Resources for Young Adults
In the disease journey, young adults or grandchildren can play a unique role. They share unique relationships with their loves ones and play a different role as a care partner, often providing relief and joy amidst struggles. The journey is challenging for the young adult/grandchild as they witness physical, mental, and emotional changes to the person they love. This page is for the young adult community to find support from peers, become advocates, and share their story.
“When my grandmother was diagnosed, my family and I felt called to serve and share her story. Also, we needed support, someone who could relate to our newfound reality. As a grandchild, I had a very unique relationship with my grandmother prior to her diagnosis. Her journey with CBD had a different impact on me than it did on my parents. Reflecting on these experiences, Emma and I created the Young Adult and Grandchildren Support Group. This page has the resources for connection, storytelling, and advocacy that I would have wanted when my grandmother was initially diagnosed, and I sought out help.”
- Sanjay Geevarghese, Young Adult and Grandchildren Support Group Co-Founder
CurePSP Young Adult Leadership Team
My grandfather was diagnosed with PSP in 2015 and unfortunately passed away in 2018. He taught me various life lessons throughout his journey with the disease, like living life to the fullest. I carried these life lessons throughout my time with him and after his passing, and I still make them a part of my daily life. I became engaged with PSP following my grandfather's passing, and I helped develop a support group for other grandchildren for guidance and support with their personal journeys with PSP, CBD, and MSA.
Contact: ewodwaski@gmail.com
Jay Iyer is a junior at Harvard College concentrating in Molecular and Cellular Biology and Statistics. His specific interests lie in developmental neurobiology and the study and treatment of movement disorders, namely Parkinson’s disease and progressive supranuclear palsy. He conducts research in cortical development and analyzes clinical trial data to understand movement disorder genetics and improve clinical outcomes. Jay is also heavily involved in patient advocacy and outreach efforts, providing support to patients and families with PSP through his nonprofit organization, MIND Relief. In his free time, he enjoys lifting weights, playing golf, and learning chess theory.
My grandmother was diagnosed with CBD in 2019. She came to live with me and my family in 2020 and is still with us. We always had such a special relationship, often talking for hours at a time over the phone about every little minute detail of my day. After her diagnosis, that relationship changed but the love remained the same. Inspired by her, I decided to co-found the Young Adults and Grandchildren support group to create a space for young adults to connect. I created this page with a network of resources for support, advocacy, and connection with an emphasis on sharing these stories of hope and love with the world.
Contact: sanjaygeevarghese@gmail.com
My grandfather was diagnosed with PSP in 2015 and unfortunately passed away in 2018. He taught me various life lessons throughout his journey with the disease, like living life to the fullest. I carried these life lessons throughout my time with him and after his passing, and I still make them a part of my daily life. I became engaged with PSP following my grandfather's passing, and I helped develop a support group for other grandchildren for guidance and support with their personal journeys with PSP, CBD, and MSA.
Contact: ewodwaski@gmail.com
Jay Iyer is a junior at Harvard College concentrating in Molecular and Cellular Biology and Statistics. His specific interests lie in developmental neurobiology and the study and treatment of movement disorders, namely Parkinson’s disease and progressive supranuclear palsy. He conducts research in cortical development and analyzes clinical trial data to understand movement disorder genetics and improve clinical outcomes. Jay is also heavily involved in patient advocacy and outreach efforts, providing support to patients and families with PSP through his nonprofit organization, MIND Relief. In his free time, he enjoys lifting weights, playing golf, and learning chess theory.
My grandmother was diagnosed with CBD in 2019. She came to live with me and my family in 2020 and is still with us. We always had such a special relationship, often talking for hours at a time over the phone about every little minute detail of my day. After her diagnosis, that relationship changed but the love remained the same. Inspired by her, I decided to co-found the Young Adults and Grandchildren support group to create a space for young adults to connect. I created this page with a network of resources for support, advocacy, and connection with an emphasis on sharing these stories of hope and love with the world.
Contact: sanjaygeevarghese@gmail.com
“There is tremendous joy that grandchildren bring into their grandparents’ lives, and maintaining those relationships in such a unique experience will allow their bond to continue to flourish.”
- Emma Wodwaski, Young Adult and Grandchildren Support Group Co-Founder
Young adult children and grandchildren of people with PSP/CBD/MSA Support Group
The Young adult children and grandchildren of people with PSP/CBD/MSA came about after a few conversations between Sanjay Geevarghese and Emma Wodwaski where they shared about their grandparents, experiences caring for them, and struggles. Inspired by these conversations, they formed this group to connect with others like them and to offer advice in any way that they can about how to cope with their loved one’s struggles and how to support them better.
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