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Join CurePSP for Ask the Expert on Assessing Cognitive Changes with PSP, CBD and MSA on December 12, 22 at 2:00 PM – 3:00 PM ET! People diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration …
Join us for the 2nd Annual CurePSP Enlightenment 5K to Benefit CurePSP to raise awareness for corticobasal degeneration (CBD)! Last year, the Rutzen family raised over $6,000 to help CurePSP continue its mission of raising …
Join CurePSP for the 2022 Virtual Fall Family Conference! CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of …
Join CurePSP for the 2022 Virtual Fall Family Conference! CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of …
Meeting Time(s): 1st Saturday of every month from 2:00pm-3:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZEqceuorTwjH9F2SJcCo7NT9spGM84T_6jn Meeting Tel: +1 646 558 8656 Meeting ID: 857 6203 7955 Facilitator: Emma Wodwaski ewodwaski@gmail.com and Sanjay Geevarghese sanjaygeevarghese@gmail.com Note: Both Sanjay and …
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …
Join the Ream Family for MK’s March! In the fall of 2019 Mary Kay Ream was diagnosed with progressive supranuclear palsy (PSP). To celebrate her courageous fight, the Ream family is hosting a march in …
Join the Bonelli Family at the 7th Annual Bonelli Music Bash in Honor of John Bonelli! Come down to All That Jazz Cafe in Sunrise, Florida, on Sunday, October 2nd, from 1-5 pm ET to …
Join CurePSP for the 2022 Fall Family Conference! Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and to develop …
Join CurePSP for Ask the Expert on Advance Care Planning & Navigating Future Health Care Decisions! Navigating the uncertainties of the future when living with PSP, CBD and MSA can be overwhelming. In this webinar, …
Save the Date for the 20th Southwest Florida PSP Support Group Awareness and Memorial Walk! The purpose of the Southwest Florida PSP Support Group Awareness and Memorial Walk is to honor those that have passed from these diseases, …
Join Rafi Stern and Jessica Shurer for a conversation and Q&A on navigating the PSP journey as a carepartner. Rafi Stern did not envision splitting his weeks between Cornell Law School and New York City. …
Join CurePSP for the Neuro2022 Poster Reception! During the CurePSP Internation Research Symposium international investigators hear about and discuss the latest scientific advances relevant to neurodegeneration, focusing on rare tauopathies such as PSP and CBD. …
This year’s Hope as Big as Texas event celebrates Hispanic Heritage and Hope! This virtual celebration will explore the connection between caregivers and Hispanic artists, both applying creativity, inspiration, and commitment to someone and something …
Join CurePSP and the Ferguson Family for their 2nd Annual Drive Away PSP Scramble in Memory of Linda Ferguson! Come out for a day of fun, family, and golf! If you are from Michigan, make …
Join CurePSP and the Gillis Family for the 1st Annual Bill Gillis Memorial Golf Tournament! We are calling all avid golfers to join in on the fun! If you are located in North Carolina, join …
Join CurePSP for Ask the Expert on Managing Swallowing Changes in PSP, CBD, & MSA! Swallowing dysfunction, also known as dysphagia, is a common complaint in patients with PSP, MSA and CBD at some point …
Meeting Time(s): June 21st, 22nd, 23rd at 1pm ET Registration Link for April series: https://us02web.zoom.us/meeting/register/tZEuduyrpz0jGtfkRG_3IDP6NL6gfgHq9xTS Facilitators: Joanna Teters, teters@curepsp.org, and Kelsey Woods, woods@curepsp.org
Meeting Time(s): 4th Thursday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUld-mhqzIiHNFXylFSnuvb-4o_0uW7Ydv_ Meeting Tel: +1 646 558 8656 Meeting ID: 818 0095 9865 Facilitator: Laurie Spindler, lspindler16@gmail.com
The air is warmer, flowers are blooming, and the sun is shining! Join us on Sunday, May 15, 2022, from 11:00 am – 2:00 pm ET at Buckley Country Day School as we host our …
Join CurePSP and Jan Appel for a Ride for Hope! Throughout the month of May, CurePSP and Jan Appel will host a virtual fundraiser to honor Ken Appel – husband, father, and avid bike rider …
Join CurePSP for Ask the Expert with Dr. Chantal Boisvert! Patients with PSP, CBD and MSA often have significant issues with their eyes and their vision, such as opening and closing their eyes, blinking, decreased …
Meeting Time(s): Third Wednesday of each month from 2:00-3:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZUtf-qoqj0tE9wLCP-ddhcG3P1duHQPPv8a Meeting Tel: 1 669 900 9128 Meeting ID: 810 8304 6798 Facilitator: Diane Breslow, LCSW, dbreslow11@icloud.com and Adriana Gonzalez, LCSW, acg008@health.ucsd.edu
Meeting Time(s): 3rd Tuesday of each month at 2:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZwtdu-urz8rHdSU-qMSeeVgfEAMunr3e7bp Meeting Tel: +1 646 558 8656 Meeting ID: 880 1661 4170 Facilitators: Diane Breslow, LCSW dbreslow11@icloud.com and Meghan Sweeney, LCSW meghansweeney1@gmail.com
Meeting Time(s): 2nd Wednesday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUld-mhqzIiHNFXylFSnuvb-4o_0uW7Ydv_ Meeting Tel: +1 646 558 8656 Meeting ID: 818 0095 9865 Facilitator: Laurie Spindler, lspindler16@gmail.com
Meeting Time(s): 4th Wednesday of each month from 7:00pm – 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZIld–rqDsrHNVXbnPaifT8em6CI0IOSjSZ Meeting Tel: 914-614-3221 Meeting ID: 732-403-054 Facilitator: Steve Garcia, 201-677-2542, advancedstagespsp@gmail.com
Meeting Time(s): 1st Monday of each month from 8:00pm – 9:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZIqf-uhrDgoHdfeY_XXwpyWe602VedTnWbK Meeting Tel: +1 646 558 8656 Meeting ID: 867 8292 3273 Facilitator: Tom Tait, tom.tait@comcast.net, 856-725-2450
Meeting Time(s): 3rd Tuesday of each month at 4:00pm Eastern Registration Link: https://attendee.gotowebinar.com/register/6157272128304268816 Meeting Tel: 631-992-3221 Meeting ID: 447-016-877 Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com
Meeting Time(s): 3rd Tuesday of each month at 8:00pm Eastern Registration Link: https://attendee.gotowebinar.com/register/7620701206235337739 Meeting Tel: 562-247-8321 Meeting ID: 739-162-551 Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com
Meeting Time(s): 1st Tuesday of every month at 6:00pm EST Regisration Link: https://us02web.zoom.us/meeting/register/tZwrcu2vrTIsE9angifxZkh2PCyWI182Ouin Meeting Tel: 213-929-4232 Meeting ID: 611-128-331 Facilitator: Karry Forsythe, forsythe76@gmail.com
Meeting Time(s): 3rd Monday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUtf-CgrD0uG9CGa7yq3806EcOd8xhmUaqR Meeting Tel: +1 646 558 8656 Meeting ID: 810 8982 6414 Facilitator: Cathy Chapman, 307-332-4144, cec@wyoming.com
Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August) Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071 Facilitator: Margo Silk marsilk115@aol.com …
Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August) Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071 Facilitator: Margo Silk, marsilk115@aol.com, 609-265-7070
Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051 Facilitators: Tom Tait …
Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051 Facilitators: Tom Tait …
Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0 Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819 Facilitator: Nancy Montgomery …
Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0 Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819 Facilitator: Nancy Montgomery …
Meeting Time(s): 2nd Thursday of every month from 3:00pm-4:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZAvceitrzotGdfteL8WR2LX01SjASUJ1Efr Meeting Tel: +1 646 558 8656 Meeting ID: 842 6151 1733 Facilitator: Diane Breslow, LCSW, dbreslow11@icloud.com and Ileen McFarland, ileen@earthlink.net
This group is for any diagnosed individuals, carepartners, families, friends, etc. Meeting Time(s): 3rd Thursday of every month from 3:00pm-4:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZEtcO6sqzspHtXUtmqAN93amV39diWvEbw4 Meeting Tel: +1 646 558 8656 Meeting ID: 850 7745 0341 Facilitators: …
Meeting Time(s): April 18th, 19th, 20th at 1pm ET Registration Link for April series: https://us02web.zoom.us/meeting/register/tZAtduCqqjsoHt3zAEGU2RH_AMOp3fbGe3_M Facilitators: Joanna Teters, teters@curepsp.org, and Kelsey Woods, woods@curepsp.org
Save the Date for the CurePSP Virtual Spring Family Conference! Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and …
Join CurePSP at the Tau2022 Global Conference in February 22-23, 2022! This day will bring together leading tau experts from around the world to collaborate and discuss key issues impacting the tau research community. For the …
Join CurePSP for the Virtual Fall Family Conference! Among its various educational activities, CurePSP organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD, and MSA and to …
Join the MSA Coalition for the 2021 Annual Multiple System Atrophy Patient and Family Conference! The MSA Coalition has hosted conferences since 1989, and are now in their seventh year of live-streaming to a global …
Join CurePSP for the Jeff Golub Film Debut in Benefit of CurePSP! This hybrid (in-person and online) film debut and cocktail reception for “Train Keeps a Rolling” honors the life of the world-renowned guitarist Jeff …
Join the Bonelli Family and Friends for their 6th Annual Bonelli Music Bash! The CurePSP Bonelli Music Bash started six years ago in honor of John Bonelli, a musician who was diagnosed with progressive supranuclear …
Join us for a new episode of Wellness Wednesday with CurePSP, a 30-minute Vinyasa Yoga Flow! On the first Wednesday of the month, we will be releasing a Wellness Wednesday episode on our CurePSPTV YouTube …
July 14, 2021 @ 7:00 pm – 9:15 pm CT (8:00 pm – 10:15 pm ET) Hope as Big as Texas is big fun with a mission and heart even bigger than the State of Texas! Our …
Save the Date for the 19th Annual CurePSP Awareness and Memorial Walk in Marco Island, Florida! The CurePSP Awareness and memorial walk is sponsored by The SW Florida Support Group (for all affected by …