CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers, and healthcare professionals on prime of life neurodegeneration including PSP, CBD, MSA, and related diseases.
When disease leads to disability, patients and their caregivers can become painfully isolated. Homebound patients without access to the expert care that can offer both symptomatic relief and psychosocial support tend to be much more frequently hospitalized and placed in nursing homes. They can also miss out on opportunities to contribute to studies exploring new treatments and possible cures. This study is assessing the benefits of in—home visits by a neurologist, a nurse and a social worker and its impact on quality of life.Learn More About This Exceptional Effort
On the morning of October 3, 2016, Pierre Gervais passed away, peacefully, and in the company of his wife Jocelyne. The many messages that were sent in the days leading up to his passing were a great comfort and support for the family, and were heard and understood by Pierre. When told that we at CurePSP were further impassioned to fight to find treatment and cure he gave the advice, “don’t quit.”Pierre was kind and admired by many, true to self and others, one to depend on always – a wonderful husband, great father, best friend and loving grandfather.Read Pierre's Story Here
CurePSP recognizes that the fight against PSP, CBD, and other disorders can now take a new direction, capitalizing on a number of recent discoveries, exciting ongoing work, and new hypotheses. CurePSP created the research road map to help guide the organization’s future scientific endeavors toward treatment and a cure. In addition to an annual research symposium focused on the latest research updates, CurePSP also provides resources for venture grants, brain donations, and clinical trials.Learn More About Research