Event Calendar

CurePSP has a variety of events for patients, families, carepartners, physicians and allied healthcare professionals. In addition, our volunteers run a variety of fundraising events that are essential to supporting our mission. Please review this schedule for events that may be in your area and would be of interest to you.

If you would like to put on an event, please contact Jaclyn Zendrian, Vice President – Events, at zendrian@curepsp.org.


Recently, the CDC recommended older people and those with serious, chronic medical conditions stay home. For the safety of our community, CurePSP events have postponed until further notice. To keep up with all CurePSP coronavirus updates and actions: www.psp.org/about-curepsp/news

Oct
1
Sat
Mary Kay’s March for a Cure @ Still Pond Pool
Oct 1 @ 8:30 am – 10:30 am

Join the Ream Family for MK’s March!

In the fall of 2019 Mary Kay Ream was diagnosed with progressive supranuclear palsy (PSP). To celebrate her courageous fight, the Ream family is hosting a march in support of CurePSP! You have the option of doing a 1 mile walk or a 5k run. All ages and abilities are welcome! Food and beverages will be served at the finish line. 

All proceeds from the walk/run will go directly to CurePSP and a $30 donation to CurePSP is recommended for each participant.

Register by September 1st, 2022 to receive an event T-shirt!

Register  Donate

Oct
2
Sun
7th Annual Bonelli Music Bash @ All That Jazz Cafe
Oct 2 @ 1:00 pm – 5:00 pm

Join the Bonelli Family at the 7th Annual Bonelli Music Bash in Honor of John Bonelli!

Come down to All That Jazz Cafe in Sunrise, Florida, on Sunday, October 2nd, from 1-5 pm ET to honor John Bonelli and support CurePSP! John was a musician who was diagnosed with progressive supranuclear palsy (PSP). He passed away in December 2017 but continues to be honored and remembered through music and love. The Music Bash is sponsored by his family and many talented musicians that give their time to support CurePSP’s mission. So come for a good time and enjoy some music by South Florida’s finest musicians! Snacks will be provided, and drinks can be purchased at the bar.

For questions or more information, please email Lois at 

Donate

Oct
24
Mon
Neuro2022: The CurePSP International Research Symposium @ Hybrid and In-person
Oct 24 @ 8:00 am – Oct 25 @ 5:00 pm

 

 

 

 

 

 

 

 

 

CurePSP conducts an International Research Symposium that brings together international investigators to hear about and discuss the latest scientific advances relevant to neurodegeneration with a particular focus on rare tauopathies such as PSP and CBD. The Symposium highlights research by leading neuroscientists and welcomes all researchers with an interest in preclinical and clinical neuroscience.

REGISTER NOW


Monday, October 24, 2022

  • 8:00am – 9:00am: Check-in and Breakfast
  • 9:00am – 12:00pm: Symposium
  • 12:00pm – 1:00pm: Networking Lunch
  • 1:00pm – 4:00pm: Symposium
  • 4:00pm – 6:00pm: Golf Range Networking Event at Chelsea Piers
  • 6:00pm – 9:00pm: Cocktail Reception, Poster Session, and Poster Prizes

Tuesday, October 25, 2022

  • 8:00am – 9:00am: Breakfast
  • 9:00am – 12:00pm: Symposium
  • 12:00pm – 1:00pm: Networking Lunch
  • 1:00pm – 5:00pm: Symposium

*Agenda subject to change.

 

This symposium will be a hybrid of online learning (for those unable to attend) and in-person!

This event is technical in nature and is intended for a medical and research audience.


Sleeping Room Block

Reservations at the Gansevoort Hotel room block can be made immediately by telephone, email, or via the Hotel’s website. Queen rooms are $425.00 a night (without tax, etc.). Booking instructions are noted below.

As a reminder, all reservations should be made by 5:00 pm ET on September 26, 2022.


Featured Speakers

View More Speakers Here! 

Neuro2022: The CurePSP International Symposium Poster Reception @ Pier 59
Oct 24 @ 6:00 pm – 9:00 pm

Join CurePSP for the Neuro2022 Poster Reception!

During the CurePSP Internation Research Symposium international investigators hear about and discuss the latest scientific advances relevant to neurodegeneration, focusing on rare tauopathies such as PSP and CBD. The first night of the symposium kicks off with a poster reception to give attendees a visual overview of the projects being researched. The posters facilitate discussion on crucial scientific information and developing advances in neuroscience. 

Only those attending the symposium may submit an abstract and poster. Information on that process is available here

Attire is business or business casual. This reception will not be available for online viewing.

Sleeping Room Block

Reservations at the Gansevoort Hotel room block can be made immediately by telephone, email, or via the Hotel’s website. Queen rooms are $425.00 a night (without tax, etc.). Booking instructions are noted below.

As a reminder, all reservations should be made by 5:00 pm ETon September 23, 2022.

 

*Registration for the International Research Symposium also includes access to the poster reception and there is no need to register here separately. 

register

 

Nov
14
Mon
2022 CurePSP Fall Family Conference @ Philadelphia Airport Marriot
Nov 14 @ 8:30 am – 4:00 pm

Join CurePSP for the 2022 Fall Family Conference! 

Among its various educational activities, CurePSP sponsors and organizes family conferences, providing people with the opportunity to learn more about PSP, CBD, and MSA and to develop a sense of community. We recognize that these diseases present daily challenges for patients and families.

We will be hosting our 2022 Fall Family Conference at the Philadelphia Airport Marriot in Philadelphia, Pennsylvania on Monday, November 14th, 2022. This will be our first in-person Family Conference since 2019, and we can’t wait to see everyone! We will be partnering with Penn Medicine to provide informative presentations on multidisciplinary care, physical therapy, research updates, social work, palliative care, and more. Limited hotel rooms are available to reserve at the Philadelphia Airport Marriott. You can find out more by clicking on the link below.

Registration is $15 per person and will increase to $30 per person beginning Tuesday, November 1st, 2022. If you would like to attend the event, though unable to afford a ticket, please use promo code BECAUSEHOPEMATTERS and come as a donor-sponsored guest.

For those that can’t join us in person, we will be hosting our 2022 Virtual Fall Family Conference on Friday, December 9th and Friday, December 16th.  This will be split between two half days and include the recorded presentations from our in-person conference in Philadelphia as well as other live sessions.  Click here  to learn more. 

We hope you can join us!  For any questions, please email events@curepsp.org.

 

AGENDA* 

 All sessions will be held in Salon A-D at the Philadelphia Airport Marriott. 

 8:30 – 9:30 AM: Breakfast & Mingle 

A light breakfast will be served in the event space.  The menu will include oatmeal with assorted toppings, juices, pastries, bagels, diced fruit, yogurt, water, and coffee/tea. 

 9:30 – 9:45 AM: Welcome & Opening Remarks 

Speakers: Kristophe Diaz, PhD & Jessica Shurer, MSW, LCSW 

 9:45 – 10:15 AM: Overview of Multidisciplinary Care 

Speaker: Andres F. Deik, MD 

10:15 – 10:45 AM: Physical Therapy 

Speaker: Heather Cianci, PT, MS, GCS 

10:45 – 11:15 AM: Coffee Break 

Snacks, coffee, and tea will be served. 

11:15 – 11:45 AM: Research Updates 

Speaker: David Irwin, MD 

11:45 – 12:30 PM: Multidisciplinary Care Panel 

Speakers: Andres F. Deik, MD, Heather Cianci, PT, MS, GCS, and David Irwin, MD 

12:30 – 1:30 PM: Lunch Break 

Lunch will be served in the event space.  The menu will include squash soup, tomato mozzarella salad, arugula salad, chicken marsala, oven roasted cod, penne pasta with vodka sauce, roasted vegetables, brownies & cookies, soft drinks, and coffee/tea. 

1:30 – 2:00 PM: Social Work 

Speaker: Lauren Zelo MSW, LCSW 

 2:00 – 2:30 PM: Palliative Care 

Speaker: Matthew Mendlik, MD, PhD 

 2:30 – 2:50 PM: Stretch Break 

 2:50 – 3:35 PM: Patient Panel Discussion 

Moderated by Jessica Shurer, MSW, LCSW 

 3:35 – 3:50 PM: Closing Remarks 

Speakers: Kristophe Diaz, PhD and Jessica Shurer, MSW, LCSW 

 3:50 – 4:45 PM: Snacks & Mingle 

Philadelphia staples will be served, including TastyKakes, cheesesteak spring rolls, Philly soft pretzels, soft drinks, water, & coffee/tea. 

*Agenda subject to change. 

register donate

Registe

Dec
9
Fri
2022 CurePSP Virtual Fall Family Conference Day 1 @ Virtual Event
Dec 9 @ 11:30 am – 4:00 pm

Join CurePSP for the 2022 Virtual Fall Family Conference! 

CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of community. We recognize that these diseases present daily challenges for patients and families. 

This year’s CurePSP Virtual Fall Family Conference will consist of pre-recorded sessions from our Philadelphia Fall Family Conference and live Q&A sessions.  The event will be split into two parts. The first part will be shown on Friday, December 9th, and the second will be shown on Friday, December 16th. 

We partnered with Penn Medicine to provide informative presentations on multidisciplinary care, physical therapy, research updates, social work, palliative care, and more.  

All sessions will be recorded and posted on our YouTube after the event.  

Registration is free of charge. 

 

AGENDA* (IN EASTERN TIME) 

Day One: Friday, December 9, 2022 

11:30 AM – 12:00 PM: Optional Mix & Mingle 

Mix & mingle with other attendees before the event begins at 12:00 PM ET!


12:00 PM – 12:10 PM: Welcome & Opening Remarks 

Speaker: Kristophe Diaz, PhD


12:10 PM – 12:55 PM: Research Updates 

Pre-recorded presentation from the Philadelphia Conference + live Q&A session. 

Speaker: David Irwin, MD


12:55 PM – 1:40 PM: Physical Therapy 

Pre-recorded presentation from the Philadelphia Conference + live Q&A session. 

Speaker: Heather Cianci, PT, MS, GCS


1:40 PM – 2:10 PM: Break


2:10 PM – 2:55 PM: Overview of Multidisciplinary Care 

Pre-recorded presentation from the Philadelphia Conference + live Q&A session. 

Speaker: Andres F. Deik, MD


2:55 PM – 3:40 PM: Multidisciplinary Care Panel 

Pre-recorded panel discussion from the Philadelphia Conference. 

Speakers: Andres F. Deik, MD, Heather Cianci, PT, MS, GCS, and David Irwin, MD


3:40 PM – 3:50 PM: Closing Remarks 

Speaker: Jessica Shurer, MSW, LCSW 

*Agenda subject to change. 

 

 We hope you can join us!  For any questions, please email events@curepsp.org

register  donate

Dec
16
Fri
2022 CurePSP Virtual Fall Family Conference Day 2 @ Virtual Event
Dec 16 @ 11:30 am – 4:00 pm

Join CurePSP for the 2022 Virtual Fall Family Conference! 

CurePSP sponsors and organizes family conferences among its various educational activities, allowing people to learn more about PSP, CBD, and MSA and develop a sense of community. We recognize that these diseases present daily challenges for patients and families. 

This year’s CurePSP Virtual Fall Family Conference will consist of pre-recorded sessions from our Philadelphia Fall Family Conference and live Q&A sessions.  The event will be split into two parts. The first part will be shown on Friday, December 9th, and the second will be shown on Friday, December 16th. 

We partnered with Penn Medicine to provide informative presentations on multidisciplinary care, physical therapy, research updates, social work, palliative care, and more.  

All sessions will be recorded and posted on our YouTube after the event.  

Registration is free of charge. 

 

AGENDA* (IN EASTERN TIME) 

 Day Two: Friday, December 16, 2022 

 11:30 AM – 12:00 PM: Optional Mix & Mingle 

Mix & mingle with other attendees before the event begins at 12:00 PM ET! 

 12:00 PM – 12:10 PM: Welcome & Opening Remarks 

Speaker: Kristophe Diaz, PhD 

 12:10 PM – 12:55 PM: Social Work 

Pre-recorded presentation from the Philadelphia Conference + live Q&A session. 

Speaker: Lauren Zelouf, MSW, LCSW 

 12:55 PM – 1:40 PM: Palliative Care 

Pre-recorded presentation from the Philadelphia Conference + live Q&A session. 

Speaker: Matthew Mendlik, MD, PhD 

1:40 PM – 2:10 PM: Break  

2:10 PM – 2:55 PM: Panel Disccussion 

Pre-recorded panel discussion from the Philadelphia Conference. 

2:55 PM – 3:05 PM: Closing Remarks 

Speaker: Jessica Shurer, MSW, LCSW 

*Agenda subject to change. 

 We hope you can join us!  For any questions, please email events@curepsp.org 

Register  donate

 

Mar
18
Sat
The 20th Annual CurePSP Awareness and Memorial Walk @ Mackle Park, Marco Island, Florida
Mar 18 @ 10:30 am


Save the Date for the 20th Anniversary of the CurePSP Awareness and Memorial Walk!

The CurePSP Awareness and memorial walk is sponsored by The SW Florida Support Group (for all affected by PSP, CBD, and MSA). The purpose of the CurePSP Awareness & Memorial Walk is to honor those that have passed from these diseases, support those living with them now, raise awareness, educate the public, raise money to help find a cure, and let people know about our support group in Naples.

Our group is proud of the success of our walks over the years and is grateful to the public for their support. We have people coming from across the country and some from other countries. Everyone has fun on the walks. There will be food, entertainment, a silent auction, and chances to win great prizes! For those that have never attended one of our walks, you won’t want to miss this one!

Our 20th Annual CurePSP Awareness and Memorial Walk will be held on Saturday, March 18th, 2022, at Mackle Park, Marco Island, Florida.