Breakthrough in clearing toxic misfolded tau, in the Daily-Star, Jan 26

Categories: Uncategorized

          With $100 million from Rainwater family, brain research hits stride BY STEVE KASKOVICH, Star-Telegram, January 26 More than a year after Fort Worth billionaire Richard Rainwater lost his battle with a degenerative brain disease, his quest to find a cure is making progress. A group of top doctors and neuroscientists …

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Anti-Tau Antibody Trial Enters Phase 2!

Categories: Uncategorized

AbbVie Initiates Phase 2 Clinical Trial Programs for ABBV-8E12, an Investigational Anti-Tau Antibody, in Early Alzheimer’s Disease and Progressive Supranuclear Palsy Jan 25, 2017 Courtesy of AbbVie, January 2017   – Initiation of Phase 2 clinical trial programs in early Alzheimer’s disease and progressive supranuclear palsy (PSP) is part of ongoing commitment to investigate ABBV-8E12 …

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A children’s book, explaining PSP and other disorders.

Categories: Support News
richie-morris-mum
  One of our community, Richie Morris, whose mother has PSP, is writing and publishing a book for children, to help explain the changes they observe taking place in their beloved family member. In Richie’s words;  “Every summer for a couple of weeks my mother, father, brother and I (including our closest friends), vacationed at …

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An article by one of our community

Categories: Support News

One of the CurePSP community has written this beautiful article on the intricacies of finding love again.  Article by Joanna McFarland Owusu. Posted on Bluntmoms.com, Dec. 2016 With Christmas almost upon us, I find myself ruminating on a moment last October at the State Fair of Texas, of all places. Every year we make an …

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13-Year-Old Abby Sayre Starts CBD Fundraiser In Memory Of Grandmother Mary Kay

Categories: News

Abby Sayre has started a fundraiser on behalf of her grandmother, Mary Kay Withrow. Mary Kay was diagnosed with Corticobasal Degeneration (CBD). CBD is a neurodegenerative disease that has no known cause, treatment or cure. It affects nerve cells that control walking, balance, mobility, vision, speech and swallowing. She required assistance in every area of her …

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President Obama Signs 21st Century Cures Act

Categories: News

It is official! The 21st Century Cures Act has been signed into law by President Barack Obama.    “We’re tackling cancer, brain disease, substance abuse disorders and more, and none of this work would have been possible without bipartisan cooperation,” Obama said during a signing ceremony at the White House.

NINDS/NIH/NIA Funding Opportunity Announcement

Categories: Research News

NINDS/NIH/NIA Funding Opportunity Announcement to support the genetic discovery in PSP, CBD, and related disorders. There will be a pre-application informational webinar on December 20, 2016 from 11:00-1:00 pm EDT. The webinar will provide a brief introduction to the FOA, and highlight key components and requirements of the different phases of this grant mechanism.    …

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CurePSP receives $200,000 from Nesbitt Charitable Foundation to fund two studies.

Categories: Uncategorized

CurePSP donor funds two innovative studies of PSP Nesbitt grant supports research into both care and cure   New York, NY (November 16, 2016) — CurePSP, the leading nonprofit advocacy organization focused on prime of life neurodegenerative diseases, has received a donation from the Nesbitt Charitable Fund, Houston, Texas, of $200,000 to fund two research …

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Dr. Brent Bluett Talks About Botox and Therapy For PSP Patients

Categories: Research News

Ask a Doctor: Dr. Brent Bluett on PSP by Sylvia Rupani-Smith Very few patients with a rare brain disease such as Progressive Supranuclear Palsy, or PSP, have the liberty of choosing a doctor. It’s hard to find a doctor who even knows what the condition is, much less find a specialist for it. When you …

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