Clinical trials help researchers answer important medical questions, providing information that may help with the development of future treatment options. Clinical trials are conducted to determine if investigational treatments (such as new drugs, procedures, or medical devices) are safe and effective, so that the regulatory authority can decide whether they can be approved for use as a treatment.
Participation in a clinical trial is voluntary. You can withdraw at any time, for any reason (or no reason at all), and doing so will not affect the care you may be receiving now and may receive in the future.
How do Clinical Trials Work?
Disclaimer: this material was produced by Biogen, a pharmaceutical company with whom we collaborate. This material does not intend to favor one or the other clinical trial and CurePSP remains fully impartial in its support of clinical research.
Current Clinical Trials
For a current list of available clinical trials (sourced from the National Institutes of Health website, clinicaltrials.gov), please click on the following links:
CurePSP is currently in partnership with AbbVie and Biogen (see clinical trials listed below). Any revenue CurePSP generates from working with pharmaceutical companies goes towards our programs of support, awareness, funding independent research to find a cure for PSP, CBD, and related diseases.
AbbVie is now recruiting for the Arise Study, a placebo-controlled clinical trial to assess efficacy, safety, tolerability, and pharmacokinetics of an investigational drug in subjects with progressive supranuclear palsy (PSP).
For more information contact the AbbVie Call Center at +1 847-283-8955 or visit www.AriseStudy.com to see if you may qualify.
Information for clinical trial sponsors: if you want your clinical trial listed here or if you are interested in receiving help in patient engagement and recruitment, please contact Dr. Alex Klein at firstname.lastname@example.org.
Clinical Research Studies
The Advancing Research and Treatment for Frontotemporal Lobar Degeneration (ARTFL) consortium is dedicated to conducting clinical research in PSP, CBD, and related diseases. There are currently 14 clinical study sites in the United States and Canada. To learn more about this study, please click here.
The 4 Repeat Tauopathy Neuroimaging Initiative. The goal of this study is to identify the most reliable methods of analysis for tracking CBD and PSP over time. The results from this study may be used in the future to calculate statistical power for clinical drug trials. The study will also provide information about the relative value of novel imaging techniques for diagnosis, as well as the value of imaging techniques versus testing of blood, urine and cerebrospinal fluid (CSF) ‟biomarkers.” To learn more about this study, please click here.
The FTD Disorders Registry
The Registry is an online database to collect information from those affected by all types of prime of life brain diseases, such as PSP, CBD, and related. Persons diagnosed, (current/former) caregivers, family, and friends can join. As a member of the Registry, you can help us advance the science and move faster toward finding treatments and cures. Join the registry here.