Special Events

Upcoming Events & Past Event Info

  • Frozen Bonsai Half Marathon - Joseph Dinnen

    December 14, 2014
    New York, NY

    Please join CurePSP as we support Joseph as he participates in the Frozen Bonsai Half Marathon in honor of his grandmother, Wallie Simmons. To support Joseph, please visit his event page.

  • 5th Annual 5K/15K Relay Race - Renee Sterling

    January 15, 2015
    Enterprise, FL

    Please join CurePSP as we support the 5th Annual CurePSP 5K/ 15K Relay race hosted by Renee Sterling (formerly Renee Wilder) on January 18, 2015 at the Stone Island Estates in Enterprise, FL. For more information and race details, please visit the event page.

  • 11th Annual CurePSP Awareness & Memorial Walk

    Saturday, March 14, 2015
    Mackle Park
    Marco Island, Florida

    SAVE THE DATE - more details to follow.

  • Linked Jewelry – with Designs by Debra Feldman to Benefit CurePSP

    I created Linked Jewelry after losing my husband, Samuel Feldman, to PSP. It was this experience with love and loss that taught me that relationships are the cornerstone of life. Each Linked piece is as meaningful as it is beautiful. Please visit our website to see the full collection. With every purchase, 10% will be donated to CurePSP in support of their vital programs to help educate families and healthcare providers, as well as research efforts to find the cure.

    Linked Jewelry with Designs by Debra Feldman



  • Past Event - New York City Marathon

    New York, NY

    Special thanks to Kimberly Feinman for her participation in the New York City marathon in honor of her father-in-law, Myron, who is currently battling PSP. Kimberly raised over $2,000 towards the mission of CurePSP. Great job Kimberly!

  • Past Event - Zumba for Hope

    Hewitt, TX

    Zumba for Hope
    Melanie Garcia along with Titan Fitness of Hewitt, TX had a fantastic turnout for the Zumba for Hope fundraising event in memory of her mother, Judy Stafford. She was embraced with an outpouring of support and encouragement, as they danced through a Zumba class. More than $700 was raised to support the programs and services of CurePSP. Thank you to all who participated, and to those who donated their time and energy for this event.

  • Past Event - Diehard Run Charity Bike Ride

    Green Bay, WI

    Diehard Run Charity Bike Ride
    Special thanks to Linda Lipsky, Debbie Gerondale, and everyone who participated in the Diehard Run Charity Bike Ride. The event was a great success bringing more awareness to PSP and also raising over $1,200.

  • Past Event - CBGD T-Shirt Fundraiser


    Special thanks go out to Julie Price for designing and hosting this t-shirt fundraiser for those affected by CBGD. Julie was able to raise over $1,300 through sales and donations. Thank you Julie!

  • Past Event - Akron Marathon

    Akron, OH

    Special thank you to Leslie Christensen for her support of CurePSP raising $2,000 to support of our programs and services in memory of her mother Ellen; we sincerely appreciate all of your efforts.

  • Past Event - Civilian Military Combine

    Brooklyn, NY


    Special thanks go out to Randy and Kevin Subramany along with “Team Shak” for their participation in the Civilian Military Combine raising over $5,600 to support the programs and services of CurePSP. Great job!

  • Past Event - Augusta Half Ironman Marathon

    Augusta, GA

    Special thank you to Todd Fisher for his support of CurePSP in raising over $4,300 to support of our programs and services in memory of his mother MaryJo Fisher-Russell. We sincerely appreciate all of your efforts.

  • Past Event - The 2nd Annual Robert Peoples Run for Hope 5K

    Shoals, IN

    CurePSP is very grateful to Rebecca Host, family and friends as they hosted the 2nd Annual Robert Peoples Run for Hope 5K in memory of her father Robert Peoples. They had another great turn-out with amazing support from the community. The event was able to bring in over $7,500 to support the programs and services of CurePSP. Thank you Rebecca and we are looking forward to next year’s event!

  • Past Event - Miracle for Mom - Dining Out Night – Adam Murphy

    South City Kitchen Vinings Restaurant
    Smyrna, GA

    Event summary coming soon!

  • Past Event - BBQ/Drive Inn Fundraiser

    BBQ/Drive Inn Fundraiser

    Special thanks to Annie & Kaci Courtemanche for hosting their second fundraising event on August 23, 2014 in memory of Juan Morales, who lost his battle with PSP in 2012. They had a wonderful turnout of 100 people for this festive event, enjoying music and good food, all while watching movies on a Drive-Inn blow up screen. CurePSP appreciates all of your efforts to bring more awareness to PSP and also raising $500 to support our mission. Great job!

  • Past Event - Ironman Wisconsin Triathlon

    Madison, Wisconsin

    CurePSP sincerely thanks Jason for his participation in this triathlon in memory of his father, Nelson Busdeker, raising over $1,500 towards the programs and services of CurePSP. Great Job Jason!!

  • Past Event - Montour Trail Half Marathon

    Pittsburgh, Pennsylvania

    CurePSP sincerely thanks Susan McLaughlin for her participation in the Montour Trail Half in memory of her father, Richard Swiderski, raising over $2,700 towards the mission of CurePSP. Great Job Susan!!

  • Past Event - FINA World Masters Championship 3km Open Water Swim

    Montreal, Quebec

    Special thanks to Leanne Rose for supporting CurePSP through her participation in the FINA World Masters Champion 3km Open Water Swim in Montreal, Quebec. She swam in memory of her father Jay Follweiler who lost his battle with CBD in 2013. Thank you Leanne!!

  • Past Event - Mt. Katahdin Climb - Susan Humphrey Schroeder

    Baxter State Park, Minnesota

    Mt. Catahdin Climb

    CurePSP sincerely thanks Susan Humphrey Schroeder and her family (left to right – Susan, her father Floyd and brother Jon) for making this difficult but rewarding climb in memory of Susan’s mother Trudy Humphrey. Great Job everyone!

  • Past Event - 2nd Annual Benefit Concert - Tasha Koontz

    Hanover, Pennsylvania

    CurePSP thanks Tasha Koontz for organizing and hosting her second youth benefit concert in memory of her grandmother Beverly Jane Millett. More than $1,600 was raised to support CurePSP.

  • Past Event - Miracle for Mom night with the Gwinnett Braves – Adam Murphy

    Lawrenceville, Georgia

    CurePSP thanks board member Adam Murphy for hosting the Miracle for Mom night with the Gwinnett Braves. There was a great turn out! More details to follow.

  • Past Event - 9th Annual Ken Jennings Putt for PSP Golf Tournament

    Syracuse, Indiana

    Special thanks to Jack Jennings, Janelle Romano, Jim Kroemer, and the many others who contributed to the success of the 9th Annual Putt for PSP. The turnout was great with more than $14,000 raised to support the mission of CurePSP. CurePSP appreciates all who participated in making this event successful and look forward to seeing you next year for the 10th anniversary.

  • Past Event - Maureen Rigelhaupt Trunk Show in Support of PSP

    Babylon, New York

    Kathleen Riccio and her sisters are raised awareness and funds through a Stella and Dot Jewelry Trunk Show in memory of their mother, Rosemary Cox, who lost her battle with PSP. Portion of the proceeds from this event were donated to CurePSP in support of our programs and services. Thank you so very much for helping up raise not only money but awareness.