CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD and MSA and develop a sense of community.

This year’s CurePSP Virtual Fall Family Conference will consist of pre-recorded sessions from our Orlando Fall Family Conference and live Q&A sessions.  The event will be split into two parts. The first part will be shown on Tuesday, October 31st, and the second on Thursday, November 2nd.

We partnered with the University of Florida and the University of South Florida to provide interactive discussion groups and informative presentations on research updates, navigating care, managing dysphagia, enhancing accessibility in the home, nutrition and more! 

All sessions will be recorded and posted on our YouTube after the event. Registration is free of charge.

Register

Agenda* (in Eastern Time)

1:00 – 1:05 PM: Opening Remarks

1:05 – 1:50 PM: Update on Current Research

Pre-recorded presentation from the Orlando Conference.

Speaker: Kristophe Diaz, PhD

During this session, Dr. Kristophe Diaz will present updates on the state of research for PSP, CBD and MSA. You’ll gain a deeper understanding of ongoing efforts toward finding treatments and cures and learn what scientific advancements can mean for individuals affected by these diseases.

1:50 – 2:35 PM: Multiple System Atrophy (MSA): Diagnosis, Treatment and Future Research

Pre-recorded presentation from the Orlando Conference. Dr. Zesiewicz will answer questions during the live Q&A later in the day.

Speaker: Theresa Zesiewicz, MD

This session will shed light on the signs and symptoms, guidelines for diagnosis, strategies for treating symptoms and future research for MSA. Dr. Zesiewicz will offer helpful insights to individuals seeking a deeper understanding of the complexities of MSA.

2:35 – 3:10 PM: Break

3:10 – 3:40 PM: Enhancing Accessibility and Independence in the Home

Pre-recorded presentation from the Orlando Conference.

Speaker: Rachael Dorsey, MOT, OTR/L

During this session, Rachael Dorsey will explore creative solutions for modifying living spaces to ensure accessibility. Rachael will also discuss techniques to empower people living with PSP, CBD and MSA, enabling a more fulfilling and self-reliant lifestyle.

3:40 – 4:25 PM: Live Q&A Panel

Speakers: Rachael Dorsey, MOT, OTR/L, Jessica Shurer, MSW, LCSW and Theresa Zesiewicz, MD 

Jessica Shurer, Director of Clinical Affairs and Advocacy at CurePSP, will lead a live Q&A session with Dr. Theresa Zesiewicz and Rachel Dorsey. They will be answering questions that were submitted during registration as well as those that are asked in the live chat.

4:25 – 4:30 PM: Closing Remarks

4:30 – 5:30 PM: Optional Interactive Discussion Groups via Zoom

During these discussion groups, you’ll have the opportunity to connect with other event attendees and talk through the subjects covered during the sessions.

*Agenda subject to change.