PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed (Day Three)
When:
October 25, 2023 @ 1:00 pm – 2:00 pm
Facilitators: Joanna Teters and Kelsey Woods Register
PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed (Day Two)
When:
October 24, 2023 @ 1:00 pm – 2:00 pm
Facilitators: Joanna Teters and Kelsey Woods Register
PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed (Day One)
When:
October 23, 2023 @ 1:00 pm – 2:00 pm
Facilitators: Joanna Teters and Kelsey Woods Register
David Schaertel Memorial Benefit Concert
When:
September 30, 2023 @ 6:30 pm – 8:30 pm
Where:
Comedy at The Carlson, 50 Carlson Rd, Rochester, NY 14610, USA
Please join us for an evening filled with music as we pay tribute to David Schaertel, who had a deep love for music. The night will feature performances by various talented musicians from Rochester, along …
8th Annual Bonelli Music Bash
When:
October 1, 2023 @ 1:00 pm – 5:00 pm
Where:
All That Jazz Cafe, 3491 Hiatus Rd, Sunrise, FL 33351, USA
You are invited to join us for an afternoon of music featuring a collection of South Florida’s finest musicians. The 8th Annual Bonelli Music Bash and Silent Auction is in remembrance of John Bonelli, drummer …
4th Annual Drive Away PSP Scramble
When:
September 9, 2023 @ 7:15 am – 12:00 pm
Where:
Dunham Hills Golf Club, 13561 Dunham Rd, Hartland, MI 48353, USA
Join the Ferguson Family for their 4th Annual Drive Away PSP Scramble in Memory of Linda Ferguson! Come out for a day of fun, family, and golf! If you are from Michigan, make sure to …
PSP/CBD/MSA 101
When:
August 14, 2023 – August 16, 2023 all-day
Register
Music Therapy Group
When:
August 9, 2023 @ 4:00 pm – 5:00 pm
The CurePSP Music Therapy Group provides a platform to connect through music. Music therapy is the relational, clinical, and evidence-based use of music to accomplish individualized healthcare goals, including (but not limited to) motor functioning, …
Ask the Expert: Layering the Support System – Considering and Hiring Professional In-Home Care (webinar)
When:
December 6, 2023 @ 2:00 pm – 3:00 pm
People with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) or multiple system atrophy (MSA) require increasing assistance over time to help with daily tasks and safety. Likewise, while caregiving can be rewarding, families and partners …
Ask the Expert: The Ins and Outs of Research for PSP, CBD and MSA (webinar)
When:
October 12, 2023 @ 3:00 pm – 4:00 pm
About the Webinar Research is critical to finding treatments and cures for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA). In this webinar, CurePSP’s Associate Director of Scientific Affairs and Partnerships, …
Save the Date: The 21st Southwest Florida PSP Support Group Awareness and Memorial Walk
When:
March 2, 2024 @ 10:00 am
Where:
Mackle Park, Marco Island, FL
Neuro2023: The PSP and CBD International Research Symposium
When:
October 19, 2023 @ 9:00 am – October 20, 2023 @ 5:00 pm
Where:
London, UK
CurePSP and PSPA are collaborating to organize The PSP and CBD International Research Symposium on October 19-20, 2023, which aims to bring together experts from all over the world to share the latest scientific breakthroughs. …
CurePSP Virtual Fall Family Conference Day 2
When:
November 2, 2023 @ 1:00 pm – 5:30 pm
CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD and MSA and develop a sense of community. This year’s CurePSP Virtual Fall Family Conference will …
CurePSP Virtual Fall Family Conference Day 1
When:
October 31, 2023 @ 1:00 pm – 5:30 pm
CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD and MSA and develop a sense of community. This year’s CurePSP Virtual Fall Family Conference will …
Ask the Expert: Legacy and Science: Understanding Brain Donation for Neurodegenerative Diseases (webinar)
When:
July 20, 2023 @ 1:30 pm – 2:30 pm
Brain donation is key to advancing the understanding, treatments and cure of progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple systems atrophy (MSA). It is an incredibly powerful gift. CurePSP offers a brain donation …
Lilly Pulitzer Shop & Share Fundraiser
When:
June 3, 2023 @ 10:00 am – 3:00 pm
Where:
Lilly Pulitzer King of Prussia, 160 N Gulph Rd, King of Prussia, PA 19406, USA
Join CurePSP and Lilly Pulitzer for a Shop & Share fundraising event! Come to the Lilly Pulitzer store in King of Prussia, PA on Saturday, June 3rd, for an exciting fundraising event: the Lilly Pulitzer …
PSP Awareness Walk 2023 – Hamilton
When:
June 3, 2023 @ 9:00 am – 5:30 pm
Where:
Confederation Beach Park, 680 Van Wagners Beach Rd, Hamilton, ON L8E 3L8, Canada
Of the approximately five to seven of every 100,000 people in Canada with progressive supranuclear palsy (PSP), few, if any, had ever heard of the disease before their diagnosis. In fact, most patients with PSP …
Hope as Big as Texas
When:
November 11, 2023 @ 2:00 pm – 4:00 pm
Where:
Belmont Village Senior Living Turtle Creek, 3535 N Hall St, Dallas, TX 75219, USA
At this year’s Hope as Big as Texas, we will “Share the Care!” This in-person event is part of our “Share the Care” campaign in an effort to raise awareness for our Quality of Life …
PSP/CBD/MSA 101 (Day 3/3)
When:
June 28, 2023 @ 1:00 pm – 2:00 pm
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …
PSP/CBD/MSA 101 (Day 2/3)
When:
June 27, 2023 @ 1:00 pm – 2:00 pm
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …
PSP/CBD/MSA 101 (Day 1/3)
When:
June 26, 2023 @ 1:00 pm – 2:00 pm
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …
Walk for Roy
When:
May 20, 2023 @ 9:00 am – 10:30 am
Where:
Roy West Park, Forest Lawn Rd, Richmond, VA 23227, USA
Join CurePSP and the West Family for the Walk for Roy! We invite you to join us for a wonderful day at Roy West Park in Richmond, VA on Saturday, May 20, 2023! The Walk …
PSP Awareness Event in Partnership with MIND Relief
When:
April 29, 2023 @ 9:00 am – 10:00 am
Where:
DoubleTree Suites by Hilton Hotel, 400 Soldiers Field Rd, Boston, MA 02134, USA
Join CurePSP and MIND Relief for a PSP Awareness Event! Mani Iyer Neurodegenerative Diseases (MIND) Relief and CurePSP is excited to announce our inaugural Cambridge/Boston PSP awareness event. We cannot wait to welcome you later …
Ask the Expert: The What, the Why & the Management of Urinary Symptoms for PSP, CBD and MSA (webinar)
When:
June 20, 2023 @ 2:00 pm – 3:00 pm
While urinary symptoms are common with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA), they often go under-reported and can be difficult for people who are diagnosed, and their family care …
2023 Fall Family Conference – Orlando, FL
When:
September 20, 2023 – September 21, 2023 all-day
Where:
Marriott Orlando Airport Lakeside, 7499 Augusta National Dr, Orlando, FL 32822, USA
Join CurePSP for the 2023 Fall Family Conference in sunny Orlando, Florida! Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD and …
2nd Annual Bill Gillis Memorial Golf Tournament
When:
July 28, 2023 @ 10:30 am
Where:
South Granville Country Club, 2539 Sam Moss Hayes Rd, Creedmoor, NC 27522, USA
Join CurePSP and the Gillis Family for the 2nd Annual Bill Gillis Memorial Golf Tournament! We are calling all avid golfers to join in on the fun! If you are located in North Carolina, join …
PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed (Day 3/3)
When:
April 12, 2023 @ 1:00 pm – 2:00 pm
Description PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 …
PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed (Day 2/3)
When:
April 11, 2023 @ 1:00 pm – 2:00 pm
Description PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 …
Community Conversations: Hope in Action – Legislative Advocacy for PSP, CBD and MSA
When:
May 17, 2023 @ 2:30 pm – 3:30 pm
Julie Balasalle and Salin Geevarghese discovered they had much they could relate on when they were first connected. Professionally, both have dedicated their careers to larger scale advocacy and personally, both of their mothers are …
CurePSP Wellness Workshop: Holistic Health for PSP, CBD and MSA
When:
April 19, 2023 @ 12:00 pm – 3:00 pm
Join us for the CurePSP Wellness Workshop: Holistic Health for PSP, CBD and MSA! At CurePSP, we encourage everyone affected by PSP, CBD and MSA to focus on many different aspects of wellness throughout their …
PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed
When:
June 26, 2023 @ 1:00 pm
Description PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 …
PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed (Day 1/3)
When:
April 10, 2023 @ 1:00 pm – 2:00 pm
Description PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 …
Ask the Expert: Considerations for Your Nutritional Health with PSP, CBD or MSA (Virtual Webinar)
When:
March 22, 2023 @ 3:00 pm – 4:00 pm
While there is no specific diet associated with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) or multiple system atrophy (MSA), there are abundant suggestions and considerations to improve your nutritional health. In this webinar, Kristin …
Community Conversations: The Powerful Role of Grandchildren Caring for PSP, CBD and MSA (Virtual Webinar)
When:
February 2, 2023 @ 6:00 pm – 7:00 pm
One of the lessons Emma Wodwaski learned from her grandfather, who was diagnosed with PSP in 2015, was “to live life to its fullest,” and she still …
Ask the Expert: Assessing Cognitive Changes with PSP, CBD and MSA
When:
December 12, 2022 @ 2:00 pm – 3:00 pm
Where:
Virtual Webinar
Join CurePSP for Ask the Expert on Assessing Cognitive Changes with PSP, CBD and MSA on December 12, 22 at 2:00 PM – 3:00 PM ET! People diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration …
2nd Annual Enlightenment 5K to Benefit CurePSP
When:
November 4, 2022 – November 6, 2022 all-day
Join us for the 2nd Annual CurePSP Enlightenment 5K to Benefit CurePSP to raise awareness for corticobasal degeneration (CBD)! Last year, the Rutzen family raised over $6,000 to help CurePSP continue its mission of raising …
2022 CurePSP Virtual Fall Family Conference Day 1
When:
December 9, 2022 @ 11:30 am – 4:00 pm
Where:
Virtual Event
Join CurePSP for the 2022 Virtual Fall Family Conference! CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of …
2022 CurePSP Virtual Fall Family Conference Day 2
When:
December 16, 2022 @ 11:30 am – 4:00 pm
Where:
Virtual Event
Join CurePSP for the 2022 Virtual Fall Family Conference! CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of …
Young adult children and grandchildren of people with PSP/CBD/MSA
When:
October 1, 2022 @ 2:00 pm – 3:00 pm
Meeting Time(s): 1st Saturday of every month from 2:00pm-3:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZEqceuorTwjH9F2SJcCo7NT9spGM84T_6jn Meeting Tel: +1 646 558 8656 Meeting ID: 857 6203 7955 Facilitator: Emma Wodwaski ewodwaski@gmail.com and Sanjay Geevarghese sanjaygeevarghese@gmail.com Note: This meetup group …
PSP/CBD/MSA 101: Educational Support Series
When:
December 12, 2022 @ 1:00 pm – 2:00 pm
Where:
Virtual Webinar
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …
PSP/CBD/MSA 101: An Educational Support Group for the Newly Diagnosed
When:
October 17, 2022 @ 1:00 pm – 2:00 pm
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …
Mary Kay’s March for a Cure
When:
October 1, 2022 @ 8:30 am – 10:30 am
Where:
Still Pond Pool, 12700 Franklin Farm Rd, Herndon, VA 20171, USA
Join the Ream Family for MK’s March! In the fall of 2019 Mary Kay Ream was diagnosed with progressive supranuclear palsy (PSP). To celebrate her courageous fight, the Ream family is hosting a march in …
7th Annual Bonelli Music Bash
When:
October 2, 2022 @ 1:00 pm – 5:00 pm
Where:
All That Jazz Cafe, 3491 Hiatus Rd, Sunrise, FL 33351, USA
Join the Bonelli Family at the 7th Annual Bonelli Music Bash in Honor of John Bonelli! Come down to All That Jazz Cafe in Sunrise, Florida, on Sunday, October 2nd, from 1-5 pm ET to …
2022 CurePSP Fall Family Conference
When:
November 14, 2022 @ 8:30 am – 4:00 pm
Where:
Philadelphia Airport Marriott, Airport Terminal B, Philadelphia, PA 19153, USA
Join CurePSP for the 2022 Fall Family Conference! Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and to develop …
Ask the Expert: Advance Care Planning & Navigating Future Health Care Decisions (Webinar)
When:
September 7, 2022 @ 2:00 pm – 3:00 pm
Where:
virtual event
Join CurePSP for Ask the Expert on Advance Care Planning & Navigating Future Health Care Decisions! Navigating the uncertainties of the future when living with PSP, CBD and MSA can be overwhelming. In this webinar, …
The 20th Southwest Florida PSP Support Group Awareness and Memorial Walk
When:
March 18, 2023 @ 10:30 am
Where:
Mackle Park, Marco Island, Florida
Save the Date for the 20th Southwest Florida PSP Support Group Awareness and Memorial Walk! The purpose of the Southwest Florida PSP Support Group Awareness and Memorial Walk is to honor those that have passed from these diseases, …
Community Conversations: A Son’s Reflections on the PSP Journey (Webinar)
When:
August 29, 2022 @ 4:00 pm – 5:00 pm
Where:
Virtual Event
Join Rafi Stern and Jessica Shurer for a conversation and Q&A on navigating the PSP journey as a carepartner. Rafi Stern did not envision splitting his weeks between Cornell Law School and New York City. …
Neuro2022: The CurePSP International Symposium Poster Reception
When:
October 24, 2022 @ 6:00 pm – 9:00 pm
Where:
Pier 59, 58 Chelsea Piers, New York, NY 10011, USA
Join CurePSP for the Neuro2022 Poster Reception! During the CurePSP Internation Research Symposium international investigators hear about and discuss the latest scientific advances relevant to neurodegeneration, focusing on rare tauopathies such as PSP and CBD. …
Hope as Big as Texas
When:
September 15, 2022 @ 5:30 pm – 7:00 pm
Where:
Virtual Event
This year’s Hope as Big as Texas event celebrates Hispanic Heritage and Hope! This virtual celebration will explore the connection between caregivers and Hispanic artists, both applying creativity, inspiration, and commitment to someone and something …
2nd Annual Drive Away PSP Scramble
When:
August 6, 2022 @ 7:15 am
Where:
Dunham Hills Golf Course, 13561 Dunham Rd, Hartland, MI 48353, USA
Join CurePSP and the Ferguson Family for their 2nd Annual Drive Away PSP Scramble in Memory of Linda Ferguson! Come out for a day of fun, family, and golf! If you are from Michigan, make …