Prime of Life Brain Diseases
Neurodegeneration is not just a disease that strikes the elderly. There is a spectrum of brain diseases that often onset in the 50’s and 60’s when people may have family responsibilities, careers, and active lives. Half of all neurodegeneration under age 65 involves these diseases (NIH).
CurePSP has a comprehensive plan and program for pursuing research that may ultimately find treatment and cure for PSP and other prime of life neurodegenerative diseases. Research is now showing that all neurodegeneration is likely linked by common pathology, so that our research may eventually unlock the secrets of more-common illnesses like Alzheimer’s and Parkinson’s.
CurePSP has supported more than 190 research studies since its founding in 1990 primarily in progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and multiple system atrophy (MSA). This effort continues today with several important ongoing projects.
A key part of CurePSP’s mission of care, consciousness, and cure is to provide relevant, up-to-date information on prime of life brain diseases. These resources are for patients, families, and friends seeking to educate themselves, and others, about these diseases and their causes, symptoms, trajectory, treatments, management, etc. This information is sourced from credible peer-reviewed scientific sources only and is updated as breakthroughs in our understanding of these diseases occur.
Resources for Healthcare Professionals
CurePSP strives to provide allied healthcare professionals with up-to-date information on these prime of life diseases to assist them in diagnosing, treating, and managing these diseases. We encourage you to download, print, and share these resources among your allied medical network.
The FTD Disorders Registry
The Registry is an online database to collect information from those affected by all types of prime of life brain diseases, such as PSP, CBD, and related. Persons diagnosed, (current/former) caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. Join the registry here.
CurePSP produces a number of events that are of interest to researchers, physicians, and allied professionals. These bring together leading professionals from around the world for stimulating programs and presentations and informal networking.
CurePSP and Light of Day Family Conference
Please join CurePSP and the Light of Day Foundation on Saturday, May 2nd, 2020, at the New Jersey Family Conference! Among its various educational activities, CurePSP organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD, and MSA and to develop a sense of community. Join us for a day with various speakers with in-the-field expertise, movement disorder specialists, and allied health care providers who work directly with patients and their families.