A key part of CurePSP’s mission of care, consciousness, and cure is to provide all relevant, up-to-date information on prime of life brain diseases. These resources are for patients, families, and friends seeking to educate themselves, and others, about these diseases; the causes, the symptoms, the disease trajectory, treatments, management, etc. This information is sourced from credible peer-reviewed scientific sources only, and is updated as breakthroughs in our understanding of these diseases occur.
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Read our Frequently Asked Questions (FAQ) here
This useful tool will assist in finding a movement disorder specialist near you.
A movement disorder specialist is a neurologist who has received additional training in Parkinson’s disease (PD) and other movement disorders including dystonia, chorea, tics and tremors. The benefit of seeing a movement disorder specialist, is that they are usually on the cutting-edge of knowledge and treatment of PD and other movement disorders and are often best equipped to tailor a plan of care for you and your specific needs.
Copyright 2014 by the International Parkinson and Movement Disorder Society.
Talking With Your Doctor
The FTD Disorders Registry
Research offers no guarantees, but research cannot move forward without your help. Every active role a patient takes may possibly play a part in discovering new groundbreaking research and finding new treatments.
Federal Agencies & Institutions
- PSP Association (PSPA)
- Multiple System Atrophy Coalition
- Multiple System Atrophy Trust
- National Organization of Rare Diseases (NORD)
- Association for Frontotemporal Degeneration (AFTD)
- Bluefield Project to Cure Frontotemporal Dementia
- EveryLife Foundation for Rare Diseases
Movement Disorder Organizations Centers and Specialists
- American Occupational Therapy Association
- American Physical Therapy Association
- American Speech-Language Hearing Association
- LVST Global (specialized speech therapy, “LOUD”, and physical/occupational therapy, “BIG”, for movement disorders)
- Parkinson’s Voice Project (specialized speech therapy, “SPEAK OUT!” and “The LOUD Crowd”)