CurePSP has a variety of events for patients, families, carepartners, physicians and allied healthcare professionals. In addition, our volunteers run a variety of fundraising events that are essential to supporting our mission. Please review this schedule for events that may be in your area and would be of interest to you.
If you would like to put on an event, please contact Jaclyn Zendrian, Vice President – Events, at firstname.lastname@example.org.
Recently, the CDC recommended older people and those with serious, chronic medical conditions stay home. For the safety of our community, CurePSP events have postponed until further notice. To keep up with all CurePSP coronavirus updates and actions: www.psp.org/about-curepsp/news
Join CurePSP and the Gillis Family for the 1st Annual Bill Gillis Memorial Golf Tournament!
We are calling all avid golfers to join in on the fun! If you are located in North Carolina, join the Gillis Family on Friday, July 22nd, 2022 for a day in honor and memory of Bill Gillis who passed away from progressive supranuclear palsy (PSP).
$65 per person or $260 per team
Includes golf with cart, lunch, and great fun!
Create lasting memories on the golf course while raising awareness and funds! All proceeds will benefit CurePSP. To register, please email BGMemorialgolf@yahoo.com
“Everyone on the Gillis side of the family plays golf. From my grandparents to my dad and uncles, to my cousins and me. Golf has always been a part of our family, and something that my dad and I enjoyed together a lot. When I decided I wanted to do something to honor my dad, the golf tournament was the perfect and only choice.” – Brett Gillis, Bill’s son
Join CurePSP and the Ferguson Family for their 2nd Annual Drive Away PSP Scramble in Memory of Linda Ferguson!
Come out for a day of fun, family, and golf! If you are from Michigan, make sure to join us on August 6th, 2022, for a day of golfing while supporting CurePSP.
Linda Ferguson was a friend, colleague, mentor, outdoor enthusiast, athlete, cousin, sister, aunt, grandma, and beloved mother. She was diagnosed with FTD in 2018 and passed away in February 2020. She was loved by everyone who knew her and her family continues to carry on her memory through their annual golf outing.
The Event will feature:
- 4 – Person Scramble
- 18 Holes of golf with cart
- Lunch and beverage service on the course
- Kegs located on the course
- Reception with full buffet dinner and cash bar
- 50/50 Raffle
- Silent Auction
- Hole Contest:
- Longest Drive
- Closest to the Pin
- Double your money
- Bazooka Cannon
This year’s Hope as Big as Texas event celebrates Hispanic Heritage and Hope!
This virtual celebration will explore the connection between caregivers and Hispanic artists, both applying creativity, inspiration, and commitment to someone and something they love and cherish. The Quality of Life fund is committed to providing in-home respite care support through Quality of Life grants to families of those diagnosed with progressive supranuclear palsy (PSP), corticobasal degeneration (CBD), or multiple system atrophy (MSA). Studies have shown that these diseases affect all ethnicities equally. However, they are often underdiagnosed in rural and underserved areas without a Movement Disorders Specialist.
Each grant provides $1,500 for 54 professional caregiving hours through Griswold Home Care or an alternative home care agency.
Bringing Respite Care to those in Need
At last year’s Hope as Big as Texas, we were fortunate to raise enough funds to provide support to 40 families with PSP, CBD, or MSA, bringing our total to over 100 families served! Studies show that even a brief break or relief from caregiving responsibilities can improve the daily life of caregivers and their loved ones diagnosed with the disease. The importance of these services and the critical role of respite care are evident now more than ever. Our fight to find treatment and a cure is equally steadfast!
Learn more about the Cherie Levien Quality of Life Fund on this page.
Each dollar of your donation will be matched up to $25,000, thanks to the generosity of sponsoring donors!
If you would like to attend the event, though unable to afford a ticket, please use promo code TEXAS22 and come as our guest. The event will be broadcast in English and Spanish.
Save the Date for the 2022 CurePSP International Research Symposium featuring leaders from academia and industry in clinical and preclinical science relevant to PSP, CBD, and tauopathies!
CurePSP conducts an International Research Symposium that brings together international investigators to hear about and discuss the latest scientific advances relevant to neurodegeneration with a particular focus on rare tauopathies such as PSP and CBD. The Symposium highlights research by leading neuroscientists and welcomes all researchers with an interest in preclinical and clinical neuroscience.
This symposium will be a hybrid of online learning (for those unable to attend) and in-person!
This event is technical in nature and is intended for a medical and research audience.