Our Mission

To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.


Learn about CurePSP and the diseases we serve

Join Team CurePSP for Upcoming Races!

Put meaning to your miles by running for Team CurePSP. All funds raised will go directly towards our mission of raising awareness, building community, improving care and finding a cure for progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA). As a part of the team, you’ll receive fundraising support, a customizable fundraising page, Team CurePSP swag and access to online communities to interact with other team members.

Parkinson’s Foundation and CurePSP Announce Partnership for Launch of Special Programming for Healthcare Professionals

The Parkinson’s Foundation announced the launch of a partnership with CurePSP on the development of a multi-part educational program geared towards healthcare professionals. The program focuses on “atypical Parkinsonian syndromes,” including: progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA).

Introducing Our Facebook Discussion Group!

We are thrilled to announce the launch of our first-ever Facebook discussion group for individuals affected by progressive supranuclear palsy (PSP) or corticobasal degeneration/syndrome (CBD/CBS). Whether you are someone diagnosed, a partner, a family member or a friend, this group is for you! It’s a space to connect with others on a similar journey, access valuable resources and share questions and insights in a safe, moderated environment. Join us and be part of a supportive network where we make the journey together.

CurePSP Pathway and Pipeline Grants

Upcoming Pathway and Pipeline Grant deadlines will be in October 2023 and April 2024. CurePSP provides seed funding to investigators who have innovative ideas that need proof of concept or pilot studies in order to qualify for larger funding sources. CurePSP will fund studies on PSP and CBD with a particular interest in (i) fundamental neurobiology and mechanisms of PSP and CBD and (ii) translational projects focusing on new therapeutics and biomarkers for PSP and CBD.

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Mar
2
Sat
The 21st Southwest Florida PSP Support Group Awareness and Memorial Walk @ Mackle Park, Marco Island, FL
Mar 2 @ 10:30 am
 

REGISTER     DONATE

Save the Date for the 21st Annual Southwest Florida PSP Support Group Awareness and Memorial Walk! The purpose of the Southwest Florida PSP Support Group Awareness and Memorial Walk is to honor those that have passed from these diseases, support those living with them now, raise awareness, educate the public, raise money to help find a cure, and let people know about our support group in Naples.

Our group is proud of the success of our walks over the years and is grateful to the public for their support. We have people coming from across the country and some from other countries. Everyone has fun on the walks. There will be food, music, a silent auction, and chances to win great prizes! For those that have never attended one of our walks, you won’t want to miss this one!

Registration for adults is $25, and for students is $10. The fee includes lunch and a CurePSP T-shirt. Should you have particular dietary requirements, kindly ensure to pack your own meal.

Please note that CurePSP has a new mailing address and all checks should go to 325 Hudson Street, 4th Floor, New York, NY 10013, and note that it is for the Marco Island Walk.

If you paid for a sign in the past and left it with us, you do not have to pay for that sign again.
If you would like a new sign however, please place a new order.

 

Mar
11
Mon
Tau Primer Webinar
Mar 11 @ 10:00 am

Ahead of Tau 2024, join us for a webinar covering the basics of this key topic, including a clinical overview of tauopathies by James Rowe, a review of the molecular basics of tau by Bess Frost and a presentation on tau biomarkers by Henrik Zetterberg. 

Tau2024 will take place virtually and in Washington, D.C. from March 25-26.  Dr. Kristophe Diaz, Executive Director and Chief Science Officer at CurePSP, will be a guest speaker at the global conference between top experts in tau research from academia, industry, government & philanthropy collaborating and discussing key issues impacting the tau research community. The event is proudly brought to you in partnership with the Alzheimer’s Association and the Rainwater Charitable Foundation. 

Register 

Mar
20
Wed
Ask the Expert: Navigating Advancing Symptoms and Stages of PSP, CBD and MSA (webinar)
Mar 20 @ 3:00 pm – 4:00 pm

“What to expect” and “how to plan ahead” are often difficult questions to answer, yet they remain important and frequent questions asked by our community members. In this webinar, we will discuss several of the key symptoms that may arise as people move farther in their journeys with a diagnosis of progressive supranuclear palsy (PSP), corticobasal degeneration/syndrome (CBD/CBS) or multiple system atrophy (MSA) as well as potential strategies for managing them. We will also talk about prognosis, end-of-life care, and optimizing quality of life regardless of where someone is in the disease course.

There will be time at the end for Dr. Fleisher to answer questions from viewers. Submit your questions via registration or email to events@curepsp.org.

This webinar will be recorded and will be available on our YouTube channel following the event. We will email all registrants a link when it’s ready to view.

Registration is free of charge!

Register

Donate

About Jori Fleisher, MD, MSCE 

Jori Fleisher, MD MSCE is an Associate Professor of Neurological Sciences at Rush University Medical Center. She is a movement disorders neurologist who leads the Rush Advanced Interdisciplinary Movement Disorders Supportive Care (AIMS) Clinic, the CurePSP Center of Care, Rush Lewy Body Dementia Association Research Center of Excellence, and co-directs the Rush Parkinson’s Foundation Center of Excellence. Dr. Fleisher completed her neurology, global health equities, movement disorders training, and a Master’s of Science in Clinical Epidemiology at the University of Pennsylvania. Dr. Fleisher has additional training in health services research, palliative care, and implementation science. Supported by the NIH, foundations, and philanthropy, Dr. Fleisher has several studies underway focused on designing and implementing novel models of care and support for individuals and families living with advanced movement and neurodegenerative disorders. She is deeply involved in advocacy, patient and family education, and mentoring through the American Academy of Neurology and other organizations. She is the recipient of several national awards, including the 2020 CurePSP Standout Achievement Award and Inspiration and Innovation to Cure Award.

View All Events
Mar
2
Sat
The 21st Southwest Florida PSP Support Group Awareness and Memorial Walk @ Mackle Park, Marco Island, FL
Mar 2 @ 10:30 am
 

REGISTER     DONATE

Save the Date for the 21st Annual Southwest Florida PSP Support Group Awareness and Memorial Walk! The purpose of the Southwest Florida PSP Support Group Awareness and Memorial Walk is to honor those that have passed from these diseases, support those living with them now, raise awareness, educate the public, raise money to help find a cure, and let people know about our support group in Naples.

Our group is proud of the success of our walks over the years and is grateful to the public for their support. We have people coming from across the country and some from other countries. Everyone has fun on the walks. There will be food, music, a silent auction, and chances to win great prizes! For those that have never attended one of our walks, you won’t want to miss this one!

Registration for adults is $25, and for students is $10. The fee includes lunch and a CurePSP T-shirt. Should you have particular dietary requirements, kindly ensure to pack your own meal.

Please note that CurePSP has a new mailing address and all checks should go to 325 Hudson Street, 4th Floor, New York, NY 10013, and note that it is for the Marco Island Walk.

If you paid for a sign in the past and left it with us, you do not have to pay for that sign again.
If you would like a new sign however, please place a new order.

 

Mar
11
Mon
Tau Primer Webinar
Mar 11 @ 10:00 am

Ahead of Tau 2024, join us for a webinar covering the basics of this key topic, including a clinical overview of tauopathies by James Rowe, a review of the molecular basics of tau by Bess Frost and a presentation on tau biomarkers by Henrik Zetterberg. 

Tau2024 will take place virtually and in Washington, D.C. from March 25-26.  Dr. Kristophe Diaz, Executive Director and Chief Science Officer at CurePSP, will be a guest speaker at the global conference between top experts in tau research from academia, industry, government & philanthropy collaborating and discussing key issues impacting the tau research community. The event is proudly brought to you in partnership with the Alzheimer’s Association and the Rainwater Charitable Foundation. 

Register 

Mar
20
Wed
Ask the Expert: Navigating Advancing Symptoms and Stages of PSP, CBD and MSA (webinar)
Mar 20 @ 3:00 pm – 4:00 pm

“What to expect” and “how to plan ahead” are often difficult questions to answer, yet they remain important and frequent questions asked by our community members. In this webinar, we will discuss several of the key symptoms that may arise as people move farther in their journeys with a diagnosis of progressive supranuclear palsy (PSP), corticobasal degeneration/syndrome (CBD/CBS) or multiple system atrophy (MSA) as well as potential strategies for managing them. We will also talk about prognosis, end-of-life care, and optimizing quality of life regardless of where someone is in the disease course.

There will be time at the end for Dr. Fleisher to answer questions from viewers. Submit your questions via registration or email to events@curepsp.org.

This webinar will be recorded and will be available on our YouTube channel following the event. We will email all registrants a link when it’s ready to view.

Registration is free of charge!

Register

Donate

About Jori Fleisher, MD, MSCE 

Jori Fleisher, MD MSCE is an Associate Professor of Neurological Sciences at Rush University Medical Center. She is a movement disorders neurologist who leads the Rush Advanced Interdisciplinary Movement Disorders Supportive Care (AIMS) Clinic, the CurePSP Center of Care, Rush Lewy Body Dementia Association Research Center of Excellence, and co-directs the Rush Parkinson’s Foundation Center of Excellence. Dr. Fleisher completed her neurology, global health equities, movement disorders training, and a Master’s of Science in Clinical Epidemiology at the University of Pennsylvania. Dr. Fleisher has additional training in health services research, palliative care, and implementation science. Supported by the NIH, foundations, and philanthropy, Dr. Fleisher has several studies underway focused on designing and implementing novel models of care and support for individuals and families living with advanced movement and neurodegenerative disorders. She is deeply involved in advocacy, patient and family education, and mentoring through the American Academy of Neurology and other organizations. She is the recipient of several national awards, including the 2020 CurePSP Standout Achievement Award and Inspiration and Innovation to Cure Award.

View All Events