05.30.23
CurePSP Exhibits for the First Time at the American Academy of Neurology Conference
For neurologists, each spring is marked by the American Academy of Neurology (AA...
1216 Broadway
2nd Floor
New York, NY 10001
MENU
Our Mission
To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.
The National Plan to End Parkinson's Act
We need your help to pass the National Plan to End Parkinson’s Act! CurePSP’s legislative advocacy efforts are centered around the primary goals of improving quality of life for people with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) or multiple system atrophy (MSA) and finding a cure for the diseases. See what steps you can take now to become an advocate for the PSP, CBD and MSA community. Your voice and story matter!
CurePSP Expands Specialized Care Network for Rare Neurodegenerative Diseases
CurePSP has announced the designation of Queen’s Parkinson’s and Movement Disorders Center in Hawaii and the Department of Neurology at the University of Michigan as CurePSP Centers of Care, bringing the total to 30 centers across the United States and Canada.
2023 Fall Family Conference – Orlando, FL
We are pleased to announce that this year’s Fall Family Conference will take place in Orlando, Florida. The conference will take place on Wednesday, September 20th and Thursday, September 21st at the Marriott Orlando Airport Lakeside. Whether you are a care partner, family member, healthcare professional or currently living with PSP, CBD or MSA, this conference is designed to meet your needs and enhance your knowledge of the diseases we serve. More details coming soon!
CurePSP Pathway and Pipeline Grants
Upcoming Pathway and Pipeline Grant deadlines will be in October 2023 and April 2024. CurePSP provides seed funding to investigators who have innovative ideas that need proof of concept or pilot studies in order to qualify for larger funding sources. CurePSP will fund studies on PSP and CBD with a particular interest in (i) fundamental neurobiology and mechanisms of PSP and CBD and (ii) translational projects focusing on new therapeutics and biomarkers for PSP and CBD.
03.14.23
The Unifying Power of Rare Disease: CurePSP Visits Capitol Hill
CurePSP’s Director of Clinical Affairs and Advocacy, Jessica Shurer, attended ...
02.21.23
Share the Care: Joanna Teters, CurePSP Support Programs Manager, on the Powerful Impact of the Quality of Life Respite Grant
As you likely know, it is equally important to address the well-being of both th...
Jun
20
Tue
Jun 20 @ 2:00 pm – 3:00 pm
While urinary symptoms are common with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA), they often go under-reported and can be difficult for people who are diagnosed, and their family care partners to know how to manage. Dr. Kristy Borawski is a urologist with a specialization in neurogenic bladder at the CurePSP Center of Care at the University of North Carolina at Chapel Hill. In this webinar, she will discuss urinary symptoms with PSP, CBD and MSA and why those symptoms can arise. She will then concentrate on an overview of treatment options ranging from behavioral changes to surgical procedures. Dr. Borawski will use any remaining time to answer questions.
This webinar will be recorded and will be available on our YouTube page following the event. We will email all registrants a link when it’s ready to view.
Submit your questions via registration or email to events@curepsp.org
About Kristy Borawski, MD
Dr. Kristy Borawski completed her undergraduate degree at Rensselaer Polytechnic Institute followed by medical school in Albany, New York. She went onto Duke Medical Center for her residency in Urologic Surgery. She stayed on for an additional year for a fellowship in incontinence, reconstruction and urodynamics. She is now at University of North Carolina – Chapel Hill School of Medicine and has been there since 2010. Her areas of focus include neurogenic bladder, urinary incontinence and lower urinary tract reconstruction.
Jun
26
Mon
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will address issues of concern specific to this population. Please note that while we do offer other support groups for patients and families who are beyond the “early stages” of disease progression, this group is reserved for those who are in the beginning stages of diagnosis and symptom development.
Jun
27
Tue
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will address issues of concern specific to this population. Please note that while we do offer other support groups for patients and families who are beyond the “early stages” of disease progression, this group is reserved for those who are in the beginning stages of diagnosis and symptom development.
Subscribe to filtered calendar
Jun
20
Tue
Jun 20 @ 2:00 pm – 3:00 pm
While urinary symptoms are common with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) and multiple system atrophy (MSA), they often go under-reported and can be difficult for people who are diagnosed, and their family care partners to know how to manage. Dr. Kristy Borawski is a urologist with a specialization in neurogenic bladder at the CurePSP Center of Care at the University of North Carolina at Chapel Hill. In this webinar, she will discuss urinary symptoms with PSP, CBD and MSA and why those symptoms can arise. She will then concentrate on an overview of treatment options ranging from behavioral changes to surgical procedures. Dr. Borawski will use any remaining time to answer questions.
This webinar will be recorded and will be available on our YouTube page following the event. We will email all registrants a link when it’s ready to view.
Submit your questions via registration or email to events@curepsp.org
About Kristy Borawski, MD
Dr. Kristy Borawski completed her undergraduate degree at Rensselaer Polytechnic Institute followed by medical school in Albany, New York. She went onto Duke Medical Center for her residency in Urologic Surgery. She stayed on for an additional year for a fellowship in incontinence, reconstruction and urodynamics. She is now at University of North Carolina – Chapel Hill School of Medicine and has been there since 2010. Her areas of focus include neurogenic bladder, urinary incontinence and lower urinary tract reconstruction.
Jun
26
Mon
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will address issues of concern specific to this population. Please note that while we do offer other support groups for patients and families who are beyond the “early stages” of disease progression, this group is reserved for those who are in the beginning stages of diagnosis and symptom development.
Jun
27
Tue
PSP/CBD/MSA 101 is an online educational support group designed for individuals who are relatively newly diagnosed with PSP, CBD or MSA and their care partners/significant others. In a series of three meetings, PSP/CBD/MSA 101 will address issues of concern specific to this population. Please note that while we do offer other support groups for patients and families who are beyond the “early stages” of disease progression, this group is reserved for those who are in the beginning stages of diagnosis and symptom development.
Subscribe to filtered calendar
curepsp_