Online Web sites, organizations offering information, books, and aids for daily living that may assist in daily management of the disease.
Resources Guide
More links that you may find helpful ...
Finding Meaning with Charles by Janet Edmunson, inspiring others through challenging life experiences.
To Love A Stranger: A Caregiver's Perspective by Fran McMahon. Pleasant Word, 877-421-7323, www.pleasantwordbooks.com.
American Parkinson Disease Association (APDA) is dediated to finding a cure for Parkinson's Disease with educational resources.
Dana Alliance for Brain Initiatives is the gateway for brain information and brain disorders
Movement Disorders Society provides research and education related to movement disorders.
National Association for Home Care & Hospice is a national organization that helps persons locate home health providers and hospice in their area.
National Family Caregivers Association (NFCA) provides information and education, support and public advocacy for the terminally ill, aged or disabled and their loved ones.
National Institute of Neurological Disorders and Stroke is the nation's leading supporter of biomedical research on disorders of the brain and nervous system.
National Organization of Rare Disorders (NORD) provides education and resources for rare disorders.
National Parkinson Foundation, Inc. is dedicated to finding a cause and cure for Parkinson's Disease through research.
Parkinson's Institute provides patient care and research.
PSP Europe Association provides information and support to PSP patients and their caregivers and families across Europe.
University of Maryland Medical System consists of six hospitals/medical centers in and around Baltimore, MD. Relevant links to their programs involving neurological and movement disorders include: http://www.umm.edu/neurosciences/index.html and http://www.umm.edu/parkinsons.index.html
Visiting Nurses Association of America (VNAA) is the official national association for not-for-profit, community-based home health organizations known as Visiting Nurse Associations (VNAs). It provides persons the ability to search for visiting nurses in their area.
WE MOVE is an organization dedicated to providing education and awareness for those suffering with movement disorders.
Well Spouse Foundation provides help to caregiving spouses, including support and mentoring.