BROADWAY, AND IS AVAILABLE HERE OR BY CALLING 507-285-1234 UNTIL FRIDAY, JUNE 8, 2018 AT THE RATE OF $145 A NIGHT (EXCLUSIVE OF TAX, ETC.).
CHECK OUT THE ADA SERVICES AVAILABLE AT THE CIVIC CENTER HERE.
EARLY BIRD TICKETS ARE AVAILABLE FOR $40 (EXCLUSIVE OF TAX, ETC.) UNTIL MAY 31ST. STARTING JUNE 1ST THEY WILL BE $50 (EXCLUSIVE OF TAX, ETC.)

     

 

 

 

 

Eventbrite - CurePSP and Mayo Clinic Family Conference

Agenda*

*Agenda is subject to change.

Friday, June 29, 2018: 

12:00 – 2:00pm Support Groups, with light refreshments

Saturday, June 30, 2018:

7:15 am – 8:00 am: Registration and Light Breakfast

8:00 am – 8:15 am: Welcome – Brad Boeve, MD

8:15 am – 8:45 am: PSP/CBD/MSA and the Brain 101 – Alex Klein, PhD

What are PSP, CBD, and MSA and how do they differ? An overview of neurodegenerative diseases and the resources available from CurePSP for patients and families.

8:45 am – 9:30 am: Making a Diagnosis of PSP/CBD/MSA – Jim Bower, MD

How does a neurologist determine which disease a patient has? Dr. Bower explains the process.

9:30 am – 10:15 am: Management and Clinical Course of PSP/CBD/MSA – Anhar Hassan, MBBCh

Discussion of early and late symptoms in PSP, CBD, and MSA, and the treatments available for these diseases.

10:15 am – 10:45 am: Break

10:45 am – 11:15 am: Research Into PSP/CBD: 2018 and Beyond – Brad Boeve, MD

Dr. Boeve will engage the audience as to what a clinical trial is, what the latest research is, what the local options are for clinical trials.

11:15 am – 11:45 am: What Has Neuroimaging Taught Us About PSP/CBD – Jennifer Whitwell, PhD

An overview of recent research on magnetic resonance imaging and positron emission tomography imaging and the clinical value of findings from these studies.

11:45 am – 12:15 pm: Research into MSA – Phillip Low, MD

We shall provide a brief review of current approaches to disease modifying treatment of MSA that is in the pipeline.

12:15 pm – 1:15 pm: Lunch

1:15 pm – 2:15 pm: Living Well with PSP/CBD/MSA – Margaret Moutvic, MD, Sarah Dahlhauser, OTD, Sara Boyd, DPT, Melanie Brennan, DPT, Rio Haack, DPT

Rehabilitation providers discuss strategies that help persons with PSP/CBD/MSA maximize independence and safety.

2:15 pm – 2:45 pm: Communication and Swallowing – Heather Clark, PhD, CCC-SLP

Strategies for improving communicating information, ideas, and emotions. Tips for improving swallowing safety.

2:45 pm – 3:15 pm: Break

3:15 pm – 3:45 pm: Mindfulness as a Practice of Self-Care and Care-Giving – Angela Lunde, MA

Caring for someone with dementia is made up of an infinite number of small moments where one habitually reacts – leading to increased stress, or mindfully responds—leading to calm and overall well-being. Participants will learn more about mindfulness and experience a couple of practices that can be used at any time throughout the day.

3:45 pm – 5:00 pm: TBA

5:00 pm: Closing – David Kemp, CurePSP President