CurePSP Connection Newsletter
The CurePSP Newsletters help keep our donors and families informed. See the latest stories about the foundation and the board, staff, families and professionals who make it run.
Register here for our monthly e-newsletter, and below for our mailed newsletter.
Current and Past Newsletters
Spring 2019 Issue
The Spring 2019 Issue talks about updates on research, education, and events. In this issue you can meet our new staff, see an update on our centers of care and volunteer network, and get a first-hand look at the power of social media for CurePSP.
Fall 2018 Issue
The Fall 2018 Issue talks about tips for caregivers and some research updates. We also feature a story on Kids of PSP, from the sons, daughters, grandchildren, and great-grandchildren who have had to come to terms with the devastation caused by PSP.
Spring 2018 Issue
The Spring/Summer 2018 Issue makes a special shout out to all of the amazing volunteers that make CurePSP's mission possible. We also feature a young playwright who had actor Jude Law play a man in the late stages of PSP.
Fall 2017 Issue
In this issue, we give an in depth look at the drug development process, and explain why progress seems so painfully slow to those affected.
Spring 2017 Issue
In our Spring/Summer 2017 Issue, we hear from Dr. Alex Klein about research updates and we introduce the FTD Disorders Registry. We highlight our latest research grant awardee, Dr. Jori Fleisher, and hear from Trish Caruana, CEO of the Patient Engagement Program.
Fall 2016 Issue
In our latest issue, we introduce our newest additions to the team, highlight our favorite two volunteer fundraisers of summer, and introduce our new partnership with the expanded Michael J. Fox Foundation's Fox Trial Finder.
Spring 2016 Issue
In our latest issue, meet Jaclyn Zendrian, CurePSP’s Director of Events, and get a report from Board Member Ileen McFarland about CurePSP’s first New York Family Conference.
Winter 2016 issue
In this issue we introduce you to our Patient Engagement Program, and Alex Klein, Ph.D., our new Vice President of Scientific Affairs.
Fall 2015 Issue
Dr. Joellyn Fox, Lead Therapist of the Dan Aaron Parkinson's Rehabilitation Center, University of Pennsylvania answers patients' frequently asked questions.
Spring 2015 Issue
In this issue we highlight the fantastic work our national team of caring supporters are doing to raise awareness of PSP and related diseases, as well as funds vital to researching a cure.
Winter 2015 Issue
In this issue we shine a spotlight on Dr. John Steele, a man instrumental in the study of PSP and Parkinsonisms. We also hear from a man with MSA as he faces his journey to acceptance.