Donate
You can make a tribute gift in honor or memory of someone and CurePSP will notify them/their family of your gift. You can join our amazing community of monthly supporters, or you can simply go to our online donation form and make a gift to CurePSP.
To donate by check, please click here.
Ways to Give
There are a variety of ways to help CurePSP, and your money will go immediately to work helping us to provide; information where it is needed most; support for patients; various programs of awareness and education; and funding for the most promising research into treatment and a cure for neurodegeneration.
Volunteer
Our organization is extremely grateful to our donors and volunteers for all that they do, and we would love to have you involved too! Volunteering for a CurePSP organization event such as our Family Conferences or Research Symposiums, or volunteering to become a support group leader is always appreciated. Our support group leader program includes training, guidance, and connection to a community of other group leaders across the country. For more information about volunteer opportunities email info@curepsp.org.
If you have professional skills and time to spare, we have various operational duties that you can help with – marketing, event planning, and public relations, to name just a few! Give us a call at 347-294-2873 (CURE) to see how you can help.
Personal Stories
Each family who is on this journey or has finished this journey has learned a great deal, often with much frustration and effort. Caregivers or family members often draw satisfaction by sharing their stories; we have featured three of these below.
Mary Lou Burhoe
Mary Lou Burhoe, wife of CurePSP Board Chair Emeritus John Burhoe, passed away from PSP after almost 45 years of marriage. Here, her husband tells the moving story of their life together and the poignant last years of their journey.
Kathryn Leigh Scott
Geoff Miller, founding editor of Los Angeles Magazine, the first city magazine, and lover of jazz, good beer and the good life, passed away after a battle with PSP. Here his wife, actress and author Kathryn Leigh Scott, tells their story.
Patricia Richardson
Laurence Richardson, military veteran, corporate executive and late-in-life musician, was another tragic victim of PSP. His daughter Patricia Richardson, well-known actress of stage and screen, tells his moving story.
Create a Free Will
Through CurePSP and FreeWill, you can create or update your will today – fast and 100% free. To get started just click this link, and follow the instructions. The service costs you nothing and your will is valid in all 50 states. Even if you plan to consult an attorney about your estate, you can use FreeWill ahead of time to organize your intentions before meeting with her or him.
How Do You Want To Help?
Find the right way for you to make a difference.
Estate Planning and Bequests
There are many ways to leave your mark in the world, lasting achievements for which you will be remembered. Estate planning can be as simple as signing over unnecessary insurance policies, stocks, bonds, or assets, and may even benefit your yearly tax situation. Making a simple change to your will by leaving a gift to CurePSP will make a lasting impact.
Upcoming Events
CurePSP produces a number of events yearly that are of interest to researchers, physicians, allied health professionals, patients, families, and carepartners. These events bring together leading professionals from around the world with our community of patients to share latest brain disease research, information, and management advice. Volunteers are always welcome, see how you can help.
Carol’s Walk to Cure PSP
Bring your friends and family for a 5K walk to support Carol and help fund research to cure PSP and other similar neurological diseases. If you can’t attend in person, we encourage you to participate virtually by logging your miles! ALL ABILITIES WELCOME!