CurePSP seeks an Associate Director of Clinical Affairs and Advocacy to work as part of the Patient & Care Partner Advocacy Team, reporting to the Director of Clinical Affairs and Advocacy. This team primarily focuses on CurePSP’s care and consciousness pillars and oversees programs and strategies that include direct interaction and support of people affected by PSP, CBD and MSA. This includes a network of 33 Centers of Care across the U.S. and Canada; the Quality of Life Respite Grant; printed and digital collections of informational resources; online and regional support groups; family conferences; bereavement support; educational programs for community members and healthcare professionals; engagement with volunteers; brain donation assistance; and raising awareness among the general community, healthcare providers and policy makers. These initiatives aim to lead to earlier diagnosis, assessment and addressing of unmet needs, better outreach and support for historically underrepresented communities and improved access to high quality and patient-centered clinical care and resources for people with PSP, CBD and MSA. This key role presents the opportunity to work alongside, and on behalf of, diagnosed individuals, family care partners, medical professionals and other stakeholders to achieve these efforts. The Patient & Care Partner Advocacy Team closely partners with the Marketing Team, Events Team, Executive Director, foundational/volunteer committees and other organizations to carry out responsibilities and priorities.
How to apply:
Please send resume/CV and cover letter to:
Jessica Shurer, MSW, LCSW, Director of Clinical Affairs and Advocacy, at firstname.lastname@example.org