Submit Your Story

CurePSP encourages any persons affected (both directly or indirectly) by PSP, CBD or related brain diseases to share their stories with us, so that we may share them with others.

If you would like to share your story, please use the checklist below as a guide for what your submission should include:

  • Full name
  • Mailing address*
  • E-mail address*
  • Phone number*
  • Title of story
  • Age of diagnosis or when symptoms began
  • Maximum length of 1,000 words
  • Photos(s), if available

    High resolution preferred - any digital format accepted. Be sure to indicate names of those appearing in photo(s).

* will not be displayed

Please describe yourself or the family member prior to (and after) onset of symptoms. Share how your life has been affected by PSP, CBD, or MSA (as a patient, caregiver or family member). Tell us what has helped you and your family get through the challenges of the disease. If there has been something 'positive' that has come from the family's struggle, be sure to include that as well. Please end your story with something you'd like to say to others that will help them keep moving forward.

Once your story is complete, please email it to Bruce Janele at janele@curepsp.org.

CurePSP reserves the right to edit all content before appearing on our website.