Wellness Wednesday with CurePSP
30-minute Vinyasa Yoga Flow with Jenna Fair
In this episode, Jenna leads a relaxing slow pace 30-minute vinyasa flow. Vinyasa is a style of yoga characterized by poses linked together, so you could move seamlessly from one to another, using breath. For this session, wear comfortable clothes and make sure you are on a solid, stable floor and in a safe environment. Remember to listen to your body and do what is most comfortable for you!
Stretching and Exercises for Caregivers with Julie Stover
In this episode, Julie Stover leads thirty minutes of gentle, easy-to-follow exercises that you can do at home to help improve mobility.
Dealing with Overwhelm: Coffee and Conversation with Four Life Coaches
Life Coach Stefani Turken will moderate this roundtable discussion on a topic that is all too familiar to so many of us these days: the feeling of overwhelm. Drawing on their professional practices and personal experiences, the coaches will explore strategies for recognizing and coping with anxiety brought on by health, financial, and other stressors. With backgrounds specializing in social work, coaching for leadership, self-love, coaching those diagnosed with chronic conditions, and healthcare heroes facing burnout, the four coaches will approach this topic through various lenses. We’ll also talk specifically about the challenges faced when a loved one is diagnosed with a chronic or terminal illness.
Coming Home to Yourself through Breath and Meditation with Liz Bee
Often, we forget that self-care is one of the fuels that keep us going and that we need to take a moment to fill up our tank so we can better take care of others! Join Liz Bee, Kundalini Yoga, Breathwork, and Meditation Teacher, for a restoring session. We will move our bodies gently, share a calming breath-work session, and restore our relationships with our physical, emotional, and spiritual temples.
2021 CurePSP Virtual Family Spring Conference
Welcome with Dr. Kristophe Diaz and Tour of CurePSP Resources with Joanna Teters
Dr. Kristophe Diaz, CurePSP, Vice President of Scientific Affairs, welcomes all attendees at the 2021 CurePSP Virtual Family Spring Conference. Joanna Teters, CurePSP, Community Outreach & Resource Manager, gives a tour of CurePSP Resources.
Neuro-Ophthalmology, Dr. Scott Haines
Dr. Scott Haines, VCU Health, discusses management of common ophthalmologic aspects of PSP, such as photophobia, dry eyes/ ocular surface disease and bifocals/prism glasses.
Patient Perspective Panel with Mathew J. Barrett, MD and Bobby Hand, DPT
Mathew J. Barrett, MD and Bobby Hand, DPT, will discuss the current management of PSP with an emphasis on the importance of multi-disciplinary, ongoing research, rehabilitation, and assistive devices. The panel will also feature patients discussing what it is like to be a patient for the newly diagnosed and what it is like to take part in a clinical trial.
FreeWill with Jada Gale
Estate planning with wills and advances directives are traditionally considered complex, scary, and expensive. That's why CurePSP and FreeWill have a tool to help create these important documents. All estate plans made using FreeWill are FREE, 100% legal, and specifically tailored to your jurisdiction.
Frequently Asked Questions with Dr. Lawrence I. Golbe
What is progressive supranuclear palsy?
In this video, Dr. Lawrence I. Golbe, Professor of Neurology, Robert Wood Johnson Medical School at Rutgers University, takes us through the basics of progressive supranuclear palsy.
How do the symptoms of PSP progress?
In this video, Dr. Lawrence I. Golbe, Professor of Neurology, Robert Wood Johnson Medical School at Rutgers University, takes us through the symptoms, and their progression, of progressive supranuclear palsy.
What is the difference between PSP and Parkinson's disease?
In this video, Dr. Lawrence I. Golbe, Professor of Neurology, Robert Wood Johnson Medical School at Rutgers University, takes us through the basics of progressive supranuclear palsy.
Is there a test to determine if I have PSP?
In this video, Dr. Lawrence I. Golbe, Professor of Neurology, Robert Wood Johnson Medical School at Rutgers University, takes us through the basics of progressive supranuclear palsy.
Family Stories, Prime of Life Brain Disease
Prime of Life: A Family's Story (PSP)
Pierre Gervais was diagnosed with PSP, and when he passed away his brain donation allowed for an autopsy that revealed he instead had CBD. Jocelyne and Pierre share their story.
Prime of Life: A Family's Story (CTE)
The Adamle family are learning to live with Mike's diagnosis of CTE. In this video we hear from Mike, his wife Kim, their two daughters, and Dr. Bob Stern, a recognized authority on CTE.
Prime of Life: A Family's Story (MSA)
See how one family copes with an MSA diagnosis.
Prime of Life: A Family's Story (FTD)
David Wetzl and his family's journey with frontotemporal dementia (FTD).