CurePSP Connection Newsletter

The CurePSP Connection newsletter helps us share stories of hope, update you on the latest research, and document the progress that you make possible. Your stories inspire us every day, and we want to pass on your messages of courage and strength.

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Current and Past Newsletter

Summer 2023 Issue

The Summer 2023 issue gives an update from Dr. Kristophe Diaz on advancements in the world of neuroscience, an update on the 20th anniversary of the Southwest Florida PSP Support Group Awareness and Memorial Walk, volunteer and support group highlights and much more.

Summer 2022 Issue

The Summer 2022 issue gives an update from Dr. Kristophe Diaz on the allocation of your funds, a Q&A with Centers of Care Director Jessica Shurer, the latest on tau research from Dr. Rik van der Kant, and reflections from Sanjay Geevarghese, a teenage carepartner, as well as a poem on gratitude from Diane Deaver, a resilient PSP patient.

Fall 2021 Issue

The Fall 2021 issue introduces the newest Executive Director, Dr. Kristophe Diaz, offers symptom management advice from clinicians including Dr. Lawrence Golbe, investigates the genetic evidence of PSP from Dr. John M. Ringman, and gives updates on the successes of the latest fundraisers.

Spring 2021 Issue

The Spring 2021 Issue talks about the quality of life, quality of care, all in your home. In this issue, you hear a message from Amanda Woerman, Ph.D., on research updates.