Special Events

If you enjoy planning parties, writing letters, or want to help raise awareness of progressive supranuclear palsy (PSP) and corticobasal generation (CBD) – become a volunteer with CurePSP! Many special events and public relations activities are very easy to plan and won’t take up much of your time. We can provide a variety of materials to help make your event a success, as well as press kits to help you spread the word about PSP in your community.

If you would like to plan a special event or help with our public awareness efforts, we would be delighted to speak with you and discuss your options. Please contact Kathleen Matarazzo Speca, VP of Development and Public Relations, at 800-457-4777 (option 3) or via e-mail at speca@curepsp.org. Please be sure to check out our Special Events Planning Guide.

Please mail any offline donations to the following address:

CurePSP
Attn: K. M. Speca
30 E. Padonia Road, Suite 201
Timonium, MD 21093

Upcoming Events & Past Event Info

Run To Robie Half Marathon

Saturday, April 21st, 2012
Fort Boise Park
Boise, Idaho
Race Starts at High Noon

Please help support Kari Bolstad Kuglin as she runs the Race to Robie Creek, “The Toughest Race in the Northwest”, for CurePSP. Kari is raising funds and awareness in honor of her father, Jon Bolstad, who was diagnosed with PSP in 2007. To learn more about her efforts and her family’s story, please follow this link.

Thank you to Kari for taking on this rigorous Half-Marathon as a way to support CurePSP in tribute to her father!
Ron Kleis Memorial Dinner to Benefit CurePSP

Sunday, May 6, 2012
4:00pm - 6:00pm
Branding Iron Cookhouse
8450 Market Street
Mentor, Ohio

Please join Maria Kleis and her friends and family as they raise awareness and funds to support CurePSP in memory of her father, Ron Kleis. This wonderful event will include unlimited wings, fries, and beverages (including pop, iced tea, coffee, Bud Light, and Miller Light) at Branding Iron Cookhouse in Mentor on May 6, 2012 from 4:00pm - 6:00pm. The cost is only $20 per person. Attendees can also participate in a silent auction with many exciting prize opportunities, and a 50/50 raffle during the event.

For more information, please contact Maria at mklies1@yahoo.com. Special thanks to Maria and her friends and family for coordinating this fundraising endeavor.
Branching Out For A Cause’s 3rd Annual Golf Tournament

Saturday, May 19, 2012
Battle Island State Park Golf Course
Fulton, New York

This year, Branching Out For A Cause will hold their 3rd Annual Golf Tournament to raise awareness and funds for CurePSP on Saturday, May 19th, 2012. The tournament will be held at Battle Island State Park Golf Course, 2150 State Route 48, Fulton, NY, 13069. The golf tournament is Captain and Crew (teams of 4) with a shotgun start at 8am. Lunch will be served after the tournament, as well as items for raffle and silent auction. Please email BranchingOut4@gmail.com for more information or to register.
Zooma Annapolis Half Marathon

Saturday, June 2, 2012
Navy-Marine Corps Memorial Stadium
Annapolis, Maryland

Please support Jenny Klimczak and her sister Becky Kirin as they run the Zooma Annapolis Half Marathon in honor of their father, Bill Klimczak. Bill was diagnosed with PSP in 2008 and his daughters are participating in the Half Marathon as a tribute to him and his love for running. To read more about their journey and to support their efforts to raise awareness and funds for CurePSP, please follow this link. A big thank you to these dedicated sisters for helping accomplish CurePSP’s mission!
Mermaid Triathlon

Saturday, June 9, 2012
Harbor Bay Ferry Terminal
Alameda, California
Race Begins: 7:30am

Please support Elsa Murillo Noyes as she takes on the Mermaid Triathlon to raise awareness and funds for CurePSP. She is participating in this event in memory of her father, John Murillo, who lost his battle with PSP in January 2011. As Elsa completes her run, cycling and swim, she will be paying tribute to her father’s active life. Click here to read more about Elsa and her father’s journey. CurePSP sends a tremendous ‘Thank You’ to Elsa as she prepares for her upcoming race.
CurePSP Memorial Scramble Golf Outing

Sunday, July 8, 2012
Elks Lodge – 3292 Beach Rd.
Port Huron, Michigan
7:30am – Registration & Continental Breakfast
8:30am – Shotgun Start

Join Terri Bartley and Kay McGuigan as they put on the Inaugural CurePSP Memorial Scramble Golf Outing in memory of their mothers on July 8th, 2012. The event will include a four person scramble with men’s, women’s and mixed divisions, mulligans, luncheon, raffles and more! To register for this event or learn more about sponsorship opportunities, please follow this link. Registration is limited to the first 144 golfers. Please support their efforts and join in for a fun-filled day in raising awareness and funds for CurePSP!
Nantucket Triathlon

Saturday, July 21, 2012
Jettes Beach
Nantucket, Massachusetts
First Wave Starts at 6:30am

Please support Martha Payne as she participates in the Nantucket Triathlon in memory of her father, Halbert E. Payne. Martha will be taking on running, cycling and swimming as she raises awareness and funds for CurePSP and pays tribute to her father who lost his battle with PSP in February of 2000. To read more about Martha’s story or to make a donation, please click here.

Thank you to Martha for all of her hard-work and dedication to CurePSP’s mission!
Ironman Wisconsin

Sunday, September 9, 2012
Lake Monona
Madison, Wisconsin

Please support Jason Busdeker as he participates in the Ironman Triathlon in memory of his father, who passed away from complications from PSP in January 2012. Jason and his family are on a crusade to create awareness and raise funds to support the programs and services of CurePSP. For more information about this event, please visit IronmanWisconsin.com or contact Jason at jbusdeker@hotmail.com. We’re all rallying for you Jason – good luck!
Barney's Hummingbird Note Card Fundraiser (ongoing)
Barney and Fran Myer are conducting a beautiful note card fundraiser to beneift CurePSP. Barney's story is as follows:

Barney was diagnosed with PSP in 2010. For Barney, his double vision and frame by frame, or "stuttered", visual experience means everything he does and sees requires great concentration and effort. Though not an artist by training, he took photos of hummingbirds that visit his patio in Arizona. With help from his wife, Fran, they were transformed into faded black and white, enlarged and printed on art paper. Barney used Prismacolor pencils to enhance the pictures. His artwork captures the joyful spirit of these amazing little birds.

The cost is $10.00 for a set of 6 cards and 6 envelopes, plus $2.00 for shipping and handling. All proceeds from the sale of these note cards will be donated to CurePSP. To order, please send an email request to pickleballstuff@comcast.net.

We are unable to upload photos of the beautiful note cards at this time. When you email Fran at the above address, please ask her to send you sample photos of the cards.
Past Event - 8th Annual CurePSP Awareness & Memorial Walk

Mackle Park
Marco Island, Florida

Proceeds from this event helped support the vital programs and services of CurePSP such as education for patients, physicians and other healthcare providers, as well as support groups, materials, caregiver programs, family conference, webinars, worldwide research efforts and much more. A special thank you to Cindy MacDonald for putting on this wonderful event!
Past Event - Dallas Half Marathon - Team Cyndi

Dallas, Texas

Cassie Noble, along with her friends and family, participated in the Dallas Half Marathon in memory of her mom, Cyndi, who lost her battle with MSA in December 2010. Proceeds from this event will support the vital programs and services of CurePSP. If you would like to make a donation in support of Team Cyndi, please click here. CurePSP thanks Cassie and Team Cyndi for their kindness and generosity.
Past Event - 2nd Annual CurePSP 5K Fun Run

Enterprise, Florida

Renee Wilder participated in the 2nd Annual 5K Fun Run, which benefited the programs and services of CurePSP. Renee did an excellent job last year raising nearly $3,000. Thank your for your support.
Past Event - B2BSeen Auction & Party – Comedy Laugh Off to benefit CurePSP

The Solied Dove Underground
Denver, Colorado

Local comedian, area resident and former sports journalist, Sam Adams, performed at the Colorado Business Marketing Association’s “B2BSeen Auction & Party” on Thursday, November 17th from 5:30 – 9:30pm, at the Soiled Dove Underground in Denver, CO. Sam donated his proceeds to CurePSP in honor of a friend who has been diagnosed with the disease.

To make a secure online donation through CurePSP, please visit: http://bit.ly/samadams_curepsp

Donations will be used to support the mission of CurePSP and offer support to families affected by PSP and related brain diseases.
Past Event - Long Beach Half Marathon

Long Beach, California

On October 9, 2011 Troy, Tadd and Trent Wooton ran the Long Beach Half Marathon in memory of their beloved mother, Lucretia Ann Wooton who lost her battle with PSP on October 3, 2011. The brothers raised over $3,400 for CurePSP.
Past Event - Scare Away PSP “Spook-tacular”

Newport, Pennsylvania

On Saturday October 22, 2011, the Freeman Family and the Metz Family gathered for a Halloween Costume Party and Magic Show to raise funds in memory of Larry Freeman, who recently passed away due to complications from PSP, and in honor of Paul Metz who is currently battling PSP. In addition of the costume contest and magic show, the event also included a 50/50 raffle and silent auction. The event raised $2,500.

A big thank you to the Freeman and Metz Families!
Past Event - Marine Corps Marathon 2011

Washington, DC

On Sunday, October 30, 2011, Brendan Barr participated in the Marine Corps Marathon, running 26.2 miles in memory of his mother, Marla Louise Culp, who lost her battle with PSP on November 21, 2009 at the age of 63. Brendan and his sister, Keely Culp Funderburk, have raised over $4,000 to fund to further research efforts and help establish outreach and education programs for families affected by PSP.

Brendan exceeded his running expectations finishing the race in 3 hours, 52 minutes and 6 seconds. Congratulations Brendan and Keely.
Past Event - Philadelphia Rock 'n' Roll Marathon

Philadelphia, Pennsylvania

Philip Jackson and his team of 4 participated in the Philadelphia Rock ‘n’ Roll Marathon in memory of his mother-in-law, Dolores A. Foard, who lost her battle with PSP on December 4, 2010. Philip and his team raised awareness and funds to further research efforts and help establish outreach and education programs for families affected by PSP.

If you would like to support Philip and his team, please click here to donate.
Past Event - 8th Annual CurePSP Pittsburgh Wine Tasting

Pittsburgh Center for the Arts
Pittsburgh, Pennsylvania

Dreadnought Wines provided some of their finest wines for friends and family to sample, while listening to the smooth sounds of Greg Lutz. Proceeds benefited the patient support, education, and research programs of CurePSP.

Please consider supporting this event with a gift.

Special thanks to Susan McLaughlin for coordinating this event for the past eight years.
Past Event - Silpada Jewelry Party

Chester, New Jersey

Christina Diana hosted a jewelry party in memory of her grandmother who lost her battle with PSP. Christina raised $350 (and counting!) to support CurePSP. Great job! Thanks for your support Christina!
Past Event - "Hula-Palooza"

Just Like Home Assisted Living Facility
Vallecito, California

Angelica White, Manager, of Just Like Home Assisted Living Facility in Vallecito, California, her staff and members of the Foss Family hosted “Hula-Palooza” in memory of Gilbert “Doc” Foss, PhD who recently lost his battle with PSP. Doc was a resident of Just Like Home and was loved by all!

“Hula-Palooza” raised over $1,000 for research, outreach, and education programs for families affected by PSP! Great job, Angelica and company!
Past Event - 6th Annual Putt for PSP
South Shore Golf Course
Syracuse, Indiana

Jack Jennings and his sister, Janelle Jennings, hosted the 6th Annual Putt for PSP in memory of their father, Ken Jennings, who lost his battle with PSP on September 9, 2009.