CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers, and healthcare professionals on prime of life neurodegeneration including PSP, CBD, MSA, and related diseases.
When disease leads to disability, patients and their caregivers can become painfully isolated. Homebound patients without access to the expert care that can offer both symptomatic relief and psychosocial support tend to be much more frequently hospitalized and placed in nursing homes. They can also miss out on opportunities to contribute to studies exploring new treatments and possible cures. This study is assessing the benefits of in—home visits by a neurologist, a nurse and a social worker and its impact on quality of life.Learn more about this exceptional effort
On the morning of October 3, 2016, Pierre Gervais passed away, peacefully, and in the company of his wife Jocelyne.
The many messages that were sent in the days leading up to his passing were a great comfort and support for the family, and were heard and understood by Pierre. When told that we at CurePSP were further impassioned to fight to find treatment and cure he gave the advice, “don’t quit.”
CurePSP Centers of Care will provide PSP and CBD patients with greater access to care from medical centers that have experience with the diseases, increase general awareness of PSP, CBD, and other related diseases, and allow outside providers to easily identify centers to refer patients for clinical trials and better overall disease management.See our interactive map