May 10, 2024

Introducing a Bill to the House Floor Despite Her Diagnosis, Congresswoman Jennifer Wexton Continues Shifting the Narrative Surrounding Rare Diseases

The constituents of Virginia’s 10th district have a tenacious and unwavering advocate in Congress – and she has progressive supranuclear palsy (PSP).I...


May 03, 2024

Virginia designates May as Progressive Supranuclear Palsy Month of Awareness

The Virginia General Assembly has designated May, in 2024 and in each succeeding year, as Progressive Supranuclear Palsy Month of Awareness in Virgini...


April 25, 2024

CurePSP Provides Resources and Education to Clinicians at AAN 2024

Last week the CurePSP team headed to Denver, Colorado for the American Academy of Neurology’s (AAN) Annual Meeting. The AAN Annual Meeting provides a...


March 20, 2024

The 21st Southwest Florida PSP Support Group Awareness and Memorial Walk Blends Tradition With Fresh Faces for Renewed Optimism

It was a breezy and pleasant Saturday morning at Mackle Park when the Southwest Florida PSP Support Group and volunteers welcomed attendees for the 21...


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“Our patients and their families remain at the heart and very center of our efforts. Their stories drive us forward, and their voices guide our priorities.”

— Kristophe Diaz, PhD