If you enjoy planning parties, writing letters, or want to help raise awareness of progressive supranuclear palsy (PSP) and corticobasal generation (CBD) – become a volunteer with CurePSP! Many special events and public relations activities are very easy to plan and won’t take up much of your time. We can provide a variety of materials to help make your event a success, as well as press kits to help you spread the word about PSP in your community.
If you would like to plan a special event or help with our public awareness efforts, we would be delighted to speak with you and discuss your options. Please contact Kathleen Matarazzo Speca, Vice President of Development and Donor Relations, at 800-457-4777 (option 3) or via e-mail at email@example.com.
Please mail any offline donations to the following address:
Attn: K. M. Speca
30 E. Padonia Road, Suite 201
Timonium, MD 21093
Upcoming Events & Past Event Info
Abigail's Ice Cream Fundraiser Thursday, May 16, 2013
Plainview, New York
If you live in or near the Plainview area of New York - stop by Ralph’s Italian Ices and support Abigail as she raises awareness and funds for CurePSP in memory of her grandfather who lost his battle with PSP. See the event flyer for more information or make a donation to support Abigail.
Terry Watson / CurePSP Golf Tournament
Friday, June 28, 2013
Compass Pointe Golf Club
Registration - 11:30am
Join the Watson Family by participating in a golf tournament in memory of Terry Watson, who lost his battle with PSP. For more information, please click here.
Music Concert to Benefit CurePSP
Saturday, July 20, 2013
St. Matthew Lutheran Church
12:00pm - 2:00pm
Save the date now to join Tasha Koontz as she hosts a benefit concert in memory of her grandmother Beverly Jane Cole Millett which will support of the programs and services of CurePSP. More details will follow. In the meantime, for more information contact Tasha at firstname.lastname@example.org.
8th Annual Ken Jennings Putt for PSP
Saturday, July 27, 2013
Starting at 8:00am - activities through 5:00pm
Join the Jennings family and friends as they golf in memory of Ken Jennings. Festivities include the golf tourney, putting contest, lunch, boat cruise and much more. To register and/or learn more about this fantastic event, click here.
2nd Annual PSP Memorial Golf Outing
Saturday, August 24, 2013
Port Huron Elks Club
Port Huron, Michigan
SAVE THE DATE! More details to follow.
Saturday, August 24, 2013 - Sunday, August 25, 2013
Join CurePSP as we cheer for Martha Payne who will run, swim and bike her way through the Olympic distance for this exciting triathlon. Martha has participaed in two Nantucket Marathons for CurePSP raising more than $8,500 for our programs and services in memory of her dad – Halbert Payne. To learn more about this event and/or to support Martha, please click here.
PSP Minneapolis Walk, in Honor of Richard Perron
Barney's Hummingbird Note Card Fundraiser (ongoing)
Barney and Fran Myer are conducting a beautiful note card fundraiser to beneift CurePSP. Barney's story is as follows:
Barney was diagnosed with PSP in 2010. For Barney, his double vision and frame by frame, or "stuttered", visual experience means everything he does and sees requires great concentration and effort. Though not an artist by training, he took photos of hummingbirds that visit his patio in Arizona. With help from his wife, Fran, they were transformed into faded black and white, enlarged and printed on art paper. Barney used Prismacolor pencils to enhance the pictures. His artwork captures the joyful spirit of these amazing little birds.
The cost is $10.00 for a set of 6 cards and 6 envelopes, plus $2.00 for shipping and handling. All proceeds from the sale of these note cards will be donated to CurePSP. To order, please send an email request to email@example.com.
We are unable to upload photos of the beautiful note cards at this time. When you email Fran at the above address, please ask her to send you sample photos of the cards.
Past Event - Judi Ericson Remembrance Walk
Special thanks to Ty Ericson and his family for organizing and participating in the Judi Ericson Walk on April 28th in memory of Ty’s mother Judi. This first time event raised $2,660 in support of the programs and services of CurePSP. CurePSP is most thankful for your kindness and generosity.
Past Event - Marilyn's Spring Stroll
Belmont Lake State Park
Belmont, New York
Special thanks to Donna Etergineoso along with family and friends who participated in Marilyn’s Spring Stroll on April 27th in memory of her mother Marilyn Boccafola. This second annual event raised over $6,200 in support of CurePSP. CurePSP remains most grateful for your unending kindness and generosity.
Past Event - Boston Marathon - Natalie Critchley
Hopkinton to Boston, Massachusetts
Special thanks to Natalie Critchley who participated in the Boston Marathon on April 15th raising over $4,300 in honor of her father for CurePSP. We are so thankful that she was not physically harmed by the senseless act of violence that occurred that day. Thank you again Natalie, we sincerely appreciate your efforts.
Past Event - Dine for CurePSP
Friday, April 12, 2013 (all day dining)
Friday, April 19, 2013 (all day dining)
Friday, April 26, 2013 (all day dining)
Ruby Tuesday Restaurants located in Franklin Mills (PA), Liberty Place (PA), and Deptford (NJ)
Hosted by the CurePSP Pennsylvania Support Group
Please join the CurePSP Pennsylvania Support Group at select Ruby Tuesday restaurants as they “Dine for CurePSP.” The Ruby Tuesday Community Giveback Program will be donating 20% of your purchase to CurePSP on three different dates in April. We encourage you to bring your family and friends out to enjoy great food for a great cause knowing that your purchase is raising funds to support the vital programs and services of CurePSP. Just present THIS flyer to your server and enjoy your meal. Thank you for your support.
Past Event - Atlanta Hawks Charity Basketball Game
Special thanks to CBS Atlanta News’ Adam Murphy for his support in raising $4,100 from the Atlanta Hawks Charity Basketball Game in honor of his mother Janice. See following link for more details and photos from this fabulous fundraising event - Adam Murphy Hosts the Atlanta Hawks Charity Basketball Game
Past Event - 9th Annual CurePSP Awareness & Memorial Walk
Marco Island, Florida
Special thanks to Cindy MacDonald and all the volunteers and sponsors for making the 9th Annual CurePSP Awareness and Memorial Walk a success in raising public awareness as well as $15,237 to support our vital programs and services. CurePSP truly appreciates your unending support.
Past Event - 3rd Annual CurePSP 5K/15K Relay
Stone Island Estates
Please join Renee Wilder for the 3rd annual CurePSP 5K/15K relay run to benefit the programs and services of CurePSP. Renee did an excellent job last year raising $3,000. For more information about the 5K, please contact Renee at firstname.lastname@example.org. If you would like to register, please visit www.finalmileracemanagement.com.
To make a donation, please click here. Thank you for your support.
Past Event - Maura's 8th Birthday
Las Vegas, Nevada
Seven year old Maura Berggren requested a different kind of birthday gift. She asked for donations to CurePSP in lieu of gifts for her 8th birthday, in memory of her grandfather, Dr. Paul Wolfson. Dr. Wolfson lost his battle with Progressive Supranuclear Palsy (PSP) on October 25th, 2007. To donate in support of Maura’s birthday, please click here.
Past Event - NovemBEARD
American University of Antigua College of Medicine
St. John's, Antigua and Barbuda
Justin Bricchi, a medical student at the American University of Antigua College of Medicine, and his colleagues have developed a very unique and creative way to raise donations and awareness for CurePSP; NovemBEARD! Also known as “no shave November” the participants will start out clean shaven at the start of November and refrain from shaving until the end of the month. At the end of the month there will be a school-wide “Beard Auction” where the highest bidder will choose the style, no matter how ridiculous, which the NovemBEARD participant must wear for the last day of November.
Justin’s father, Larry Bricchi, was diagnosed with PSP over 2 years ago and since then Justin has shown a strong interest in the PSP research that is currently being done.
You can become friends with the NovemBEARD cause on Facebook by searching for “NovemBeard Aua Chapter” and see the beard progress pictures that will be posted all month. Click here to support/donate to the cause.
Past Event - Ironman 70.3 Austin
CurePSP Triathlete: Brian Keilers
Brian Keilers competed in his first Ironman Triathlon on October 28th, 2012 in honor of his mother Linda Keilers. He swam, cycled and ran 70.3 miles to help CurePSP continue its mission. Read more about his family’s journey and his competition. Great job, Brian!
Past Event - Boscov's Gala Preview for a Great Cause
Post-event summary coming soon!
Past Event - Miracle for Mom
Past Event - Ironman Wisconsin
CurePSP Triathletes: Jason Busdeker and Justin Shea
Jason Busdeker participated in the Ironman Triathlon in memory of his father, who passed away from complications from PSP in January 2012. Jason and his family are on a crusade to create awareness and raise funds to support the programs and services of CurePSP. Jason was able to fundraise over $3,000! To read more about his story, please click here. Thank you Jason!
Justin Shea also participated in the Madison Ironman Triathlon on September 9th in honor of his father, Jim Shea. Read more about Justin and his ironman race which fundraised over $5,000! Also, Justin and his family just recently finished up a cross-country road trip touring all of the Major League Baseball parks - read about their journey. Thank you Justin!
Past Event - CurePSP Bridge Event in Honor of Thomas Timm
Thomas Timm was diagnosed in 2011 with PSP - his beloved Bridge Club held a fundraiser in his honor. There were raffle prizes, games and more. Everyone had a wonderful time and the event fundraised over $7,000! Thank you to everyone who came out to support Thomas!
Past Event - 17th Annual UPMC Urgent Care Montour Trail Half Marathon
On September 8th, Susan McLaughlin ran the Montour Trail Half Marathon in memory of her father. Her efforts raised over $4,000 - thank you Susan!
Past Event - Penelope T’s ‘Bohemian Rhapsody’ Runway Celebration
Penelope T. Owners, Nikkie Riley and Manne White, selected CurePSP as the beneficiary of this year’s show in memory of Nikkie’s father, Jett Riley. Mr. Riley was diagnosed with PSP at age 40 and passed away 4 years later. Their event raised over $7,000! Thank you so much to everyone who supported Penelope T. and to Nikkie and Manne for their hard work!
Past Event - Bikram Yoga Harlem's Donation Classes
New York, New York
Bikram Yoga Harlem fundraised over $700 from their Donation Classes for the month of August. Thank you so much to Jon Stewart and the rest of Bikram Yoga Harlem for their efforts and dedication!
Past Event - Cure the Pain Walk
On July 29th, sisters Surbhi and Bhavana Kapoor coordinated the Inaugural ‘Cure the Pain’ walk in honor of their grandmother, Indra Kapoor. Family and friends joined together to walk throughout the park and enjoyed various games and raffle prizes. Together their event raised over $4,000 and immeasurable awareness! Thank you to the entire Kapoor family!
Past Event - Nantucket Triathlon
On July 21st, Martha Payne participated in the Nantucket Triathlon in memory of her father, Halbert E. Payne. Martha not only ran and cycled on that hot day, but she also swam in strong waters, for CurePSP and in tribute to her father who lost his battle with PSP in February of 2000. To read more about Martha’s story or to make a donation, please click here. To date Martha has raised over $8,000! Congratulations and thank you to Martha!
Past Event - Amica Triathlon
New London, Connecticut
On July 15th, in honor of her grandmother, Sylvia Guido, Rita Magliocco competed in the Amica 19.7 Triathlon to raise awareness and funds for CurePSP. Sylvia was diagnosed with PSP in December of 2010 - to read more about her story, please follow this link. To date, Rita has raised over $800 for CurePSP’s mission. Thank you Rita for all of your hard work!
Past Event - CurePSP Memorial Scramble Golf Outing
Port Huron, Michigan
Terri Bartley and Kay McGuigan held their Inaugural CurePSP Memorial Scramble Golf Outing on July 8th in memory of both of their mothers. Not only did they have a fun day of golf, raffles and food, but they were also able to raise over $8,000 for CurePSP! Thank you to everyone involved for putting on a wonderful event and helping raise awareness for CurePSP’s mission!