Now Hiring: Senior Manager of Support & Engagement

CurePSP seeks a Senior Manager of Support & Engagement to work as part of the Patient & Care Partner Advocacy Team, reporting to the Director of Clinical Affairs and Advocacy. This team primarily focuses on CurePSP’s care and consciousness pillars and leads CurePSP’s initiatives that include: direct interaction with people affected by PSP, CBD and MSA, a network of prestigious medical centers, educational resources and events for both community members and healthcare professionals, the Quality of Life Respite Program, support and volunteer programming, legislative and public policy advocacy, brain donation assistance and raising awareness. The goals of these efforts are to lead to earlier diagnosis, assessment and addressing of unmet needs, outreach for historically underrepresented communities, improved access to comprehensive care and support for people with PSP, CBD and MSA and increased coordination, funding and research around these diseases.

People impacted by rare neurodegenerative diseases often face a long and windy diagnostic journey, confusions around navigating medical systems, changing family dynamics, quickly progressive care needs, social isolation and complex decisions around health, safety, long-term care and end of life, all of which can be vulnerable experiences. Interacting with people “who understand,” like CurePSP staff and volunteers, and getting plugged into disease-specific resources and a network can help to positively shape someone’s disease journey and foster hope and meaning. CurePSP is looking to add a full-time team member to continue and enhance its ability to offer comprehensive and direct support to the community. The key role presents the opportunity to work alongside, and on behalf of people with lived experience with PSP, CBD and MSA, including diagnosed individuals, current and former family care partners, and volunteers, empowering them with education, connection and a sense of purpose.

How to apply:

Please send resume/CV and cover letter to:

Jessica Shurer, MSW, LCSW, Director of Clinical Affairs and Advocacy, at shurer@curepsp.org

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