Progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA) are brain diseases that can cause changes to speech, balance, walking, swallowing, vision, cognition and autonomic functioning. They can also involve symptoms similar to Parkinson’s disease including tremor, stiffness and slowness. Because of this, people may initially be diagnosed with Parkinson’s and you may hear PSP, CBD and MSA referred to as “atypical parkinsonism” syndromes. They are neurodegenerative, meaning that symptoms may change and worsen over time.
PSP, CBD and MSA are considered rare, especially compared to more common neurodegenerative diseases of Alzheimer’s disease and Parkinson’s disease. However, about 25% of people with PSP, CBD and MSA are accurately diagnosed. Many healthcare providers are not familiar with these conditions, leading to an often lengthy and complex diagnosis journey. At this time, treatment cannot slow the progression of these diseases, although there are many options to manage symptoms and care. Educating the medical community to lead to accurate diagnosis and improved care is a priority of CurePSP.
We recognize that a diagnosis of PSP, CBD or MSA can bring about many questions, emotions and complex care considerations. We are here to provide education and to support you through your journey.
Newly Diagnosed with PSP, CBD or MSA?
CurePSP maintains a library of educational resources, which you can download or order, to offer guidance and tools for life with PSP, CBD or MSA.
CurePSP has a comprehensive plan and supports research that may ultimately find treatments and cures for PSP, CBD, MSA and related neurodegenerative diseases.
CurePSP offers Ask the Expert webinars, Family Conferences, Wellness Wednesdays and more as opportunities for education on PSP, CBD and MSA.
Resources for Healthcare Professionals
CurePSP strives to provide healthcare professionals with information and resources to help in diagnosing, treating, and managing PSP, CBD and MSA.