Patient Resources

A key part of CurePSP’s mission of care, consciousness, and cure is to provide all relevant, up-to-date information on prime of life brain diseases. These resources are for patients, families, and friends seeking to educate themselves, and others, about these diseases; the causes, the symptoms, the disease trajectory, treatments, management, etc. This information is sourced from credible peer-reviewed scientific sources only, and is updated as breakthroughs in our understanding of these diseases occur.

 

Brochure Catalogue

Thanks to the support of our donors, these brochures and educational pieces are available upon request, and are suitable for public and healthcare professionals. They can be viewed online, or printed at home from our website. Click on the images to find the online version to read, download or print.

Alternatively, please fill out this form to request and receive a package of these printed materials in the mail. These brochures would not be available if not for the support of our donors, please consider making a gift to ensure publications continue in future.

The PSP: Some Answers brochure is compiled by CurePSP board member and PSP expert, Dr. Larry Golbe. To view the brochure, click on the image to the left. The CBD: Some Answers brochure is compiled by CurePSP board member and CBD expert, Dr. Larry Golbe. To view the brochure, click on the image to the left.
The MSA: Some Answers brochure is an eleven page booklet compiled by CurePSP board member and MSA expert, Dr. Larry Golbe. To view the brochure, click on the image to the left. CurePSP supports the Mayo Clinic brain bank by financially assisting brain donations. The Mayo Clinic performs autopsies which can provide a sure and final diagnosis of the deceased.
This book is specifically for healthcare professionals, and outlines the various treatments available for symptoms of prime of life brain diseases. If your physician isn’t aware of PSP, ask us to send them this book. This book is our introduction to people unfamiliar with prime of life brain disease. From a real life story, to the tau protein, to research into treatment and a cure, this brochure tells CurePSP’s story.
CurePSP has printed medical alert cards for patients of PSP, CBD, and MSA. These cards explain the disease and the symptoms, and are vital in an emergency to convey the precise nature of the illness. These are available upon request. CurePSP has produced the ‘A Family’s Story’ video series, telling the story of families dealing with diagnosis of PSP, CBD, FTD, and MSA. Available in the Request for Information package or singly.
This video is a presentation by respected neurologist and CurePSP associate Dr. Stephen Reich. In the hour-long video, Dr. Riech explains the pathology and symptoms of the prime of life brain disorders. The PSP disease summary sheet is a single-page outline of the disease – description, definition and symptoms. A great resource to leave with your doctor.
The CBD disease summary sheet is a single-page outline of the disease – description, definition and symptoms. A great resource to leave with your doctor. The MSA disease summary sheet is a single-page outline of the disease – description, definition and symptoms. A great resource to leave with your doctor.
This short brochure outlines PSP, CBD, and MSA with general layperson descriptions. This short brochure outlines CurePSP’s mission of care, Consciousness, and Cure.
This comprehensive training manual is a step-by-step guide to facilitating your own support group, as part of our volunteer training program. This short brochure is designed to be left at clinics promoting the value of support groups, with space at the back for your own support group details.
  The PSP Connection Newsletter features the progress CurePSP is making on its mission of care, consciousness, and cure. Available by mail or free download. This article in the esteemed Scientific American explains why PSP is being targeted for research into curing Alzheimer’s Disease.
Our Annual Reports are available to the public and demonstrate how we spend our donors contributions on our mission of care, consciousness, and cure. The CurePSP funding brochure outlines the many ways you can get involved in the research into treatments and a cure for PSP.
The CurePSP Estate Planning Guide is a valuable tool that can help you organize your estate, and includes step-by-step instructions on creating and managing an estate plan.    

Talking With Your Doctor

This informative brochure was compiled by the NIH, to help you discuss important topics with your doctor. click on the image to read the brochure, or download and print at home. 

 

 

 

 

 

 

 

Doctor Finder

This useful tool will assist in finding a movement disorder specialist near you. 

A movement disorder specialist is a neurologist who has received additional training in Parkinson’s disease (PD) and other movement disorders including dystonia, chorea, tics and tremors. The benefit of seeing a movement disorder specialist, is that they are usually on the cutting-edge of knowledge and treatment of PD and other movement disorders and are often best equipped to tailor a plan of care for you and your specific needs.

Copyright 2014 by the International Parkinson and Movement Disorder Society.

Click Here To Use The Doctor Finder

 

Organizations

 

The FTD Disorders Registry

Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments.

Join the registry here.  

 

Federal Agencies & Institutions

 

Related Organizations

 

Parkinson’s Organizations

Movement Disorder Organizations Centers and Specialists

 

Rehabilitation

 

Complimentary Therapy

 

In-home care

 

Communication Devices

 

Driving Safety