Featured Personal Stories

Each family who has experienced this journey has learned a great deal. Care partners or family members often draw satisfaction by sharing their stories.

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Patricia Richardson

Laurence Richardson, war hero, corporate executive and late-in-life musician, was another tragic victim of PSP. His daughter Patricia Richardson, well-known actress of stage and screen, tells his moving story. 

Read Patricia’s Story

Kathryn Leigh Scott

Geoff Miller, founding editor of Los Angeles Magazine, the first city magazine, and lover of jazz, good beer and the good life, passed away after a battle with PSP. Here his wife, actress and author Kathryn Leigh Scott, tells their story.

Read Kathryn’s Story

Mary Lou Burhoe

Mary Lou Burhoe, wife of CurePSP Board Chair Emeritus John Burhoe, passed away from PSP after almost 45 years of marriage. Here, her husband tells the moving story of their life together and the poignant last years of their patient journey.

Read Mary Lou's Story

Samuel Feldman

Samuel Feldman was an attorney, golfer, husband, and most importantly, a father. Debra Feldman tells the story of her family’s “new normal” after her husband PSP diagnosis and the ways her loved ones worked to stay connected with Samuel during his last years.

Read Debra's Story

Carroll Brent

Suzanne Brent was the first to notice that something was wrong with her father Carroll Brent. Here she tells the story of the difficult journey their family went on, from misdiagnoses to failed treatments, that eventually concluded with PSP.

Read Suzanne's Story

Mary Richard

Jean-Paul Richard tells his wife Mary’s story and reflects back to figure out when the symptoms of her CBD started. From a change in speech to sudden falls, things that seemed innocuous individually all add up to this diagnosis.

Read Jean-Paul's Story

Karen Walker

Karen Walker lived her whole life handling adversity with wit and grace. Her longtime friend Gretchen reflects on their friendship and Karen's resilient spirit. 

Read Gretchen's Story

More Personal Stories

Susan's Story

Read Susan's Story
George Oravits

Read George's Story
Sandra Nentwig

Read Sandra's Story
Ali Clagett

Read Ali's Story
Karen Bordo

Read Karen's Story
Sandra Magnus

Read Sandra's Story
Ilene Veltman

Read Ilene's Story
Ken Jennings

Read Ken's Story
Ed Chidakel

Read Ed's Story
Al Wissink

Read Al's Story
Dorothy MacDonald

Read Dorothy's Story
Leslie Riopel

Read Leslie's Story
Rita Grabinski

Read Rita's Story
Marlene Knutson

Read Marlene's Story
Colette Bednarczyk

Read Colette's Story
Ajit Shukla

Read Ajit's Story
Linda Henry

Read Linda's Story
Truman Poole

Read Truman's Story
Jackie Myers

Read Jackies Story
Doug Tannenbaum

Read Doug's Story
Bernice Gunderman

Read Bernice's Story
John R. Hays

Read John's Story
Caleb Blanton

Read Caleb's Story
Shakeela Subramany

Read Shakeela's Story
Millard Bachman

Read Millard's Story
Eileen Nixon

Read Eileen's Story
Jon Bolstad

Read Jon's Story
Herbert Levin

Read Herbert's Story
Gail Butler

Read Gail's Story
Ginny Mueller

Read Ginny's Story
Robert Chiappini

Read Robert's Story
Richard Straub

Read Richard's Story