Support Groups

Dilbiltating brain disease, documentary, CURE PSP, James Wark, Soryl AngelCurePSP encourages and organizes activities that foster face-to-face communication, exchange of ideas and information, and interaction for comfort and mutual benefit to group members. The groups are for caregivers, carepartners, family members, friends, and people with PSP, CBD, MSA, or a related disease.

 

There are three ways to connect:

 

Meet with people and share your common experiences and management techniques in an intimate setting. There are support groups in nearly every state, use our interactive map to find the closest group to you.

In-Person Support Groups

 

Can’t travel? Don’t want to share your experience? Not a problem – we have several amazing volunteers who run online groups that you can access with a computer and a phone. Find the group that more closely aligns with your situation here.

Online Support Groups

 

We are proud of our amazing volunteers who have made themselves available by phone to anyone who needs to talk. Dealing with PSP, CBD, MSA, or a related disease is a terrible burden, not just on patients but on family members too. Our volunteer peer support network means you aren’t alone in this journey.

Peer Supporters 

 

Support Group Training

Our support groups are run entirely by volunteers, often they are people who have lost someone they love. We are always open to creating more support groups. If you feel you have the time and energy to run a support group, or are just interested to see what’s involved, please go through the material below. If the information makes you feel confident in your ability to facilitate a group of your own, please contact Joanna Teters, CurePSP Office Manager at 347-294-2871 or email info@curepsp.org.

 

The CurePSP Support Group Facilitator Training Manual

Support Group Training Manual

This comprehensive manual is must-read for anybody considering becoming a volunteer Support Group Facilitator for CurePSP, and comes courtesy of Wendy Resnick, R.N., M.S., CS. It outlines everything that needs to be considered when establishing your own group, and offers best practices for running a smooth, collaborative group that everybody benefits from. 

Click On The Image To View Or Download The Manual