Welcome to CurePSP

CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers, and healthcare professionals on prime of life neurodegeneration including PSP, CBD, MSA, and related diseases.

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Frequently Asked Questions

Featured Research

Care Where It Counts

When disease leads to disability, patients and their caregivers can become painfully isolated. Homebound patients without access to the expert care that can offer both symptomatic relief and psychosocial support tend to be much more frequently hospitalized and placed in nursing homes. They can also miss out on opportunities to contribute to studies exploring new treatments and possible cures. This study is assessing the benefits of in—home visits by a neurologist, a nurse and a social worker and its impact on quality of life.

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Featured Personal Story

Pierre and Jocelyne Gervais

On the morning of October 3, 2016, Pierre Gervais passed away, peacefully, and in the company of his wife Jocelyne. The many messages that were sent in the days leading up to his passing were a great comfort and support for the family, and were heard and understood by Pierre. When told that we at CurePSP were further impassioned to fight to find treatment and cure he gave the advice, “don’t quit.”Pierre was kind and admired by many, true to self and others, one to depend on always – a wonderful husband, great father, best friend and loving grandfather.

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Featured News

CurePSP Research Highlight

CurePSP recognizes that the fight against PSP, CBD, and other disorders can now take a new direction, capitalizing on a number of recent discoveries, exciting ongoing work, and new hypotheses. CurePSP created the research road map to help guide the organization’s future scientific endeavors toward treatment and a cure. In addition to an annual research symposium focused on the latest research updates, CurePSP also provides resources for venture grants, brain donations, and clinical trials.

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Our annual Family Conference is approaching! Join us on June 6th & 7th in Raleigh, NC for a program designed to provide individuals essential information about PSP, CBD, and MSA. Thank you to our part sponsor Biogen! lnkd.in/dht5KCv

About 45 minutes ago from CurePSP's Twitter via AgoraPulse Manager