Network of Support
CurePSP encourages and organizes activities that foster face-to-face communication, exchange of ideas and information, and interaction for comfort and mutual benefit to group members. The groups are for caregivers, carepartners, family members, friends, and people with PSP, CBD, MSA, or a related disease.
There are three ways to connect:
1. Meet with people and share your common experiences and management techniques in an intimate setting. There are support groups in nearly every state, use our interactive map to find the closest group to you.
2. Can’t travel? Don’t want to share your experience? Not a problem – we have several amazing volunteers who run online groups that you can access with a computer and a phone. Find the group that more closely aligns with your situation here.
3. We are proud of our amazing volunteers who have made themselves available by phone to anyone who needs to talk. Dealing with PSP, CBD, MSA, or a related disease is a terrible burden, not just on patients but on family members too. Our volunteer peer support network means you aren’t alone in this journey.
Support Group Training
Our support groups are run entirely by volunteers, often they are people who have lost someone they love. We are always open to creating more support groups. If you feel you have the time and energy to run a support group, or are just interested to see what’s involved, please go through the material below. If the information makes you feel confident in your ability to facilitate a group of your own, please contact Joanna Teters at 347-294-2871 or email firstname.lastname@example.org.
The CurePSP Support Group Facilitator Training Manual
This comprehensive manual is must-read for anybody considering becoming a volunteer Support Group Facilitator for CurePSP, and comes courtesy of Wendy Resnick, R.N., M.S., CS. It outlines everything that needs to be considered when establishing your own group, and offers best practices for running a smooth, collaborative group that everybody benefits from.
Facilitator Training Videos
This two-part training video guide was produced for CurePSP courtesy of Wendy Resnick, R.N., M.S., CS. In the series, Wendy takes us through what skills are needed to be a support group facilitator, the challenges one might face, and the necessary tools to face them.
Support Group Leader Training Webinar Part 1, with Wendy Resnick
In Part 1 of a two part video training webinar series, Wendy Resnick takes us through the challenges and hurdles that one might face when becoming a support group leader. These videos are a must for anyone considering becoming a CurePSP support group leader.
Support Group Leader Training Webinar Part 2, with Wendy Resnick
In Part 2 of a two-part video training webinar series, Wendy Resnick takes us through the challenges and hurdles that one might face when becoming a support group leader. These videos are a must for anyone considering becoming a CurePSP support group leader.