Carepartner Resources
The CurePSP Carepartner Guidebook is brochure covering all things carepartners should know about dealing with and living with a prime of life brain disease. Chapters include: Making Meaning to Stay Positive, Caregiver Stress and Burnout, Keeping Families Strong, The Seven Deadly Emotions of Caregiving, among others. To have a print copy sent to you contact Joanna Teters, Community Outreach and Resources Manager, at 347-294-2873 or info@curepsp.org. This brochure is made possible with thanks to our caring supporters.
Click here for the CurePSP Carepartner Guidebook
We are proud to bring you the 2020 CurePSP Guidebook. This signature publication features 150 pages of the latest information on PSP, CBD, and MSA and is the perfect reference for patients, family, care partners, and health professionals. Our 2020 version is exclusively available online.
Click here for the CurePSP Guidebook
A copy of our printed Guidebook is available for a suggested donation of $20 at this page, or contact Alisa Hansen at 443-578-5670 or donations@curepsp.org.
Respite Services
CurePSP has created the Cherie Levien Quality of Life Fund to ease the financial burden of getting professional, in-home respite care. This fund provides grants of up to $1,250 to be spent on in-home care services to families in need. Our goal in developing the fund is to reduce the stress that is often experienced by caregivers.
Assistive Devices and Adaptive Equipment
CurePSP has collected the following suggestions for assistive devices and adaptive equipment from patients and families experiencing neurodegenerative diseases. While we hope you find these suggestions useful in your journey, none of CurePSP, its employees, officers or directors, has made any investigation of the suggestions made or products mentioned below
Books on PSP
CurePSP has accumulated a collection of books over the years, written from varying points of view: people with PSP, people caring for spouses with PSP, even a book written for toddlers to understand the effects of PSP on their family member. Please follow the link below to see the list of books. If you think we are missing some titles, please email info@curepsp.org.
Bereavement Support Resources
Grief is a very personal journey, often impacted and shaped by different cultural and religious practices and always woven with complex thoughts, feelings, and emotions. CurePSP wants to provide you with our support and perhaps offer some guidance to help you on this journey and transition in your life. CurePSP has collaborated with members of the CurePSP Patient & Carepartner Advocacy Committee to create a list of bereavement resources, articles, books, and online links.
Network of Support
CurePSP encourages and organizes activities that foster face-to-face communication, exchange of ideas and information, and interaction for comfort and mutual benefit to group members. The groups are for caregivers, carepartners, family members, friends, and people with PSP, CBD, MSA, or a related disease. There are three ways to connect.