Care Partner Resources

Being a care partner to someone living with PSP, CBD and MSA is a challenging role. CurePSP has resources to help guide care partners in finding their own support, better caring for themselves and connecting with other care partners.


Care Partner Support Groups

Meeting Time(s): 3rd Tuesday of each month from 8:00 – 9:30pm ET

Meeting Tel: +1 646 558 8656 Meeting ID: 818 9086 2483

Facilitator: Janet Edmunson, janet@janetedmunson.com, 508-308-4195

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Meeting Time(s): 1st Monday of each month from 8:00pm - 9:00pm ET

Meeting Tel: +1 646 558 8656 Meeting ID: 867 8292 3273

Facilitator: Tom Tait, tom.tait@comcast.net, 856-725-2450

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Meeting Time(s): First Tuesday of each month from 8:00 - 9:00pm ET and first Thursday of each month from 5:00 - 6:00pm ET

Meeting Tel: +1 646 558 8656 Meeting ID: 865 1420 0051

Facilitators: Tom Tait, tom.tait@comcast.net and Bill Furlow, billfurlownc@gmail.com

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Meeting Time(s): 1st Thursday of each month from 2:30pm - 4:00pm ET and 3rd Wednesday of each month from 6:30 - 8:00pm ET

Meeting Tel: +1 646 558 8656 Meeting ID: 865 0612 9819

Facilitator: Roxi Padrid, roxipadrid@gmail.com, Fran Gardner, franbgardner@gmail.com

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Meeting Time(s): 4th Wednesday of each month from 7:00pm - 8:00pm ET

Meeting Tel: +1 646 558 8656 Meeting ID: 868 0636 0161

Facilitator: Steve Garcia, advancedstagespsp@gmail.com, 973-962-9356

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Webinars

Finding Calm in Caregiving: Mindfulness-Based Stress Reduction for Care Partners

Empowering Well-Being: Insights from Patients and Care Partners

The Role of Patients and Care Partners in Multidisciplinary Team Care

Patient & Carepartner Panel: Lessons Learned Along Our Journey

Caregiver Perspective Panel with CurePSP Community Members and Jessica Shurer, MSW, LCSW