CurePSP Wellness Workshop: Holistic Health for PSP, CBD and MSA

April 19, 2023 @ 12:00 pm – 3:00 pm

Join us for the CurePSP Wellness Workshop: Holistic Health for PSP, CBD and MSA!

At CurePSP, we encourage everyone affected by PSP, CBD and MSA to focus on many different aspects of wellness throughout their disease journey, including caring for their physical, mental, emotional, social and intellectual needs.

Through the Wellness Workshop: Holistic Health for PSP, CBD and MSA, you will discover new self-care techniques, interact with others who are also searching for ways to maintain wellness, and learn which changes you can make to your lifestyle that will make the greatest impact on your overall health.

This year’s virtual Wellness Workshop will consist of educational presentations related to holistic wellness, finding time for self-care, breathwork, seated movement and music therapy. Following the presentations, participants will be broken out into interactive discussion groups to connect with other attendees, talk through the subjects covered during the workshop and reflect on what wellness means to them.

Registration is free of charge.

All sessions will be recorded and posted on our YouTube channel after the event.


12:00 PM – 12:05 PM: Welcome & Opening Remarks

Speaker: Joanna Teters

12:05 PM – 12:35 PM: Thriving Through the Constantly Changing Journey of PSP, CBD and MSA

Speaker: Janet Edmunson

In this session, Janet Edmunson will share her insights to support those affected by PSP, CBD and MSA who are working through the day-to-day and emotional difficulties associated with these diseases. From her experience as a caregiver and long-time support group facilitator, she will discuss how to thrive while adjusting to evolving symptoms and lifestyle changes, prioritize self-care for better sleep and wellbeing and discover the gifts throughout this journey.

12:35 PM – 1:05 PM: Seated Movement & Breathwork

Speaker: Lonnie Poland, PT

Seated movement and breathwork are wonderful ways for those with mobility limitations to maintain mind-body connection. In this session, Lonnie Poland, PT will share her expertise on the practice of gentle seated movement, conscious breathing and mindfulness awareness. 

1:05 PM – 1:40 PM: Break

1:40 PM – 2:10 PM: Music Therapy

Speakers: Kerry Devlin, MMT, LPMT, MT-BC and Kyurim Kang, PhD, LPMT, MT-BC, NMT

In this hands-on presentation, participants will learn how music therapy can support physical and psychosocial wellness. Presenters will demonstrate wide-ranging music experiences, tools and music-based exercises for use at home.

2:10 PM – 2:15 PM: Closing Remarks

Speaker: Jessica Shurer, MSW, LCSW

2:15 PM – 3:00 PM: Interactive Discussion Groups via Zoom

During these discussion groups, you’ll have the opportunity to connect with other event attendees, talk through the subjects covered during the workshop and reflect on what wellness has meant to you throughout your disease journey.