The latest CurePSP Connection newsletter gives an update from Dr. Kristophe Diaz on the allocation of your funds, a Q&A with Centers of Care Director Jessica Shurer, the latest on tau research from Dr. Rik van der Kant, reflections from Sanjay Geevarghese, a teenage carepartner, as well as a poem on gratitude from Diane Deaver, a resilient PSP patient.
Gratitude and PSP
Progressive Supranuclear Palsy
The doctor said to me
It’s a rare disease; it’s also known
By its nickname PSP.
You may have trouble walking
You may sometimes even fall
If you do, you may fall backward
You may bump against a wall.
You may suffer some confusion
By forgetting many things
You may feel you’re disappearing
By the sadness that it brings.
It may affect your vision
Changing how well you can see
Your hands may feel real shaky
When you hold a cup of tea.
You may find it hard to swallow
When your tongue gets in the way
You may feel some deep frustration
With your symptoms every day.
But life can still be meaningful
Life can still be sweet
Feel joy where you can find it
Embrace life now, don’t retreat.
Diane Deaver, The PSP Poet