One of the lessons Emma Wodwaski learned from her grandfather, who was diagnosed with PSP in 2015, was “to live life to its fullest,” and she still carries that with her now, five years after his passing. Sanjay Geevarghese’s grandmother came to live with him and his family in 2020 after her corticobasal degeneration diagnosis. His favorite part of the day is sitting with her after school. He views this and his other roles in her care as a source of hope for both of them to “keep going.” Emma and Sanjay connected with CurePSP through a shared motivation to be a resource for people their age who have personal experience with PSP, CBD and MSA, which led them to start a virtual support group for grandchildren and young adult children.

In this conversational-style webinar, moderated by Jessica Shurer, MSW, LCSW, CurePSP’s Director of Clinical Affairs and Advocacy, Emma and Sanjay will share their stories as told from their unique perspectives as grandchildren. They will speak about how they continue to draw inspiration from their relationships with their grandparents and impart their advice to people living with PSP, CBD, and MSA and people who care for and about them. There will be time at the end for Emma and Sanjay to answer questions from viewers.

This webinar will be available on the CurePSP YouTube channel after the event. We will email registrants a link when it’s ready.

Submit your questions via registration or email to events@curepsp.org.

Registration is free of charge.

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Save the Date for the 20th Southwest Florida PSP Support Group Awareness and Memorial Walk!

The purpose of the Southwest Florida PSP Support Group Awareness and Memorial Walk is to honor those that have passed from these diseases, support those living with them now, raise awareness, educate the public, raise money to help find a cure, and let people know about our support group in Naples.

Our group is proud of the success of our walks over the years and is grateful to the public for their support. We have people coming from across the country and some from other countries. Everyone has fun on the walks. There will be food, entertainment, a silent auction, and chances to win great prizes! For those that have never attended one of our walks, you won’t want to miss this one!

Our 20th Southwest Florida PSP Support Group Awareness and Memorial Walk will be held on Saturday, March 18th, 2022, at Mackle Park, Marco Island, Florida.

Each dollar of your donation will be matched up to $50,000, thanks to the generosity of sponsoring donors!

Due to hurricane recovery in the region, hotel space is limited. Please book your rooms early. For a list of local hotels, please click here. 

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More Information ON the Walk

While there is no specific diet associated with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD) or multiple system atrophy (MSA), there are abundant suggestions and considerations to improve your nutritional health. In this webinar, Kristin Gustashaw, certified specialist in gerontological nutrition of the CurePSP Center of Care at Rush University, will go beyond commercial supplements and discuss key nutrient-dense foods to include in your diet week to week, including the MIND diet. She will also cover strategies to help you stay hydrated, prevent unintentional weight loss, preserve your muscles and combat constipation. Resources for dysphagia (swallowing difficulty) will also be discussed. Gustashaw will use any remaining time to answer questions.

This webinar will be recorded and will be available on our YouTube page following the event. We will email all registrants a link when it’s ready to view.

Submit your questions via registration or email to events@curepsp.org

Registration is free of charge.

REGISTER

About Kristin Gustashaw, MS, RDN, LDN, CSG

Kristin Gustashaw has worked in the field of nutrition for over 20 years. She holds a master’s degree in clinical nutrition, is a nutrition consultant, and public speaker, and is one of only 20 certified specialists in gerontological nutrition in the state of Illinois. She is a member of the Academy of Nutrition and Dietetics, Healthy Aging and Dietetics in Health Care Communities Practice Groups. She is an advanced-level clinical dietitian at Rush University Medical Center (RUMC), Chicago, IL. She is a member of the patient menu development team; a department outpatient dietitian and a media liaison for the Rush Nutrition and Wellness Center. She is a faculty member at Rush University, and a member of the RUMC Advanced Interdisciplinary Movements Support team (AIMS) Clinic, ALS, MDA and Diet Epilepsy Clinic. She is the consulting wellness dietitian for the Chicago Department on Aging (CDoA), providing nutrition presentations and private consultations to older adults throughout the city. Additionally, Kristin coordinates the menu analysis for the City of Chicago Congregate dining program which prepares over a million meals each year. She is a member of the Illinois Department on Aging (IDoA) Nutrition Advisory Council workgroup as well as the Hormel Health Labs Advisory Council. Her passion is translating complex nutrition research into usable information and presenting it to patients/clients, various media outlets, organizations and at national conferences.