Andy Maus will apply his personal and professional experience to advancing the foundation’s mission. His connection with prime of life brain diseases is a personal one, with close family members who were affected by progressive supranuclear palsy (PSP), one of the three diseases for which CurePSP provides care, awareness, and research support.
Julie Hicks will review the different signs and symptoms of dysphagia and discuss how speech-language pathologists help manage these progressive changes over time. Questions that were submitted during registration will be answered at the end of the session. Questions can be submitted to email@example.com
Our current venture Grants applications deadline is October 14th, 2022. CurePSP provides “seed funding” to investigators who have innovative ideas that need “proof of concept” in order to qualify for larger funding sources. CurePSP will fund studies on PSP and CBD with a particular interest in (i) molecular and cellular (pathological) mechanisms that may operate also in related diseases and (ii) translational clinical research involving PSP and CBD patients.
CurePSPTV highlights vital information occurring in the organization with footage from our family conferences, recordings from researchers and doctors, featured family stories, and quick how-to resources you can utilize in your everyday lives. Subscribe to CurePSPTV to get notified when new videos are published.
We are calling all avid golfers to join in on the fun! If you are located in North Carolina, join the Gillis Family on Friday, July 22nd, 2022 for a day in honor and memory of Bill Gillis who passed away from progressive supranuclear palsy (PSP).
$65 per person or $260 per team
Includes golf with cart, lunch, and great fun!
Create lasting memories on the golf course while raising awareness and funds! All proceeds will benefit CurePSP. To register, please email BGMemorialgolf@yahoo.com
“Everyone on the Gillis side of the family plays golf. From my grandparents to my dad and uncles, to my cousins and me. Golf has always been a part of our family, and something that my dad and I enjoyed together a lot. When I decided I wanted to do something to honor my dad, the golf tournament was the perfect and only choice.” – Brett Gillis, Bill’s son
Come out for a day of fun, family, and golf! If you are from Michigan, make sure to join us on August 6th, 2022, for a day of golfing while supporting CurePSP.
Linda Ferguson was a friend, colleague, mentor, outdoor enthusiast, athlete, cousin, sister, aunt, grandma, and beloved mother. She was diagnosed with FTD in 2018 and passed away in February 2020. She was loved by everyone who knew her and her family continues to carry on her memory through their annual golf outing.
The Event will feature:
This virtual celebration will explore the connection between caregivers and Hispanic artists, both applying creativity, inspiration, and commitment to someone and something they love and cherish. The Quality of Life fund is committed to providing in-home respite care support through Quality of Life grants to families of those diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), or multiple system atrophy (MSA). Studies have shown that these diseases affect all ethnicities equally. However, they are often underdiagnosed in rural and underserved areas without a Movement Disorders Specialist.
Each grant provides $1,500 for 54 professional caregiving hours through Griswold Home Care or an alternative home care agency.
Bringing Respite Care to those in Need
At last year’s Hope as Big as Texas, we were fortunate to raise enough funds to provide support to 40 families with PSP, CBD, or MSA, bringing our total to over 100 families served! Studies show that even a brief break or relief from caregiving responsibilities can improve the daily life of caregivers and their loved ones diagnosed with the disease. The importance of these services and the critical role of respite care are evident now more than ever. Our fight to find treatment and a cure is equally steadfast!
Learn more about the Cherie Levien Quality of Life Fund on this page.
Each dollar of your donation will be matched up to $25,000, thanks to the generosity of sponsoring donors!
If you would like to attend the event, though unable to afford a ticket, please use promo code TEXAS22 and come as our guest. The event will be broadcast in English and Spanish.