Ask the Expert: Assessing Cognitive Changes with PSP, CBD and MSA

When: December 12, 2022 @ 2:00 pm – 3:00 pm
Where: Virtual Webinar

  Join CurePSP for Ask the Expert on Assessing Cognitive Changes with PSP, CBD and MSA on December 12, 22 at 2:00 PM – 3:00 PM ET! People diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration …

Read More

2nd Annual Enlightenment 5K to Benefit CurePSP

When: November 4, 2022 – November 6, 2022 all-day

Join us for the 2nd Annual CurePSP Enlightenment 5K to Benefit CurePSP to raise awareness for corticobasal degeneration (CBD)!  Last year, the Rutzen family raised over $6,000 to help CurePSP continue its mission of raising …

Read More

2022 CurePSP Virtual Fall Family Conference Day 1

When: December 9, 2022 @ 11:30 am – 4:00 pm
Where: Virtual Event

Join CurePSP for the 2022 Virtual Fall Family Conference!  CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of …

Read More

2022 CurePSP Virtual Fall Family Conference Day 2

When: December 16, 2022 @ 11:30 am – 4:00 pm
Where: Virtual Event

Join CurePSP for the 2022 Virtual Fall Family Conference!  CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of …

Read More

Young adult children and grandchildren of people with PSP/CBD/MSA

When: October 1, 2022 @ 2:00 pm – 3:00 pm

Meeting Time(s): 1st Saturday of every month from 2:00pm-3:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZEqceuorTwjH9F2SJcCo7NT9spGM84T_6jn  Meeting Tel: +1 646 558 8656 Meeting ID: 857 6203 7955 Facilitator: Emma Wodwaski ewodwaski@gmail.com and Sanjay Geevarghese sanjaygeevarghese@gmail.com Note: Both Sanjay and …

Read More

PSP/CBD/MSA 101: An Educational Support Group for the Newly Diagnosed

When: December 12, 2022 @ 1:00 pm – 2:00 pm

PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …

Read More

PSP/CBD/MSA 101: An Educational Support Group for the Newly Diagnosed

When: October 17, 2022 @ 1:00 pm – 2:00 pm

PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …

Read More

Mary Kay’s March for a Cure

When: October 1, 2022 @ 8:30 am – 10:30 am
Where: Still Pond Pool, 12700 Franklin Farm Rd, Herndon, VA 20171, USA

Join the Ream Family for MK’s March! In the fall of 2019 Mary Kay Ream was diagnosed with progressive supranuclear palsy (PSP). To celebrate her courageous fight, the Ream family is hosting a march in …

Read More

7th Annual Bonelli Music Bash

When: October 2, 2022 @ 1:00 pm – 5:00 pm
Where: All That Jazz Cafe, 3491 Hiatus Rd, Sunrise, FL 33351, USA

Join the Bonelli Family at the 7th Annual Bonelli Music Bash in Honor of John Bonelli! Come down to All That Jazz Cafe in Sunrise, Florida, on Sunday, October 2nd, from 1-5 pm ET to …

Read More

2022 CurePSP Fall Family Conference

When: November 14, 2022 @ 8:30 am – 4:00 pm
Where: Philadelphia Airport Marriott, Airport Terminal B, Philadelphia, PA 19153, USA

Join CurePSP for the 2022 Fall Family Conference!  Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and to develop …

Read More

The 20th Southwest Florida PSP Support Group Awareness and Memorial Walk

When: March 18, 2023 @ 10:30 am
Where: Mackle Park, Marco Island, Florida

Save the Date for the 20th Southwest Florida PSP Support Group Awareness and Memorial Walk! The purpose of the Southwest Florida PSP Support Group Awareness and Memorial Walk is to honor those that have passed from these diseases, …

Read More

Neuro2022: The CurePSP International Symposium Poster Reception

When: October 24, 2022 @ 6:00 pm – 9:00 pm
Where: Pier 59, 58 Chelsea Piers, New York, NY 10011, USA

Join CurePSP for the Neuro2022 Poster Reception! During the CurePSP Internation Research Symposium international investigators hear about and discuss the latest scientific advances relevant to neurodegeneration, focusing on rare tauopathies such as PSP and CBD. …

Read More

Hope as Big as Texas

When: September 15, 2022 @ 5:30 pm – 7:00 pm
Where: Virtual Event

This year’s Hope as Big as Texas event celebrates Hispanic Heritage and Hope! This virtual celebration will explore the connection between caregivers and Hispanic artists, both applying creativity, inspiration, and commitment to someone and something …

Read More

2nd Annual Drive Away PSP Scramble

When: August 6, 2022 @ 7:15 am
Where: Dunham Hills Golf Course, 13561 Dunham Rd, Hartland, MI 48353, USA

Join CurePSP and the Ferguson Family for their 2nd Annual Drive Away PSP Scramble in Memory of Linda Ferguson! Come out for a day of fun, family, and golf! If you are from Michigan, make …

Read More

1st Annual Bill Gillis Memorial Golf Tournament

When: July 22, 2022 @ 10:30 am
Where: South Granville Country Club, 2539 Sam Moss Hayes Rd, Creedmoor, NC 27522, USA

Join CurePSP and the Gillis Family for the 1st Annual Bill Gillis Memorial Golf Tournament! We are calling all avid golfers to join in on the fun! If you are located in North Carolina, join …

Read More

Ask the Expert: Managing Swallowing Changes in PSP, CBD, & MSA

When: June 27, 2022 @ 6:00 pm – 7:00 pm
Where: Virtual Event

Join CurePSP for Ask the Expert on Managing Swallowing Changes in PSP, CBD, & MSA! Swallowing dysfunction, also known as dysphagia, is a common complaint in patients with PSP, MSA and CBD at some point …

Read More

PSP/CBD/MSA 101: An Educational Support Group for the Newly Diagnosed

When: June 21, 2022 @ 1:00 pm

Meeting Time(s): June 21st, 22nd, 23rd at 1pm ET Registration Link for April series: https://us02web.zoom.us/meeting/register/tZEuduyrpz0jGtfkRG_3IDP6NL6gfgHq9xTS  Facilitators: Joanna Teters, teters@curepsp.org, and Kelsey Woods, woods@curepsp.org

Adult Children of People with PSP/CBD/MSA

When: May 26, 2022 @ 8:00 pm

Meeting Time(s): 4th Thursday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUld-mhqzIiHNFXylFSnuvb-4o_0uW7Ydv_ Meeting Tel: +1 646 558 8656 Meeting ID: 818 0095 9865 Facilitator: Laurie Spindler, lspindler16@gmail.com

Carol’s Walk to Cure PSP

When: May 15, 2022 @ 11:00 am – 2:00 pm
Where: Buckley Country Day School, 2 I U Willets Rd, Roslyn, NY 11576, USA

The air is warmer, flowers are blooming, and the sun is shining! Join us on Sunday, May 15, 2022, from 11:00 am – 2:00 pm ET at Buckley Country Day School as we host our …

Read More

Ken’s Ride: A Ride for Hope

When: May 1, 2022 @ 12:00 am – May 31, 2022 @ 11:45 pm
Where: Virtual Event

Join CurePSP and Jan Appel for a Ride for Hope! Throughout the month of May, CurePSP and Jan Appel will host a virtual fundraiser to honor Ken Appel – husband, father, and avid bike rider …

Read More

Ask the Expert with Dr. Chantal Boisvert

When: March 30, 2022 @ 2:00 pm – 3:00 pm
Where: Virtual Event

Join CurePSP for Ask the Expert with Dr. Chantal Boisvert! Patients with PSP, CBD and MSA often have significant issues with their eyes and their vision, such as opening and closing their eyes, blinking, decreased …

Read More

Flying Solo: A group for PSP/CBD/MSA patients living alone or without a carepartner.

When: May 18, 2022 @ 2:00 pm – 3:30 pm

Meeting Time(s): Third Wednesday of each month from 2:00-3:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZUtf-qoqj0tE9wLCP-ddhcG3P1duHQPPv8a Meeting Tel: 1 669 900 9128 Meeting ID: 810 8304 6798 Facilitator: Diane Breslow, LCSW, dbreslow11@icloud.com and Adriana Gonzalez, LCSW, acg008@health.ucsd.edu

After the Loss: A Bereavement Support Group for Carepartners

When: March 15, 2022 @ 2:00 pm

Meeting Time(s): 3rd Tuesday of each month at 2:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZwtdu-urz8rHdSU-qMSeeVgfEAMunr3e7bp Meeting Tel: +1 646 558 8656 Meeting ID: 880 1661 4170 Facilitators: Diane Breslow, LCSW dbreslow11@icloud.com and Meghan Sweeney, LCSW meghansweeney1@gmail.com

Adult Children of People with PSP/CBD/MSA

When: March 9, 2022 @ 8:00 pm

Meeting Time(s): 2nd Wednesday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUld-mhqzIiHNFXylFSnuvb-4o_0uW7Ydv_ Meeting Tel: +1 646 558 8656 Meeting ID: 818 0095 9865 Facilitator: Laurie Spindler, lspindler16@gmail.com

Carepartners of People with Advanced PSP

When: March 23, 2022 @ 7:00 pm – 8:00 pm

Meeting Time(s): 4th Wednesday of each month from 7:00pm – 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZIld–rqDsrHNVXbnPaifT8em6CI0IOSjSZ Meeting Tel: 914-614-3221 Meeting ID: 732-403-054 Facilitator: Steve Garcia, 201-677-2542, advancedstagespsp@gmail.com

Carepartners of People with MSA

When: March 7, 2022 @ 8:00 pm – 9:00 pm

Meeting Time(s): 1st Monday of each month from 8:00pm – 9:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZIqf-uhrDgoHdfeY_XXwpyWe602VedTnWbK  Meeting Tel: +1 646 558 8656 Meeting ID: 867 8292 3273 Facilitator: Tom Tait, tom.tait@comcast.net, 856-725-2450

People with CBD and their Carepartners

When: March 15, 2022 @ 4:00 pm

Meeting Time(s): 3rd Tuesday of each month at 4:00pm Eastern Registration Link: https://attendee.gotowebinar.com/register/6157272128304268816 Meeting Tel: 631-992-3221 Meeting ID: 447-016-877 Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com

Carepartners of People with PSP

When: March 15, 2022 @ 8:00 pm

Meeting Time(s): 3rd Tuesday of each month at 8:00pm Eastern Registration Link: https://attendee.gotowebinar.com/register/7620701206235337739 Meeting Tel: 562-247-8321 Meeting ID: 739-162-551 Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com

People with CBD and their Carepartners

When: March 1, 2022 @ 6:00 pm

Meeting Time(s): 1st Tuesday of every month at 6:00pm EST Regisration Link: https://us02web.zoom.us/meeting/register/tZwrcu2vrTIsE9angifxZkh2PCyWI182Ouin Meeting Tel: 213-929-4232 Meeting ID: 611-128-331 Facilitator: Karry Forsythe, forsythe76@gmail.com

People with MSA

When: March 21, 2022 @ 8:00 pm

Meeting Time(s): 3rd Monday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUtf-CgrD0uG9CGa7yq3806EcOd8xhmUaqR Meeting Tel: +1 646 558 8656 Meeting ID: 810 8982 6414 Facilitator: Cathy Chapman, 307-332-4144, cec@wyoming.com

People with PSP

When: March 28, 2022 @ 7:30 pm – 8:30 pm

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August) Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071 Facilitator: Margo Silk marsilk115@aol.com …

Read More

People with PSP

When: March 14, 2022 @ 7:30 pm – 8:30 pm

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August) Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071 Facilitator: Margo Silk, marsilk115@aol.com, 609-265-7070

Men Carepartners of People with PSP/ CBD/ MSA Support Group

When: March 3, 2022 @ 5:00 pm

Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051 Facilitators: Tom Tait …

Read More

Men Carepartners of People with PSP/ CBD/ MSA Support Group

When: March 1, 2022 @ 8:00 pm

Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051 Facilitators: Tom Tait …

Read More

Women Carepartners of People with PSP/CBD/MSA Support Group

When: March 16, 2022 @ 6:30 pm – 8:00 pm

Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0 Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819 Facilitator: Nancy Montgomery …

Read More

Women Carepartners of People with PSP/CBD/MSA Support Group

When: March 3, 2022 @ 2:30 pm – 3:30 pm

Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0 Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819 Facilitator: Nancy Montgomery …

Read More

Carepartners of People with PSP/CBD/ MSA

When: March 10, 2022 @ 3:00 pm – 4:30 pm

Meeting Time(s): 2nd Thursday of every month from 3:00pm-4:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZAvceitrzotGdfteL8WR2LX01SjASUJ1Efr Meeting Tel: +1 646 558 8656 Meeting ID: 842 6151 1733 Facilitator: Diane Breslow, LCSW, dbreslow11@icloud.com and Ileen McFarland, ileen@earthlink.net

Anyone Impacted by PSP/CBD/MSA

When: March 17, 2022 @ 3:00 pm – 4:30 pm

This group is for any diagnosed individuals, carepartners, families, friends, etc. Meeting Time(s): 3rd Thursday of every month from 3:00pm-4:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZEtcO6sqzspHtXUtmqAN93amV39diWvEbw4 Meeting Tel: +1 646 558 8656 Meeting ID: 850 7745 0341 Facilitators: …

Read More

PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed

When: April 18, 2022 @ 1:00 pm

Meeting Time(s): April 18th, 19th, 20th at 1pm ET Registration Link for April series: https://us02web.zoom.us/meeting/register/tZAtduCqqjsoHt3zAEGU2RH_AMOp3fbGe3_M Facilitators: Joanna Teters, teters@curepsp.org, and Kelsey Woods, woods@curepsp.org

CurePSP Virtual Spring 2022 Family Conference

When: April 25, 2022 @ 11:00 am – 4:30 pm
Where: Virtual Event

Save the Date for the CurePSP Virtual Spring Family Conference! Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and …

Read More

Tau2022 Global Conference

When: February 22, 2022 @ 8:00 am – February 23, 2022 @ 4:45 pm
Where: Tau2022 Transitions to an Online Conference

Join CurePSP at the Tau2022 Global Conference in February 22-23, 2022! This day will bring together leading tau experts from around the world to collaborate and discuss key issues impacting the tau research community. For the …

Read More

CurePSP Virtual Fall Family Conference

When: November 12, 2021 @ 11:00 am – 3:30 pm
Where: Virtual Event

Join CurePSP for the Virtual Fall Family Conference! Among its various educational activities, CurePSP organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD, and MSA and to …

Read More

2021 Annual Multiple System Atrophy Patient & Family Conference

When: September 30, 2021 – October 2, 2021 all-day
Where: Virtual Event

Join the MSA Coalition for the 2021 Annual Multiple System Atrophy Patient and Family Conference! The MSA Coalition has hosted conferences since 1989, and are now in their seventh year of live-streaming to a global …

Read More

“Train Keeps A Rolling”: The Jeff Golub Film Debut to Benefit CurePSP Event

When: October 6, 2021 @ 6:00 pm – 9:30 pm
Where: City Winery New York, 25 11th Ave, New York, NY 10011, USA

Join CurePSP for the Jeff Golub Film Debut in Benefit of CurePSP! This hybrid (in-person and online) film debut and cocktail reception for “Train Keeps a Rolling” honors the life of the world-renowned guitarist Jeff …

Read More

Bonelli Music Bash

When: September 26, 2021 @ 2:00 pm – 3:00 pm
Where: Virtual Event

Join the Bonelli Family and Friends for their 6th Annual Bonelli Music Bash! The CurePSP Bonelli Music Bash started six years ago in honor of John Bonelli, a musician who was diagnosed with progressive supranuclear …

Read More

Wellness Wednesday with Jenna Fair

When: July 7, 2021 @ 12:00 pm – 12:45 pm
Where: CurePSPTV – YouTube Channel

Join us for a new episode of Wellness Wednesday with CurePSP, a 30-minute Vinyasa Yoga Flow! On the first Wednesday of the month, we will be releasing a Wellness Wednesday episode on our CurePSPTV YouTube …

Read More

Hope as Big as Texas

When: July 14, 2021 @ 7:00 pm – 9:15 pm
Where: Virtual Event

July 14, 2021 @ 7:00 pm – 9:15 pm CT (8:00 pm – 10:15 pm ET) Hope as Big as Texas is big fun with a mission and heart even bigger than the State of Texas! Our …

Read More

The 19th Annual CurePSP Awareness and Memorial Walk

When: March 19, 2022 @ 10:30 am – 1:30 pm
Where: Mackle Park, 1361 Andalusia Terrace, Marco Island, FL 34145, USA

Save the Date for the 19th Annual CurePSP Awareness and Memorial Walk in Marco Island, Florida!   The CurePSP Awareness and memorial walk is sponsored by The SW Florida Support Group (for all affected by …

Read More