Resources for Healthcare Professionals 

CurePSP is committed to providing resources and information to physicians and allied healthcare professionals regarding progressive supranuclear palsy, corticobasal degeneration and multiple system atrophy. Given the rarity of these neurodegenerative diseases, education of the medical community is critical, with the aims of decreasing delay to diagnosing and improving quality of care.

 
 

Centers of Care

The CurePSP Center of Care network was established in 2017 with the goal of connecting people diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) to the best possible clinical care to support their disease management and quality of life. Medical centers have been designated a CurePSP Center of Care through eligibility criteria centered around leadership in specialized therapies and treatment options, comprehensive support services and clinical research dedicated to PSP, CBD and MSA. There are currently 31 CurePSP Centers of Care in the United States and 2 in Canada, and CurePSP aims to expand this foundational care network in the coming years.

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Brochure Catalogue

CurePSP offers a variety of educational resources to community members and healthcare professionals, available upon request, at no cost. They can be viewed online and printed, or you can request a packet of printed materials to be mailed to you.

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Continuing Education

Announced in a press release in September 2023, CurePSP and the Parkinson’s Foundation (PF) have partnered to develop multi-part continuing education programming for healthcare professionals on PSP, CBD and MSA. It is our hope that this joint venture will help to address the issues of misdiagnosis and delays to accessing to the right care for atypical Parkinsonian syndromes.

The Atypical Parkinsonism Podcast Series course is now available! Access it on the PF Learning Lab.

Learning objectives – at the end of the activity, learners will be able to:

  • Identify common early symptoms of PSP, CBD and MSA, and explain the overlaps and differences between the diagnostic process and typical disease progression of atypical Parkinsonian syndromes and Parkinson’s disease.
  • Apply interprofessional approaches to symptom management for PSP, CBD and MSA and incorporate the healthcare team in assessing needs and crafting a plan of care for patients with these diseases.
  • Recognize the unique challenges of people living with PSP, CBD or MSA and be able to name helpful resources that support the quality of life of patients and family care partners.

Target audience – this activity is designed to meet the educational needs of:

  • Physicians
  • Physician assistants
  • Nurses Social workers
  • Psychologists
  • Physical therapists
  • Occupational therapists
  • Speech language pathologists

The disciplines listed above who take the entire podcast course will receive 1.5 continuing education credits. Stay tuned for further information on the other two parts of this joint programming: an online course (launching early 2024) and an in-person advanced PF Team Training (fall 2024).

 
 

Further Resources

Best Practices in the Clinical Management of Progressive Supranuclear Palsy and Corticobasal Syndrome: A Consensus Document of the CurePSP Centers of Care published in Frontiers of Neurology in July 2021

PSP rating scale – a measure of disease progression and disability, for use by clinicians published by CurePSP’s chair of the Scientific Advisory Board, Dr. Lawrence I. Golbe

A Clinician’s Guide to Progressive Supranuclear Palsy published by CurePSP’s chair of Scientific Advisory Board, Dr. Lawrence I. Golbe

People with progressive supranuclear palsy need to be seen sooner and more frequently published by the CurePSP Access to Care working group in the journal Parkinsonism and Related Disorders in October 2023

Video Resources

A collection of videos specifically for physicians that are treating or want to learn how to diagnose and treat a patient with PSP, CBD, MSA, and related brain diseases.

Atypical Parkinsonian Disorders
Full length tutorial about Atypical Parkinsonian Disorders, including PSP, CBD and MSA.
Symptoms and Diagnosis; PSP, CBD and MSA
This video is for healthcare professionals to use as a reference when diagnosing PSP, CBD and MSA. It shows what to look for in a patient when making a correct diagnosis.
A Physician's Guide to PSP
This video is intended for consumption by healthcare professionals, and should be used to help understand the disease and also aid in making an accurate diagnosis.
Physical Therapy for PSP, CBD and MSA
A recorded webinar presentation for physical therapists to help guide their treatment of patients with the diseases.
Occupational Therapy Treatment for PSP, CBD and MSA
A recorded webinar presentation for occupational therapists to help guide their treatment of patients with the diseases.
Your PSP Management Plan
A recorded webinar presentation to help guide patients, caregivers, and professionals in creating a plan for managing PSP.
Guide to PSP for Staff in Long Term Care
A recorded webinar presentation intended for long term care staff who treat patients with the diseases.
Social Work's Role in Managing PSP, CBD and MSA
A recorded webinar presentation intended to help identify the value a social worker can bring to those struggling with the diseases.
How-To Video Series
This series, made possible by the Norma Oppenlander Fund, is designed to provide PSP/CBD/MSA patients with demonstrations of techniques that can be utilized to make daily tasks easier to perform.
PSP: A Primer for the Newly Diagnosed
PSP: A Primer for the Newly Diagnosed was created for a person who has just been diagnosed with progressive supranuclear palsy.