Prime of Life Brain Disease
Neurodegeneration is not just a disease that strikes the elderly. There is a spectrum of brain diseases that often onset in the 50’s and 60’s when people may have family responsibilities, careers and active lives. Half of all neurodegeneration under age 65 involves these diseases (NIH).
PSP and CBD are tauopathies.
Progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), and Alzheimer’s disease are considered tauopathies. This is because the neurodegenerative symptoms are due to the abnormal misfolding and clumping of the tau protein within neurons, which causes progressive cell death. This video explains this process.
Frequently Asked Questions
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A key part of CurePSP’s mission of care, consciousness, and cure is to provide relevant, up-to-date information on prime of life brain diseases. These resources are for patients, families, and friends seeking to educate themselves, and others, about these diseases; the causes, the symptoms, the disease trajectory, treatments, management, etc. This information is sourced from credible peer-reviewed scientific sources only, and is updated as breakthroughs in our understanding of these diseases occur.
Resources for Healthcare Professionals
CurePSP strives to provide allied healthcare professionals with up-to-date information on these prime of life diseases to assist them in diagnosing, treating and managing these diseases.
In the Fall/Winter 2017 issue, we give an in depth look at the drug development process, and explain why progress seems so painfully slow to those affected.
CurePSP uses technology to reach as many people as possible. The webinars sponsored by CurePSP are free and are an easy way to learn about the most current information on how to manage the symptoms of the disease(s) and results of current research efforts.
CurePSP has a comprehensive plan and program for pursuing research that may ultimately find treatment and cure for PSP and other prime of life neurodegenerative diseases. Research is now showing that all neurodegeneration is likely linked by common pathology, so that our research may eventually unlock the secrets of more-common illnesses like Alzheimer’s and Parkinson’s.
CurePSP has supported more than 170 research studies since its founding in 1990 primarily in progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA). This effort continues today with several important ongoing projects.
CurePSP produces a number of events that are of interest to researchers, physicians and allied professionals. These bring together leading professionals from around the world for stimulating programs and presentations and informal networking.
Upcoming Featured Event - CurePSP Awareness and Memorial Walk
The CurePSP Awareness and Memorial Walk attracts people from around the country who have been touched in some way by these devastating brain diseases, honoring those suffering and remembering those who have passed. The walk is hosted by the SW Florida Support Group (For all affected by PSP, CBD, and MSA). More than 300 people attend the walk annually, and a record crowd is anticipated for this coming event. The length of the walk is less than one mile around Mackle Park, and is wheelchair and family friendly.