In-Person Support Groups

CurePSP encourages and organizes activities that foster face-to-face communication, exchange and interaction for comfort and mutual benefit to group members who are caregivers, family members, friends and patients with PSP, CBD, MSA and related diseases. We are continually seeking motivated individuals to start and facilitate support groups in their local area. Please consider sharing some of your time with others by being a support group leader. If you are interested, or are unable to reach the facilitator of a group, please send an email to Joanna Teters at teters@curepsp.org.

To find details on the face-to-face support group nearest you, please select the appropriate state/country below.

AZ | AR | CA | CO | FL | GAIL | KY | MA | MD | ME | MO | MI | MN | NE | NJ | NM | NC | NY | OH | OR | PA | TX | UT | VA | WA | WY | Canada | Australia 

MSA Support Groups through the MSA Coalition – see link at bottom of page

Arizona

Sun City

For anyone affected directly or indirectly by PSP

  • Location: Banner Boswell Hospital, Account Services Building, 13180 N. 103rd Drive, Sun City, AZ
  • Meeting Time(s): 3rd Saturday of the odd months of the year from 1:30pm – 3:30pm
  • Facilitator: Tito Sebastiani, 602-920-4632, tsebastiani@cox.net

Tempe

For anyone affected directly or indirectly by PSP

  • Location: Pyle Adult Recreation Center, Yuma Room, 655 East Southern Avenue, Tempe, AZ 85282
  • Meeting Time(s): 2nd Saturday of the even months of the year (Feb, Apr, etc) from 1:30pm – 3:30pm
  • Directions: The Center is directly across from Walmart. Yuma is the first room on the left down the hall. Attendees should park in back of the building (Southwest side) to be closest to room
  • Facilitator: Ann Ludwig, 602-318-0895, aludwig@asu.edu

Arkansas

Little Rock

For anyone affected by PSP, CBD or MSA

  • Location: Faith United Methodist Church, 9820 West Markham Street, Little Rock, AR
  • Meeting Time(s): 4th Thursday of every month from 1:00pm – 2:30pm (November and December meetings held on 3rd Thursday)
  • Facilitator: Randi Haley, 870-703-6417, randirhaley@yahoo.com

California

Irvine

For patients, caregivers and families affected by Parkinson’s, PSP, CBD, MSA and other atypical Parkinsonian disorders

  • Location: Atria Woodbridge Assisted Living, 1 Witherspoon, Irvine, CA 92604
    Meeting Time: Every Tuesday, 10:30am – 12:00pm.
  • Facilitator: Don Perdue, 949-552-0465, djperdue@cox.net

Northern/San Mateo

Neurodegenerative movement disorder group (PSP, CBD, MSA, etc.) – caregivers only. Contact facilitator for more info.

  • Location: Mimi’s Cafe, 2208 Bridgepointe Parkway, San Mateo, CA 94404
  • Meeting Time(s): Every 5 to 7 weeks (call or email for schedule) from 5:00pm – 7:00pm (always on Sunday)
  • Facilitator: Robin Riddle, 650-814-0848, robin.riddle@brainsupportnetwork.org

Los Angeles – UCLA

For Patients, Families, & Friends Affected by PSP, CBD, MSA & Parkinson’s disorders

  • Location: Ronald Reagan UCLA Medical Center, 757 Westwood Plaza, Los Angeles, CA, Room 3102 (room may vary, please call ahead), to RSVP contact dwest@mednet.ucla.edu or call 310-206-2154
  • Meeting Time: 1st Friday of every month from 2:00pm – 4:00pm
  • Facilitator: Loretta Mazorra, RN, NP, MN, MA in Spiritual Psychology, anlom@sbcglobal.net

Sacramento

For Patients and Caregivers dealing with FTD, PSP, CBD, MSA and Parkinson’s

  • Location: Shriner’s Hospital on the UC Davis Medical Center Campus, 7th Floor Board Room, 2425 Stockton Blvd.,Sacramento, CA
  • Meeting Time: 4th Wednesday of every month, 7:00pm-9:00pm
  • Facilitator: Ed Fargusson, efargusson@gmail.com 

San Diego

For patients and their caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS

  • Only for caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS
  • Location: Tri-City Wellness Center, 6520 El Camino Real, Carlsbad, CA
  • Meeting Time(s): 1st Wednesday of every other month
  • Facilitator: Judy Chamuler, 619-788-3584, judychamuler@gmail.com

For patients and caregivers dealing with PSP, CBD, MSA, and Parkinson’s disease

  • Location: Parkinson’s Association, 8555 Aero Drive, Suite 308, San Diego, CA
  • Meeting Time(s): 3rd Thursday of every month from 1:00pm – 3:00pm
  • Facilitator: Kathryn Krug, kkrug@parkinsonsassociation.org

Colorado

Denver/Englewood

Neurodegenerative movement disorder group (MSA, PSP, CBD)

  • Location: InnovAge Johnson Adult Day Program, 3444 S. Emerson Street, Englewood, CO 80113
  • Meeting Time(s): 2nd Friday of each month from 10:00am – 12:00pm (patients and caregivers together) and 4th Friday of each month from 10:00am – 12:00pm (caregivers only)
  • Facilitators: Helenn Franzgrote, 303-789-9900, jhfranzgrote@comcast.net

Johnstown/Loveland

Neurodegenerative movement disorder group (MSA, PSP, CBD)

  • Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528
  • Meeting Time(s): 2nd Friday of each month from 1:00pm – 3:00pm
  • Facilitators: Ruth Fletcher-Carter, 970-532-2681, chantillylace3@usa.net

Florida

Southwest/Naples

For patients/caregivers/families affected by PSP, CBD, MSA and related diseases

  • Location: Manor Care at Lely Palms, 6135 Rattlesnake Hammock Road, Naples, FL 34113
  • Meeting Time(s): 2nd Saturday of each month from 2:00pm – 3:30pm
  • Facilitator: Cindy MacDonald, 239-353-3960 or 239-404-4429, hotrdh@hotmail.com

Southeast/Deerfield Beach

For patients/caregivers/families affected by PSP, CBD, MSA and related diseases

  • Location: North Broward Medical Center, 201 E. Sample Road, Deerfield Beach, FL 33064, 1st Floor, Classrooms 7&8 (for directions only: 954-941-8300)
  • Meeting Time(s): Contact facilitator for more info
  • Facilitator: Paul Freeman, 305-970-0805, freemanph@aol.com

Tallahassee

For all affected by PSP

  • Location: Westminster Gardens – 10th Floor Meeting Room, 301 E. Carolina Street, Tallahassee, FL 32301
    Meeting Time: 1st Monday of every month at 2:00pm, first meeting May 4, 2015
  • Facilitator: Ann Foster, 850-980-6875, aperrin80f@juno.com

Central/Orlando Area

For all affected by PSP, CBD and MSA

  • Location: Contact Facilitator
  • Meeting Time: Once a month, contact facilitator for more info
  • Facilitator: Jim Pierce, 407-756-0184, jim.pierce@gmail.com

Georgia

Atlanta

For caregivers and families (only), who are dealing with PSP, CBD and MSA

  • Location: Emory University Brain Center Initiative, 12 Executive Park Drive, 5th floor, Atlanta, GA
  • Meeting Time(s): 2nd Saturday of each month from 10:00am – 11:30am
  • Facilitator: Lynn Ross, LMSW, 404-712-7091, slross@emory.edu

Woodstock

For patients and care partners who are dealing with PSP, CBD and MSA

  • Location: Resurrection Anglican Church, 231 Arnold Mill Rd. Woodstock, GA 30188
  • Meeting Time(s): Sunday, February 12, 2017 and every third Sunday 2:00-4:00 pm EST
  • Facilitator: Rick Wolter, 954-830-7274, sbr4psp@gmail.com

 

Illinois

Chicagoland

For PSP/CBD patients

  • Location: The Abington of Glenview Library, 3901 Glenview Road, Glenview, IL 60025
  • Meeting Time(s): First Saturday of every month from 1:30pm – 3:30pm
  • Facilitator: David Takehara, davidtakehara@gmail.com

Northwestern Area

For those with PD and other movement disorders

  • Location: Northwestern Memorial Hospital, 251 East Huron, Feinberg Pavilion, 3rd Floor, Room A (free parking at Huron/St. Clair)
  • Meeting Time(s): First Tuesday of every month from 10:30am – 2:00pm
  • Facilitator: Pamela Palmentera, 312-503-4397, ppalment@nmff.org

Kentucky

Louisville

Atypical parkinsonian disorders support group for patients/caregivers

  • Location: The Parkinson Center, 315 Townepark Circle, Suite 100, Louisville, KY 40243
  • Meeting Time(s): 1st Tuesday of every month at 6:30pm
  • Facilitator: Dan Heins, 502-216-4563, danheins@gmail.com

Maine

Falmouth

For patients/caregivers dealing with Atypical Parkinsonian Disorders like PSP, CBD, MSA, OPCA, SND, SDS

  • Location: Maine Parkinson’s I&R Center, 5 Bucknam Road, Falmouth, ME
  • Meeting Time(s): One Sunday per quarter from 1:00pm – 3:00pm. Contact Facilitator for information.
  • Facilitators:

Barby Johnson, 207-633-0881, rockyledges85@gmail.com

Janet Edmunson, 207-799-4963, janet@janetedmunson.com

 

Maryland

Baltimore County

For patients and caregivers affected by PSP/CBD/MSA and other Atypical Parkinsonian diseases.

  • Location: St. Thomas Episcopal Church, 1108 Providence Road, Townson, MD 21286
  • Meeting Time: 4th Thursday of every month, 2:00-4:00pm 
  • Facilitator: Gigi Gray, ggray8@jhmi.edu,  410-955-6692

Baltimore County

For patients and caregivers affected by Parkinson’s disease, PSP, CBD, MSA and other neurodegenerative diseases

  • Location: St. Thomas Episcopal Church, 1108 Providence Road, Townson, MD 21286
  • Meeting Time: 2nd Thursday of every month, 2:00-4:00pm 
  • Facilitator: Gigi Gray, ggray8@jhmi.edu,  410-955-6692

Bel Air

For patients and caregivers affected by Parkinson’s disease, PSP, CBD, MSA and other neurodegenerative diseases

  • Location: William McFaul Activities Center, 525 West McPhail Road, Bel Air, MD 21014
  • Meeting Time: 1st Thursday of every month from 2:00pm – 4:00pm
  • Facilitator: Gigi Grey, ggray8@jhmi.edu, 410-955-6692

 

Massachusetts

Boston

For patients, caregivers, and families dealing with PSP and MSA only

  • Location: Boston University Medical Center, 88 East Newton Street, 2nd Floor, Conference Room C
  • Meeting Time(s): Quarterly – Contact facilitator for info.
  • Facilitator: Melissa Diggin, 339-927-5468, m_diggin@hotmail.com

Missouri

St. Louis

For patients, caregivers, and anyone affected by PSP

  • Location: St. Louis Altenheim, 5408 South Broadway, St. Louis, MO 63111
  • Meeting Time(s): 4th Friday of every month at 11:00am (beginning Jan. 23, 2015)
  • Facilitator: Beth Evans, 314-732-3433, notelizabethevans@gmail.com

Michigan

Delton

For patients, caregivers, and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders

  • Location: 11137 Floria Drive, Delton, MI 49046 (park in church parking lot)
  • Meeting Time(s): 2nd Saturday of each month from 2:00pm – 3:30pm
  • Facilitator: Mary Meagher, 269-267-3117, mmeagher@mei.net

Minnesota

Minneapolis

For patients and families dealing with PSP, CBD, and MSA

  • Location: Struther’s Parkinson’s Center, 6701 Country Club Drive, Golden Valley,MN 55427
  • Meeting Time(s): 2nd Wednesday of every month from 1:00pm – 2:30pm
  • Facilitator: Joan Hlas, 952-993-6650

Nebraska

Lincoln

For caregivers and families dealing with PSP, CBD, MSA and other atypical Parkinsonian disorders

  • Location: 5901 N. 27th Street, Lincoln, NE
  • Meeting Time(s): 4th Tuesday of every month from 6:30pm – 8:30pm
  • Facilitator: Susie Luxford, 402-525-7367, susie.luxford@homerealestate.com

New Jersey

South Orange

For anyone affected by PSP

    • Location: Livingston Library, 10 Robert H Harp Drive, Livingston NJ 07039
    • Meeting Time(s): 3rd Thursday of every month at 1:30pm
    • Facilitator: Robin Chernoff, 646-734-2353, robinchernoff@aol.com

Summit

For anyone affected by MSA

    • Location: Overlook Medical Center, Conference Room #1, 99 Beauvoir Avenue, Summit, NJ 07901
    • Meeting Time(s): 2nd Saturday of every month, 11:00am – 1:30pm
    • Facilitator: Cyndi Roemer, 732-903-8517, cynthia.roemer@msanj.org

New Mexico

Albuquerque

For patients, caregivers and families affected by PSP, CBD, MSA and other atypical Parkinsonian disorders

  • Location: The Flying Star, 10700 Corrales Road, Albuquerque, NM
  • Meeting Time(s): 1st Tuesday of each month from 6:30pm-8:00pm *Albuquerque Support Group will be meeting on June 27th instead of June 6th, 2017. There will not be a July. Regular schedule resumes in August 1,  2017.
  • Facilitators: Roxi Padrid, 312-485-9342, roxipadrid@gmail.com

North Carolina

Raleigh/Durham/Chapel Hill

For patients, caregivers and anyone affected by PSP, CBD or MSA

  • Location: St. Thomas More Church, St. Teresa Room, 940 Carmichael Street, Chapel Hill, NC 27514
  • Meeting Time(s): 1st Wednesday of every month from 1:30pm – 3:00pm
  • Facilitator: Diane Crompton, 770-401-1663, dicrompton@gmail.com and Caryn Utberg, 919-259-6401, caryn@senior-care-management.com

New York

 

New York City

For carepartners, family members and loved ones of patients with PSP, CBD or MSA.

Location: St. James’ Church Parish House, 865 Madison Avenue (between 71st and 72nd Streets),  New York, NY 10021 – please check with receptionist

  • Meeting Time(s): Meetings will resume on Wednesday May 17, 2017 and continue every third Wednesday of the month. Contact Jane for meeting times.
  • Facilitators: Jane Jensen, 561-598-9839, jensen@att.net

Ohio

Cleveland

For patients/families/friends/caregivers affected by PSP, CBD, MSA, Shy-Drager and Lewy Body

  • Location: Southwest General Hospital, 18697 Bagley Road, Middleburg Heights, OH, Room 15C (basement level)
  • Meeting Time(s): 2nd Sunday of each month from 2:00pm – 3:30pm [*please note the group will meet the 1st Sunday of the month of May every year due to Mother’s Day]
  • Directions/Parking: Hospital is easy accessed from I-480, I-71 and the Ohio Turnpike – free parking rear garage of hospital
  • Facilitator: Dave Potter, 440-263-5330, davepotter7@gmail.com, Pat Beekman, 440-234-0007

Oregon

Portland

For patients of PSP, CBD, and MSA, as well as their families and caregivers

  • Location: OHSU River Side Bldg, Conference Room 5 (3rd Floor), 3303 SW Bond St., Portland, OR 97239
  • Meeting Time(s): 1st Thursday of each month at 5:30pm
  • Facilitator: Hallie Bradley, htbradley@netscape.net

North Portland

For patients of PSP, CBD, and MSA, as well as their families and caregivers

  • Location: Marquis Care Center, 319 NE Russet Street, Portland, OR
  • Meeting Time(s): 3rd Saturday of each month from 10:00am – 12:00pm
  • Facilitator: Vicki Blacken, 503-651-3633, vblacken@web-ster.com

Pennsylvania

Philadelphia

For persons with movement disorders

  • Location: Penn Center, 9th and Pine Street, Philadelphia, PA 19107, 4th Floor
  • Meeting Time(s): 3rd Thursday of every month at 2:00pm, contact facilitator for info
  • Facilitator: Christin Salemno, 215-829-2347, christin.salemno@uphs.upenn.edu

Youngwood

For persons with movement disorders

  • Location: Honeysuckle Haven, 621 South 5th Street, Youngwood, PA 15697
  • Meeting Time(s): 3rd Thursday of each month from 6-8pm
  • Facilitator: Rose Buric, 724-691-7363, rjburic@gmail.com

Texas

Houston

For patients/families with PSP, CBD, MSA, LBD

  • Location: Memorial Hermann SW Hospital, Houston, TX, Learning Center B, Professional Building II
  • Meeting Time(s): 3rd Saturday of each month (except July and December) at 1:00pm
  • Facilitator: Karen Kennemer, 281-358-2282, kmk1224@aol.com

Dallas

For PSP/CBD/MSA patients and caregivers

  • Location: Texas Health Presbyterian Hospital Dallas, Texas Health Resources University (THRU) building, Room 117
  • Meeting Time(s): 3rd Saturday of the month (except August) from 10:30am – 11:30am
  • Facilitator: Trina Nieser, Ph: 214-345-7981, Cell: 801 696.7881, CatrinaNieser@TexasHealth.org
  • Co-Facilitators: Bill and Ileen MacFarland

Utah

Salt Lake City

For PSP Patients and Caregivers

  • Location: Neurosciences Technology and Imaging Center, 729 Arapeen Drive, University Research Park, University of Utah
  • Meeting Time(s): 2nd Monday of every month at 6:00pm
  • Facilitator(s): Rebecca Jorgensen, rebecca.jorgensen@hsc.utah.edu

Virginia

Fairfax

Patients and care partners affected by Parkinson’s, PSP, CBD, MSA and other atypical Parkinsonian disorders

  • Location: The Virginian, B1 Assembly Room, 9229 Arlington Blvd., Fairfax, VA 22031
  • Meeting Time(s): Every Wednesday at 5:00 pm; Care partners group led by care partners and patient group led by speech language pathologist.
  • Facilitator: Matt McKeon, 703 385-0555, ext. 5392, mattmckeonslp@aim.com

Washington

Seattle

For patients/caregivers/families dealing with PSP/CBD

  • Location: Swedish Cherry Hill- Mother Joseph Room (off of the cafeteria)
  • Meeting Time(s): 4th Monday of every month at 11:00am
  • Facilitator: Suzanna Eller MA, LHMC 206-320-2084 suzannaapda@gmail.com 

Wyoming

Johnstown/Loveland (Colorado)

Neurodegenerative movement disorder group (MSA, PSP, CBD)

  • Location: Northern Colorado Rehabilitation Hospital, 4401 Union Street, Johnstown/Loveland, CO 80528
  • Meeting Time(s): 1st Friday of each month from 1:00pm – 3:00pm
  • Facilitators: Ruth Fletcher-Carter, 970-532-2681, chantillylace3@usa.net

Canada

Calgary, AB

For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical Parkinsonian disorders

  • Location: Servus Credit Union – Creekside Branch, 12662 Symons Valley Road NW, Calgary, AB
  • Meeting Time(s): 3rd Saturday of every month (first meeting Jan. 17, 2015) from 12:00pm – 2:00pm
  • Facilitator: Kelly Clapham, 403-803-3307, claphamk@telus.net

Burlington, ON

For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical Parkinsonian disorders

  • Location: Appleby Place Retirement Residence, 500 Appleby Line, Burlington, ON
  • Meeting Time(s): Last Monday of every month from 1:00pm – 3:00pm
  • Facilitator: Kimberley Adrovez, kimberleyadrovez@yahoo.com

Kingston, ON

For patients, caregivers, and families dealing with PSP/CBD/MSA and other atypical Parkinsonian disorders

  • Location: Legion 560, 734 Montreal Street, Kingston, ON
  • Meeting Time(s): 1st Thursday of every month, 6:00-7:00pm
  • Facilitator: Mary Ellen Duncan, 844-287-3777, duncan@pspsocietycanada.ca

Toronto, ON

For carepartners of PSP/CBD/MSA patients; hosted by Parkinson Society of Central & Northern Ontario

  • Location: 4211 Yonge Street, Suite 321, Toronto, ON
  • Meeting Time(s): 3rd Wednesday of every month from 6:15pm – 8:00pm
  • Facilitator: Robert TerSteege, 416-227-3372, 1-800-565-3000 x3372, robert.tersteege@parkinson.ca

Surrey, BC

For anyone affected by PSP, CBD or MSA

  • Location: Elim Village, Oasis Building, Family Room, 9008 158th Street, Surrey, BC V4N 2X7
  • Meeting Time(s): 4th Friday of every month from 10:00am – 11:00am
  • Facilitator: Bob Brett, 604-930-8150, bandmbrett@gmail.com, Robyn Heppner, 604-584-7587 x2020, rheppner@elimvillage.com

Australia

Victoria

For PSP patients and caregivers

  • Location: Parkinson’s Victoria
  • Meeting Time(s): 1st Thursday of every other month at 10:30am
  • Facilitator: Anne Mooney, damooney@bigpond.com

MSA Support Groups

Local MSA Support Groups through the MSA Coalition

www.multiple-system-atrophy.org/local-support-groups