2019 CurePSP and UNC Family Conference
How to Prepare for Your Appointments and Available Treatment Options, Miriam Sklerov, MD, MS
Miriam Sklerov, MD, MS discusses what you need to bring, what questions to ask, how to keep track of what the doctor says throughout the appointment, and what are the available treatment options.
Allied Health Panel and the Importance of Staying Active
The benefits of staying active throughout this journey with neurodegenerative disease. Ways to integrate staying active in everyday plans and how to ensure safety throughout the day.
Building a Support Network Panel
Panel with Jessica Shurer, MSW, LCSW; and Mary Manley Moderated by Ileen McFarland, CurePSP Board of Directors.
Caregiver Firsthand Experience Panel
This panel features caregivers sharing what they learned through their caregiving experiences.
2019 Patient and Caregiver Education Day
Questions & Answers at the Patient and Caregiver Education Day
Q&A at the 2019 Patient and Caregiver Education Day.
Questions & Answers at the Patient and Caregiver Education Day
Q&A at the 2019 Patient and Caregiver Education Day.
Building Your Wellness Team, Robert Hand, PT, DPT, NCS, MSCS
Robert Hand, PT, DPT, NCS, MSCS is the leader at the Parkinson's disease clinical program at Sheltering Arms Rehabilitation Centers, a board-certified clinical specialist in neurologic physical therapy, and a member of the International Movement Disorders Society and APTA Academy of Neurology. Robert Hand explains how to build your wellness team at the 2019 Patient and Caregiver Education Day.
Swallowing Safety: Diet & Considerations for Peg Placement, Brittany R. Reed, M.Ed., CCC-SLP
Brittany R. Reed, M.Ed., CCC-SLP is a speech-language pathologist at Hunter Holmes McGuire VA Medical Center in the PolyTrauma Outpatient Center. Brittany R. Reed talks about swallowing safety, diet, and considerations for peg placement at the 2019 Patient and Caregiver Education Day.
Frequently Asked Questions with Dr. Lawrence I. Golbe
What is progressive supranuclear palsy?
In this video, Dr. Lawrence I. Golbe, Professor of Neurology, Robert Wood Johnson Medical School at Rutgers University, takes us through the basics of progressive supranuclear palsy.
How do the symptoms of PSP progress?
In this video, Dr. Lawrence I. Golbe, Professor of Neurology, Robert Wood Johnson Medical School at Rutgers University, takes us through the symptoms, and their progression, of progressive supranuclear palsy.
What is the difference between PSP and Parkinson's disease?
In this video, Dr. Lawrence I. Golbe, Professor of Neurology, Robert Wood Johnson Medical School at Rutgers University, takes us through the basics of progressive supranuclear palsy.
Is there a test to determine if I have PSP?
In this video, Dr. Lawrence I. Golbe, Professor of Neurology, Robert Wood Johnson Medical School at Rutgers University, takes us through the basics of progressive supranuclear palsy.
Family Stories, Prime of Life Brain Disease
Prime of Life: A Family's Story (PSP)
Pierre Gervais was diagnosed with PSP, and when he passed away his brain donation allowed for an autopsy that revealed he instead had CBD. Jocelyne and Pierre share their story.
Prime of Life: A Family's Story (CTE)
The Adamle family are learning to live with Mike's diagnosis of CTE. In this video we hear from Mike, his wife Kim, their two daughters, and Dr. Bob Stern, a recognized authority on CTE.
Prime of Life: A Family's Story (MSA)
See how one family copes with an MSA diagnosis.
Prime of Life: A Family's Story (FTD)
David Wetzl and his family's journey with frontotemporal dementia (FTD).
2018 CurePSP and Mayo Clinic Family Conference
PSP, CBD, MSA, and the Brain
PSP, CBD, MSA, and the Brain.
Making a Diagnosis of PSP, CBD, or MSA
Making a Diagnosis of PSP, CBD, or MSA. Jim Bower, MD, Professor of Neurology, Mayo Clinic. How does a neurologist determine which disease a patient has?
Research into PSP and CBD
Dr. Brad Boeve, Director, Division of Behavioral Neurology, Department of Neurology, Mayo Clinic. In this video, Dr. Boeve explain what a clinical trial is, what the latest research is, and what the local options are for clinical trials.
What Has Neuroimaging Taught Us About PSP and CBD?
Dr. Jennifer Whitwell, Professor of Radiology, Mayo Clinic. An overview of recent research on magnetic resonance imaging and positron emission tomography imaging and the clinical value of findings from these studies.