Peer supporters have experienced a rare brain disorder with their loved one. They seek to alleviate some feelings of isolation and to provide support and basic resources for family members of PSP/CBD/MSA patients. Peer Supporters exist to help meet the needs of individuals who are unable to attend support group meetings.
Description of Duties
- Accept phone calls and emails from family members of PSP/CBD/MSA patients
- Discuss details of callers experience and share personal experiences with callers
- Provide basic resources to callers (most up-to-date information about research, support groups, etc. provided via email by Program Assistant)
- Follow up with at least 3 calls and/or emails within the first three months of the initial contact
- Communicate with CurePSP staff regarding questions, requests, suggestions, etc.
- Strong written and verbal communication skills
- Strong interpersonal skills
- Must be willing to learn about PSP, CBD, MSA
- Reliable phone/internet connection
- Sensitivity to personal information, confidentiality
- Basic computer skills necessary if Peer Supporter will also be communicating via email
- Peer Supporters should be able to speak with or reply to emails from individuals who contact them within 48 hours
- After first contact with an individual, Peer Supporter will remain in contact at least once per month for three months
- Ongoing support from Program Assistant via phone and email
- “Train the Trainer” meetings to get support and ask questions about group facilitation
- Regular updates related to the diseases or other topics of interest as part of our volunteer community
It is important to note that this position requires the volunteer to authorize CurePSP to list name, phone number and/or email in print and on the CurePSP website. If you'd like to become a peer supporter, please contact Trish Caruana, Executive Vice President, at 800-457-4777, extension 5667, or via email at firstname.lastname@example.org.