Episode 2: A Hidden Caregiving Crisis With Jennifer Levin

At 32, Jennifer Levin was celebrating her first TV writing credit when her father's PSP diagnosis changed everything. She immediately found herself managing medical appointments from across the country, becoming a healthcare proxy, coordinating care — all while trying to maintain her budding career. She felt completely alone.

Then she discovered a staggering truth: one in four millennials are caregivers. Over 10 million young adults are quietly reshaping their lives around responsibilities they never saw coming, contributing to the $600 billion in unpaid care that family caregivers provide annually across America.

She spoke to CurePSP about founding Caregiver Collective and writing her new book, Generation Care: The New Culture of Caregiving, a deeply personal yet universal account of young caregivers across the country. From managing PSP and dementia to strokes and chronic illness, Generation Care exposes how this hidden crisis is reshaping careers, relationships and life plans.

While caregivers in America currently face immense structural challenges, this conversation illuminates how a generation’s commitment to family is quietly building the foundation for a more compassionate, community-centered approach to care.

Learn more about Generation Care: The New Culture of Caregiving here.