Welcome to CurePSP

CurePSP is the leading source of information and support for patients and their families, other caregivers, researchers, and healthcare professionals on prime of life neurodegeneration including PSP, CBD, MSA, and related diseases.

CurePSP Elects Senior Healthcare Executive as Its Board Chair

Andy Maus will apply his personal and professional experience to advancing the foundation’s mission.

Carol’s Walk to Cure PSP

Join us on Sunday, May 15, 2022, from 11:00 am – 2:00 pm ET at Buckley Country Day School in Roslyn, New York, for “Carol’s Walk to Cure PSP.” Bring your friends and family for a 5K walk to support Carol and help fund research to cure PSP and other similar neurological diseases. If you can’t attend in person, we encourage you to participate virtually by logging your miles! ALL ABILITIES WELCOME!

CurePSP Venture Grant Applications Are Open

Our current venture Grants applications deadline is October 14th, 2022. CurePSP provides “seed funding” to investigators who have innovative ideas that need “proof of concept” in order to qualify for larger funding sources. CurePSP will fund studies on PSP and CBD with a particular interest in (i) molecular and cellular (pathological) mechanisms that may operate also in related diseases and (ii) translational clinical research involving PSP and CBD patients.


We are excited to announce the launch of CurePSPTV, our page highlighting vital information occurring in the organization. We are always looking for ways to keep our community up to date with footage from our family conferences, recordings from researchers and doctors, featured family stories, and quick how-to resources you can utilize in your everyday lives. Don't miss out! Check out CurePSPTV and subscribe to our Youtube Channel to get notified when new videos are published.

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Ken’s Ride: A Ride for Hope @ Virtual Event
May 1 @ 12:00 am – May 31 @ 11:45 pm

Join CurePSP and Jan Appel for a Ride for Hope!

Throughout the month of May, CurePSP and Jan Appel will host a virtual fundraiser to honor Ken Appel – husband, father, and avid bike rider – to raise funds in support of those experiencing neurodegenerative diseases such as PSP, CBD, and MSA. 

Each day during his lunch, Ken Appel would ride along the beautiful Missisquoi Valley Rail Trail in St. Alban’s, Vermont. After Ken passed away in 2018 from PSP, his wife, Jan, decided to organize a local bike ride to honor Ken & support CurePSP. The very first Ken’s Ride happened in May 2019 and was a huge success!   

Wherever you live, you can enjoy Vermont in the Spring and have the opportunity to experience the Rail Trail while making a difference in the lives of patients and families affected by a neurodegenerative disease.This virtual race is 26.3 miles long (the length of the Missisquoi Valley Rail Trail) and can be done on your bike or via your choice of movement at any point throughout the month of May – either all at once or in a cumulative effort! 

ALL ABILITIES WELCOME! Whether you’re a professional biker or a casual yoga fan, we welcome you to participate. You can log any activity from walking to tai chi, and you’ll continue along the race route.  

New this year: The top 3 fundraisers will receive a special prize! Log your miles and then share your achievements with your friends & family. When they donate on your behalf, your total amount raised will go up! Don’t miss out on a chance to win these items!


CurePSP 2022 International Research Symposium @ Hybrid and In-person
Oct 24 @ 8:00 am – Oct 25 @ 5:00 pm

Save the Date for the 2022 CurePSP International Research Symposium featuring leaders from academia and industry in clinical and preclinical science relevant to PSP, CBD, and tauopathies!

CurePSP conducts an International Research Symposium that brings together international investigators to hear about and discuss the latest scientific advances relevant to neurodegeneration with a particular focus on rare tauopathies such as PSP and CBD. The Symposium highlights research by leading neuroscientists and welcomes all researchers with an interest in preclinical and clinical neuroscience.

This symposium will be a hybrid of online learning (for those unable to attend) and in-person!

This event is technical in nature and is intended for a medical and research audience.


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