Hope as Big as Texas

When: September 15, 2022 @ 5:30 pm – 7:00 pm
Where: Virtual Event

This year’s Hope as Big as Texas event celebrates Hispanic Heritage and Hope! This virtual celebration will explore the connection between caregivers and Hispanic artists, both applying creativity, inspiration, and commitment to someone and something …

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2nd Annual Drive Away PSP Scramble

When: August 6, 2022 @ 7:15 am
Where: Dunham Hills Golf Course, 13561 Dunham Rd, Hartland, MI 48353, USA

Join CurePSP and the Ferguson Family for their 2nd Annual Drive Away PSP Scramble in Memory of Linda Ferguson! Come out for a day of fun, family, and golf! If you are from Michigan, make …

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1st Annual Bill Gillis Memorial Golf Tournament

When: July 22, 2022 @ 10:30 am
Where: South Granville Country Club, 2539 Sam Moss Hayes Rd, Creedmoor, NC 27522, USA

Join CurePSP and the Gillis Family for the 1st Annual Bill Gillis Memorial Golf Tournament! We are calling all avid golfers to join in on the fun! If you are located in North Carolina, join …

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Ask the Expert: Managing Swallowing Changes in PSP, CBD, & MSA

When: June 27, 2022 @ 6:00 pm – 7:00 pm
Where: Virtual Event

Join CurePSP for Ask the Expert on Managing Swallowing Changes in PSP, CBD, & MSA! Swallowing dysfunction, also known as dysphagia, is a common complaint in patients with PSP, MSA and CBD at some point …

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PSP/CBD/MSA 101: An Educational Support Group for the Newly Diagnosed

When: June 21, 2022 @ 1:00 pm

Meeting Time(s): June 21st, 22nd, 23rd at 1pm ET Registration Link for April series: https://us02web.zoom.us/meeting/register/tZEuduyrpz0jGtfkRG_3IDP6NL6gfgHq9xTS  Facilitators: Joanna Teters, teters@curepsp.org, and Kelsey Woods, woods@curepsp.org

Adult Children of People with PSP/CBD/MSA

When: May 26, 2022 @ 8:00 pm

Meeting Time(s): 4th Thursday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUld-mhqzIiHNFXylFSnuvb-4o_0uW7Ydv_ Meeting Tel: +1 646 558 8656 Meeting ID: 818 0095 9865 Facilitator: Laurie Spindler, lspindler16@gmail.com

Carol’s Walk to Cure PSP

When: May 15, 2022 @ 11:00 am – 2:00 pm
Where: Buckley Country Day School, 2 I U Willets Rd, Roslyn, NY 11576, USA

The air is warmer, flowers are blooming, and the sun is shining! Join us on Sunday, May 15, 2022, from 11:00 am – 2:00 pm ET at Buckley Country Day School as we host our …

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Ken’s Ride: A Ride for Hope

When: May 1, 2022 @ 12:00 am – May 31, 2022 @ 11:45 pm
Where: Virtual Event

Join CurePSP and Jan Appel for a Ride for Hope! Throughout the month of May, CurePSP and Jan Appel will host a virtual fundraiser to honor Ken Appel – husband, father, and avid bike rider …

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Ask the Expert with Dr. Chantal Boisvert

When: March 30, 2022 @ 2:00 pm – 3:00 pm
Where: Virtual Event

Join CurePSP for Ask the Expert with Dr. Chantal Boisvert! Patients with PSP, CBD and MSA often have significant issues with their eyes and their vision, such as opening and closing their eyes, blinking, decreased …

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Flying Solo: A group for PSP/CBD/MSA patients living alone or without a carepartner.

When: May 18, 2022 @ 2:00 pm – 3:30 pm

Meeting Time(s): Third Wednesday of each month from 2:00-3:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZUtf-qoqj0tE9wLCP-ddhcG3P1duHQPPv8a Meeting Tel: 1 669 900 9128 Meeting ID: 810 8304 6798 Facilitator: Diane Breslow, LCSW, dbreslow11@icloud.com and Adriana Gonzalez, LCSW, acg008@health.ucsd.edu

After the Loss: A Bereavement Support Group for Carepartners

When: March 15, 2022 @ 2:00 pm

Meeting Time(s): 3rd Tuesday of each month at 2:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZwtdu-urz8rHdSU-qMSeeVgfEAMunr3e7bp Meeting Tel: +1 646 558 8656 Meeting ID: 880 1661 4170 Facilitators: Diane Breslow, LCSW dbreslow11@icloud.com and Meghan Sweeney, LCSW meghansweeney1@gmail.com

Adult Children of People with PSP/CBD/MSA

When: March 9, 2022 @ 8:00 pm

Meeting Time(s): 2nd Wednesday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUld-mhqzIiHNFXylFSnuvb-4o_0uW7Ydv_ Meeting Tel: +1 646 558 8656 Meeting ID: 818 0095 9865 Facilitator: Laurie Spindler, lspindler16@gmail.com

Carepartners of People with Advanced PSP

When: March 23, 2022 @ 7:00 pm – 8:00 pm

Meeting Time(s): 4th Wednesday of each month from 7:00pm – 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZIld–rqDsrHNVXbnPaifT8em6CI0IOSjSZ Meeting Tel: 914-614-3221 Meeting ID: 732-403-054 Facilitator: Steve Garcia, 201-677-2542, advancedstagespsp@gmail.com

Carepartners of People with MSA

When: March 7, 2022 @ 8:00 pm – 9:00 pm

Meeting Time(s): 1st Monday of each month from 8:00pm – 9:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZIqfuhrDgoHdfeY_XXwpyWe602VedTnWbK Meeting Tel: +1 646 558 8656 Meeting ID: 867 8292 3273 Facilitator: Tom Tait, tom.tait@comcast.net, 856-725-2450

People with CBD and their Carepartners

When: March 15, 2022 @ 4:00 pm

Meeting Time(s): 3rd Tuesday of each month at 4:00pm Eastern Registration Link: https://attendee.gotowebinar.com/register/6157272128304268816 Meeting Tel: 631-992-3221 Meeting ID: 447-016-877 Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com

Carepartners of People with PSP

When: March 15, 2022 @ 8:00 pm

Meeting Time(s): 3rd Tuesday of each month at 8:00pm Eastern Registration Link: https://attendee.gotowebinar.com/register/7620701206235337739 Meeting Tel: 562-247-8321 Meeting ID: 739-162-551 Facilitator: Janet Edmunson, 508-308-4195, janet@janetedmunson.com

People with CBD and their Carepartners

When: March 1, 2022 @ 6:00 pm

Meeting Time(s): 1st Tuesday of every month at 6:00pm EST Regisration Link: https://us02web.zoom.us/meeting/register/tZwrcu2vrTIsE9angifxZkh2PCyWI182Ouin Meeting Tel: 213-929-4232 Meeting ID: 611-128-331 Facilitator: Karry Forsythe, forsythe76@gmail.com

People with MSA

When: March 21, 2022 @ 8:00 pm

Meeting Time(s): 3rd Monday of each month at 8:00pm Eastern Registration Link: https://us02web.zoom.us/meeting/register/tZUtf-CgrD0uG9CGa7yq3806EcOd8xhmUaqR Meeting Tel: +1 646 558 8656 Meeting ID: 810 8982 6414 Facilitator: Cathy Chapman, 307-332-4144, cec@wyoming.com

People with PSP

When: March 28, 2022 @ 7:30 pm – 8:30 pm

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August) Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071 Facilitator: Margo Silk marsilk115@aol.com …

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People with PSP

When: March 14, 2022 @ 7:30 pm – 8:30 pm

Meeting Time(s): 2nd & 4th Monday of each month from 7:30pm – 8:30pm Eastern (no meetings in August) Registration Link: https://us02web.zoom.us/meeting/register/tZUpce-rrD4qHdVzkfx0e8OSq94-UEu7dcaC Meeting Tel: +1 646 558 8656 Meeting ID: 814 6632 5071 Facilitator: Margo Silk, marsilk115@aol.com, 609-265-7070

Men Carepartners of People with PSP/ CBD/ MSA Support Group

When: March 3, 2022 @ 5:00 pm

Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051 Facilitators: Tom Tait …

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Men Carepartners of People with PSP/ CBD/ MSA Support Group

When: March 1, 2022 @ 8:00 pm

Meeting Time(s): First Tuesday of each month at 8:00pm EST and first Thursday of each month at 5:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIodu2qrjsqH9UvjxLyw__eP3Ep21zHKmvj Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051 Facilitators: Tom Tait …

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Women Carepartners of People with PSP/CBD/MSA Support Group

When: March 16, 2022 @ 6:30 pm – 8:00 pm

Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0 Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819 Facilitator: Nancy Montgomery …

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Women Carepartners of People with PSP/CBD/MSA Support Group

When: March 3, 2022 @ 2:30 pm – 3:30 pm

Meeting Time(s): First Thursday of each month from 2:30pm-3:30pm EST and third Wednesday of each month from 6:30-8:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZIod–prDIiG93cgs_-lKhJJ-E2Et5mW3U0 Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819 Facilitator: Nancy Montgomery …

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Carepartners of People with PSP/CBD/ MSA

When: March 10, 2022 @ 3:00 pm – 4:30 pm

Meeting Time(s): 2nd Thursday of every month from 3:00pm-4:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZAvceitrzotGdfteL8WR2LX01SjASUJ1Efr Meeting Tel: +1 646 558 8656 Meeting ID: 842 6151 1733 Facilitator: Diane Breslow, LCSW, dbreslow11@icloud.com and Ileen McFarland, ileen@earthlink.net

Anyone Impacted by PSP/CBD/MSA

When: March 17, 2022 @ 3:00 pm – 4:30 pm

This group is for any diagnosed individuals, carepartners, families, friends, etc. Meeting Time(s): 3rd Thursday of every month from 3:00pm-4:30pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZEtcO6sqzspHtXUtmqAN93amV39diWvEbw4 Meeting Tel: +1 646 558 8656 Meeting ID: 850 7745 0341 Facilitators: …

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PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed

When: April 18, 2022 @ 1:00 pm

Meeting Time(s): April 18th, 19th, 20th at 1pm ET Registration Link for April series: https://us02web.zoom.us/meeting/register/tZAtduCqqjsoHt3zAEGU2RH_AMOp3fbGe3_M Facilitators: Joanna Teters, teters@curepsp.org, and Kelsey Woods, woods@curepsp.org

CurePSP Virtual Spring 2022 Family Conference

When: April 25, 2022 @ 11:00 am – 4:30 pm
Where: Virtual Event

Save the Date for the CurePSP Virtual Spring Family Conference! Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and …

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Tau2022 Global Conference

When: February 22, 2022 @ 8:00 am – February 23, 2022 @ 4:45 pm
Where: Tau2022 Transitions to an Online Conference

Join CurePSP at the Tau2022 Global Conference in February 22-23, 2022! This day will bring together leading tau experts from around the world to collaborate and discuss key issues impacting the tau research community. For the …

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CurePSP Virtual Fall Family Conference

When: November 12, 2021 @ 11:00 am – 3:30 pm
Where: Virtual Event

Join CurePSP for the Virtual Fall Family Conference! Among its various educational activities, CurePSP organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD, and MSA and to …

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2021 Annual Multiple System Atrophy Patient & Family Conference

When: September 30, 2021 – October 2, 2021 all-day
Where: Virtual Event

Join the MSA Coalition for the 2021 Annual Multiple System Atrophy Patient and Family Conference! The MSA Coalition has hosted conferences since 1989, and are now in their seventh year of live-streaming to a global …

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“Train Keeps A Rolling”: The Jeff Golub Film Debut to Benefit CurePSP Event

When: October 6, 2021 @ 6:00 pm – 9:30 pm
Where: City Winery New York, 25 11th Ave, New York, NY 10011, USA

Join CurePSP for the Jeff Golub Film Debut in Benefit of CurePSP! This hybrid (in-person and online) film debut and cocktail reception for “Train Keeps a Rolling” honors the life of the world-renowned guitarist Jeff …

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Bonelli Music Bash

When: September 26, 2021 @ 2:00 pm – 3:00 pm
Where: Virtual Event

Join the Bonelli Family and Friends for their 6th Annual Bonelli Music Bash! The CurePSP Bonelli Music Bash started six years ago in honor of John Bonelli, a musician who was diagnosed with progressive supranuclear …

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Wellness Wednesday with Jenna Fair

When: July 7, 2021 @ 12:00 pm – 12:45 pm
Where: CurePSPTV – YouTube Channel

Join us for a new episode of Wellness Wednesday with CurePSP, a 30-minute Vinyasa Yoga Flow! On the first Wednesday of the month, we will be releasing a Wellness Wednesday episode on our CurePSPTV YouTube …

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Hope as Big as Texas

When: July 14, 2021 @ 7:00 pm – 9:15 pm
Where: Virtual Event

July 14, 2021 @ 7:00 pm – 9:15 pm CT (8:00 pm – 10:15 pm ET) Hope as Big as Texas is big fun with a mission and heart even bigger than the State of Texas! Our …

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The 19th Annual CurePSP Awareness and Memorial Walk

When: March 19, 2022 @ 10:30 am – 1:30 pm
Where: Mackle Park, 1361 Andalusia Terrace, Marco Island, FL 34145, USA

Save the Date for the 19th Annual CurePSP Awareness and Memorial Walk in Marco Island, Florida!   The CurePSP Awareness and memorial walk is sponsored by The SW Florida Support Group (for all affected by …

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CurePSP 2022 International Research Symposium

When: October 24, 2022 @ 8:00 am – October 25, 2022 @ 5:00 pm
Where: Hybrid and In-person, 60 Chelsea Piers, New York, NY 10011, USA

Save the Date for the 2022 CurePSP International Research Symposium featuring leaders from academia and industry in clinical and preclinical science relevant to PSP, CBD, and tauopathies! CurePSP conducts an International Research Symposium that brings …

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CurePSP Concert with Jeremy Cross

When: June 14, 2021 @ 7:00 pm – 8:00 pm
Where: Virtual Event

Join us from the comfort of your home for a concert by Jeremy Cross, LA-based singer & songwriter, in support of CurePSP! Join us for the final performance in the CurePSP Concert Series! Jeremy Cross …

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Synapse21: The CurePSP Brain Bank Benefit Event

When: June 16, 2021 @ 7:00 pm – 8:30 pm
Where: Virtual Event

Join us for the CurePSP Brain Bank Benefit Event! This virtual fundraising event supports the CurePSP brain donation program, operated in collaboration with the Mayo Clinic Brain Bank in Jacksonville, Florida. The Mayo Clinic’s Brain Bank …

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Wellness Wednesday with Julie Stover

When: May 5, 2021 @ 12:00 pm – 1:00 pm
Where: Virtual Event

Join us for a new episode of Wellness Wednesday with CurePSP, Stretching and Exercises for Caregivers! On the first Wednesday of every month, we will be releasing a Wellness Wednesday episode on our CurePSPTV YouTube …

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Ask The Doctor with Irene Litvan, MD

When: May 5, 2021 @ 1:00 pm – 2:00 pm
Where: Virtual Event

Join CurePSP for Ask The Doctor with Irene Litvan, MD In this webinar, Dr. Irene Litvan answers questions submitted during registration about the treatments of PSP, MSA, and CBD. Please note that any medications that …

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CurePSP Salsa Dance Celebration

When: May 3, 2021 @ 7:00 pm – 8:00 pm
Where: Virtual Event

Join CurePSP for a Salsa Dance Celebration! Get on your dancing shoes and join us for a salsa performance and tutorial from Talia Castro-Pozo! Regular physical movement keeps your brain healthy, and we invite you …

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Hike for CurePSP

When: April 12, 2021 @ 7:00 am – September 15, 2021 @ 8:00 pm
Where: Pacific Crest Trail

Join Jeff Friedman and his daughter, Rachel Friedman while they hike the Pacific Crest Trail in support of CurePSP! Former CurePSP board member Jeff Friedman and his daughter, Rachel, will be attempting to hike the …

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Ken’s Ride: A Ride for Hope

When: May 1, 2021 – May 31, 2021 all-day
Where: Virtual Event

Join CurePSP and Jan Appel for Ken’s Ride: A Ride for Hope! Throughout the month of May, CurePSP and Jan Appel will host a virtual fundraiser to honor Ken Appel – husband, father, and avid …

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CurePSP Virtual Bingo

When: September 23, 2021 @ 4:00 pm – 5:00 pm
Where: Virtual Event

A Virtual Bingo Celebration in Support CurePSP! Join CurePSP and Brookielynn’s Bungalow for an evening of virtual bingo with friends and family! Of course, it wouldn’t be bingo without PRIZES! You won’t want to miss the chance …

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CurePSP Concert with Mary Asimos

When: April 12, 2021 @ 7:00 pm – 8:00 pm
Where: Virtual Event

Join us from the comfort of your home for a concert by Mary Asimos as she plays the guitar and sings to support CurePSP! Add some cheer to your Monday by tuning into our next …

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Wellness Wednesday with Stefani Turken

When: April 7, 2021 @ 12:00 pm – 1:00 pm
Where: Virtual Event

Join us for a new episode of Wellness Wednesday with CurePSP, Dealing with Overwhelm: Coffee and Conversation with Four Life Coaches! On the first Wednesday of every month, we will be releasing a Wellness Wednesday …

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Ask The Doctor with Lawrence I. Golbe, MD

When: March 31, 2021 @ 2:00 pm – 3:00 pm
Where: Virtual Event

Join CurePSP for Ask The Doctor with Lawrence I. Golbe, MD. Lawrence I. Golbe, MD is one of the world’s leading clinical experts in progressive supranuclear palsy (PSP) and related neurodegenerative conditions. Dr. Golbe will …

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The 18th Annual CurePSP Awareness & Memorial Walk

When: March 31, 2021 @ 9:00 am
Where: Virtual Event

Join CurePSP and The SW Florida Support Group for the 18th Annual CurePSP Awareness & Memorial Walk Down Memory Lane! This year the SW Florida Support Group will be continuing its tradition of spreading hope …

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Ask the Scientist: Dr. Günter U. Höglinger

When: March 18, 2021 @ 11:00 am – 1:00 pm
Where: Virtual Event

Join CurePSP for Ask the Scientist: Dr. Günter U. Höglinger Dr. Höglinger will be discussing mPSPRS and PSP-CDS. Why do we need two new scales? The Progressive Supranuclear Palsy (PSP) Rating Scale is a prospectively …

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