Resources for Healthcare Professionals
CurePSP is committed to providing resources and information to physicians and allied healthcare professionals regarding progressive supranuclear palsy, corticobasal degeneration and multiple system atrophy. Given the rarity of these neurodegenerative diseases, education of the medical community is critical, with the aims of decreasing delay to diagnosing and improving quality of care.
Centers of Care
The CurePSP Center of Care network was established in 2017 with the goal of connecting people diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) to the best possible clinical care to support their disease management and quality of life. Medical centers have been designated a CurePSP Center of Care through eligibility criteria centered around leadership in specialized therapies and treatment options, comprehensive support services and clinical research dedicated to PSP, CBD and MSA. There are currently 28 CurePSP Centers of Care in the United States and 2 in Canada, and CurePSP aims to expand this foundational care network in the coming years.
Brochure Catalogue
CurePSP offers a variety of educational resources to community members and healthcare professionals, available upon request, at no cost. They can be viewed online and printed, or you can request a packet of printed materials to be mailed to you.
Further Resources
Best Practices in the Clinical Management of Progressive Supranuclear Palsy and Corticobasal Syndrome: A Consensus Document of the CurePSP Centers of Care published in Frontiers of Neurology in July 2021
Rating Scale published by CurePSP’s chair of the Scientific Advisory Board, Dr. Lawrence I. Golbe
A Clinician’s Guide to Progressive Supranuclear Palsy published by CurePSP’s chair of Scientific Advisory Board, Dr. Lawrence I. Golbe
Identification of Common Variants Influencing Risk of the Tauopathy PSP Appearing in Nature Genetics on June 19, 2011.
Postural Imbalance and Falls in PSP Correlate with Functional Pathology of the Thalamus Appearing in Neurology on July 12, 2011.
Video Resources
A collection of videos specifically for physicians that are treating or want to learn how to diagnose and treat a patient with PSP, CBD, MSA, and related brain diseases.
Atypical Parkinsonian Disorders
Full length tutorial about Atypical Parkinsonian Disorders, including PSP, CBD and MSA.
Symptoms and Diagnosis; PSP, CBD and MSA
This video is for healthcare professionals to use as a reference when diagnosing PSP, CBD and MSA. It shows what to look for in a patient when making a correct diagnosis.
A Physician's Guide to PSP
This video is intended for consumption by healthcare professionals, and should be used to help understand the disease and also aid in making an accurate diagnosis.
Physical Therapy for PSP, CBD and MSA
A recorded webinar presentation for physical therapists to help guide their treatment of patients with the diseases.
Occupational Therapy Treatment for PSP, CBD and MSA
A recorded webinar presentation for occupational therapists to help guide their treatment of patients with the diseases.
Your PSP Management Plan
A recorded webinar presentation to help guide patients, caregivers, and professionals in creating a plan for managing PSP.
Guide to PSP for Staff in Long Term Care
A recorded webinar presentation intended for long term care staff who treat patients with the diseases.
Social Work's Role in Managing PSP, CBD and MSA
A recorded webinar presentation intended to help identify the value a social worker can bring to those struggling with the diseases.
How-To Video Series
This series, made possible by the Norma Oppenlander Fund, is designed to provide PSP/CBD/MSA patients with demonstrations of techniques that can be utilized to make daily tasks easier to perform.
PSP: A Primer for the Newly Diagnosed
PSP: A Primer for the Newly Diagnosed was created for a person who has just been diagnosed with progressive supranuclear palsy.