Our Mission

To raise awareness, build community, improve care and find a cure for PSP, CBD and MSA.


Learn about CurePSP and the diseases we serve

Andy Maus Assumes Board Chair Ready for Progress

Andy Maus will apply his personal and professional experience to advancing the foundation’s mission. His connection with prime of life brain diseases is a personal one, with close family members who were affected by progressive supranuclear palsy (PSP), one of the three diseases for which CurePSP provides care, awareness, and research support.

Neuro2022: The CurePSP International Research Symposium (October 24th & 25th, 2022)

CurePSP conducts an International Research Symposium that brings together international investigators to hear about and discuss the latest scientific advances relevant to neurodegeneration with a particular focus on rare tauopathies such as PSP and CBD. The Symposium highlights research by leading neuroscientists and welcomes all researchers with an interest in preclinical and clinical neuroscience.

CurePSP Philadelphia Family Conference (November 14th, 2022)

Join us at this year's CurePSP Fall Family Conference at the Philadelphia Airport Marriott in Philadelphia, Pennsylvania, on Monday, November 14, 2022! We have partnered with Penn Medicine to provide informative presentations on multidisciplinary care, physical therapy, research updates, social work, palliative care, and more!

CurePSP Venture Grant Applications Are Open

Our current venture Grants applications deadline is March 17th, 2023. CurePSP provides “seed funding” to investigators who have innovative ideas that need “proof of concept” in order to qualify for larger funding sources. CurePSP will fund studies on PSP and CBD with a particular interest in (i) molecular and cellular (pathological) mechanisms that may operate also in related diseases and (ii) translational clinical research involving PSP and CBD patients.

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Oct
24
Mon
Neuro2022: The CurePSP International Research Symposium @ Hybrid and In-person
Oct 24 @ 8:00 am – Oct 25 @ 5:00 pm

 

 

 

 

 

 

 

 

 

CurePSP conducts an International Research Symposium that brings together international investigators to hear about and discuss the latest scientific advances relevant to neurodegeneration with a particular focus on rare tauopathies such as PSP and CBD. The Symposium highlights research by leading neuroscientists and welcomes all researchers with an interest in preclinical and clinical neuroscience.

REGISTER NOW


Monday, October 24, 2022

  • 8:00am – 9:00am: Check-in and Breakfast
  • 9:00am – 12:00pm: Symposium
  • 12:00pm – 1:00pm: Networking Lunch
  • 1:00pm – 4:00pm: Symposium
  • 4:00pm – 6:00pm: Golf Range Networking Event at Chelsea Piers
  • 6:00pm – 9:00pm: Cocktail Reception, Poster Session, and Poster Prizes

Tuesday, October 25, 2022

  • 8:00am – 9:00am: Breakfast
  • 9:00am – 12:00pm: Symposium
  • 12:00pm – 1:00pm: Networking Lunch
  • 1:00pm – 5:00pm: Symposium

*Agenda subject to change.

 

This symposium will be a hybrid of online learning (for those unable to attend) and in-person!

This event is technical in nature and is intended for a medical and research audience.


Sleeping Room Block

Reservations at the Gansevoort Hotel room block can be made immediately by telephone, email, or via the Hotel’s website. Queen rooms are $425.00 a night (without tax, etc.). Booking instructions are noted below.

As a reminder, all reservations should be made by 5:00 pm ET on September 26, 2022.


Featured Speakers

View More Speakers Here! 

Neuro2022: The CurePSP International Symposium Poster Reception @ Pier 59
Oct 24 @ 6:00 pm – 9:00 pm

Join CurePSP for the Neuro2022 Poster Reception!

During the CurePSP Internation Research Symposium international investigators hear about and discuss the latest scientific advances relevant to neurodegeneration, focusing on rare tauopathies such as PSP and CBD. The first night of the symposium kicks off with a poster reception to give attendees a visual overview of the projects being researched. The posters facilitate discussion on crucial scientific information and developing advances in neuroscience. 

Only those attending the symposium may submit an abstract and poster. Information on that process is available here

Attire is business or business casual. This reception will not be available for online viewing.

 

*Registration for the International Research Symposium also includes access to the poster reception and there is no need to register here separately. 

register

 

Nov
14
Mon
2022 CurePSP Fall Family Conference @ Philadelphia Airport Marriott
Nov 14 @ 8:30 am – 4:00 pm

Join CurePSP for the 2022 Fall Family Conference! 

Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and to develop a sense of community. We recognize that these diseases present daily challenges for patients and families.

We will be hosting our 2022 Fall Family Conference at the Philadelphia Airport Marriott in Philadelphia, Pennsylvania on Monday, November 14th, 2022. This will be our first in-person Family Conference since 2019, and we can’t wait to see everyone! We will be partnering with Penn Medicine to provide informative presentations on multidisciplinary care, physical therapy, research updates, social work, palliative care, and more. Limited hotel rooms are available to reserve at the Philadelphia Airport Marriott. You can find out more by clicking on the link below.

Registration is $15 per person and will increase to $30 per person beginning Tuesday, November 1st, 2022. If you would like to attend the event, though unable to afford a ticket, please use promo code BECAUSEHOPEMATTERS and come as a donor-sponsored guest.

For those that can’t join us in person, we will be hosting our 2022 Virtual Fall Family Conference on Friday, December 9th and Friday, December 16th.  This will be split between two half days and include the recorded presentations from our in-person conference in Philadelphia as well as other live sessions.  Click here  to learn more. 

We hope you can join us!  For any questions, please email events@curepsp.org.

 

AGENDA* 

 All sessions will be held in Salon A-D at the Philadelphia Airport Marriott. 

 8:30 – 9:30 AM: Breakfast & Mingle 

A light breakfast will be served in the event space.  The menu will include oatmeal with assorted toppings, juices, pastries, bagels, diced fruit, yogurt, water, and coffee/tea. 

 9:30 – 9:45 AM: Welcome & Opening Remarks 

Speakers: Kristophe Diaz, PhD & Jessica Shurer, MSW, LCSW 

 9:45 – 10:15 AM: Overview of Multidisciplinary Care 

Speaker: Andres F. Deik, MD 

The management of atypical parkinsonian syndromes can be challenging. Penn Medicine believes in a multidisciplinary model of care, which allows patients and their families to navigate the different complications that can arise over time. In this lecture, Dr. Andres Deik will explain the role of neurologists, social workers, nurses, and therapists in the management of patients with PSP, CBD, and MSA.

10:15 – 10:45 AM: Physical Therapy 

Speaker: Heather Cianci, PT, MS, GCS 

During this session Heather Cianci will discuss different ways to stay active, mobile, and safe while living with PSP, CBD, or MSA.

10:45 – 11:15 AM: Coffee Break 

Snacks, coffee, and tea will be served. 

11:15 – 11:45 AM: Research Updates 

Speaker: David Irwin, MD 

In this session, Dr. David Irwin will review recent developments in biomarkers for PSP based on human autopsy brain tissue and discuss the importance of brain donation in PSP research.

11:45 – 12:30 PM: Multidisciplinary Care Panel 

Speakers: Andres F. Deik, MD, Heather Cianci, PT, MS, GCS, and David Irwin, MD 

12:30 – 1:30 PM: Lunch Break 

Lunch will be served in the event space.  The menu will include squash soup, tomato mozzarella salad, arugula salad, chicken marsala, oven roasted cod, penne pasta with vodka sauce, roasted vegetables, brownies & cookies, soft drinks, and coffee/tea. 

1:30 – 2:00 PM: Social Work 

Speaker: Lauren Zelouf MSW, LCSW 

When meeting with patients with MSA, PSP or CBD and their care partner(s), the Social Worker aims to meet them where they are in their journey with their Atypical Parkinsonism. The Social Worker is tasked with assessing a person’s psychological, social, and emotional functioning as it relates to living with their neurodegenerative disease. In this session, Lauren Zelouf will discuss the role of Social Work and how the Social Worker can best support the patient and care partner(s).

 2:00 – 2:30 PM: Palliative Care 

Speaker: Matthew Mendlik, MD, PhD 

 2:30 – 2:50 PM: Stretch Break 

 2:50 – 3:35 PM: Patient Panel Discussion 

Moderated by Jessica Shurer, MSW, LCSW 

 3:35 – 3:50 PM: Closing Remarks 

Speakers: Kristophe Diaz, PhD and Jessica Shurer, MSW, LCSW 

 3:50 – 4:45 PM: Snacks & Mingle 

Philadelphia staples will be served, including TastyKakes, cheesesteak spring rolls, Philly soft pretzels, soft drinks, water, & coffee/tea. 

*Agenda subject to change. 

register donate

Registe

View All Events
Oct
24
Mon
Neuro2022: The CurePSP International Research Symposium @ Hybrid and In-person
Oct 24 @ 8:00 am – Oct 25 @ 5:00 pm

 

 

 

 

 

 

 

 

 

CurePSP conducts an International Research Symposium that brings together international investigators to hear about and discuss the latest scientific advances relevant to neurodegeneration with a particular focus on rare tauopathies such as PSP and CBD. The Symposium highlights research by leading neuroscientists and welcomes all researchers with an interest in preclinical and clinical neuroscience.

REGISTER NOW


Monday, October 24, 2022

  • 8:00am – 9:00am: Check-in and Breakfast
  • 9:00am – 12:00pm: Symposium
  • 12:00pm – 1:00pm: Networking Lunch
  • 1:00pm – 4:00pm: Symposium
  • 4:00pm – 6:00pm: Golf Range Networking Event at Chelsea Piers
  • 6:00pm – 9:00pm: Cocktail Reception, Poster Session, and Poster Prizes

Tuesday, October 25, 2022

  • 8:00am – 9:00am: Breakfast
  • 9:00am – 12:00pm: Symposium
  • 12:00pm – 1:00pm: Networking Lunch
  • 1:00pm – 5:00pm: Symposium

*Agenda subject to change.

 

This symposium will be a hybrid of online learning (for those unable to attend) and in-person!

This event is technical in nature and is intended for a medical and research audience.


Sleeping Room Block

Reservations at the Gansevoort Hotel room block can be made immediately by telephone, email, or via the Hotel’s website. Queen rooms are $425.00 a night (without tax, etc.). Booking instructions are noted below.

As a reminder, all reservations should be made by 5:00 pm ET on September 26, 2022.


Featured Speakers

View More Speakers Here! 

Neuro2022: The CurePSP International Symposium Poster Reception @ Pier 59
Oct 24 @ 6:00 pm – 9:00 pm

Join CurePSP for the Neuro2022 Poster Reception!

During the CurePSP Internation Research Symposium international investigators hear about and discuss the latest scientific advances relevant to neurodegeneration, focusing on rare tauopathies such as PSP and CBD. The first night of the symposium kicks off with a poster reception to give attendees a visual overview of the projects being researched. The posters facilitate discussion on crucial scientific information and developing advances in neuroscience. 

Only those attending the symposium may submit an abstract and poster. Information on that process is available here

Attire is business or business casual. This reception will not be available for online viewing.

 

*Registration for the International Research Symposium also includes access to the poster reception and there is no need to register here separately. 

register

 

Nov
14
Mon
2022 CurePSP Fall Family Conference @ Philadelphia Airport Marriott
Nov 14 @ 8:30 am – 4:00 pm

Join CurePSP for the 2022 Fall Family Conference! 

Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and to develop a sense of community. We recognize that these diseases present daily challenges for patients and families.

We will be hosting our 2022 Fall Family Conference at the Philadelphia Airport Marriott in Philadelphia, Pennsylvania on Monday, November 14th, 2022. This will be our first in-person Family Conference since 2019, and we can’t wait to see everyone! We will be partnering with Penn Medicine to provide informative presentations on multidisciplinary care, physical therapy, research updates, social work, palliative care, and more. Limited hotel rooms are available to reserve at the Philadelphia Airport Marriott. You can find out more by clicking on the link below.

Registration is $15 per person and will increase to $30 per person beginning Tuesday, November 1st, 2022. If you would like to attend the event, though unable to afford a ticket, please use promo code BECAUSEHOPEMATTERS and come as a donor-sponsored guest.

For those that can’t join us in person, we will be hosting our 2022 Virtual Fall Family Conference on Friday, December 9th and Friday, December 16th.  This will be split between two half days and include the recorded presentations from our in-person conference in Philadelphia as well as other live sessions.  Click here  to learn more. 

We hope you can join us!  For any questions, please email events@curepsp.org.

 

AGENDA* 

 All sessions will be held in Salon A-D at the Philadelphia Airport Marriott. 

 8:30 – 9:30 AM: Breakfast & Mingle 

A light breakfast will be served in the event space.  The menu will include oatmeal with assorted toppings, juices, pastries, bagels, diced fruit, yogurt, water, and coffee/tea. 

 9:30 – 9:45 AM: Welcome & Opening Remarks 

Speakers: Kristophe Diaz, PhD & Jessica Shurer, MSW, LCSW 

 9:45 – 10:15 AM: Overview of Multidisciplinary Care 

Speaker: Andres F. Deik, MD 

The management of atypical parkinsonian syndromes can be challenging. Penn Medicine believes in a multidisciplinary model of care, which allows patients and their families to navigate the different complications that can arise over time. In this lecture, Dr. Andres Deik will explain the role of neurologists, social workers, nurses, and therapists in the management of patients with PSP, CBD, and MSA.

10:15 – 10:45 AM: Physical Therapy 

Speaker: Heather Cianci, PT, MS, GCS 

During this session Heather Cianci will discuss different ways to stay active, mobile, and safe while living with PSP, CBD, or MSA.

10:45 – 11:15 AM: Coffee Break 

Snacks, coffee, and tea will be served. 

11:15 – 11:45 AM: Research Updates 

Speaker: David Irwin, MD 

In this session, Dr. David Irwin will review recent developments in biomarkers for PSP based on human autopsy brain tissue and discuss the importance of brain donation in PSP research.

11:45 – 12:30 PM: Multidisciplinary Care Panel 

Speakers: Andres F. Deik, MD, Heather Cianci, PT, MS, GCS, and David Irwin, MD 

12:30 – 1:30 PM: Lunch Break 

Lunch will be served in the event space.  The menu will include squash soup, tomato mozzarella salad, arugula salad, chicken marsala, oven roasted cod, penne pasta with vodka sauce, roasted vegetables, brownies & cookies, soft drinks, and coffee/tea. 

1:30 – 2:00 PM: Social Work 

Speaker: Lauren Zelouf MSW, LCSW 

When meeting with patients with MSA, PSP or CBD and their care partner(s), the Social Worker aims to meet them where they are in their journey with their Atypical Parkinsonism. The Social Worker is tasked with assessing a person’s psychological, social, and emotional functioning as it relates to living with their neurodegenerative disease. In this session, Lauren Zelouf will discuss the role of Social Work and how the Social Worker can best support the patient and care partner(s).

 2:00 – 2:30 PM: Palliative Care 

Speaker: Matthew Mendlik, MD, PhD 

 2:30 – 2:50 PM: Stretch Break 

 2:50 – 3:35 PM: Patient Panel Discussion 

Moderated by Jessica Shurer, MSW, LCSW 

 3:35 – 3:50 PM: Closing Remarks 

Speakers: Kristophe Diaz, PhD and Jessica Shurer, MSW, LCSW 

 3:50 – 4:45 PM: Snacks & Mingle 

Philadelphia staples will be served, including TastyKakes, cheesesteak spring rolls, Philly soft pretzels, soft drinks, water, & coffee/tea. 

*Agenda subject to change. 

register donate

Registe

View All Events