One of the CurePSP community has written this beautiful article on the intricacies of finding love again. Article by Joanna McFarland Owusu. Posted on Bluntmoms.com, Dec. 2016 With Christmas almost upon us, I find myself ruminating on a moment last October at the State Fair of Texas, of all places. Every year we make an …
Abby Sayre has started a fundraiser on behalf of her grandmother, Mary Kay Withrow. Mary Kay was diagnosed with Corticobasal Degeneration (CBD). CBD is a neurodegenerative disease that has no known cause, treatment or cure. It affects nerve cells that control walking, balance, mobility, vision, speech and swallowing. She required assistance in every area of her …
It is official! The 21st Century Cures Act has been signed into law by President Barack Obama. “We’re tackling cancer, brain disease, substance abuse disorders and more, and none of this work would have been possible without bipartisan cooperation,” Obama said during a signing ceremony at the White House.
NINDS/NIH/NIA Funding Opportunity Announcement to support the genetic discovery in PSP, CBD, and related disorders. There will be a pre-application informational webinar on December 20, 2016 from 11:00-1:00 pm EDT. The webinar will provide a brief introduction to the FOA, and highlight key components and requirements of the different phases of this grant mechanism. …
CurePSP donor funds two innovative studies of PSP Nesbitt grant supports research into both care and cure New York, NY (November 16, 2016) — CurePSP, the leading nonprofit advocacy organization focused on prime of life neurodegenerative diseases, has received a donation from the Nesbitt Charitable Fund, Houston, Texas, of $200,000 to fund two research …
Ask a Doctor: Dr. Brent Bluett on PSP by Sylvia Rupani-Smith Very few patients with a rare brain disease such as Progressive Supranuclear Palsy, or PSP, have the liberty of choosing a doctor. It’s hard to find a doctor who even knows what the condition is, much less find a specialist for it. When you …
2016 CurePSP International Research Symposium October 27, Jersey City, NJ — Starting with a networking session on the evening of Thursday, October 27, and following with a full day of speakers on Friday the 28th, the 2016 International Research Symposium has surpassed all expectations. A record 148 registrants, with some coming from countries as …
In honor of Women and Prime of Life Brain Disease Research, CurePSP recently brought together the most eminent investigators and accomplished women to discuss the latest developments in neurodegenerative research. Moderated by Tal Nuriel PhD, the lunch took place in New York and saw presentations from Alison Goate, PhD, Mo Liu, PhD, Sally Temple, PhD, …
We are very happy to announce our first support group in New York! Our New York Support Group Leader Training sessions in August were a great success, and we can happily announce the following support group for PSP patients and carepartners, in Manhattan, NY. The support group meeting will be held; October 11th, at …
Originally printed in The Timberjay. By Jodi Summit. Growing up on a small family farm outside of Minneapolis, Kathryn Leigh Scott loved to write and put on plays, often casting her little brother, Orlyn Kringstad of Tower, in roles that required him to don wedding dresses. The children, Orlyn explained while introducing his sister to …
UPenn-Led Consortium Awarded $10.8M NIH Grant to Study Genomics of Alzheimer’s Disease Jun 24, 2016 |a GenomeWeb staff reporter NEW YORK (GenomeWeb) – The Perelman School of Medicine at the University of Pennsylvania announced today that it has received a grant from the National Institutes of Health’s National Institute on Aging to establish …
Friedman family has committed up to $600,000 New York, NY (June 29, 2016) — CurePSP, the leading nonprofit advocacy organization focused on prime of life neurodegenerative diseases, today announced a matching grant challenge of up to $600,000 from the Friedman family to accelerate genetics research. An initial contribution of $250,000 toward this goal has been …
Leading worldwide music tour benefits neurodegeneration causes New York, NY (August 17, 2016) — CurePSP, the leading nonprofit advocacy organization focused on prime of life neurodegenerative diseases, has received a matching grant of $80,000 from the Light Of Day Foundation that will help to fund the foundation’s programs in patient and family care, education …
On Saturday July 30th the Jennings and Kroemer families hosted the 11th annual Putt For PSP, in Syracuse Indiana. The day was a huge success, and CurePSP’s very own Director of Events Jaclyn Zendrian attended. “I want to go again next year,” said Jaclyn, ‘everyone was really nice and the location was spectacular.” The money …