Resources for Healthcare Professionals
CurePSP is committed to providing resources and information to physicians and allied healthcare professionals regarding prime of life neurodegeneration.
Given the rarity of these neurodegenerative diseases, it is crucial that CurePSP actively reach out to the medical community, not only movement disorder specialists, but various therapy specialties, nurses, social workers and home healthcare workers.
As a healthcare professional, CurePSP hopes that the following links will be helpful to you as you treat your patients and interact with persons affected by these diseases.
Articles, documents and publications
Information on SW/PT/OT/SLT for PSP, CBD/MSA
PSP Rating Scale – published by CurePSP’s chair of the Scientific Advisory Board, Dr. Lawrence I. Golbe
Identification of Common Variants Influencing Risk of the Tauopathy PSP Appearing in Nature Genetics on June 19, 2011.
Postural Imbalance and Falls in PSP Correlate with Functional Pathology of the Thalamus Appearing in Neurology on July 12, 2011.
Rational Therapeutic Approaches to PSP Appearing in Brain: A Journal of Neurology on May 14, 2010.
Videos
A collection of videos specifically for physicians that are treating or want to learn how to diagnose and treat a patient with PSP, CBD, MSA and related brain diseases.
Atypical Parkinsonian Disorders
Full length tutorial about Atypical Parkinsonian Disorders, including PSP, CBD and MSA.
Symptoms and Diagnosis; PSP, CBD and MSA
This video is for healthcare professionals to use as a reference when diagnosing PSP, CBD and MSA. It shows what to look for in a patient when making a correct diagnosis.
A Physician's Guide to PSP
This video is intended for consumption by healthcare professionals, and should be used to help understand the disease and also aid in making an accurate diagnosis.
Physical Therapy for PSP, CBD and MSA
A recorded webinar presentation for physical therapists to help guide their treatment of patients with the diseases.
Occupational Therapy Treatment for PSP, CBD and MSA
A recorded webinar presentation for occupational therapists to help guide their treatment of patients with the diseases.
Your PSP Management Plan
A recorded webinar presentation to help guide patients, caregivers, and professionals in creating a plan for managing PSP.
Guide to PSP for Staff in Long Term Care
A recorded webinar presentation intended for long term care staff who treat patients with the diseases.
Social Work's Role in Managing PSP, CBD and MSA
A recorded webinar presentation intended to help identify the value a social worker can bring to those struggling with the diseases.
How-To Video Series
This series, made possible by the Norma Oppenlander Fund, is designed to provide PSP/CBD/MSA patients with demonstrations of techniques that can be utilized to make daily tasks easier to perform.
PSP: A Primer for the Newly Diagnosed
PSP: A Primer for the Newly Diagnosed was created for a person who has just been diagnosed with progressive supranuclear palsy.