Support Groups: Online
CurePSP-sponsored online support groups allow participants the opportunity to interact with other patients, caregivers, and family members affected by PSP, CBD, MSA or related brain diseases by using their computer, telephone (toll charges incurred), or both. Below is a list of online support group meetings in which you may wish to participate.
PSP Patients
Meeting
Time(s): 2nd & 4th Monday of each month from 7:30pm - 8:30pm
Eastern
Meeting Link: https://www1.gotomeeting.com/register/327286400
Meeting
Tel: 312-878-0218; Access Code:
379-111-884
Facilitator: Kelley Pistacchio, 401-724-3673, kel925@cox.net
Caregivers of People with PSP
Meeting Time(s): 4th Tuesday of each month at 8:00pm Eastern
Meeting Link: https://www2.gotomeeting.com/register/242984986
Meeting
Tel: 646-307-1719; Access Code: 483-706-986
Facilitator: Ken Lapin, 818-991-1832, ken1311@sbcglobal.net
Adult Children of Persons with PSP
Meeting Time(s): 2nd Wednesday of each month at 8:00pm
Eastern
Meeting Link: https://www2.gotomeeting.com/register/344436138
Meeting
Tel: 646-307-1708; Access Code:
497-010-824
Facilitator: Laurie Huffman, imthingone@yahoo.com
People with CBD and their Caregivers
Meeting Time(s): 3rd Tuesday of each month at 4:00pm
Eastern
Meeting Link: https://www1.gotomeeting.com/register/893287256
Meeting
Tel: 312-878-0222; Access Code:
602-587-662
Facilitator: Janet Edmunson, 207-799-4963, janet@janetedmunson.com
MSA Patients
Meeting Time(s): 3rd
Monday of each month at 8:00pm Eastern
Meeting Link: https://www2.gotomeeting.com/register/759482131
Meeting Tel: 312-878-0211; Access Code:
349-078-984
Facilitator: Gary Rose, 360-200-5230, gary.rose.wa@gmail.com
Caregivers of People with MSA
Meeting Time(s): 1st Monday of each
month from 8:00pm - 9:00pm Eastern (no April meeting)
Meeting Link: https://www2.gotomeeting.com/register/977578139
Meeting Tel: 773-945-1011; Access Code:
605-218-650
Facilitator: Carol Langer, 781-271-9941, carollanger@comcast.net
All Caregivers
Meeting Time(s): 2nd Tuesday of each
month at 5:00pm Eastern
Meeting Link: https://www1.gotomeeting.com/register/156552265
Meeting Tel: 773-945-1011; Access Code: 243-003-141
Facilitator: Barbara Simpson (Sydney, Australia), 0418-260-595, barbara.j.simpson@alumni.uts.edu.au
