David Schaertel Memorial Benefit Concert

When: September 30, 2023 @ 6:30 pm – 8:30 pm
Where: Comedy at The Carlson, 50 Carlson Rd, Rochester, NY 14610, USA

Please join us for an evening filled with music as we pay tribute to David Schaertel, who had a deep love for music. The night will feature performances by various talented musicians from Rochester, along …

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8th Annual Bonelli Music Bash

When: October 1, 2023 @ 1:00 pm – 5:00 pm
Where: All That Jazz Cafe, 3491 Hiatus Rd, Sunrise, FL 33351, USA

You are invited to join us for an afternoon of music featuring a collection of South Florida’s finest musicians. The 8th Annual Bonelli Music Bash and Silent Auction is in remembrance of John Bonelli, drummer …

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4th Annual Drive Away PSP Scramble

When: September 9, 2023 @ 7:15 am – 12:00 pm
Where: Dunham Hills Golf Club, 13561 Dunham Rd, Hartland, MI 48353, USA

Join the Ferguson Family for their 4th Annual Drive Away PSP Scramble in Memory of Linda Ferguson! Come out for a day of fun, family, and golf! If you are from Michigan, make sure to …

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PSP/CBD/MSA 101

When: August 14, 2023 – August 16, 2023 all-day

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Music Therapy Group

When: August 9, 2023 @ 4:00 pm – 5:00 pm

The CurePSP Music Therapy Group provides a platform to connect through music. Music therapy is the relational, clinical, and evidence-based use of music to accomplish individualized healthcare goals, including (but not limited to) motor functioning, …

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Ask the Expert: The Ins and Outs of Research for PSP, CBD and MSA (webinar)

When: October 12, 2023 @ 3:00 pm – 4:00 pm

About the Webinar  Research is critical to finding treatments and cures for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA). In this webinar, CurePSP’s Associate Director of Scientific Affairs and Partnerships, …

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Neuro2023: The PSP and CBD International Research Symposium

When: October 19, 2023 @ 9:00 am – October 20, 2023 @ 5:00 pm
Where: London, UK

CurePSP and PSPA are collaborating to organize The PSP and CBD International Research Symposium on October 19-20, 2023, which aims to bring together experts from all over the world to share the latest scientific breakthroughs. …

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CurePSP Virtual Fall Family Conference Day 2

When: November 2, 2023 @ 1:00 pm – 5:30 pm

CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD and MSA and develop a sense of community. This year’s CurePSP Virtual Fall Family Conference will …

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CurePSP Virtual Fall Family Conference Day 1

When: October 31, 2023 @ 1:00 pm – 5:30 pm

CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD and MSA and develop a sense of community. This year’s CurePSP Virtual Fall Family Conference will …

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Lilly Pulitzer Shop & Share Fundraiser

When: June 3, 2023 @ 10:00 am – 3:00 pm
Where: Lilly Pulitzer King of Prussia, 160 N Gulph Rd, King of Prussia, PA 19406, USA

Join CurePSP and Lilly Pulitzer for a Shop & Share fundraising event!  Come to the Lilly Pulitzer store in King of Prussia, PA on Saturday, June 3rd, for an exciting fundraising event: the Lilly Pulitzer …

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PSP Awareness Walk 2023 – Hamilton

When: June 3, 2023 @ 9:00 am – 5:30 pm
Where: Confederation Beach Park, 680 Van Wagners Beach Rd, Hamilton, ON L8E 3L8, Canada

Of the approximately five to seven of every 100,000 people in Canada with progressive supranuclear palsy (PSP), few, if any, had ever heard of the disease before their diagnosis. In fact, most patients with PSP …

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Hope as Big as Texas

When: November 11, 2023 @ 2:00 pm – 4:00 pm
Where: Belmont Village Senior Living Turtle Creek, 3535 N Hall St, Dallas, TX 75219, USA

At this year’s Hope as Big as Texas, we will “Share the Care!” This in-person event is part of our “Share the Care” campaign in an effort to raise awareness for our Quality of Life …

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PSP/CBD/MSA 101 (Day 3/3)

When: June 28, 2023 @ 1:00 pm – 2:00 pm

PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …

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PSP/CBD/MSA 101 (Day 2/3)

When: June 27, 2023 @ 1:00 pm – 2:00 pm

PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …

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PSP/CBD/MSA 101 (Day 1/3)

When: June 26, 2023 @ 1:00 pm – 2:00 pm

PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …

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Walk for Roy

When: May 20, 2023 @ 9:00 am – 10:30 am
Where: Roy West Park, Forest Lawn Rd, Richmond, VA 23227, USA

Join CurePSP and the West Family for the Walk for Roy!  We invite you to join us for a wonderful day at Roy West Park in Richmond, VA on Saturday, May 20, 2023!  The Walk …

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PSP Awareness Event in Partnership with MIND Relief

When: April 29, 2023 @ 9:00 am – 10:00 am
Where: DoubleTree Suites by Hilton Hotel, 400 Soldiers Field Rd, Boston, MA 02134, USA

Join CurePSP and MIND Relief for a PSP Awareness Event!  Mani Iyer Neurodegenerative Diseases (MIND) Relief and CurePSP is excited to announce our inaugural Cambridge/Boston PSP awareness event. We cannot wait to welcome you later …

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2023 Fall Family Conference – Orlando, FL

When: September 20, 2023 – September 21, 2023 all-day
Where: Marriott Orlando Airport Lakeside, 7499 Augusta National Dr, Orlando, FL 32822, USA

Join CurePSP for the 2023 Fall Family Conference in sunny Orlando, Florida!   Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD and …

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2nd Annual Bill Gillis Memorial Golf Tournament

When: July 28, 2023 @ 10:30 am
Where: South Granville Country Club, 2539 Sam Moss Hayes Rd, Creedmoor, NC 27522, USA

Join CurePSP and the Gillis Family for the 2nd Annual Bill Gillis Memorial Golf Tournament! We are calling all avid golfers to join in on the fun! If you are located in North Carolina, join …

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CurePSP Wellness Workshop: Holistic Health for PSP, CBD and MSA

When: April 19, 2023 @ 12:00 pm – 3:00 pm

Join us for the CurePSP Wellness Workshop: Holistic Health for PSP, CBD and MSA! At CurePSP, we encourage everyone affected by PSP, CBD and MSA to focus on many different aspects of wellness throughout their …

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PSP/CBD/MSA 101: An Educational Support Series for the Newly Diagnosed

When: June 26, 2023 @ 1:00 pm

Description PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 …

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Ask the Expert: Assessing Cognitive Changes with PSP, CBD and MSA

When: December 12, 2022 @ 2:00 pm – 3:00 pm
Where: Virtual Webinar

  Join CurePSP for Ask the Expert on Assessing Cognitive Changes with PSP, CBD and MSA on December 12, 22 at 2:00 PM – 3:00 PM ET! People diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration …

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2nd Annual Enlightenment 5K to Benefit CurePSP

When: November 4, 2022 – November 6, 2022 all-day

Join us for the 2nd Annual CurePSP Enlightenment 5K to Benefit CurePSP to raise awareness for corticobasal degeneration (CBD)!  Last year, the Rutzen family raised over $6,000 to help CurePSP continue its mission of raising …

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2022 CurePSP Virtual Fall Family Conference Day 1

When: December 9, 2022 @ 11:30 am – 4:00 pm
Where: Virtual Event

Join CurePSP for the 2022 Virtual Fall Family Conference!  CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of …

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2022 CurePSP Virtual Fall Family Conference Day 2

When: December 16, 2022 @ 11:30 am – 4:00 pm
Where: Virtual Event

Join CurePSP for the 2022 Virtual Fall Family Conference!  CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of …

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Young adult children and grandchildren of people with PSP/CBD/MSA

When: October 1, 2022 @ 2:00 pm – 3:00 pm

Meeting Time(s): 1st Saturday of every month from 2:00pm-3:00pm EST Registration Link: https://us02web.zoom.us/meeting/register/tZEqceuorTwjH9F2SJcCo7NT9spGM84T_6jn  Meeting Tel: +1 646 558 8656 Meeting ID: 857 6203 7955 Facilitator: Emma Wodwaski ewodwaski@gmail.com and Sanjay Geevarghese sanjaygeevarghese@gmail.com Note: This meetup group …

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PSP/CBD/MSA 101: Educational Support Series

When: December 12, 2022 @ 1:00 pm – 2:00 pm
Where: Virtual Webinar

PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …

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PSP/CBD/MSA 101: An Educational Support Group for the Newly Diagnosed

When: October 17, 2022 @ 1:00 pm – 2:00 pm

PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will …

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Mary Kay’s March for a Cure

When: October 1, 2022 @ 8:30 am – 10:30 am
Where: Still Pond Pool, 12700 Franklin Farm Rd, Herndon, VA 20171, USA

Join the Ream Family for MK’s March! In the fall of 2019 Mary Kay Ream was diagnosed with progressive supranuclear palsy (PSP). To celebrate her courageous fight, the Ream family is hosting a march in …

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7th Annual Bonelli Music Bash

When: October 2, 2022 @ 1:00 pm – 5:00 pm
Where: All That Jazz Cafe, 3491 Hiatus Rd, Sunrise, FL 33351, USA

Join the Bonelli Family at the 7th Annual Bonelli Music Bash in Honor of John Bonelli! Come down to All That Jazz Cafe in Sunrise, Florida, on Sunday, October 2nd, from 1-5 pm ET to …

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2022 CurePSP Fall Family Conference

When: November 14, 2022 @ 8:30 am – 4:00 pm
Where: Philadelphia Airport Marriott, Airport Terminal B, Philadelphia, PA 19153, USA

Join CurePSP for the 2022 Fall Family Conference!  Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and to develop …

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The 20th Southwest Florida PSP Support Group Awareness and Memorial Walk

When: March 18, 2023 @ 10:30 am
Where: Mackle Park, Marco Island, Florida

Save the Date for the 20th Southwest Florida PSP Support Group Awareness and Memorial Walk! The purpose of the Southwest Florida PSP Support Group Awareness and Memorial Walk is to honor those that have passed from these diseases, …

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Neuro2022: The CurePSP International Symposium Poster Reception

When: October 24, 2022 @ 6:00 pm – 9:00 pm
Where: Pier 59, 58 Chelsea Piers, New York, NY 10011, USA

Join CurePSP for the Neuro2022 Poster Reception! During the CurePSP Internation Research Symposium international investigators hear about and discuss the latest scientific advances relevant to neurodegeneration, focusing on rare tauopathies such as PSP and CBD. …

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Hope as Big as Texas

When: September 15, 2022 @ 5:30 pm – 7:00 pm
Where: Virtual Event

This year’s Hope as Big as Texas event celebrates Hispanic Heritage and Hope! This virtual celebration will explore the connection between caregivers and Hispanic artists, both applying creativity, inspiration, and commitment to someone and something …

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2nd Annual Drive Away PSP Scramble

When: August 6, 2022 @ 7:15 am
Where: Dunham Hills Golf Course, 13561 Dunham Rd, Hartland, MI 48353, USA

Join CurePSP and the Ferguson Family for their 2nd Annual Drive Away PSP Scramble in Memory of Linda Ferguson! Come out for a day of fun, family, and golf! If you are from Michigan, make …

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