CurePSP Family Conferences

Among its various educational activities, CurePSP sponsors and organizes family conferences across the country, providing people with the opportunity to learn more about PSP, CBD and MSA and to develop a sense of community. We recognize that these diseases present daily challenges for patients and families.

In addition to the educational facts learned during the session, patients, carepartners and families learn that they are not alone. Attendees leave the meeting having forged new friendships in the PSP, CBD and MSA communities.

CurePSP strives to meet the needs of those who attend our conferences and actively seeks feedback to improve future programs. We place great value in identifying the topics or speakers that are of the most interest to attendees.

 

Slides and Handouts from the Midwest Family Conference:

June 24th, 2017,   Chicago, IL
 

BUILDING YOUR CARE TEAM AND SUPPORT NETWORK

BRESLOW CUREPSP BOOKS AND RESOURCES

UNDERSTANDING THE NEEDS OF PEOPLE WITH PSP 

OYLER CAREPSP RECRUITMENT FILTER

BOEVE CLINICAL TRIALS 

LEVIEN MEDICAL POWER OF ATTORNEY

SIMUNI CLINICAL MANIFESTATIONS 

RADA DENTAL CARE FOR PATIENTS

DR. KLEIN – YOUR BRAIN CURRENT RESEARCH 

 

Slides and Handouts from the Southwest Family Conference:

 March 18, 2017,   Phoenix, AZ 

TOP 5 THINGS YOUR PT WISH YOU KNEW

PATIENT ENGAGEMENT PROGRAM (PEP)

THINKING OUTSIDE THE BOX

THINKING OUTSIDE THE BOX (2)

WHAT IS PALLIATIVE CARE

DR. ALEX KLEIN

       LEGAL AND FINANCIAL PREPARATION

       EMOTIONAL IMPACT OF PSP

       QUALITY OF LIFE: WHAT YOUR OT WANTS YOU TO KNOW

       RESEARCH STUDY UPDATES

       HOLLY SHILL

       FIGHTING FOR YOU: ON THE FRONTLINES OF PSP RESEARCH